Where Are They Now: Sabrina Low-Dumond, 2016 TORCH Award Winner 

Since receiving a TORCH award in 2016, Sabrina Low-Dumond has continued to advocate for people living with Pompe disease, like her son, Zach.
Sabrina discusses the impact of advocacy and shares her personal journey testifying in front of the Senate and encouraging the successful passage of a law that made Pompe disease part of newborn screenings.
Sabrina also offers advice to other parents on empowering their children to manage their disease and reflects on the impact of newborn screening on future generations.
#TORCHAwards #TORCH #RareDisease
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