Stay with us man♥️♥️ I know it's easy for me to say this as I don't have this disease and not in pain, but I'm crying for you man. I hope you are ok♥️😢
Please don't take a fresh garlic and Just make paste and mix with olive oil put in ear on scalp and you Will sleep like a baby. I just applied baking soda with lemon and its working.apply amla oil With cinnamon oil.
I'm having my 4th operation in 4 years this Monday... I've exhausted a lot of meds in the meantime... My episodes take up to 30 min... Not that I well, but suicide starts to sound appealing. If you don't have it, count your stars, lucky and unlucky. I'm only 45 years old btw
Did the same thing I did!! Unbelievable!! I ALSO had teeth removed that I believed were causing the pain. All dentists should know about this condition. It was a dentist who finally referred me to a neurologist.
I haven't got this disease. I found out about it by just researching on most intense pain a human is able to feel and this disease came up. I really hope I don't get this disease. Anyone who has it must be the strongest people in the world.
I'm not a suicidal person but this pain is unbearable. I almost took the whole bottle of carbamazepine. It doesn't work anymore. I'm trying to hold on for my 1 year old but it's hard. Feels like electrical shocks and my right side of my face feel like it's melting. Update: I had microvascular decompression surgery on February 8th. I've been pain free so far. I did have the sensation go through ky face but there wasn't any pain. J can just feel it happening. My tongue is numb. I have some numbing pain and soreness but I'd rather this than the pain. I was deaf in my right ear for nearly a month so my equilibrium was off and I had to use a cane. I'm at about 90% now. 🙌
I’ve had it since I was 16,,No dr or dentist knew what I was talking about..62 now still suffering,, both sides have been shocking me last 3 days getting stronger 🤯😭
You MUST get the surgery! It's called endoscopic microvascular decompression. I had it over a year ago on January 17th and haven't had ANY PAIN SINCE!!
I can so relate .. too painful to scream sometimes just hanging on to furniture crying saying why won’t this pain go away why why why cry cry cry want to die but when it’s gone you think .. ok .glads that’s over .
Thank you. I've been suffering with trigeminal damage for 25 years. People don't understand that it comes and goes although money never goes away long... wishing you the best
I've gone to doctors for years now and shared that it felt like someone trying to pull out all my teeth with strings attached to a pickup truck. I was pointed to my dentist, to my orthodontist, to a dental surgeon- all over with no answers until my gastroenterologist said it might be this. I am sad that so many are living with this pain but it helps to finally have people who understand.
Mine started in 1995 when I was 39 yrs old. Mine started like a bad toothache but dentist diagnosed TN and send me to a neurologist. Then the lightning shocks began and became more frequent to the point of a few an hr. I was working but it was making it near impossible. After many months of trying and in the end failing every med combo known including tegretol which became toxic to me in 3 mths, the glycerin injections etc which didn’t help and still the pain I opted for microvascular decompression. It was a God send and I got my life back. 13 yrs later the monster camping knocking on my door again. I refused to believe it Dentist confirmed, neuro confirmed. We threw every drug and combo at it because by this date I knew that other invasive procedures may make it difficult for other future procedures (nerve damage etc). 14 mths later 2nd MVD. All was well until the nerves work up 7 weeks later. I now have anesthesia Dolorosa (which made my TN feel like a cake walk in comparison it’s severe and 24/7 and life altering and I cannot work) because I’m one of the 1%. Only telling others because...don’t think it can’t happen to you. Weigh the risks carefully.
I have been experiencing similar, milder symptoms until today, where I'd equate the feeling to jamming a hot nail in between my upper and lower molars on my left side. My docs are thinking it may be the same thing. It brought me to tears and made me physically ill when the pain would occur. The attacks would last 3-5 minutes, with an onset of 20 seconds or so. Then I'd get 10-15 minutes of relief and the process would start all over.
Sometimes I have to concentrate so hard not to cry from the pain as it will only make it worse. I don’t brush my hair for weeks. Teeth hurt, jaw hurts, headache, pain behind the eye and in my temple and I can’t get any sleep - I would fall asleep for a second and get shook awake from the sharp stabbing in my ear. Only thing soothing me a little bit it is putting a hairdryer directly facing my ear canal - and even that only works for the first day. It’s honestly like having painful mini seizures because the whole right side of my face contracts and I can’t help it.
