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What is MND? 

MND Australia
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This short video explains motor neurone disease (MND/ALS) and provides a snapshot of MND in Australia.

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26 сен 2024

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Комментарии : 182   
@stewartboyd3128
@stewartboyd3128 3 года назад
My dad died last saturday with this disease. It reduced him to 40kgs from 94kgs, robbed him of his speech fingers, his whole body just withered away yet leaving the brain fully entact. Its the worst disease ever, torture. My poor dad never complained once, what a man! He died at home with us wrapped up warm as his diaphram slowly gave out. He hadnt eaten for a week but we managed to get sub cutaneous fluids in him, he took 4 litres in 2 days without a pee and looked happy as he faded into the night. my mom was his primary carer at 78 and she is an absolute angel. Rest in peace sniffer.
@worshiplyricstelugu546
@worshiplyricstelugu546 Год назад
Please can you tell me your dad's last hours before death My mother in law had also this disease same symptoms she difficultly breathing and tears coming from her eyes from yesterday how much time she have?
@laylanlois
@laylanlois 9 месяцев назад
my mum got diagnosed with this yesterday, i don’t know how to feel
@lilacpetals2006
@lilacpetals2006 6 лет назад
The music is a bit too happy for this video lol
@kpopandchill9603
@kpopandchill9603 4 года назад
I realized that too
@jasongrim500
@jasongrim500 5 лет назад
I alone have MND since I was 24 yrs old I'm now 34 still working and still able to take of my self. My MND is a slow progression and I'm happy it is the way it is I live my life as the day goes and loving it!
@ammuluk5098
@ammuluk5098 5 лет назад
You are so lucky. It was different some of the people mostly 2-3years only. My father was affected from 5 yrs. Now he was so much suffering with this cruel disease
@DM_4lphaz
@DM_4lphaz 4 года назад
Hope u get well soon
@petegibbs6920
@petegibbs6920 4 года назад
Jason sorry to hear that you have MND, I have it also but mine too is slow acting. I’m currently 65 and I’ve had it diagnosed for four years but suspect I’ve had it longer. Keep up the good fight Jason
@rukayyahibrahim4186
@rukayyahibrahim4186 4 года назад
Pete Gibbs I wish you many more healthy life. You are strong
@lordtashpane319
@lordtashpane319 4 года назад
Jason grim, kindly share your routine care and diet plan
@arnauvizcarramiserachs6318
@arnauvizcarramiserachs6318 7 лет назад
For the ones complaining... it is an explanatory video for the normal public not a video shown to a just diagnosed patient ...
@pranay117
@pranay117 6 лет назад
Arnau Vizcarra Miserachs some people who come here like me who have found their known ones with this disease find this video inappropriate.
@minibeast21
@minibeast21 7 лет назад
Who the hell would dislike such an informative & meaningful video!?
@tactless
@tactless 6 лет назад
It’s perfect - I like short explanatory videos. People complaining about the tone are just nitpicking
@az61100
@az61100 8 лет назад
My brother died of this horrible disease he was only only 50 years old he did not last 2 years or 3 years his was progressive he could not talk, walk feed himself or anything it was so sad and horrific to watch him die there is nothing out there to help beat this horrible disease I really pray that a cure can be found sooner than later. Miss my brother terribly ...
@satyateja4058
@satyateja4058 6 лет назад
I can understand because I have lost my mother to this disease. It has been 15 years now and I miss her terribly.
@NatalievandenHurk
@NatalievandenHurk 8 лет назад
The narrator sounds so chippy. Clearly she doesn't understand the seriousness and sadness of this disease.
@MNDAust
@MNDAust 8 лет назад
Thanks for your feedback Natalie. We will take your comments into consideration when we next review this video.
@Aron-ru5zk
@Aron-ru5zk 8 лет назад
Natalie van den Hurk and the music although it's probably better that way
@jacobwalcott5299
@jacobwalcott5299 6 лет назад
Wow you find a way to hate on a video like this.
@Strawberrypocky911
@Strawberrypocky911 6 лет назад
Natalie van den Hurk That's just her Australian accent.
@ryanconnor5918
@ryanconnor5918 5 лет назад
Your life sounds sadder than this disease
@dtlatham7401
@dtlatham7401 8 лет назад
I was genuinely surprised at the morbid nature of this disease. I recently found out my Granddad has it, and being uneducated I came to the Internet for help, and I was not at all prepared for this news
@RudraSingh-fd9df
@RudraSingh-fd9df 3 года назад
I'm a bit late, hopefully your grandpa is doing fine but you can get through this. you got this
@emiliahara5000
@emiliahara5000 7 лет назад
the music and happy voice a bit not where it should be
@ryanconnor5918
@ryanconnor5918 5 лет назад
Where should happy voices be? Do you want to be a dictator or something? Or do you pretend to be offended so people pay you attention?
