I went to my doctor in July as I had had a 3inch lump in my neck for 8 weeks, which is still there. I was diagnosed with B-Cell Non-Hodgkins Lymphoma, this week, but they think it is low grade, but need to do another biopsy to make sure. The doctor said that itching skin and night sweats are not part of the symptoms, but I have read so much that says it is. I feel tired all the time and generally feel unwell. I can't sleep due to pain in my hips and anxiety due to diagnosis. At the moment they are going to watch and wait.
We’re sorry to hear you have been diagnosed with non-Hodgkin lymphoma and need to go through further testing to confirm the diagnosis, we can appreciate this is likely a difficult time. You may wish to read our information about symptoms here, if you feel it may be helpful; lymphoma-action.org.uk/symptoms-of-lymphoma Although some symptoms may be more common in particular types of lymphoma, they are also non-specific, and can also be caused by other more common, and less serious reasons. Lymphoma is also an individual condition, in how it can affect someone. If you are in the UK, and would find it helpful to talk to us, please do feel welcome to call our helpline lymphoma-action.org.uk/support-you/helpline-services
I was diagnosed with breast cancer several months ago. It was the CT scan that picked up on the enlarged lymph nodes in my upper and lower abdomen retro- peritoneum . Biopsy shows B-Cell lymphoma. I’ve always been so healthy, no smoking or drinking, I exercise and stay active. I eat very healthy.
I was sorry to learn of your breast cancer diagnosis, and that you have also been diagnosed with lymphoma. I imagine that this may be a difficult time. Very often, why someone has developed lymphoma will be unknown, but we know that it won't be something that you've done, or not done, that has caused this; lifestyle factors are not generally linked to lymphoma. There can be risk factors that can mean someone may go on to develop lymphoma, but the risk is still very small. We have some information on what we do know about the causes of lymphoma, and this can be found here: lymphoma-action.org.uk/about-lymphoma-what-lymphoma/causes-and-risk-factors-lymphoma#otherfactors You'll see this gives details on cell changes that can happen in our bodies. It's really natural to think about what may have caused this, and I hope our information the causes may be of some help. We send our best wishes to you.
just had the first 8 hour r-cvp yesterday & watched dozens of videos leading up to my chemo and this is by far the most comforting one .hope the young lady is doing ok
Was diagnosed by accident two years ago when family Dr. pursued enlarged lymph nodes in neck caused by epstein barr virus(blood work showed)..but 4 biopsies showed Cll/Sll....now blood work every 3 months with physical and ct scan yearly....three oncologists now say just watch and wait....63 years old and lymph nodes are small pea size and blood work has been excellent they all say.....I am told blood work won't necessarily show either condition if its slow growing with no symptoms....the biopsies are the gold standard doctors go by.....thankyou sir for this video.
I've dealt with T-Cell Lymphoma for 18 years, diagnosed at the age of 28 and Im now 44 and it has gotten worse over the years and my skin is now longer responding to the UVB/UVA Photo Therapy. I had my first radiation treatment in May. There is nothing "LOW GRADE" about this cancer!!!
Was it Mycosis Fungoides by any chance?I have that at Stage 2B and yes it's very nasty and led to the amputation of my finger and very nearly my thumb.Nothing except radiation treatments work to stop it and I'm on Interferon Alpha now which as best I can tell isn't working.
HELLO MY FRIEND. MY HUSBAND HAD HIS FIRST CHEMO TODAY. ANND THE DR TOLD ME AFTER CHEMO HI WILL LIVE 10. TO. 15 YEARS. WHAT YOUR DR TOLD YOU ABT LIVING AFTER CHEMO.. HOW YOU FEELING NOW??
Three years after I was diagnosed with Sjorgrens in 2010, I got the low-grade lymphoma in my salivary gland. I needed 17 radiation treatments. Four or five years after my first diagnosis, I got it again in my salivary gland on the right side of my face. I only needed 2 radiation treatments. Now it's 2023, I'm about due for my third lymphoma journey. I'll be 73 years old. I had to get new health insurance, and now I have to pay $394 a month due to this low-grade damn lymphoma. The first time I had the biopsy and went to a cancer doctor, he told me I had the best cancer to have. I don't think any cancer Is the best to have. I've been cursed. Damn Sjorgrens. Everything with my body is very dry. I guess it's better than Lupus.
