Why I HATE Autism Awareness Day - Unmasked, Unedited, Unwatchable

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Hi! I'm Orion Kelly and I'm Autistic. On this video I share my personal lived experiences as an #actuallyautistic person. #orionkelly #autism #asd #autismsigns #whatautismfeelslike
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Orion Kelly is an #ActuallyAutistic vlogger (RU-vidr), podcaster, radio host, actor, keynote speaker and Autistic advocate based in Australia. Orion is all about helping you increase your understanding, acceptance and appreciation of Autistic people.
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Related: autism, autism diagnosis, Orion Kelly, orionkelly, thatautisticguy, tiktok videos, autistic, autism in adults, autism in women, autism in men, autism spectrum condition, asd, autism spectrum disorder, aspergers, aspergers syndrome, autism in boys, autism in girls, dsm, dsm5, autistic adults, autistic kids, autism mom, autism parent, autism family, autism speaks, autism awareness, autism acceptance, autism at work, am I autistic, adult autism test, autism disclosure, autism therapy, autism prevention, autism meltdown, autistic burnout, autistic behavior, autism symptoms, autism traits, autistic signs, what autism feels like, love on the spectrum, stimming, echolalia, anxiety

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28 сен 2024

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Комментарии : 457

@Kehtilan 5 месяцев назад

Both my partner and myself (both self diagnosed autistics) are both struggling. He hasn’t been able to keep a job, and I haven’t been able to work because of a combination of depression, social anxiety etc. we’ve just been surviving for years, and I’ve had to have help my entire adult life. “Surviving to thriving” is definitely BS.. it’s all buzz words that sound nice, but don’t actually do anything.

@pro_154 5 месяцев назад

Does the b******* that I'm going through and they really keep on trying to sell you a dream of a getting easier better because they don't want to accept the fact that you're actually playing with less than a full deck of cards and winning the game better than them

@pro_154 5 месяцев назад

What I would like is the actual assist instead of scientifically guaranteed to help me become more self-reliant but that's crazy when you live in an environment that seems to be predicated on taking advantage of the less fortunate.

@calamity0.o 5 месяцев назад

Surviving to thriving is a phrase to empower those going through abusive narcissistic relationships. I've not heard it used for autism before.

@stephenie44 5 месяцев назад

@@calamity0.olots of people use it for lots of things. And everyone seems to think it’s a clever combination of words.

@leslieyancey5084 5 месяцев назад

Thank you for this, Orion! I’m currently trying to find a job, and had my 2nd interview with a company today. It was brutal! I hate open ended questions and “tell me about a time when you made a mistake, and what did you do about it?” My mind just goes blank and I end up not being able to think of anything relevant. 🙄

@Squeebicus 5 месяцев назад

Love the idea of it and appreciate the thought but I take issue with the term “awareness”. No one needs to be aware of me because I’m not a danger to anyone. I need understanding, not awareness.

@LunarWind99 5 месяцев назад

I saw in the comments of a video by an autistic creator that it should be renamed 'autism acceptance day' and I second that so strongly ^_^

@skachor 5 месяцев назад

@@LunarWind99 I agree, but really everyday should be everyone acceptance day. We can dream...

@PuffTastic 5 месяцев назад

I never realised people took the term awareness that way actually, I always thought autism awareness meant awareness of what autism actually is opposed to what people perceive it to be so an awareness of proper understanding which leads to acceptance.. I've been using awareness and promoting it a lot and I feel uncomfortable with my actions now that I've interpreted a meaning incorrectly :(

@skachor 5 месяцев назад

@PuffTastic I'm not going to weigh in on whose understanding of awareness is correct, but I will say that I like and understand your explanation as well as @squeebicus's

@citydweller99 5 месяцев назад

Technically the whole month has recently been renamed Autism Acceptance Month.. so maybe it's time to rename the day to that as well.

@daminox 5 месяцев назад

I love watching your "unmasked" videos Orion. They make me feel so validated. I really appreciate it.

@emmalarsson8291 5 месяцев назад

I know right? I feel like Orion is the male version of me 😊

@kalyasaify 5 месяцев назад

SAME! 😭

@daminox 5 месяцев назад

Youre right. It's really weird that non-autistic people pay themselves to run organizations dedicated to raising autism awareness. I also dont like autism awareness month. I work in a warehouse (extremely underemployed btw) for a big-box retailer most Americans have shopped at. This company celebrates "Autism Awareness Month" every April. To make a very long story short: After a few years of this i learned that the vast majority of people in my facility (of over 120 people) have little to no idea what autism is (that includes supervisors, managers, human resources, and upper management). And yet this company decorates the cafeteria and hands out free Autism Awareness bracelets and t-shirts to its employees every April and make a big deal of it. An anecdote: when i "came out" to human resources about my recent ASD diagnosis, this woman- this 60 year old woman- looked me in the eyes and said "Oh? What's that?" with the same inflection of child-like curiosity in her voice as a friend you just told about a new show on Netflix they've never heard of. "Oh? What's that?"... I couldnt believe it. A grown woman. Who has been working in >Human Resources< for one of the largest retailers in the US. And has "celebrated" AA Month every April for god know how many years. And has somehow never heard of Autism or at the very least has no idea what it is. I explained it to her (as best i could on the spot) and she just said "Oh. Okay." As time went on i learned her boss and coworkers (and my own coworkers, for that matter) weren't much more knowledgeable about autism than she was. This was 1 year ago btw.