@HafizahHoshni
@HafizahHoshni 6 лет назад
Amazing! I am so thankful for sharing your expertise and knowledge. Thank you so much! 11/8/2018
@muttahirsheikh3639
@muttahirsheikh3639 5 лет назад
Sis
@takenleopard9517
@takenleopard9517 4 года назад
Why is the music happy?
@BalletShoes-c1k
@BalletShoes-c1k 5 месяцев назад
The cruelest disease out there. It’s when you hear there’s no cure or treatment that your heart sinks. Torture is the only word that comes to mind.
@tsunamix0147
@tsunamix0147 7 лет назад
Science fact: Did you know that world renown astrophysicist Stephen Hawking has ALS?
@kst8688
@kst8688 6 лет назад
津波x Tsunamix everyone does
@meridianherschel1618
@meridianherschel1618 7 лет назад
The music on this is weirdly cheerful - you'd think it would have something rather like Chopin's Funeral March.
@ryanconnor5918
@ryanconnor5918 5 лет назад
Go listen to your emo music and cry
@KarthikKarthik-db9zc
@KarthikKarthik-db9zc 7 лет назад
everyone practice Pranayamam(breathing YOGA) . Oxygen is very vital thing for brain.Do pranayamam and stay healthy.
@youmightjustnotknownepal5617
@youmightjustnotknownepal5617 5 лет назад
My father on law has only 1 similar symptom as #MND, but 30 hospitals in Nepal and 2 Hospitals in India couldn't even find what the disease is. One of the Neurologist suspected #Hirayama disease, but later after some test he said it's not. Don't know what to do!
@james7749
@james7749 Год назад
Just found out one my old school mates just passed away from this cruel illness he was a extreme athlete too so so cruel
@jamesflange
@jamesflange 7 лет назад
A fatal disease explained as if its a free holiday = dislike
@ryanconnor5918
@ryanconnor5918 5 лет назад
boohoo, you over sensitive millenial queef
@moggers7903
@moggers7903 5 лет назад
Christ just get over it, it’s explaining the disease which is good enough
@colejohnson3753
@colejohnson3753 5 лет назад
My Nan had this, im offended, happy music she’s not even bothered 😭
@ammuluk5098
@ammuluk5098 5 лет назад
New australia medicine name: cu-atsm, was under clinical trail . It cures 70% MND disease and we regain the loss which was happen by MND. The medicine was coming soon in between you want immediate cure the clinical trial was available in Australia
@ΧρυσηΚωστογλου
@ΧρυσηΚωστογλου 6 лет назад
How Stephen Lived 30 years after diagnose?
@briemuss05
@briemuss05 6 лет назад
greek. mmer because it didn’t affect his breathing. Most people with MND get breathing problems and suffocate but Stephen Hawking didn’t.
@marcyyt5265
@marcyyt5265 6 лет назад
I certainly agree with a couple of others have written - it's more difficult than it sounds to find a natural remedy for neuropathy. Be cautious and get help from experts. I searched round a few sites and discovered plenty of good advice by searching google on websites such as Gabs Neuro Guide. Good luck and hope you succeed!
@tomhercus6676
@tomhercus6676 6 лет назад
Why are we complaining about everything. Don't be worried about the future. Just go out and live life. :)
@taatuu7671
@taatuu7671 2 года назад
A 4year old comment with know reply
@mavischadwick6445
@mavischadwick6445 2 года назад
Thanks so much Dr Alaho Olu on RU-vid first of all for who you are as a person thank you for the wonderful work that you do for people in general no matter where you are I will always listen to your podcast and refer people to you because you care about people and the human body I listen to other people but you talk about the true disturbances disorders that means things that are out of order in the human system thanks 🙏 for curing my Amyotrophic lateral Sclerosis disease (ALS)…..
@sarikadhobale9453
@sarikadhobale9453 6 лет назад
please reply where diagnosis
@ryanconnor5918
@ryanconnor5918 5 лет назад
according to the comments playing sad music helps
@RUBIkumari-pu5ig
@RUBIkumari-pu5ig 3 года назад
Mam iska ilaz kha karwa skte hai plz kuch idea hai kisi ko v to plz batyea kisi K jindgi ki baat hai help me plz
@kunwarpalsharma112
@kunwarpalsharma112 3 года назад
7838154747
@kunwarpalsharma112
@kunwarpalsharma112 3 года назад
7838154747
@moggers7903
@moggers7903 5 лет назад
This comment section is somehow really weird
@BillyBowlster
@BillyBowlster 8 лет назад
Is this the same type of disease Stephen Hawkings was stricken down with? If so how did he survive for so long?