Pat Burton I'm sorry to hear about your cancer journey but so glad to know you're still with us today. If you don't mind me asking you said you have sjorgrens I know it makes you have dry skin but I noticed you said it makes everything dry. That's happened to me to everything about me is dry I noticed the change inside my ears as well they're super dry in my ear my nose all over. Is the inside of your nose and ears and eyes superdry to. I hope things are going well for you now and I thank you kindly for answering my question. God bless you
@@butterflies1675Yes, it's characterized by eyes and mouth dryness. You can get pain in your joints, itchy skin, and in some cases, it can make other parts of your body dry. If not treated, it can advance and affect other organs and it can also cause lymphoma. To diagnose, you need to consult a rheumatologist; some blood tests and a biopsy of your salivary glands may be done. Hope this info helps.
Hello, thank you for your comment. We have some information on our website, about radiotherapy and if you feel it may be helpful, you can find it here: lymphoma-action.org.uk/about-lymphoma-treatment-lymphoma/radiotherapy We send our best wishes to you.
I am really worried. The lymph node on my neck has been swelling for at least 4 months now, and I also had mononucleosis two years ago. Ever since then my health hasn’t been as good and I get tired a lot easily. My doctor did an ultrasound and a blood test. And according to him it is not lymphoma or hypothyroidism. The blood test shows that my blood platelet count and lymphocytes is pretty normal. And the ultrasound shows that my biggest lymph node in the area is only 6mm. But I would like to point out that I am less than 5 ft, so I think that 6mm is relatively big for my body size. I was wondering if I should insist on taking a biopsy even if my doctor said that the result from the blood test and ultrasound indicates that I don’t have lymphoma.
@@69birdboy I did mention it to my doctor, but he doesn’t really listen to me. Doctors here in Canada are usually not the best because of free health care. Everyone goes to the doctor even if it’s nothing serious and they probably think I’m exaggerating my symptoms like a lot of people do. But if it is chronic fatigue syndrome, there really isn’t any cure for it so it’s not like doctors can help with that.
I have to put pressure on too feel my nodes in neck they have normal characteristics just infection isn’t gone had it for 2 months they’re a little smaller
What about if I have Sjogren’s Syndrome?? I’ve been advised that I’m highly likely to get non-Hodgkins lymphoma. I suffer from night sweats and have no lumps although I have a bright red rash under my left arm that comes and goes? Can I have a blood test to confirm or what should I do?? I also suffer from weak legs and am extremely tired even after about 15 hours sleep. Please reply I would truly appreciate it.
Hi Caz, most people with autoimmune conditions do not develop lymphoma, however some types might increase your chance of developing lymphoma. Whilst the symptoms of lymphoma are general, and can often be caused by other more common conditions, we would suggest speaking to your doctor if you have concerns about new or changing symptoms. A blood test can offer information about general health, however in most cases is not able to diagnose lymphoma. If you would like to read more, you can find our information about the causes of lymphoma here lymphoma-action.org.uk/index.php/about-lymphoma-what-lymphoma/causes-and-risk-factors-lymphoma, and our information about symptoms here lymphoma-action.org.uk/index.php/symptoms-of-lymphoma We send our best wishes to you.
This seems to be more common with older people? How about those who took the polio "sugar cube". They are at higher risk. What's worse, they knew this was a potential from the R. monkey cells used.
Lymphoma can occur at any age, however there are some types of lymphoma that more commonly affect older people. You may like to see our 'causes of lymphoma' information, for details on the risk factors: lymphoma-action.org.uk/about-lymphoma-what-lymphoma/causes-and-risk-factors-lymphoma
I've been on Prednisone (originally on 60mg) , for nearly 4 years for GCA and PMR I have now tapered down to 2mg . I've found a soft, painless lump, about 2 1/2 inchs in size above my left clavicle and similar lump on the inside of my right ankle. I noticed them about 2 weeks ago. I have no other symptoms. My concern in this time of covid (I'm in Southern California) , is finding someone who can help me. My rheumatologist has referred me to my primary care physician, who is very young and inexperienced. (I belong to an hmo called Kaiser) How do I get this young physician to help me? What kind of questions should I ask her to get help? I am also taking care of my husband who has idiopathic pulmonary fibrosis and is now on oxygen 24/7. I have no one to talk to.
@@OnPoint88 I still have the lump, but it's very soft and nothing was found on all of my scans. My husband passed away 7 weeks ago. Thank you for your kindness and concern.
