A cholesteatoma is a growth in the eardrum. Over time, it can cause damage to the eardrum or the hearing bones. Call Arizona Hearing Center at 602-307-9919 to schedule a hearing test.
Just had my surgery to remove this two weeks ago, was born with it. I had it addressed 20 years later because the only symptom I had was mild hearing loss that only really had complications in my later teens. They had to perform a cranioctomy to preserve what was left undamaged in the middle ear. Unfortunately my balance canals and ossicles had to be removed as they were either destroyed or already heavily damaged. Fortunately the neuro team was able to persevere all the nerves in the area so implants are possible in the future to restore hearing and my opposite side balance canals will be able to compensate for the loss. Thank you modern medicine and health care professional for doing what they can.
I had both ears with choles. Got surgery 2 years ago...permanent deaf on right and left side hears ok. Right side as u can see in the vid, all my bones, canals, drums, balance bones were removed since it wasnt treated when i was a kid. Can't play sports because of dizzyness when moving fast. Life's changed and sad but gotta keep living a normal life.
I wish you were my doctor. I was just informed yesterday that I have this and need surgery. No explanation and I was shuffled out the door. Thank you for this video.
I have just gotten the report from my CT scan, but haven’t talked to the doctor yet. I do have this condition in my left ear. Your video is so very informative and appreciated!! thank you so much for this clear information!!
Straight to the point, with excellent detail and information. I've got one of these and am concerned, but this has reassured me somewhat. Many thanks :)
I had six separate surgeries for this from 3 years old to 12-13. Really cool to look back at 22 and actually learn about it since I never cared to know much as a kid. I have pretty brutal hearing loss in my right ear from the surgeries and everything and of course with my luck my left ear also has lost hearing as I've gotten older. its a struggle to this day but I'm just thankful for the healthcare professionals that took care of me and prevented me from living with even worse hearing loss.
Yo man I feel you I just had my 3rd surgery for this evil patch of skin. I’m about to go into my 4th surgery in a few weeks here and I’m glad I found someone that has the same issue as me.
Thank you Doctor for going into detail about the surgery. I'm getting an MRI done tonight because the CT scan I had a few months ago showed that I have a Cholesteatoma. At least I have a better idea now if my ENT does surgery. Hi from Canada 🇨🇦
Thank you for this VERY good explanation. I'm getting this done in 9 days. I'm 68 years old and this will be my very first operation except the tonsillectomy I had as a young child.
This video was so informative, thank you so much! I've been referred to ENT for a possible cholesteatoma so I've been researching since to be prepared, this explained so much that I haven't seen anywhere else!
@CS - 06DM - Homelands Sr PS (1323) yeah I understand. I had surgery last week. I feel much better. But I have a loud ringing. I hope you have the best of luck.
I had this surgery back in March 2020 (By the NHS) I had to have 2 of my hearing bones removed as they were fully infected and couldn't be saved.. it wasn't as painful as I was expecting and I recovered. Unfortunately I have got to have this operation again on the 28th March 2022 but this time its a worse operation! Who knows why? Anyways this video was really informative!
I have had this treatment 6 days ago {May 17th 2018) by the NHS in England. I was a day patient and the packing and covering bandage came off the first night i was home, since then i have had a discharge from my ear constantly that smells of TCP. I have had no pain just slight dizziness since the op. Keep on taking paracetamol and Ibubrofen every 4 hours helps. i am very deaf in my right ear at the moment but hopefully it will correct itself. good luck
Thanks for the informative video! I did the surgery for this 15 years ago, and thought I was done with for good! However, Today, I was diagnosed with it, as well as hearing loss, and it’s been very emotional roller coaster for me especially this happened in not very good time! This video helped to ease my pain! Edit: I got scheduled for the surgery for October 2021! (Pray for me please) I was also told, I might need another surgery for the hearing loss restoration after the first surgery!! Will keep editing this comment as I go through the process! Another Edit: Had my surgery done this past Monday, it took 6 hours in the operating room, more than expected! It went well, but I am still under the side effects! Now I have temporarily hearing loss which should come back to normal gradually based on my doctor explanation! The final results should take between 6 months to 1 year. Not sure if it’s all the same for other people, but this surgery is definitely not an easy one for sure! It’s almost 5 days on the surgery but I still can’t perform my normal daily routine yet!
@Funday Media Had my surgery done this past Monday, it took 6 hours in the operating room, more than expected! It went well, but I am still under the side effects! Now I have temporarily hearing loss which should come back to normal gradually based on my doctor explanation! Not sure if it’s all the same for other people, but this surgery is definitely not an easy one for sure! It’s almost 5 days on the surgery but I still can’t perform my normal daily routine yet!
It definiatly affects your day to day life and its a very hard thing to deal with I'm 26 and I go for my 3rd surgery tm and it's supposed to be a wall down this time. Hopefully third time is the last time it's been 2 years I've been dealing with it. How are you feeling now?