It took three years for me to get diagnosed and they pulled five teeth then told me it was cysts, then it was psychological and tried referring me to a shrink! I spent thousands and multiple dentists and trips to the ER, it even got to the point where my dentist refused to see me., it was embarrassing, i even contemplated suicide it was that bad until someone listened to me! It ruined my life 😪
My mom had this disease and she keeps on crying because its too painful and hard to handle She cant even eat properly. She cant even move her head because its too paniful. Can someone recommend me some medicine ? Cause I think what she is taking is not enough. And as a child I cant take it anymore seeing my mom in so much pain.
I don't know anything about this, but maybe look into CBD oil. Search up "Joe Rogan Travis has disease" here on RU-vid. Travis Scott states that CBD oil helps with the pain. Hope this helps.
I was diagnosed a week ago and was suffering from this two weeks before not know what it was until it made me have chest pains I tried there medication it didn't work so my husband gave me CBD oil and also bought me the coffee and the CBD for life rub and I warm it up in the microwave and put on a warm towel and the pain goes away
Find a reputable neurosurgeon and research Microvascular Decomposition. It’s not as scary as it looks. When I had my first one, the was an 80 year old woman who had it done the same day and she was discharged in two days post op. I was there for five days.. I was 31. Please help your mum.
Plz start mini dose of tegritol can be increased 800mg daily divided doses THEN combination of phenytoin or ONLY phenetoin just my opinion but not for anybody's treatment. Consult experience dental practitioner or neurologists to differentiate dental or facial pain.
First of all I've been basically cured for years. I've had bad toothaches and TG is MUCH worse. It's like getting severe electric shocks inside your face. I was at Full strength of gabapentin and oxcarbazepine was still getting seizures so I had cyber knife and that stopped the seizures, but it left the right side of my face feeling semi numb, this was a HUGE improvement over the pain and I don't regret doing it at all. It's been 8 years and I started having some slight tinkling but no pain so my Dr. Put me on a low dose of oxcarbazepine and I've haven't had ANY pain since, and that's been almost a year ago. I chose cyber knife over surgery because I didn't like the idea of having a hole drilled in my skull. I hope this helps someone as this is truly the worse pain to get.
I suffer from Multiple Sclerosis have had it for 7 years, I have trigeminal neuralgia most of the time, to start with it affected my lower jaw but recently its started nipping at the cartilage of my ear which feels quite a lot like me sticking a bbq skewer into my head, through my ear. It's very painful, happens most nights, just have to get used to it, I'll have it forever! 😍
@@grace4uinhim425 I came down about the same time with lung cancer. Had to have the lower left lobe removed via surgery. It was a "walk-in-the-park" compared to TN! TN is rough!
TN pain is much worst than a bad toothache. This lady got of easy. The pain is excruciating, like electrical shocks that are so painfull you think you will go crazy. God bless all those suffering with this horrible affliction. It is no wonder it is called the suicide disease. Many have taken their own lives due to the horrific pain. 😥🇨🇦😢
Many people find relief like I did from upper cervical care I recommend getting your neck checked out to see if it's a misalignment impinging on the brain stem. Check out James Tomasi he has some good videos about it.
For anyone suffering this, your neck needs to be assessed by an osteopath or chiropractor because the neck can be involved. Cbd oil or medical marijuana can help specifically with nerve pain. Check for untreated infections of the ear too if the pain involves the ear.
that is my pain on my right side, when i had it on the left side it was burning pain, there must be a group for this disease, and a doctor who can help
There is a Facebook support group that has been REALLY helpful to me, more so than most of the doctors I have seen. Also, you need to see a neurologist for this. Many other doctors do not know anything about this horrible disease. Many general practitioners & family doctors have no clue how to treat this, in some cases they don't even know what it is. Advocate for yourself because nobody else will. Hang in there!
I have the exact same pain as you. Burning on the left and and tooth ach pain on the right. The thing is ive had all my teeth pulled. So i know its not that.
@@kingspider1000 Already told you I don't believe in God. I'm just grateful that my blood vessel formation doesn't put pressure on my trigeminal nerve, that's all
@@SubcribeMinecraftNOW you cant express your gladness unless you direct gratitude to an active principle. Your expression wouldn't be meaningful otherwise. Think about it
I’m so sorry you have this. I’d love to hear a more recent update. How are you doing? I was diagnosed in April. I had been to several dentists and was scheduled for a root canal. I went to the ER and the doctor there diagnosed it immediately. I’ve gotten relief from medication. Thanks for sharing your experience.