@@wayneschenet5340 Thank you Wayne ❤ I've had several scans and tests at kaiser now., and nothing was found They are going to continue to monitor it, but a couple of physicians now just think it's a squishy, fatty lump left over from 4 years of prednisone. (I had a huge bullfrog neck and a Buffalo hump which have now disappeared. )
Hello, Some people only find lumps, not everyone gets all the symptoms of Lymphoma at once. You can find out more about the signs and symptoms here - lymphoma-action.org.uk/about-lymphoma-what-lymphoma/symptoms-lymphoma
Hi, I m Rubina akter,, .my age is 23years old. I am Bangladeshi. I am suffering spleen non Hodgkin lymphoma stage 4, bt no symptoms ,, so doctors confused, can u help me,,? Plss
Hello Rubina, Unfortunately we are not medically trained here so I cannot give you any medical advice. Our website www.lymphoma-action.org.uk has a lot of information about lymphoma on it, including this page lymphoma-action.org.uk/types-lymphoma-non-hodgkin-lymphoma/splenic-marginal-zone-lymphoma - about lymphoma in the spleen. You can live chat to us on our website or email us at information@lymphoma-action.org.uk if you need someone to talk to as well. We are however a UK based charity, and although I do not know of any Bangladeshi organisations that might be able to help you, maybe you could have a look at vcarecancer.org/ who operate in India and might be able to give you some more information relevant to your part of the world. Best wishes, Katherine
Hi Doctor I have a lymphadenopathy shown by CT scan in bilateral cervical , bilateral axillary and mediastinum . I do not have any symptoms and all organs are good What does it mean?
Hi, sorry to learn that you're concerned about your health, and can appreciate this is likely a worrying time. As we're not medically trained, we would suggest speaking with a doctor about your concerns as soon as possible, for advice. The symptoms of lymphoma are more commonly linked to other, less serious conditions, but we'd suggest just checking this with them. We send our best wishes to you.
Mine is over and under my eyebrow and also have had a hemi thyroid operation, I now have to have the other side as it was carcinoma ,one consultant said the lymphoma was more important and the other one said the thyroid one is more important I'm really upset and worried I have letters saying what the diagnosis is one is right and one is wrong we can't seem to get an explanation
Hello Doctor, This was a wonderful video for my questions and medical conditions I am going through ! I hope you could suggest me some best solution. I am 33 years old , I have developed many lumps recently which is quite plainly under my armpit, I have been noticing them since couple of weeks. The changes I observed , sometimes one goes small ( still painful when pressed ) other lump develop in just nearby to the earlier. Some of other issues I’m going through Bloating , allergic to food , spasm , tightness breathing, I am not able to figure out what I am doing wrong ! Is there way I can discuss with you. Is this a temporary inflammation or something to pay attention ⚠️. Is the alarm to report to our medical consultant, if so , what specialist would probably handle such cases. Thank you I’m advance Ashwath
Hi, thanks for your message. There are many reasons by lymph nodes may become swollen, and are more commonly linked with other less serious conditions. We would suggest speaking to your doctor, if you are concerned about symptoms, for further advice. If you feel it would be helpful, you can read more about the symptoms of lymphoma here: lymphoma-action.org.uk/symptoms-of-lymphoma We send our best wishes to you.
@lymphoma action I have had small knots on both sides of my they get or grow inside some and then they go back down smaller. If I rub my throat the knots will rub together and it sounds like rocks rubbing together. At times they are sore and sometimes painful. Had them for a long time and within the last year I've gotten a lump on the left side of the top of my head which will also grow in size some and then go back down smaller. My doctor just told me it's swollen lymph nodes I'm not so sure. One of the knots in my throat has edges around it. I'm curious if lymphoma follicular lymphoma is only lumps or can it be knots in a person's throat. I do have a lump on the top of the left side of my head that came up last year. So is it only lumps or can it be not too. I'm extremely weak and tired and after I eat I get even weaker. If you could please let me know if it's only lumps or can it be knots to I'd be so appreciative. Anyone that can help me with this I would appreciate it. God bless everyone
Hello - we are sorry to hear of the symptoms you are experiencing and appreciate that this may be a difficult time for you, and it feels understandable that you have questions. Although we are not medically trained and therefore unable to comment on your medical situation, we do know that lymphoma is an individual condition. While a swollen lymph node or nodes is the most common symptom of lymphoma, most people who have swollen lymph nodes do not have lymphoma. Lymph nodes can swell even when working as they should, and they often do this when fighting infection. We have information on the symptoms of lymphoma here: lymphoma-action.org.uk/symptoms-of-lymphoma . We also have information on follicular lymphoma here: lymphoma-action.org.uk/types-lymphoma-non-hodgkin-lymphoma/follicular-lymphoma#symptoms. We know that many people with follicular lymphoma will have few symptoms and some will have none at all. Typically lumps can develop in the neck or just above the collar bone but they can also develop in other places such as armpits or groin. If you are experiencing symptoms which are worrying you, our suggestion would be to have a conversation with your doctor. We send you our best wishes.
