I was diagnosed about a year ago now, and I have to say that it is really easy to misdiagnose APD. It’s been written off as bad circumstances, bad attentiveness, and most recently, the use of masks with friends and family. I’m very happy that there are more videos to reach a wider audience and inform more people about APD. It makes me so glad to think that these videos could help someone out a lot and make things much easier for them. You’re doing great work.
Was going to contact your firm. I often have that problem... English sounds like a foreign language sometimes. Noisy environments make it impossible to understand others, like a restaurant. Got hearing aids, but sometimes, even 'normal' sound is literally painful. Now, can't even stand to watch/listen to TV. Often wish I couldn't hear at all. And yes, I am exhausted, to the point of tears sometimes.
I tested severe end for APD after years of feeling something wasn't right, even with hearing aids I couldn't understand the TV and relied on subtitles. I've found an amazing and empathetic APD knowledgeable audiologist. I've now got Bluetooth enabled new hearing aids, I'm hooked up to the TV and phone, can understand the TV without subtitles now. Have done round 1 of a 16 week APD listening re-learning course, and will redo it at 1 year. Things are not perfect, but so much better than before. I'm not avoiding phone calls now as well. I hope you look into Bluetooth enabled aids, and find an APD smart audiologist to help you through the next phase of your life. Good luck.
I often have to request people to repeat themselves, and I remember several times where I heard something completely different from what was said. Such as hearing "Crystal" when someone said their name was "Diane". Not to mention when I was younger, I had immense difficulty paying attention. I'm 33 now, and had no idea that APD was a thing! Hopefully I can find the time to receive help.
I can hear a fly buzzing in the next room, but half the time I can't understand what people are saying, especially when there is a jet flying overhead!
I am a speech pathologist, who worked in this field, closely collaborating with Audiologists...helping children and/or adults with APD....please remember to include us in the loop...We offer very important clinical skills, which are critical in treating this disorder. thank you
@nonamejohnson4809 I also have APD which I found out recently, by that I mean I found out that it exists and not just a problem I have. I'm only a kid and I struggle everyday in school hearing instructions or just listening to anyone. Hopefully your not struggling bud :D
@@Ilovefishessses not anymore but I was in a bad place bc of it. My school wanted to kick me out and I didn't know where to turn. I hope you saw an Audiologist or getting treatment. That's what helped me
APD seems like a difficult condition to diagnose as it seems to present itself differently in people. I am curious to know how prevalent this condition is and how often it is misdiagnosed as hearing loss. I would think that one would have to undergo a battery of tests to rule out other conditions. i would think that it would take a skilled practitioner to diagnose and recommend treatment. Finding such a practitioner would be a daunting process. Very interesting and informative video.
It's not an easy process, but thankfully, I was dx back in 1993 at 6 yo, but I also was dx with hearing loss at age 14 in my left ear. I developed hearing loss in my right ear in my 30s, which is suspected to be from a rare disease I was born with called GACI. We definitely need more research and education on both subjects and the varying cases that we need help identifying in the medical community.
@@tudormiller887 Correction: around 5% have been DIAGNOSED with APD. Who knows if it's more common then that, especially since most doctors don't even know what it is. I'd say it's more common, but few people actually get diagnosed.
I have both bilateral congenital hearing loss, and I was diagnosed in 1st grade in 1993 with APD. I'm just now able to get hearing aids and learning tips and tools to help me learn better in college at age 37 as a freshman. I've been aware of my condition for many years, but had no idea there were actually therapies and tools available. I had poor grades because of the auditory style of teaching without accommodation. I'm grateful for the content out there now to navigate both my hearing loss and APD.
This could have helped me a lot if someone would have just explained this to me when I attended school. 😅 l didn’t find out till I graduated and saw it in my paper work.
I have this. Was often told the same thing multiple times. Now as a teacher, I am having to do the same to a clearly (undiagnosed) adhd student. It is frustrating for both of us….just because i know what is causing it…I don’t know how to work around it. I;m not in the position to tell her parents to get her diagnosed.
I m having sudden hearing loss after minor spine injury. Gradually can't hear low noises. But so far what i can hear cannot understand properly. With background noise is very tough. Is this everyone facing same ?!!! Please respond guys
There are different types of hearing loss. I was born with a hearing loss, discovered when I was about 8 years old. Hearing aid were given to me, but they did no good. Nowadays there are better aids that comes custom made to the individual hearing loss. Even with those, I can hear a little better, but I still often times cannot process what is being said and still ask to repeat often, even more than once. I now do not bother with hearing aids as they are very expensive, and I still cannot understand.