@its.Lora. 5 месяцев назад

This! My experience as autistic in the US. It's such a joke. All these HR initiatives about awareness and DEI but HR doesn't even understand autism. I work for a hospital system that is owned by a major health insurance company (Murrrrica!) and my HR accommodations case has been sitting untouched by HR and MGMT for over a month. I've reached out several times and no one does anything. Because they don't understand autism! They just want to look good in the public eye so people pick their health insurance and go to their hospital. Profit margins are what matter to them.

@DJ-Daz 5 месяцев назад

Likewise, I have a 120+ IQ, I'm stacking shelves at a local supermarket in the UK. I can build, diagnose, repair computers, laptops, infrastructure equipment. I work on Windows, Mac OS X, DOS, Linux. I can design, build, diagnose networks. Yet I stack shelves 3 days a week.

@itsallgravy7 5 месяцев назад

@@DJ-Dazwork for the government. They love Autistic workers ❤

@rocketraccoon1976 5 месяцев назад

Autism Awareness Day/Month is when non-autistics can grift some money and/or social credit/fame for pretending to care about autistics. 😒

@hameley12 5 месяцев назад

That's terrible! Not long ago, when I did my driver's test for my license. The driver coach and I were talking suddenly we began talking about the streets and its history, and about the nearest city and how sad that the oldest stadium and the recreational center were demolished a month ago. She looked at me like she didn't know what I was talking about. This was a woman in her 60s, maybe 70s. Who's lived her whole life here in the States and has family members and friends, and has been driving for years. Let me explain the importance of the stadium and centre. Both were used by children and adults for 100 years, used by the unemployed and homeless for 30 years. On its last life, it sheltered dogs. Until it was bought by a developer who plans to build a bigger and better stadium. Needless to say, our conversation stopped, and I parked the automobile. I passed the driver's test and walked away really sad. Similarly, when I explained my diagnosis to my family, half of them laughed and asked, "What does that mean?" The other half asked me."What is the plan? We will back you up. Anything you need, we are here" How people live without knowing is beyond comprehension. Plus, most of the information is plastered all over the city in posters, adverts, AA Month, TV shows, etc.

@meggieigge 5 месяцев назад

You're absolutely right! I wish we could stop having all these "XYZ month" things where people outside XY or Z groups try to cram that group's history, lived experience, and challenges into a month or a day and then get to wipe their hands and say, "ok! well that's done, on to the next one!" without ever having to do any actual meaningful work. I'm so grateful for these unmasked and unedited videos, thank you for sharing your thoughts.

@autisticcupofjoe 5 месяцев назад

I'm another big fan of your unmasked/unedited videos. I think they're the best things you do. You are so brutally honest and passionate. It's rare to see these days.

@TheAutisticRebel 5 месяцев назад

Someone's gotta say all this... thank you ORION!!!

@hellequinm 5 месяцев назад

It's weird, my therapist asked me a few times when I say I struggle with how the world works, it's not fit for me "would you like to have more adjustments or that changes are made to accommodate you?". The truth is: no, hell no. And by your comments on NT ppl running those organizations, it gave me a hint on understanding why I don't want accommodation. Accommodation from NT people is pity, they think you are less capable, less able and start treating you like a child and keep ignoring your triggers and burnouts. I feel disgust just thinking on this possibility. Agree with you, maybe what we really need are company managed and run only by autistic people hiring other autistic fellows. I don't want to keep asking to be able to exist and pleading to NT people to allow me to do so.

@gothboschincarnate3931 5 месяцев назад

they will have to at least meet you halfway youngling...zero accommodation only hurts us.

@FaolanHart 5 месяцев назад

I really appreciate these unmasked videos. I have found myself masking more & more over the years. I used to be a lot more natural. But I find it much harder to do these days. So seeing someone being brave enough to show their natural self is really appreciated. I was diagnosed as a kid. But only started to dive into the online community over the last two years. So this awareness month isn't something I knew about. I feel the same way about Pride month. It feels so fake & patronising. Especially when the corporations get involved to make some money out of it. Most people that come under all of these "awareness" campaigns just want to be able to live normal lives, & a little understanding.

@jessicaroy4125 5 месяцев назад

Thank you for making these videos. I found your channel a week ago. It was the imposter video and the timing was amazing. I had just shared with someone that I am neurodivergent and she reacted by saying " Huh well I guess we are all a bit autistic". Her comment and reaction was surreal. She has a grandchild with autism who I am assuming does not resemble what she sees in me so she assumed I was lying I guess. Then she met my son who is also on the spectrum and said to me "wow he can speak so well!" What is wrong with people. Anyhow sorry for the rant. I just wanted to say that in just one week thischannel has made me feel so validated and seen so a big from the bottom of my heart thank you!