Hello PET scans can help doctors identify areas in the body, where there may be ‘hot spots’, that could be disease, such as cancerous cells. You can read more about PET scans here: lymphoma-action.org.uk/about-lymphoma-tests-diagnosis-and-staging/scans-x-ray-ct-pet-and-mri If you are continuing to experience symptoms, we would encourage you to discuss this with your medical team.
@@resueah7257 it turned out after all that I have anklosing spondylitis. I'm not great but atleast i have answers and I'm on treatment. Thankyou for asking x
Hi, i have 5 enlarged lymph nodes on my right neck ,doctors did FNA for one of the lymph nodes,my question is ,do u think they could have missed out cancer in other 4 nodes which they didn't do biopsy on?? I worried the lumps is growing
Hi Kanageswari. Thank you for your message. If you have any concerns about the lymph nodes in your neck, we would suggest that you talk to your doctors about this. There can be many reasons for swollen lymph nodes, but only a doctor would be able to help further with finding out what is happening for you. Best wishes.
@@dileepjanghela2313 sorry to hear you are experiencing this too, and hope you will feel able to contact your doctor for advice. We send our best wishes to you.
I have an enlarged lymph node only under armpit been there for months since the booster Covid vaccine, going for a scan to check it out in a few days to see if it’s benign and it’ll be Alright
There are many reasons why an enlarged lymph node may appear of which lymphoma is only one. It seems very sensible that you are getting it checked out and we send you our best wishes.
@@Plattencautious745 what was it man? I have the same thing under my left armpit. It's a small movable ball and there has been pain associated with it which I hear is a good thing
IVE HAD LYMPH AND MONO BLOOD READINGS TOO HIGH FOR OVER 4 YEARS, BUT NO OTHER SYMPTOMS .... FINALLLY AN MRI FOUND SOME ABDOMINAL NODES THAT ARE SWOLLEN RECENTLY... BUT STILL NO OTHER SYMPTOMS. BUT NO OTHER LYMPH NODES ARE SWOLLEN..??... DOES THIS MEAN I HAVE A LOW GRADE LYMPHOMA? OR SOMETHING ELSE??
We are sorry to hear that you have swollen lymph nodes in your abdomen and high blood readings and that this is therefore likely to be a difficult time for you. Most people who have swollen lymph nodes do not have lymphoma -usually swollen lymph nodes are a sign of a less serious illness such as a minor infection. The fact that you were referred for an MRI scan also does not automatically mean that you will receive a lymphoma diagnosis. We are not medically trained so our suggestion would be to have a chat with your doctor. We send you our very best wishes.
Hi Bianca. We would always suggest that if you are concerned about any possible symptoms that you speak to your doctors about this, and they can decide if any further tests might be helpful. Best wishes.
I was diagnosed with stage four low grade non-Hodgkin Lymphma in 2012. The first day of they chemi I had a bad reaction to retoxin and they had to stopped and send me to the emergency room , for that reason they continue treating me with treanda for six month after that I went back to the oncologist who saw me the first time and he put me on retoxin again for six month that completed a year of chemo the doctor told I’m in remisión but in 2016 I had develop pain and swelling on my left knee I have been to the emergency room and to a regular orthopedic doctor my oncologist told me that has nothing to do with the lymphoma then they send me to an orthopedic oncologist and the mri shows my bone morrow is affected and the doctor tells me I have edema and a tumor on my knee but my oncologist told him it cannot be treated to often . I’m suffering ... I’m not feeling well I’d there anything it can be done ?
Hi Marinin. Are you in the UK? If so, I wonder if you'd like to get in touch with our helpline and talk about what is happening (we can give you the contact details). If you are outside of the UK, you may be able to find a lymphoma voluntary organisation in your country via the Lymphoma Coalition (here www.lymphomacoalition.org/members-area ).
Hi. I had pain in my right knee for about a year. I had fallen down stairs and thought I tore my ACL. The pain became unbearable making it very difficult to walk. Saw an orthopedic surgeon who requested get an MRI and X-ray. It showed a big lump inside my knee, not visible because it was so deep. Scan showed large B cell non Hodgkin's lymphoma. Shit, was I surprised. I was in the oncologists office within 2 days and immediately started aggressive chemo treatments for 7 months. I didn't lose my hair, but had all the other chemo symptoms. Still today, am suffering from them. During this I caught COVID, then pneumonia, so I was hospitalized for January of 2022. I'm in remission, but going through long term COVID symptoms. I am receiving antibody infusions to help with the COVID because I've had it 4 times now. Doing 4 rounds of that. Last one is next month. If I ever get a reoccurrence, I'm seriously going to consider chemo, or not. Feel better🙏
I have all the signs ontests blood scans nasopharynx I'm terrified and can't get help. I'm really weak. Leukocytosis growing mass in nasopharynx lump in groin snd neck and throst. This is awful. All after hpylori fir 16 months.