@@mcclung_blab4128 I hope your surgery goes well and wishing you a speedy recovery soon! I am doing better but I got frequent wringing in my left ear (the one I had the surgery on). It should be temporary until 6 months to one year after the surgery based on my doctor! My doctor said we need to monitor it therefore he’s been requiring monthly visits until we mark one year! Also, keep in mind this might come or grow back if there’s anything leftover inside it!! Also, just for your information, if you plan to travel anytime after the surgery, make sure you let your doctor know! Since we are in a holiday season, my doctor stressed enough to see him before boarding any airplane or even a recreational rides like Roller Coasters, etc!! His main concern was not to cause any pressure on the eardrum or the middle ear!! So make sure you notify your doctor until you mark one year!
I'm from Brazil, I'm 49 years old, I've had 3 surgeries on my right ear. Two in 2005 and one in 2007. None solved my problem, I underwent palliative treatment for 16 years, now I have a lot of pain, dizziness, a putrid stink in my ear. This illness is a sadness, Good luck to those who have the same pain as me.
I am very thankful for this video. Very good explanation for this operation. Just have one question for people who already have this operation. Is it very painful after the operation? I’m going to this operation very soon. Thank you for your answers.
Hello! 9 months ago. I went to have my ears looked at. As I felt there was such a suble difference in my hearing of my right ear. Only noticed it at night. The difference is something most people I feel would not even notice. The difference was the sharpness of higher frequency sounds I feel. But I would say just clarity and sharpness. Like you guess need to turn a knob on a sound system less than a mm to improve the integrity of sound. So I had my ear irrigated. Olive oil in the ear before. Then I noticed my ear have problems Id never experienced before. As if it was sticking and un sitcking in side. I would tilt my head to the side and hearing would improve etc I then had it looked at by Gp and told water behind the ear drum and the nurse couldnt see my ear drum as there is some skin there. SO did this cause my cyst that is deep inside my ear canal that will need surgery?? or was there a prob and the irrigation has exacerbated it? or coinsidental?? Doctors did consider grommets when I was a child due to me having so many colds and I had swimmers ear when I was 15. I am now 40. SO the big question is, is the cyst a Cholesteatoma??????? or can it be another type of cyst as i think at my ENT app he said he tried to remove it but to deep.... and I do have a prob with my estuation tube. Oh and the Gp 9 months ago said my ear drum looked a little stretched, possibly due to an ear infection in the past.
I had mastoidectomy and they took occicles I guess it's canal wall down because of cholesteatoma Please could you tell me ... Am I completely deaf now? The choclear is working good no problem with it . I had perfect hearing before surgery and they said I'll probably be deaf .. I don't want an metal implant if they suggest it ...from your experience can they put artificial bone in my ear to connect tympanic menbrene to the choclear ??? I'm so scared that I will not be able to hear if the occicles gone ...and it's affecting my mind ..so I was thinking if they can put artificial bone in there to help hearing ?? I had surgery today Thank you for your time
Explained very well. I feel I might need this procedure done down the line. Ear infections all the time now and antibiotics are not clearing them up quickly enough
Sir my daughter she is now 3.6 year old when she is 2.5 year she loss her hearing. Now she totally deaf I will send her test reports if you can help me in this situation. She is also use hear aid but no response what I do plz help.
Instructive thank you. Why does it always come back. Over and over for over 20 years now. Debillatating and life changing disease. Is there any hope for a cure for this freeing sufferers from repeat operations 🙏🙏
Based on my personal experience, it’s very diligent surgery, it needs to be removed all carefully! If there is tiny bit left out between the vessels the chances for it will grow again and come back is very high! It needs to be monitored every year after the surgery!
I have had 3 mastoid operations I can tell you the pain before my ops was soo bad I was walking around like a drunk! Would’nt wish this kind of pain on anyone, and all because I repeat lay went to my go with ear infections time and time again!,,
I have this, and just had it all cleared out, infection and blood all gone. The doctor says we’ll keep an eye on the cholesteatoma? So now I’m wondering if it needs to be removed?? Do all have to be removed?
Hi I have this problem I had a cholesteatoma 20 years ago when I was young and had a couple of bones removed but still have around 50% hearing in the ear " Other ear is great better than most peoples so hearing isnt a problem" and now it's returned again and worst than before with discharge and the smell. I recently had to quit my job but trying to say to people that I can't work atm is nearly impossible no one knows how bad it is. I tilt my head and discharge comes out, have headaches etc. Its an awful thing to have.
Forgot to say, when I had the operation 20 years ago at age 12 it was supposed to be a 2 or 3hr operation but ended up taking 5 or 6hrs. But I cant even remember having much discharge or smell, that's why I'm sorta worried now like this thing might have been building up for 20 years, the discharge is multiple times a day and the smell is like death. The only good thing is I don't have dizziness, pain or ringing in my ears etc. I had a mri scan about 6mths ago just to see how much damage was done, but haven't heard anything back yet. So either it's not as bad as I think or its took over my skull and nothing can be done.
