I'm 33 and recently learned I have this syndrome. However I lived a normal and a very creative life, my only problems were bad memory and I'm cloud headed most of the time. I got this out of nowhere attacks summer where my hand would get numb and lead to my whole one side of the body to be numb and I couldn't speak or think properly. Worst was when one attack paralyzed me entirely and I was blind on my left eye for 1 hour. I saw many doctors and one of them was really good and told me I don't need any surgery I just need to wear a hat and sunglasses under the sun. I asked for a pill to ease up the attacks he gave me anxiety pills and attacks went away slowly. Best thing is to live your life and not think about it, i get sensitivity to light here and there but I think that's all from my anxiety. Key is to not stress, keep your activities one at a time base, keep your mind clean from things that affect you. Hope this helps anyone who has this issue cuz I was trying to find answers and couldn't find anything online when that happened to me.
I am a 69 y.o. male and diagnosed w/DWMalforation at around 60, after severe headaches forced me to get an MRI & Cat-Scans. I have a twin that does not have DW. Growing up people made fun of my big head, my lack of coordination and my poor sense of directions. Mentally I excelled in playing music by ear, but am unable to read music & am horrible at math & most sports; however, I excelled at academics & have been in MENSA since 1978. I'm very sensitive to light and keep my blinds closed & wear sun glasses religiously. Have also developed exceptional hearing, but my eye sight has grown weaker over the years. I still get debilitating headaches, am prone to light seizures, have reactive arthritis & COPD. All things considered, I'm better off then most. I still drive and enjoy socializing and as an adult less people make fun of my head size, but it is difficult finding hats that fit...
@@Ad-rs7uq Sorry about that, I would give the baby a very good normal life so he/she doesn't feel they have a condition. Wishing you and your baby the best, don't think of it all will be good. Congratulations on the baby 🙃
i was diagnosed at 7 after i kept having to miss school over severe headaches. needless to say it scared my family pretty bad but now i’m 19 and the headaches have went away. other than that i’ve had no symptoms.
I am the first woman in the U.S. who was diagnosed with Dandy/Walker Syndrome in 1992 i gave my son Maxi Roger to Science for further study and research of the Dandy/ Walker Syndrome
Dandy-Walker Syndrome has been recognized for quite some time. I was born with it in 1963, so it certainly predates 1992. It's great that you're sharing your story, but it's important to note that many others have also been diagnosed with this condition well before then.
Asad Khan Do research yourself, you can't depend on other people to help when your family is in need, lookup the best neurological hospitals, make sure they are the best place possible for this neurological disorder and go from there, i hope i dont sound rude but you cant depend on other people, i hope the best for your family and i hope you sister can get the treatment she needs.