@MNDAust
@MNDAust 8 лет назад
Yes it is. No one understands how Stephen Hawking has lived so long with MND. He is an exceptional person in so many ways!
@cmntkxp
@cmntkxp 6 лет назад
@@MNDAust because he was need of the time. Some people stay and live longer against the popular observations
@simonpepper9721
@simonpepper9721 5 лет назад
Because he is so special that they do anything to keep him alive,anyone else Is not worthy unless they need them for something. Remember this.
@norali3559
@norali3559 5 лет назад
a subtitle is needed.
@ammuluk5098
@ammuluk5098 5 лет назад
New australia medicine name: cu-atsm, was under clinical trail . It cures 70% MND disease and we regain the loss which was happen by MND. The medicine was coming soon in between you want immediate cure the clinical trial was available in Australia
@Lorryvlog2407
@Lorryvlog2407 7 лет назад
my mother mnd problem
@kunwarpalsharma112
@kunwarpalsharma112 4 года назад
Sir my wife mnd patient hai iska kahi koi ilaj hai
@VirginiaDempsey-c3z
@VirginiaDempsey-c3z 6 дней назад
Brown Linda Young Timothy Moore Larry
@CoolioTops
@CoolioTops 8 лет назад
Is it the reason why i fricking cry when i get anxious?
@MNDAust
@MNDAust 8 лет назад
Excessive laughing or crying can be a symptom of MND. A more comprehensive list of symptoms of MND is here: www.mndaust.asn.au/Get-informed/What-is-MND/Symptoms.aspx
@CoolioTops
@CoolioTops 8 лет назад
MND Australia Thanks
@CoolioTops
@CoolioTops 8 лет назад
Soloman1001 Is ther a chart for that?
@CoolioTops
@CoolioTops 8 лет назад
well its not my muscles its brain
@CoolioTops
@CoolioTops 8 лет назад
Dang
@sarikadhobale9453
@sarikadhobale9453 6 лет назад
my mother is mnd problem
@satyateja4058
@satyateja4058 6 лет назад
How is she doing now?
@vidyadharireddy6544
@vidyadharireddy6544 6 лет назад
Hi Sarika... Is she going well? My sister is suffering from 15years
@SumitSaha29
@SumitSaha29 4 года назад
Why don't you try contacting www.advancells.com/als-mnd/
@harkaransingh2719
@harkaransingh2719 3 года назад
@@vidyadharireddy6544 I want to talk regarding mnd......how may I contact with u ?
@noone8673
@noone8673 5 лет назад
We aee not ment ro hbe any disease!
@boyyish3840
@boyyish3840 8 лет назад
this is the reason y my mom died 10 years ago. in 2006, this is horrible disease and the doctor said there's no cure at that time tsk.She is fuckinq paralyzed in d hospital.
@Aron-ru5zk
@Aron-ru5zk 8 лет назад
Sebastian Freniere there is still no cure
@pranay117
@pranay117 6 лет назад
The video is informative, but i disliked for the happy tone and happy music.
@samuelantelmi3589
@samuelantelmi3589 9 лет назад
no
@az61100
@az61100 8 лет назад
I have seen it with my brother and no do not want to research it so cruel it is evil
@gautampandit5662
@gautampandit5662 5 лет назад
Australia me ilaj hai to kua india me log marenge. Mujhe bhi MND? Ka problem hai please kuch upay bataie
@SumitSaha29
@SumitSaha29 4 года назад
aap info@advancells.com par ekbar contact kariye apke ilaj k liye @GautamPandit ji www.advancells.com/als-mnd/
@kunwarpalsharma112
@kunwarpalsharma112 4 года назад
My wife mnd pl koi ilaj 7838154747
@kunwarpalsharma112
@kunwarpalsharma112 3 года назад
Group 7838154747
@xanas93
@xanas93 3 года назад
What the hell is with that music
@katieclark401
@katieclark401 5 лет назад
The whole production of this video is so inappropriate, regardless of the audience..!