It can be absolute hell. Luckily, mine flares up infrequently enough that I've never sought surgical solutions. Mine is unilateral on the left side. I've always described it to others as a brain-freeze on my left side that lasts for hours.
I’ve been feeling this pain for about 8-9 years now. Been to many doctors for many reasons but they never seemed to find out what’s wrong. Today I did some more research and read about this. Described everything I’ve been feeling! But does anyone else experience swollen and painful eye? Or eyelid? My pain is on the right side. And it constantly feels like my right eye is trying to shut but my eyebrow is trying to pull it up. Constant tugging between the two and it is so painful. I’ve lost self confidence ever since this because my face doesn’t look or feel normal. Any recommendations for doctors to see in Arizona?
Bo Senamuen its could be related to sympathetic maintined pain if the eye swelling on the other side of the face , read about it and it relation to trigminal neuralgia and consult your doctor , i hope you get better .
@@blacksoul1519 Hi Balck soul. I suffer so much. 6 years. Trigiminal neuralgia. BOTH my eyes swelled 8 months ago. So painful. Many Dr's but no one seems to either care or have enough knowledge to link the eye swelling to my facial pain. Can you talk to me about your comment about sympathetic pain , eye swelling..and the association to trigiminal neuralgia.
I'm no neurologist, but you may not have TN at all. You might have SUNCT (Short-lasting Unilateral Neuralgiform headache attacks with Conjunctival injection and Tearing) instead. Look it up on Wikipedia. It's quite a rare problem, with only about 200 cases reported worldwide.
feels like someone is tapping an ice pick into my ear ..,. I’ve had it for 15 years … led to a diagnosis of M.S. … taking gaba, tegretol, and an anti anxiety med helps me…. also electric stim, acupuncture, cranial sacral massage, and heat. 🤕
Yes, mine starts in the ear and spreads to my face, neck. I can't move my left arm without pain. Does yours start with ear inflammation like a scratch or other?
@@vanessac1965 yes it feels like a possible ear infection or TMJ.since I take tegretol and an anti anxiety, I really have it under control until I get an m.s. inflammation/ exaserbation . Tried ketamine. It was great!! I’d recommend it if you can afford $300-500 for use in a medical setting.
@@sandraazqueriz4102 MRI, Spinal fluid, extreme fatigue, hyper reflexivity when knee and elbows are tapped, balance, facial paralysis for me. Go to a neurologist asap if you’re concerned as the sooner you begin a treatment the better your long term outcome. 👍
thanks for the video, i got this started on january 2nd, i am at the point where my meds wear off and the pain sets in before i can take the next dose of painkillers, its my own piece of hell
Mine goes back from forehead to back. It feels like an pressure ,absess that wants to explode. I have CRPS on top of this and nothing works. I have the CRPS so if I laugh cry goosebumps I’m in agony. It’s hell,both are nerve disorders.
Its extreme non stop nerve pain shooting all over your face. I have had it mildly and I thought I was going to die. I am so very lucky it stopped by itself but I cant even imagine going through more then a day of this. I would beg to be knocked out if I had this. You just cant function with pain like that.
Mine comes and goes. Today it came and wont leave. I pray yours stays away. But I thought after the MRI and it being good. The pain stopped for a while then came back with a vengeance. Its so painful and debelating.
My dentist thinks I have this as I too thought it was a serious tooth pain and yes it is extremely painful and uncomfortable. I’m on pain drugs every single day and sleeping is impossible without them. What procedure is the lady saying she had to fix it?
Did you have dental work prior before getting this pain? I recently had 4flings done one really deep cavity. and now this pain has started. I’m only in my 30s. Looking for answers.
I'm so very sorry to hear about your pain through this excruciating devastating Beast that was sucking her life away. Our dentist gave her several about 30 injections and told her to eat before the pain would come back. He said to call him when the pain started back up and meet him at his clinic! about 30 minutes he would repeat 30 injections of Novacane. The doctor said to find a specialist in Salt Lake City, Utah. Our after 2 1/2 miles from our place. This Doctor said she needed to see a doctor who was the best to see and. We took her to Pittsburgh who can pioneered these surgery. was in Pittsburgh. That doctor e found a Cra Nerve.