@EphemeralTao 5 месяцев назад

There are few things that make me more angry than someone saying "I guess we are all a bit autistic". That whole "Everyone is a little bit X" is just a form of denialism known as "universalizing". When you universalize, you deny the impact a particular condition has on someone's life, by equating it to a minor quirk or inconvenience in yours. Nah mate, you're not "a little bit X", you just don't want to acknowledge just how deeply this impacts every single part of our lives. People like that make me absolutely livid. You can't say "well, I guess I'm a little autistic too" out of one side of your mouth, then call us creepy, weird, aggressive, and obsessive out of the other side. It's like someone who is a little stiff getting out of bed in the morning saying "well, we're all a little bit disabled" to a paraplegic, who cannot even navigate the world you created and live in without much more effort than you can even imagine. "Everyone is a little bit X" is not their way of trying to understand us, it's their way of trying to make us shut up and go away.

@jessicaroy4125 5 месяцев назад

@@EphemeralTao It's really hard to open up that you are on the spectrum cause it gets implied that you are lying but then when you don't say it people are like why do you take things so literally or why are you so upset about that sound and so on and so on. You just can't win.

@EphemeralTao 5 месяцев назад

@@jessicaroy4125 Yeah, exactly.

@GoodTarget_ 5 месяцев назад

I could write a horror book using sentences said to and about autistic children during the "march for autism" in the preschool I work at. More than one teacher were extremely upset for having to take autistic children with us. One of them threatned to leave a little boy behind. He was upset cause she said, we're gonna leave now, but made students wait in line for 10 minutes. "Ok, everyone, let's make another line here and leave him out, cause he it not behaving. I will leave you behind and I'll show you!"

@HaakonOdinsson 5 месяцев назад

After all the dismissiveness I get from everyone around me, this is a blessing. Thank you for this Orion, much appreciated 🙏⭐️

@AquaPeet 5 месяцев назад

YES! Hire autistic people to help autistic people! 👍👍👍👍👍

@SunnySunshineField 5 месяцев назад

❤

@mrmrlee 5 месяцев назад

First! Thank you sir, for all you do for our community.

@megadjc192 5 месяцев назад

I agree 100%. I find it disgusting that there are people who think they are "helping" by trying to speak for me or demand stuff out of me. I think so many of those organizations are simply patronizing "feel good" organizations. They are doing it to make themselves feel better rather than actually having some accountability and helping. I have also struggled with trying to understand the political correctness of the organizations too. An example was "how autistic people identify themselves?" and trying to establish some sort of way we refer to ourselves like pronouns and stuff. I found that odd as most autistic people including myself don't really think that way. We simply use whatever terms we have access to or understand to communicate that we are autistic. It reaks of "mom with an autistic kid" vibes rather than actually being driven by autistic people. It is confusing. I also have learned that you can't simply build a "compatibility layer" for people with autism. At the end of the day, we need a complete paradigm shift. For me personally, the biggest need I've had is for people to actually accept my abilities for what they are and understanding that my goals are for function and not for an aesthetic. I do wish I could do more to help my fellow autistics', but I struggle with managing the amount of work it takes to keep that up.

@nancyziegler5724 5 месяцев назад

Thank you for being real and speaking the truth. It is BS how 'they' act. Its super frustrating. Ignorance is Bliss for the 'suits', always is. I have had so many bad experiences in the Workforce that have scarred me. I know im not alone. Without my close family member, with whom i share an apt, id be in a huge mess. Keep it up Orion, you speak for so many of us, you are priceless. You speak what i feel and am unable to express.

@Dancestar1981 5 месяцев назад

I don’t work due to ptsd in toxic work environments I have Asperger’s and combined adhd

@nancyziegler5724 5 месяцев назад

@@Dancestar1981 i no longer work outside the home either. what a relief. i get it

@JayBurkhart 5 месяцев назад

Orion, thank you for your honesty in this video. I really appreciate the points you brought up. I'm 43, and I'm successful with my career, and married for 21 years. I've been struggling for about 15 years just to wake up every day and do "normal" sh*t, and wondering why it's so damn hard. At 43, I'm just now discovering that I'm autistic. I'm realizing that I've had severe autistic burnout for 15 years and just pushing through it at great cost to my mental/physical health and my marriage. 5 days ago, my first experience asking for help after an eye-opening and painful process of self-assessment and self-discovery was to have my doctor literally laugh at me when I asked for a referral for an ASD specialist. She insisted that either it was impossible for me to have autism because I have a job, or if I did have autism, that I'm totally fine and don't need any help. stupid, ignorant sh*t like this that comes from the same people who are supposedly there to help us needs to stop. The ignorance and bigotry from clinicians and medical "professionals" is unacceptable. I've been seeing a lot of the same things that you brought out in this video, and the more time goes by, the more indignant I get. Just to survive, I've developed the dogged persistence and stubbornness to push through whatever I need to and kick down every f***king door until I get what I want and need, and that's what I'll do in this case. But it shouldn't be that hard, and we shouldn't have to self-advocate to that degree to get help, and we shouldn't be laughed at when we ask for help. I'm angry not just for myself, but mostly on behalf of autistic people who don't know how, or just plain can't push like I do to get what they need and deserve. I've been working as a firefighter for nine years and getting bullied and harassed so bad at work that for over a year, I've been arriving to work and sitting in the parking lot for half an hour with my hands shaking before going in, confused about whether I should cry, quit my job, or if today will be the day someone starts a physical fight with me. And this bullying and harassment is coming from the supposed "heroes" that everyone thinks are there to help them. These "heroes" Are the most broken part of the same medical system that has no clue about how to treat or even just show human respect to people with autism. I'm seeing a huge need for advocacy, and looking forward to what's next in my journey and how I can help. Anyway, that's my rant. Thank you for this video. I hope to see more like it.