We're sorry to learn of your health concerns Lauren, and can appreciate what a worrying time this must be. We would suggest to anyone who is concerned to speak with a doctor, to get advice, so we hope you will feel able to talk through your concerns with your doctor soon, and we hope your symptoms settle down for you. We send our best wishes to you.
@@laurenclark1480 I am sorry to hear that you currently do not have access to a doctor. If you are living in United Kingdom, you can register with a GP surgery. It’s free to register. The following website link will explain how to go about it www.nhs.uk/nhs-services/gps/how-to-register-with-a-gp-surgery/. If you do not live in this country, then our suggestion would be to contact your medical services and seek their advise about how to proceed. We send our best wishes
sorry to learn that you are experiencing some symptoms, and can appreciate that this may be on your mind. We would suggest checking any symptoms that you're concerned about, with your doctor; often the symptoms of lymphoma aren't of concern, as they can commonly be linked to other, less serious condition, or occur for reasons that aren't anything to worry about, but sensible to double check. We send our best wishes to you, and hope your symptoms settle down soon.
Hi Teah. Thanks for your message. Yes, lymphoma can occur in children (you might like to read our information about lymphoma in young people here: lymphoma-action.org.uk/types-lymphoma/lymphoma-children-and-young-people ) However, the symptoms of lymphoma can also be caused by other, less serious conditions. If you would like to contact us and let us know what country you are in, we can see if there is an organisation that might be able to help you. You can email us at information@lymphoma-action.org.uk Best wishes.
Unfortunately we do not have any information on red man syndrome and not being medically trained, it would be difficult for us to comment. We would encourage you to speak with your doctor who may hopefully be able to offer more information.
Red Man Syndrome is a nickname for a very serious Lymphoma called Sezery's Syndrome also called SS.It is possibly a leukemic form of another lymphoma called Mycosis Fungoides but nobody really knows.Both of these ailments are types of Cutaneous T Cell Lymphoma and MF starts as an indolent Lymphoma and if you are lucky stays that way but in about 30 percent of cases it progresses to Stage 2b and beyond forming tumours and skin infections are common.Both MF and SS make the skin go red hence the nickname.
Hello po doctor I hope u see my comment plss help my brother po.. He have lymphoma in his left neck po I'm from Philippines po But I don't have money po to pay to you po pleaass po I don't wanna see my brother die I 5 of my siblings po is have pollio we can't afford to pay po😭😭😭😭😭
Hello, we're sorry to hear you have been diagnosed with lymphoma, we imagine this may be a difficult and worrying time. We have an overview of non-Hodgkin lymphoma here, if you feel it may be helpful to read lymphoma-action.org.uk/index.php/types-lymphoma/non-hodgkin-lymphoma If you are in the UK, and feel it would be helpful to chat to us, please do feel welcome to call us on our freephone helpline, 0808 808 5555, available Monday to Friday, 10am to 3pm. We send our best wishes to you.
As a UK charity I'm afraid that we would not be able to answer your question. There is a voluntary group in India - I don't know if they might be able to help: vcarecancer.org/ Best wishes.
Helo sir my father aged 79 has one tumor on groin another one on under Arm surgical doctor adviced to go through excession biopsy. Than doctor took biopsy sample from the underarm tumor now he diagnosed with Non Hodgkin folicular lymphoma (low grad). The tumor on groin is still remain same but there is no particular symptoms or complain from my father site. Our Oncology Doctor adviced for chemotherapy Is it safe for him according to his age?
Hi Krishna. We are sorry to hear your father has been diagnosed with follicular lymphoma, and can appreciate this may be a worrying time for you both. Unfortunately, we’re not able to comment on your fathers own diagnosis, and would encourage you to speak with your fathers medical team to discuss the options for treatment, and the possible risks. This may include different intensities of chemotherapy regimens. If you would find it helpful, and would like to read more about follicular lymphoma, you can do so here: lymphoma-action.org.uk/types-lymphoma-non-hodgkin-lymphoma/follicular-lymphoma Please bear in mind, this information is based on treatments offered and available in the UK.