Called him we were on our way. This doctor, Peter Janeta said he'd do the surgery the next morning. He said it was very difficult because she had 5 nerves that were stretched and were touching a vain or something to trigger them off.. he did a Microvascular De
Decompression. Thank God! The next morning our daughter could feel pain. There were 5 doctors and said to take her back to her room. They decided it would best to monitor gave her for us to stay in a beauty home they are the another week brought her in and was going down the aisle and
I got a lot of teeth pulled out as well I thought it was because my teeth were bad but I thank God that he is a healer in Jesus name.. We can still make it.. If anyone needs prayer please find me on facebook and ig alexisjesusbaby
Thankyou for letting us know what you went through. I had 2 teeth removed (pointless) due to the pain. I am keen to ask how many people have underlying HEART conditions or high blood pressure etc. Trigeminal Cardiac Neuralgia.
I have very similar pain it moves from what feels like jaw or lymph nodes to forehead to back of head and all over and they tell me it’s anxiety but don’t want to give me mri and I don’t want anxiety medicine because I don’t feel I have anxiety
Sometimes i feel like plucking my tooth out other times i just sit & cry. The pain medications don't work sometimes. I hate it taking control over my life like this
I suffer from trigemenal neuralgia and I had a terrible flare starting the night before last I went to dignity health hospital in laveen n treated by the quack Jason Daniel’s MD and always had a cocktail of toradol, zofran, and morphine to treat my flare when it’s this bad when asked what helps I told the er dr the cocktail n was told immediately I’m not giving you any narcotics n I was told I am an addict but I took the toradol n zofran which I prayed would help it didn’t I am now at another hospital and I’m here for a minimum of 3 days and I’m being treated with my tegretol, the cocktail when requested, hot packs by my request, and steroids bc the flare is that bad but I’m an addict lol let him tell it n he was trying to treat me for migraines not trigemenal neuralgia smmfh I feel this is medical neglect or malpractice either way I wouldn’t be getting treated at another hospital had he treated me with respect n treated my initial medical emergency not what he thought I had smmfh
Wait me too. Haven't been diagnosed but these stories are all too familiar. It's been 2 weeks now and I am going insane. Doesn't help I'm in grad school while this is happening. Have any of you had success stories yet with reduce pain?
I had an orthodontist stab me with a needle in the trigeminal nerve on purpose during the time he was taking my braces off. He did this because I reported him for saying he hates the police. Now I'm living with head and teeth pains. Will the pain ever go away?
Top of head like forehead or really top of your head, if it’s really top of your head research occipital neuralgia. I say this because I have both and the trigeminal nerves don’t run on the top of your head. They are mostly just your face. Occipital is the top and back of your head. I have seen so many neurologist and many don’t understand either. I live in the birthplace of the MVD for TN and even here most don’t seem to know anything. I had to learn most things from others in support groups
I get the top of the head pain too, as well as the face pain. Mine gets worse when I haven’t slept well and I’ve noticed it also comes in strong when I’m a little “stressed” - just normal problem solving thoughts to anyone else
Please tell me what was your problem I'm confuse btween trigminal nelogia and occipital nelogia mine started on top of my head from right side and at first senstive to the top of my head and pain on back of my head and pain round my eye somtime feels like inside my eye now all change I have back gum pain somtime eye pain my right side on top of my ear feels like somone screw it with screwdriver some often I get little stabing pain on my back of the head on lawer part please tell me if you found what's wrong with you
@@jasmineward9094 same here and I hate it so much. I’m currently dealing with this pain right now and it’s unbearable. It started sometime last year for me and has been going on ever since then. I don’t know what to do anymore, but I’ll take advice from people in the comments for now. I hope you’re doing okay also 🙏
My foster mom is sewing with this now. And it’s to the point she can’t talk. Any suggestions??? Please. She’s already been in and out of the hospital and been prescribed a bunch of different medications but nothing is helping her and it’s getting worse
I am sorry to hear that it's a horrible pain 😥 I went to see a neurologist ,but I kinda knew what I had thanks to my husband(: I told him all my symptoms and he did the search online !! & my hubby was right , the neurologist told us that I have trigeminal neuralgia ):so he prescribed me APTIOM & GABAPENTIN after an MRI ,for the moment the pills are helping me, until I decide if I want to go for the Gamma Knife or Microvascular Decompression (an incision behind the ear)good luck ❤☺
Has anyone ever had bleeding or feeling like a root infection above the tooth? I have been diagnosed with TN, but didn't expect to have blood coming out around my tooth with pain
That sounds like an actual tooth infection to me. TN would not cause that. Google for a dentist that does a cone beam scan. It's a kind of scan that can see if it's the tooth. Even if you have TN, you could also have a separate tooth problem. Good luck.