@Crouteceleste 5 месяцев назад

Just so you know, you actually made me cry at 27:00 because hearing from someone that you were brutalized by society and no one ever aknowledges that for us, is both terrible and freeing. Yes they've hurt us and they never apologise or take responsibility. They are supposed to care for everyone and each other but somehow it's okay to not care and even actively smother us. And then they blame us and make us feel bad for showing signs of the consequences and who we are.

@PowerMechGuyTechMasterEarl 5 месяцев назад

Disconnected. I couldn't agree more. It's the conclusion I keep coming to over and over again. I don't even know how one starts to address it either. Thank you for posting, this was once again incredibly cathartic.

@malapropia 5 месяцев назад

"It's not about not getting not getting to thrive, it is the world refuses to acknowledge the in between". Yes, Orion! Yes! They are allergic to process. No understanding of how to get from one point to another, nor how to figure out how to navigate, too busy being ashamed of their fetishized vulnerability. also: do we all think in statistics? That bit about Everest was pure genius. Feeling so much belonging.

@BarryBazzawillWilliams 5 месяцев назад

Thanks for articulating something I was struggling with. I work at a large government department, I am lucky enough to have supported employment which both helped me get my job and helps me day to day. Last year a group of autistic employees, released a great piece of writing for April. I was not involved in this but through their writing I was connected with a large group of autists across Australia in government. We were trying to organise something for this April and had lots of good intentions but I did not have the spoons to do this in my own time. It would have been great to be given a day of work hours to work on this.

@travisriggs2635 5 месяцев назад

I’m recently diagnosed autistic (10 days ago). It’s been rough. Your videos have likely saved my life. Thank you. I’m getting on, and I know I’ll be OK.

@zeekay3205 5 месяцев назад

I appreciate this video so much!!! 😊❤ As a Caribbean Black female in the US - this is essentially my exact sentiment more or less about Black History month as well. It's a cross between "Appreciate the half ass, watered down, throw away, kinda insulting gesture" and "indifference / this is a nuisance / dont bother me about it with a million questions, this is 2024 hit the internet / idgaf about this day/month/whatever / It is not my "privilege" (scoff - AKA responsibility to educate you about this stuff - but then I seem like a bitch with a chip on my shoulder for saying it so I don't 🤷🏽‍♀️ - I have to pick my battles regarding questions about topic regarding my identities (Black History Month, Woman's Day, Autism Awareness Day, Queer etc) questions about it. Love this video!!! 👏🏽 🔥 💯❤️ Yes. Very brave about this - love, respect and appreciation for your channel grew even more!! 🙌🏽 Just YES I've seen this video since the day it came out but I get annoyed/worked up about social injustice so realized I "had to really pick my moment" when I realized you were really "getting to it" and came back today when I would t listen and be angry)worked up for days. Please don't be mad. It wasn't cowardice. My Audie self and Audy bf and I appreciate the video!! (he goes by "Aspie" but I can't with the sordid history- he also has ADHD and needs some time to "load" what Asperger's Syndrome means within the context of history.)

@Mistah_Krinkle 5 месяцев назад

Thank you for sharing whats in your heart. The sentiment you shared at the end hit deep.. I've been struggling with being hopeful for the future. At least I can watch your videos and not feel alone.. I appreciate you brother

@aragornweaver160 5 месяцев назад

Orion, I don't frequently watch these videos. But I am subscribed because now and then when I really can't figure out what makes me such an unlovable freak, what about me makes everyone so uncomfortable, what I keep missing, etc. you call things out can see no matter how much I try to explain it. You make jokes I've never heard before, on aspects of life I never hear anyone else laugh at. You have not only made me feel seen, when I felt inhuman. You saved my life. Ty

@joana.en.pyjautiste 5 месяцев назад

Thank you for sharing your true self 🙏 In France, for the 2nd of April, they put a moovie about autism on tv...talking about a mum who murdered her autistic child 🤦‍♀️😰....... Yeah....good message....😑🤮

@richwatson28 5 месяцев назад

I’ll be honest Orion, I’ve never been able to watch any of your regular videos all the way through with all the quick editing, it’s a bit too much for my Autistic/ADD brain to handle. But this was something else. All in one take. I want to articulate this exact message to people I’ve known but have lost touch with, such as parents, siblings and even nieces and nephews who ARE thriving in the NT world. Pure emotion. Brilliant 🫶🏼👌

@rachelmintoff8301 Месяц назад

I remember during seeing an NDIS services actually ripping off Autistic creator content, word for word and putting their own name on it!!!, and when called out they blocked me and didn’t acknowledge it!

@whitneymason406 5 месяцев назад

I definitely have mixed feelings about this month. Thanks for sharing your perspective!

@ItsRyan265 5 месяцев назад

Thank you for voicing your concerns. It means a lot to me to have someone put into words so well why an event like this would be frustrating. It's too many factors for me to articulate why something like this is systematically ineffective.