Cholesteatoma is no joke. Initially I let my hearing issue go on way way too long before I saw a doctor. Years. I'm now about to have my third surgery in 5 years. It was so bad in my left ear initially that they had to rebuild my ear drum and ear canal. Second surgery was placing a prosthetic hearing bone, clean more Cholesteatoma, and further rebuild the canal. I am hoping the third surgery will be the last. Clearing out another bit of cholesteatoma growth. Hopefully done from the outside. The first 2 they had to cut around my ear and fold it over to get in deep. Not fun.
@@ritika5648 So sorry, I'm not sure how I missed this response. Just noticed it when the other one just came through below. As long as you have a good doctor, there is nothing to worry about.
@@user-unknown__149 3rd surgery turned out a little more involved than I had hoped. They ended up having to "take down the canal wall" as the doc put it. My hearing for the most part didn't change(still around 85% good even though the doc has always been surprised by that. Said it should be way lower). some sounds come through a little different and louder than others, but for the most part the same. Doc says doing that should stop further growth, but I will have to go in twice a year to clean it a little as removing the canal wall doesn't let things like ear wax and other debris empty out as well. Surgery was July 13th of last year. So far so good. Doc likes bringing in students to show them and teach them when I come in for visits lol. Even have a little pig skin as a patch in there rofl.
Every since I was 16-17 I struggled with a constant ear infection on my right ear, normal symptoms, a lack of hearing, the sensation of discharge, yellowish wax. Recently it has returned but it has become more different, same symptoms, earring loss, sensation of discharge, very yellow ear wax except, this time when I would use a cotton swap to clean my ear, a white sticky substance would come out. Any idea if this could be it?
What are the symptoms when it starts damaging the bone? I had my ear infection on and off for years. 3 months ago I suffered from infection again and get well but I did not go back to my ent doctor since I feel better now.
I'm having the Cholesteatoma/mastoidectomy procedure done February 26th, 2020, for the 3rd time. I've read everyone's great questions. Not to rain on anyone's parade but I noticed no professionals are answering any of these questions. From experience I can accurately state, it is a diseases not to be ignored. If you're ear hurts or it's draining, YOU need to make an appointment with an ear, nose and throat (E.N.T.) doctor. You can ask others here how their procedures went for them or what signs and symptoms THEY experienced but it will not benifit YOU! Each case is different. Make an appointment with your doctor and he/she will explain YOUR situation. This blog is not apparently interactive with ENT's! Good luck to all!
@@julmannah mine was but I ignored the infection for 60 years. Even with that being said, it wasn't painful at all! If I would have known that earlier, I would have gone in for surgery sooner.
@@goaskmymom1350 it’s my mom who diagnosed with that after her ENT told her to do Ct scan then they concluded cholesteatoma😌I’m worried regarding induction of anesthesia as she’s 58 yrs old already...
I had this back in 1993, at 10 years old, lost 100% of my hearing in my left ear, unfortunately. I've learned to live with it. Don't wait to get it checked out. It could cost you your hearing permanently.
@@bestnottoknow What were your symptoms before your 1st surgery? After your 1st surgery? And how are you coping now that you have had your 2nd surgery?
Look all over world internet for best place to fix it. I'm moving to doctor to try fix all my issues since hospitals do nothing take your money. Oh well ... try water fasting. maybe body eats cleans out the ear . Drink dmso with distilled water in right ratio. I am guessing at ideas ... good look.
Sir I am from Nepal.Right now my son is facing the problem of cholesteatoma in left ear.He is 4 years old .Doctor has recommended to do quick operation of left ear but I am worried of that in his early age.what to do sir?
please if doc is saying then do the surgery before it's too late...it's not a good thing it will just spread more and damage more.... listen to the doctor... I'll pray for you 🙏🏻
My son went on his appointment on monday his Doctor discovered a hole in his eardrum.He changed his eardrops.I am scared does this affect appetite or weight loss?My son is very depressed.I took him to visit a psychology too because he is not even sleeping properly.Thanks for ur respond dear.
I have hearing problems since my early teens and now in my early 20s my hearing is near completly gone in my left ear, very hard to find help here in the east coast
John Bryan Cabello facial paralysis is rare. Was your 1st surgeon experienced one? Go for revision only if it is extremely needed . Consult an expert surgeon who has 30 40 years experience. Unfortunately many docs suggest operation when situation can be perfectly monitored indefinitely
+Tejas Lalit thank you so much... but after 3months i recovered from facial paralysed... can i ask if it is necessary for me to have a second surgery? because i have a phobia from my first surgery for what was happend..
John Bryan Cabello surgery should always be avoided if it can be. Cant really comment on your case since i am no expert. I can only advise you to consult a ENT who has vast experience especially in middle ear surgeries. I consult Dr ashutosh pusalkar. He is too expert and one of few honorary surgens of german ent society. He is located in mumbai india. You can try to contact him via email or telephone. I would always consider his advise as final.
