Check out this easy to understand video animation about the basics of pheochromocytoma. See other videos in this playlist about pheo para. Special thanks to Advanced Accelerator Applications for making this animation possible.
Oh gosh that sounds awful. How did they find it? I've just had an abnormal ct and high urinary metanephrines. Getting a focused scan next week. Had symptoms for years too
@@lizziebeggimbo It took almost a decade. I finally WebMD'd my doctor to death and he ordered a CT scan. 5cm pheo on my left adrenal. I was lucky it didn't kill me.
@@robshoup im going through the same . with this pandemic i cannot get the help i need ..i feel.as though im dying.. i can actually feel.the tumours .. had scans 1 the size of a grape .the other the size of a golf ball. got my 24 hour urine test to take in tmrrw. not relying on that .. ( been told it's not reliable ..
Contrary to what the NIH Dr Karel Pakar, Debbie Cohen, Daniel Pryma and surgeon and MD Kebebew's mentions at the Para Pheo online meeting, I want to ask a single question, How do I survive state 4 Paraganglioma Cancer without surgery for almost 30 years? HOW PGL patient, Nurse and Medical Tech. (by-lateral neck, chest [left lung] and around 2015 the thyroid [left lobe]).
Hi Elizabeth, I am so happy to hear of your long survivorship. As you probably know, the illness is usually slow-growing, but can be agressive in some people. Researchers are still trying to figure out why. Best of luck to you for another 30 years!