@GeekGamer666 5 месяцев назад

Honestly, it's important for autistic influencers to be authenticly unmasked sometimes. Yes you have to mask to do many things related to that profession but at the same time the responsibility exists 'walk the talk' to show the rest of us that watch the content that it's not possible or healthy to mask continuously. Edit: I wanted to add that you're now my favourite autistic influencer because I agree that all those autism charities are full of poop and it's nice to hear someone call them on it.

@delphinebez3045 5 месяцев назад

I dont care, April awareness month is what led me to self diagnose last year and watch your content 🎉 I dont discard what you are sharing here. But, i am annoyed by the usual "neurotypical" blaming in our community. How about accepting their limitations and issues too ? I admit that it's not easy being around us NDs. Everybody deserves attention. And compassion goes both ways. I survived being autistic for 57 years, and I preach love for all, and self awareness. I see many neurotypical people suffer a great, deal deal in their lives, and being misunderstood too.

@sonicfan82 5 месяцев назад

Congratulations of your diagnosis🎉, I agree what he saying here has a lot of facts to it.

@edzielinski 5 месяцев назад

You're arguments are compelling and insightful. I learned a few things along the way, which is great. I would also like to add that there is an inherent problem with organizations, and especially large organizations of any type, which is that their primary interest is in sustaining themselves and ensuring their own future (e.g. governments, religions, countries, etc.), and this can compete with their charter. So we need people to hold them accountable to their stated mission, and that needs to be people outside the organization or with some stake in what they are offering which is not in competition with the organizations internal operation. Thanks!

@LinauLee 5 месяцев назад

Sad but true...Orion, so well put!

@Pjolter365 5 месяцев назад

Thanks for speaking up Orion, and everything you do on your channel!👍

@neltivana1975 5 месяцев назад

YES I love UNMASKED Orion videos 🖤🖤

@Sky-Alien 5 месяцев назад

Orion, your videos are very helpful leading me into better understanding. Thanks for that 😊.

@donovangray4246 5 месяцев назад

Again I get to see how your brain processes in real time. I concur and it's those who throw money away on the wrong things because of bias and non acceptance

@TheRawChuck 5 месяцев назад

Thanks, Orien. I tend to agree with you on so many of the points you mentioned.

@TheseAreMyHooves 5 месяцев назад

Love you Orion! Thankyou for sharing and being so open and positive. You give me hope and confidence to be my true (autistic) self. I know and feel almost exactly what youre feeling and its uncanny and heartwarming+breaking all at the same time. Thank you

@yetanotherhannah2036 5 месяцев назад

Thank you!! I really want to go to an Autism show in the UK but firstly, I can’t afford it, and secondly, the capacity is for thousands of visitors! Call me crazy, but how the heck do they expect this to be “accessible”? I will have to force myself to go just to gain the benefits of learning more about myself and to have the opportunity to learn coping mechanisms. It doesn’t make sense to me 🤷🏻‍♀️ Thanks for the videos! You’ve really helped me during my darkest moments

@Mountain-Man-3000 5 месяцев назад

NTs have serious issues with being held accountable these days. It's unfortunate for us that we don't change our views based on "well everyone else does it so I'm going to do the same" like most of society these days... At my job I get punished for trying to hold us accountable to our clients. I get why you're so frustrated Orion.

@BlueRoseHelen252 5 месяцев назад

Well said Orion.

@tarkus900 5 месяцев назад

You often speak my thoughts and feeling so well. Very glad to have found your channel, thanks for helping me understand myself better.

@ANinjasMom 5 месяцев назад

I was ranting along with you. Thanks for your videos

@shellyinsouthoz 5 месяцев назад

Well said Orion. ❤

@gillb9222 5 месяцев назад

What is really annoying me at the moment is that I am looking to do my masters and apparently not one uni in the UK is doing research or teaching about ND. No wonder no-one knows anything about it. Its sickening

@QuirkyKerrie 5 месяцев назад

This video needs to go #viral !

@michaelfreydberg4619 5 месяцев назад

28:00 in approx. love it. And Karen from proudly autistic talked about this. I need to watch the video the two of you did together.

@doodleplayer4014 Месяц назад

"What's it like living with autism?" Right, let me just go ask him, I forgot to bring him with me today. /s

@bensabelhaus7288 5 месяцев назад

One tiny bit of good news for this month. Lego set the example again and is offering sensory bags including ear muffs for while you are shopping there. Lego has always been fantastic. That said, we actually remove the sensory blockers once we get to the store lol Lego store / Legoland / Lego experience or whatever they call it have always been open and welcoming while not being overly noisy etc... Lego didn't need to do this (I let them know and as usual had a nice back and forth lol) But they are setting an example and that should be celebrated. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-8uV_SpIlT7c.htmlsi=J2OtCiHezIMg7jsu Edit: How in the actual F do you manage not to curse during these unedited ones? lol I honestly thought the F word was basically our version of a Habu!

@joe_joe_joe_ 5 месяцев назад

My man Orion spitting facts like nobody's business.