I have trigminal neroulgia it’s not nice at all I accidentally overdosed on painkillers I rang up nhs I told them how meny painkillers I been takeing I was told to take no more as over toxicated myself the pain so bad giving birth to 10 baby’s would be better then having this
Is it possible to get this or symptoms of this from dental work. I recently got dental work done...to where anesthesia had to be administered but nothing too drastic. Just some teeth extractions and amalgams. After that is when I noticed slight jaw pain on my left side. I figured it was just my mouth recovering. Well...the left side of my jaw continues to hurt and shoots to my left ear. I get what feels like a strong ringing in my ear and jaw pain. My pain is not nearly as bad as others who have commented...but it still hurts. It happens mostly in the evening and my teeth seem very sensitive to cold food/drinks. As of this moment 2 Tylenols will take pain away...and sometimes I put an ice pack on my jaw. Just wondering what has happened to me because I have never before experienced this pain.
If it's recent, I wouldn't worry yet, but do mention it to your doctor. I was diagnosed with unilateral trigeminal neuralgia after an unnecessary upper wisdom tooth extraction for which they had to cut pretty far into the tissue to even reach the tooth, and apparently affected the nerve. The pain kept flaring up weeks and months later and feels like an hours-long brain-freeze whenever it happens. OTC Pain meds won't even touch it, but I'm not willing to keep narcotics around. The only occasional relief I can find when it happens is applying hard, direct pressure to the outer edge of my eye socket. Basically, putting enough pressure on the same nerve that it starts to deaden the pain a bit. I hope yours resolves and isn't ongoing!
Actually I had ALL of MY TEETH OUT!!!!!!!!!!!!!!!!!!!!!!!!!!! BECAUSE as this Lovely Hispanic Lady who reminds me of my Mother with Iberian Ancestry said, "The Pain Didn't Go Away after I had 3 Teeth Out". For me, After 5 consecutive Dental Infections (or so I thought) THE FIFTH was So Horrific that I had the remaining 19 Teeth out in the Chair to manage the Risks to my Damaged neck via the Biomechanical Forces. It was BIBLICAL. More recently with me Acquiring knowledge & a couple of specialists alluding to a Lesion in my Pons causing TRIGEMINAL Nerve Root Pain. I feel aggrieved that I couldn't have a PROPER NEUROLOGICAL DIAGNOSIS before that . Because my children are EMBARRASSED to be with me & NOW im getting ICE PICK Headaches which i believe are derived from the same THING. In my PONS. If id had a Gun during that Fifth Tooth. I WOULD HAVE BEEN ANOTHER Gruesome STATISTIC OF The Suicide Disease.
Footnote: And Eternal Shame on the Doctors Who knew I was Tortured THUS & have Bystood with Mindful Complicity as I have suffered. ALL IT TAKES FOR EVIL TO PROSPER..
I experienced transient facial paralysis after dental appt, which went away in few hours of anesthesia becoming inactive. Now, I get very mild pain centered around ear, tingling a little to the jaw, sometime right temple. Do I have trigeminal neuralgia?
My symptoms were like being plugged into the mains, never had pain like it. The medication I was given was a barbiturate for epilepsy. After taking it for about a week, I made a suicide attempt. A side effect of the meds apparently.
Please someone tell me if I have this or occipital nelogia I'm confuse here is my story how started I start getting headiche on top of my head on right side senstive on top of my head all the nerves was hurting on back of my head and right side I had pain all round the eye evrything was senstive on right side I couldn't touch it it was hurting I was so bad it was about to kill me 🤔now everything change I feel like somone screw my brain with screwdriver some time I get eye pain I have pain on my back gum my back teeth was senstive I took the teeth out still my gum hurts little often I get pain on back of my head on lower part when I lay down on my left side I feel preasure and pain on right side of my head doctor dont help me please someone tell me witch one is it
Im right with you. I at first thought i had an aneurysm then a tumor. I got an MRI and it was clean. Then i googled and occipital neuralgia popped up. But I was talking to my pharmacists and she said she thinks its this. Im having the most awful flare up I ever had to date right now. Its absolutely terrible. It wont stop. I pray you arw feeling better.
If it's a virus it's difficult to treat like Herpes for some people relief with b12 and most of people get relief from having a pricing in middle of ear.