I’ve heard audio issues are common in autistic people 0: I always use cc if it’s available because I just don’t always catch what’s being said. I wish we could have cc irl.
Look for an APD knowledgeable audiologist, who will do a proper and long and thorough test. Be careful of ones that do a short test though, like my first attempt, who say they can do APD tests and don't know much about APD.
I have it and I have always struggled in school, but I did work hard and got my college degree. However, I am still struggling in social situations, and especially with lengthy conversations.
When this condition started,i was in 5th grade and everyone thought i have hearing loss but today i am 19 years old and very tired. Today i understood i have APD. I want to get better. What do i do. i can't even understand anything on call . Please tell me how to cure this condition or atleast get better.
I don’t know what to do me and boyfriend of 3 years argue all the time because I struggle to comprehend conversation and recently was diagnosed with APD and he doesn’t believe my diagnosis and just thinks I have a poor attention span.
I am literally going insane: So I am partially deaf on my left ear (hearing loss is around 50 percent). But nobody has figured out why my hearing on the left ear suddenly stops entirely and then comes back a few seconds or minutes later and then sounds like an out of tune radio? This can happen like 5 times per day or more or less. It varies a lot. Some days I don't have it at all and then on other days it's really bad. If anyone has maybe any idea what this might be, I'd be very grateful.
My phonemic and phonological awareness is compramised and my auditiv short term memory is aswell. Is this typical for APD people? If so, why have I been diagnosed with having dyslexia in that case? Last but not least, is there any kind of treatment for adults who have phonemic and phonological awareness problems?
@MadMaxToo61 I used to be able to distinguish speech VERY well, until I was in my 40s, and then I slowly started NOT being able to understand words. I went to a couple different hearing clinics where they told me my hearing (of tones) was "within normal parameters." It wasn't until I saw my audiologist that they diagnosed and could treat the problem.
can be. of course when already having a hard time understanding language, then any speech quirks, impairments or accents will affect how well you can interpret what is being said, because a usual effect of living with APD, is that we try to "guess" what is being said and are getting pretty good at it, but if there are additional differences that we aren't familiar with in speech patterns, it's harder.
@Eryniell Ok. For example I had this one volleyball coach and my classmate I had very hard time understanding them. They speak "normally" but it feels like sometimes they speak gibberish. I'm not saying I have APD but it sounds so familiar when people are talking about it. I have tested my hearing multiple times(not recently though) and have pretty average hearing. I'm guessing a lot of the words and sentences people say daily. Working at a cash register kind of sucks because there are all sorts of noises going on and it is hard to interpret what people are saying. And daily I have difficulties especially with first words of sentences if somebody starts speaking to me. All lyrics are usually gibberish to me in English if they aren't very "clear" and sometime in my native language finnish, lyrics can be so hard to hear between all the instruments. I'm not sure if I'm making any sense😂 vocal instructions are more difficult than visual or both at the same time. I'm not self diagnosing myself or anything but I have always thought I can hear what people are saying but I do not understand the words/somehow it is just noise/I hear different words.
@@kiwirabbit8874 that does indeed sound like APD. like it's not uncommon for people to have those experiences occasionally...like in a very loud and busy bar, to not understand what the bartender says or at a concert...and of course heavy metal lyrics, but it's when this happens on a more or less daily basis, constantly having to ask people to repeat themselves, missunderstanding verbal instructions regularly, difficulties understanding people on phone or voice calls especially if someone has a bad mic. and it's generally worse in noisy environments...like when driving in a car (and there is rocks or snow) when walking on gravel, snow, ice, dry leaves, when being in an echoy environment etc. those are all situations that would increase symptoms and make it at times impossible to understand what someone else is saying. Also accents and any speech differences in others will be much harder to deal with
I have APD with expensive Bluetooth hearing aids, so I don't see why not. That question sounds a bit like, will have still have Dyslexia if I wear glasses? APD is a functioning of the brain not quite working, is it not? So whilst having better and better devices will help a little better, the brain is still having issues processing correctly. So it is more about the retraining of the brain and listening. p.s. I am not a audiologist. I have APD. I may be wrong.
I knew it's something with my brain and not my hearing. When people talk clear and with good pronounciation I can understand them. But when there's a little noise, they talk with mutter and especially people talking on TV, I'm cooked .My brain fill in the most nonsense word that just sounds similar. We make fun of it with my husband cause he's muttering and I hear the most nonsensical things. For example he says:"Give me the cup, please." I hear:"Bill me the dot, please." Nonsense. With my ADD, autism spectrum and this condition...I run around like a confused squirrel.
Im not disgnosed with anything but i just discovered APD after internet searches for my symptoms. Huge weight lifted off my shoulders to find out that im not the only one this happens to