@batintheattic7293 5 месяцев назад

I didn't even know there was anything to watch out for, in April, bar it being the first crest of silly season and therefore a month of extra cautiousness. Don't do the radio interviews, any more, Orion. Like you said; it's impossible to convey anything meaningful in the snapshots carved out for you. It's, probably, counter productive. I'm not even sure the autistic spectrum is the minority one (might have said something ultra controversial, there). We're trying to sing to the hymn sheet of a self styled dominant majority. One way of changing direction, between surviving and thriving, that I'm sure is already being worried over by top flight sociologists as being potentially critical to everybody is to turn down the volume on the intrusive mechanical noise. It's getting louder year by year. And, unless you know the physical signs to look out for, many people probably don't realise just how much it adds to the deficit column.

@TheprayingGrannylovehopeandFai 5 месяцев назад

your channel is great. i have grand kids and boyfriend that has this helps me understand better to those i love

@TheprayingGrannylovehopeandFai 5 месяцев назад

your right on

@mamahansonga 5 месяцев назад

I don’t live with autism, I am autism…I want that on a t-shirt!

@Sommyie 16 дней назад

Hello from September! I too am barely making it. Almost no friends, my relationship is terrible, I'm too blunt or not sensitive, and I hate every day more than the one before. It's pure pain some day. What's that song again? Pain is better than nothing?

@chrisanthony6933 3 месяца назад

Loved your rant! I need to vent a little now too 😂. The National Autism strategy is a joke. Its purpose isn’t to help autistic people as that would require money and action - it’s to make NT people feel better. It’ll get a flashy launch and then the NT folk can put our struggles out of their minds happy in the knowledge there’s a strategy. It’ll then get put in the cupboard with all the other strategies they need to pretend to care about. The reason there’s noise around an explosion in autism diagnosis’s is to enable them to tighten rules around autism eligibility for the NDIS. They need to make out like people are gaming the system to get onto NDIS. 😂😂 😂 like somehow that’s a great life. NT people are already lapping up that narrative. I love my autistic brain but who in their right mind would choose the life that the NT world forces us to live.

@willowtree9291 5 месяцев назад

The UK passed an Autism Act in 2009. How much difference did it make? Not a lot really. In my experience the people who understand autism are people who have autistic family and friends.

@patryn36 5 месяцев назад

If what i suspect about myself is accurate, i am a version that needs either info i currently do not possess or a different group of people to interact with. There is a high probability i am a high functioning version of autistic, only dealing with people effectively is what i have trouble with.

@rubikzombie 5 месяцев назад

In the US, for these reasons and more, I'm stuck being undiagnosed. I strongly agree with everything in this video. Life is hard, just surviving is crap. Living the life of a caveman is unacceptable.

@chrismaxwell1624 5 месяцев назад

Exactly, It's not problem if I offend someone else. That only applies to strangers. I don't know their triggers, background or anything about them so that is completely not in my control. Now people that close to me, I'll see how I contributed to the offensive problem. I know them better and what could be taken offensively when I just communicated wrong and I can ask question to clarify.

@NursissisticOfficial 5 месяцев назад

Well this is aptly timed with my mood, lol.

@NursissisticOfficial 5 месяцев назад

This resonates so much with me. I'm trying SO hard to get a Twitch channel up and running out of desperation for income at this point because I was laid off by an "Autistic Friendly" company in 2020 and haven't been able to find employments since. I'm so disheartened at this point, and exhausted.

@orionkelly 5 месяцев назад

@@NursissisticOfficialdo it!

@jasonthomas208 5 месяцев назад

Nobody gives a crap about how I've struggled my entire life, so why would they care now it has some date tagged to it?

@paolinabd3567 5 месяцев назад

Love this video🥰thanks Orion🙏🩵

@KCBfly25 5 месяцев назад

I'm trying to learn more about autism, bcuz there are 2 little kids that walk past my house a lot with their dad, & they are both non-verbal autistic; i'd like to know how to communicate with them. (They like walking around in my flower gardens, & I welcome it!) In regards to this video, I liken society celebrating AA Month to Epilepsy Awareness Month. I have epilepsy & have been dealing with seizures most of my life (38 yrs). People can put a ribbon on but have absolutely no clue how to handle a person having a seizure & most don't care. They simply want to wear a ribbon & feel they did something without doing anything. Seizures affect my daily life, even though I haven't had one in a few yrs. I still get twitches & jump at a loud noise. I have to take meds to prevent them; those meds have side effects I deal with all the time. So, I feel I understand you in this video. I feel these awareness days are a money grab for those at the top. Very glad to have the info f/your vids. It will help me with the 2 little ones & with a girl I work with! Thank you!!🦋

@conradgiese3248 5 месяцев назад

I hate autism acceptance month tbh, I wish it was autism acceptance year EVERY YEAR. Nobody cares about us outside of April(they don’t even care really during this month.) it’s exhausting

@mooreanonumbers 5 месяцев назад

Recent world events are a good indication of utterly toothless the UN is

@paulblyde2175 5 месяцев назад

I have been told by a Dr I may be on the spectrum, when I bring this up with anyone they say everyone is slightly autistic...or what's that ..I explain and they go on, I think I have that too. So invalidating...

@E.Pierro.Artist 5 месяцев назад

Aside from all that, I'm autistic and i literally get nothing from any of these organizations. The government won't even give me anything, either, so...

@SpacyMidnight 5 месяцев назад

I just cant Watch it all . Ive had your thoughts and anger and worry. I tried to unalive myself after new years. Got through these 3 months with absolutely NO UNDERSTANDING from the health care system.

