Great video! Everyone should watch it. As an ambulatory wheelchair user, I've gotten really rude comments when I stand up. I think if the rest of the world knew how much our mobility aids cost, then no one would question why someone is using aid! I really want to thank you for your videos. I was supposed to use a wheelchair many many MANY years ago and I refused...I didn't want the looks or the comments every time I stood up. Sometimes I need to sit in my chair and other times I need to stand but still push my wheelchair so I have some balance....Your videos made me realize that there is no shame in needing to use a wheelchair, cane, walker, etc....I can actually live my life now that I use my chair.
I'm an ambulatory wheelchair user, I still don't have my own, but I use the motorized carts and wheelchairs available at stores. I wouldn't be able to make it through the whole store with out them. The rest of the time I use a cane. Though a lot of times at home when I am feeling really good I can get around on my own, but that is thanks to people not freaking out if I decide I need to sit down on the floor immediately. Plus cushy furniture and walls I can reach.
Thank you Lolo!! I have Rheumatoid Arthritis and I can no longer stand or walk for long periods of time. It's just too painful. I've started using a rollator and having a seat with me at times helps a lot!! I've also started using a scooter occasionally at places like Costco to get around quicker and conserve energy. But I'm always afraid to walk around without my mobility devices, in fear of this exact stigma but recently I don't give a damn what people think.
Over the years I have been getting more and more tired. I have many autoimmune diseases, one of which is in the RA family called Polymyalgia Rheumatica, it's been, "cured" but I am still so very weak from it. I have progressed from a walker, to a manual wheelchair which caused me great pain, and now my motorized wheelchair is on its way. I wish I had not waited so long to ask my doctor for it. I know it will give me so much more freedom. Don't worry about what others might think. They are ignorant and you do not need to educate them. If you need a motorized device, get it and ignore anyone who is judgmental of you.
I came across your channel just today and I’m so happy I did, I have lupus and other chronic illnesses and now I believe I have POTS I can’t get to the kitchen without feeling I’ll pass out,my heart rate goes up to 140 the longer I stand, so I was considering getting a wheelchair but was afraid of what others may think….but now I am fully confident, thanks so much for making this vid☺️💕✨
Thank you for enlighten /educate society on using wheelchairs /living disabilities. I can't stand at all because a form of muscular dystrophy, I know many ambulatory wheelchair users! Much love Lolo.
Hi, your video hit it correctly. At college, a lady held the door open for me. After class, she saw me standup to move to my driver's seat from my wheelchair ramp van. She stopped and said in an offended voice that she ain't holding the door open for me anymore cause I can walk! Her two friends just looked at her. Yes, I can walk with crutches to about 12 feet then give out and I also have a balance problem and can fall easily. I am a polio survivor which affects both legs and my back. My powerchair is my freedom. I can do anything anyone else can do, but sometimes differently. I work everyday and am heavily involved in my church. I never asked her to hold the door open for me, but this is something people do to people walking thru a door just normally.
Nicely stated. I'm an ambulatory wheelchair user and I have different devices for different situations. If I'm going to the airport I have an electric mobility scooter, If I'm going to a doctor's appointment or grocery shopping I have a manual wheelchair and if I'm around my house I use a walker. All of these are just devices to make it possible for me to live my life as independently as possible. In the kitchen I have a sit down work table with induction burners so I can cook a whole meal seated. I'm not trapped in a wheelchair, I'm set free by one. I feel powerful when I self propel my manual wheelchair because I'm in control and it's an amazing feeling. I see so many people who need a wheelchair or a walker refuse to use one as if using a mobility device makes them weak. It's not a weakness to use a device to improve your life.
I had a stroke 20 years ago and for much of that time I fought using mobility devices. As a result my joints are jacked up and I have new problems affecting my mobility. So getting comfortable with sitting pretty! Love this video and channel.
I’m an ambulatory wheelchair user. Me, my doctors, and my loved ones are pretty sure I have EDS but it is taking over a year to get an official diagnosis. There is a really small piece of me. That struggles with the fact that I had to start using a wheelchair before I even got diagnosis. Usually if people ask e about it I tell them that it’s because I have POTS (which is part of the reason I use a wheelchair). I had someone say call me old (I’m 23, idk why they did this) when I was using my cane in public once, but fortunately I haven’t gotten other comments or questions from strangers. I’ve had people over react to me driving by practically jumping out of my way, but that’s about it.
You have explained this so well. Thank you. I'm studying fashion design and sewing so I use my wheelchair around my school campus but then I walk around class use the sewing machines
@@cbryce9243 there are brands who already design clothes like those. I'm more of a plus size clothes designer. It would be cool to get a job as a fashion designer but I'll probably only be using my knowledge to sew at home
Thank you for this. I have Fybromyalgia, hEDS, Orthostatic Hypotension, myositis and Arythmia... yes ALL OF THAT. My disability is energy/distance based. Sometimes i have a subluxation sometimes its a matter of the longer im up the more likely i will faint and fall. It is so disheartening how often i get yelled at or questioned for using a handicap parking spot(even though i have a blue placard) or yelled at from store employees for using one of their scooters when they see me stand up to grab something....
I've been using a manual wheelchair for about a year but have found it to be too painful on my hands and neck, due to arthritic and a disease called Erythromelalgia that makes my hands and feet feel like they are on fire if there is any kind of friction, like in walking or pushing a wheelchair with my hands. Soon I will have a power wheelchair and I'm so excited. Being able to get around the house with more ease, will be so liberating! Yes, I can walk, but the pain is most often unbearable. Due to necrosis, I also need both my hips replaced but am just too afraid to go under the knife. Walking just hurts. Thank goodness someone invented power mobility devices! Love your purple hair! I just did mine pink, purple, and aqua...color is so uplifting. Thank you, Lolo, for taking the time to spread awareness!
Thank you Lolo. I love your videos. I can relate to a lot of the issues you raise, and find it sad that people still have to deal with so much judgement and discrimination and insensitivity. I have just switched from a walker to sometimes using a chair at home, and this transition has really been helped by the work of RU-vid educators and encouragers like yourself. Not by my doctors. Not by my family. Friends ditched me long ago. But I found your videos, thanks!!!
My grandad had a milder form of muscular dystrophy and was an ambulatory wheelchair user into his like early 70s. He could still walk slowly around on canes.
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