@ammuluk5098
@ammuluk5098 5 лет назад
New australia medicine name: cu-atsm, was under clinical trail . It cures 70% MND disease and we regain the loss which was happen by MND. The medicine was coming soon in between you want immediate cure the clinical trial was available in Australia
@traceycrossman1295
@traceycrossman1295 4 года назад
My wife has recently been diagnosed with MND this year (we are in the UK). Tracey has the bulbular type and it is quiet advanced now, she is a fighter and I will help her as much as I can. I hope someone, somewhere finds a cure for future generations.
@katiejohnson8534
@katiejohnson8534 4 года назад
That's so sad to hear your wife is still suffering from this same disease. Am feeling for her right now, I know of a doctor who can help her get rid of this. He also help me from this same disease, He can also help cure her permanently
@katiejohnson8534
@katiejohnson8534 4 года назад
1 year ago I was diagnosed of MND and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including MND , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an MND herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from MND ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....
@gavinbelly370
@gavinbelly370 3 года назад
A lot of people believe that ALS has no cure, but i must tell you a great source of ALS cure permanently, I was diagnosed of ALS early this year. I had severe symptoms ranging from shortness of breath, balance problems, couldn't walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then i decided to try alternative measures and began on ALS/MND Formula treatment from Dr James Ehimare herbal centre , It has made a tremendous difference for me, contact him via email (jamesherbalformula@ gmail. com ). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others. Don't hesitate to contact him for help call/whatsapp +2349057856543 you can tell him i recommend you to him. regards Gavin
@gunesbayramova3647
@gunesbayramova3647 3 года назад
@@katiejohnson8534 Hello . My father is too MND . Help me please ,ı dont stay without father ((( could you write me on instagram or facebook ? I ask somethıng about this ilness
@katiejohnson8534
@katiejohnson8534 3 года назад
@@gunesbayramova3647 kindly send me your whatsap so we can chat better okay
@Surya-su7qo
@Surya-su7qo 4 года назад
My father and his 1 brother has mnd ... But his another brother and 2sisters and his father and mother does not have mnd... My father also had mnd after my birth... Will i also have mnd in future?
@mariofrank8086
@mariofrank8086 4 года назад
HI, I was diagnosed of MND/ALS last year and i suffered symptoms for 8 months. Never had any health issues before that, but it came all the sudden and it was HORRIBLE! I was left in severe pains I've been on the gaps intro diet for a week now. I've been trying to keep my spirits up but I just feel like I'll never feel normal again, because i have being to several hospital for solution but the doctors could not help me, i was discourage and helpless. not until this faithful day, I saw a testimony on how Dr James Ehimare have helped one lady in curing her Parkinson, quickly I copied his email jamesherbalformula@ gmail. com , read his herbal medicine is a good remedy for ALS, I contacted him and he guided me. I asked him for solutions and he parepared his herbal formula for ALS disease and send it to me after giving me some comforting words within 6 weeks of medication, i started to feel my normal body again Thank God now everything is fine, I'm cured by Dr James Herbal formula, I'm very grateful to Dr James, for curing my ALS, if you are having a similar problem, kindly contact him today and get your problem solved on his above email or via whatsapp +2349057856543 don't hesitate to contact him
@ProjectPotters
@ProjectPotters 9 лет назад
Bless you Lord jebus I will take your knowledge into my stable classroom environment and show of to my pals about how capable I am at this topic of life.... Peace out enjoy life and pray to the sanatised father
@sarikadhobale9453
@sarikadhobale9453 6 лет назад
please please reply
@muttahirsheikh3639
@muttahirsheikh3639 5 лет назад
Sis mnd k bary m kuch pta chala
@mahdiqasim1440
@mahdiqasim1440 8 лет назад
is it lower motor neuron or upper motor neuron lesion?
@johnyoutuber9781
@johnyoutuber9781 7 лет назад
Mahdi qasim Both: it affects both the nerves on the brain and the spine.
@sarikadhobale9453
@sarikadhobale9453 6 лет назад
please reply me which hospital treatment
@ammuluk5098
@ammuluk5098 5 лет назад
New australia medicine name: cu-atsm, was under clinical trail . It cures 70% MND disease and we regain the loss which was happen by MND. The medicine was coming soon in between you want immediate cure the clinical trial was available in Australia
@sprinterraii3908
@sprinterraii3908 4 года назад
@@ammuluk5098 the medicine available in India??
@ammuluk5098
@ammuluk5098 4 года назад
@@sprinterraii3908 no. The medicine not available in india. It's only under clinical trail at australia.
@sprinterraii3908
@sprinterraii3908 4 года назад
@@ammuluk5098 OK sir
@ammuluk5098
@ammuluk5098 4 года назад
@Bindas yadav entertainment no it's only under clinical trial .
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