@Shreddette 5 месяцев назад

Hi I know this is OT but I'm interested in what you think about DBT for autistic people (good and bad) that is, if you've got any opinions on it. Love your channel!

@royahoffmeyer3959 3 месяца назад

❤ thank you for all that effort

@secretfox8940 5 месяцев назад

My kiddo was telling me that April is disability awareness month. So I guess with autism being in that category is why all of April is seen as autism month.

@Miss_Elaine_ 5 месяцев назад

Redness is Rosaceae. I have the same problem, especially with the tip of my nose.

@kawag6356 5 месяцев назад

I totally agree, you get it ❤

@RonMcNeil 5 месяцев назад

Thank you Orion 🙏

@SheerMagnetismDarling007 5 месяцев назад

Thank you 🙏 so much Orion 😘

@zweibeiner 5 месяцев назад

You look like you need a hug, here is one. Big hugs!

@peteracton2246 5 месяцев назад

Ticks a box. Cheap politics (they mostly are). Spot on Orion in this vid.

@chrismaxwell1624 5 месяцев назад

I get that same thing on face too when stressed. Have it right now. Come and goes .

@markpomeroy3101 5 месяцев назад

So I also have the same issue and it’s been diagnosed as Rosacea, a genetically inherited skin condition that is triggered by a long list of things that differs between each person; however, stress is usually close to the top of everyone’s list. Have a look. I’ll bet it’s Rosacea.

@TheAutisticRebel 5 месяцев назад

I can't get enough of this... the world needs to open their ignorant eyes!!!!

@annies-channel2928 2 месяца назад

Thank you!

@qlue7881 5 месяцев назад

We need to "unionize"

@KatieB33 5 месяцев назад

NDIS has allowed health care providers to legally charge more than if I went as a private patient. Therefore wasting more of the taxpayers money.

@samanthalang3402 5 месяцев назад

They've taken the money to teach us we autistic people need to change our behavior and how to think instead of supporting us

@johnstover4584 5 месяцев назад

I hate the segrating days and months. We want to be accepted and be like neurotypical people. So giving us a day or month will make us feel different then everybody.

@edwardbrett6133 5 месяцев назад

thankyou - completely agree

@g0atlady 5 месяцев назад

I think the main problem with Autism Awareness Month/Day/Week is that it is drawing attention to a group of people who spend the majority of their lifetime trying to not draw attention to themselves.

@KupcakeKitty 5 месяцев назад

I work in retail that sells clothing, so during the Autism Awarness I try avoid looking at Autism Speak merch. Being Aspie artist myself, it makes me sad see nice design supporting a "Company" doesn't treat Autistic ppl with respected.

@deniserobinson3044 5 месяцев назад

I would love advice on how to help a 25-year-old male with ASD lessen his excessive talking about anything and everything he observes. He must never use his inner voice because I hear everything. I am not referring to his special interest. He is learning to ask if it is a good time to discuss his high interest. For example, I may hear this from him in just a few minutes. ," Oliver (the dog) walked into the room. The sun is out. I hear rain. the washer is running. The yellow dog is out. Oliver rolled over. I have to brush my teeth and make a sandwich. Wrestling is on later. I'm good. Oliver rolled on his back. Your blanket touched the floor. Carley said ... " If he sees or hears it; he says it! Help!!! I don't want to discourage his communication but this is not communication this is just random comments that don't need to be said out loud. If you have any suggestions or ideas to help him and save my sanity, I would be greatly appreciative.!!!! Love your channel.

@stillnotstill 5 месяцев назад

I think that instead of trying to approach it from a, you talk too much, kind of perspective which seems like the knee-jerk reaction somebody might have.. I think it might be good to approach it from a, sometimes this stuff does not need to be communicated to me kind of approach. So like you said, it's not communication... So I think it would be a matter of trying to facilitate a distinction between things that he could communicate with you versus things that he's narrating to himself. And then either redirect the narration into a journal type of thing or if he is needing to say it out loud, having a cue for when it's time to have communication versus when it's time for something that you can tune out. So maybe to say, if there's something that I can observe myself, then perhaps we don't have to talk about it and you can talk to yourself more and if there's something that we want to communicate about you can get my attention so that I know that I need to pay attention. I mean all of this is guesses but.. hopefully this will help a little?

@marksteven6116 5 месяцев назад

Its best to wear a mask lam over 60 tell people you have something wrong with you is not a good idea. Trust me on that predators pray on the weak mask 🎭

@Weird_guy79 5 месяцев назад

Bloody sadly true.

@birgittnlilli9726 5 месяцев назад

True. I tried to talk a bit about autism and how it affects me to family and they seem to be so uncomfortable and dont want to talk about it. So wearing the mask forever and ever it is.

@ceanhuckabay1559 5 месяцев назад

I love you.

@Mopsie 5 месяцев назад

im not sure its a thing in europe though

@sildurmank 5 месяцев назад

Yep, not sure either, there were a "autistic awareness day" like a couple months ago, but a single day

@Mopsie 5 месяцев назад

@@sildurmankcome to think of it, somewhere rings a bell but its not as big here as what Orion is talking about

@quekbridget5988 5 месяцев назад

Not big in asia too i mean a lot of asia barely has mental health issues down...

@rocketraccoon1976 5 месяцев назад

Australia's National Autism Strategy: Anyone wanna take bets that they'll still be "strategizing" a decade from now. (Probably at various vacation destinations in Australia and around the world.) 🍸🫂🏖️

@dominic.h.3363 5 месяцев назад

"They all ask the same questions. They always ask about living with autism. I live with my wife and kids, I don't live with autism. I AM autism." I am to this day unable to properly convey to people that being born paraplegic and sitting in a wheelchair is LESS of a definition of me, than autism, because autism is orders of magnitudes more pervasive than simply considering stairs enemy #1. I wasn't even diagnosed because every single odd behaviorism was shrugged off as just the weird thing the paraplegic kid does because his legs don't carry his body, which is total nonsense, putting just all of it in the same pot. I've felt like there was more to my experience all my life, and then I found the language that described my experiences in autism. NT people are going by their assumptions to not have to ask direct questions as socialization attempts, and I am the one whose communication and socializing is deficient? My communication is allegedly disordered while they are the ones minimizing social contact to instead rely on their guesswork? I am autistic and I still see the irony of that. Nobody gets it. How paraplegia just modifies things (instead of 'this', you do 'that' for the same purpose, additional steps, same goal). While autism redefines and reframes them entirely (you don't even perform tasks for the same purpose). Thank you for listening to my TED talk.

@CindySmith-vd7xh 5 месяцев назад

I have autism too and reading your comment made me shift my perspective on disabilities lowkey. Autism effects every part of my life cuz it's the filter that my perspective literally goes through 24/7. Thanks for sharing ❤

@laura5425 5 месяцев назад

I wish there were a TED talk where you gav that insight. Invisible illness is usually where things get tricky with the outside world. It's easy to minimize or talk away if you can't see and anticipate the struggle. And it takes ages to realize that your own "normal" is not the average "normal" in most aspects of the day and that your hurdles are costing you a large percentage of your energy which you lack for other things... Thank you so much for sharing this!!!

@Crouteceleste 5 месяцев назад

Good TED talk, I hope you get the opportunity to go onto a real one one day because I would like to listen to you. Guess work and vague conversation topics as social lubricant is STUPID.

@raining_trees 5 месяцев назад

Thank you SO much for this look into the differences between your disabilities! I love it

@franki1990 5 месяцев назад

This is so well put, thank you for sharing it

@rikkicobb2693 5 месяцев назад

I'm quite glad that I don't buy commercialized autistic and autism related items. I will say that I never bought my son the t-shirts or things because they tend to have a very negative connotation in the underlying message, in my opinion. For instance a shirt, hat or w/e may say "please be patient, I'm autistic." I feel like if I bought that shirt for my son, I would implicitly be saying "I'm so sorry that my son's existence is a burden to you, please just tolerate him." I'm not okay with that. He's not the problem. So, I embroider him sweaters and things. They say things like "I don't have to apologize for being Ausome" and "I don't speak much because I'm brilliant and I am too busy thinking." These highlight the fact that he is not a burden, he is himself, and if other people are bothered by him then they can f*ck off.

@SuperGingerBickies 5 месяцев назад

Amen! Preach it! That's the way to do it.

@misspat7555 5 месяцев назад

@@SuperGingerBickiesMy daughter’s autism diagnosis changed nothing about how I feel about her; I love her dearly and want all the best of everything for her. Her diagnosis just gives me some clues about how best to pursue that for her! 🥰

@rikkicobb2693 5 месяцев назад

@@misspat7555 if I'm honest, my son's diagnosis changed a lot for us, for the better. I was able to learn a ton about his challenges and that in turn helped me recognize that I needed to be kinder to myself about mine (I have ADHD and I knew that but I tend to have a very critical inner voice.) It didn't change that I love him (of course) but it did change the way I understood parenting because I had to learn to stop paying so much attention to the conventional "milestones" and just appreciate him the way he is without feeling that pressure of "is he meeting this or that milestone?"

@alanguest1979 5 месяцев назад

Many have to realise that autism is not just for April, it’s 24/7, 365+ days a year...

@alanguest1979 5 месяцев назад

Thanks Orion, keep up the good fight.

@Jonz808 5 месяцев назад

I hate these bandwagon 'feel good" moments that only celebrate the "unique-side" but are ignorant or ignore the entire package. Just like the colored ribbons and pins, this often becomes an accessory for that moment and forgotten about after the event is over. We're not an event.

@heatherlewis4477 5 месяцев назад

My sentiments exactly! Autism should be accepted all year round, not just for a day or a month.

@Hydrangea1971 5 месяцев назад

Agreed. I am a mom and a partner of people who have autism, so i think just 1 day is nog enough. But awareness can start with this one day, but I so hope it will transform in an awareness that grows to an very day one. We need a society that thinks inclusive all the time, that learns to make space for people with different needs all the time.

@genevievegreene1595 5 месяцев назад

...for a lifetime

@syberphish 5 месяцев назад

If we're not surviving, then it's a sheer miracle that late-diagnosed autistic people even make it to being diagnosed without self deleting along the way first. It's hard enough when you actually know what you're dealing with; but it can be incredibly difficult when you still have no idea.

@gothboschincarnate3931 3 месяца назад

Goth Bosch Incarnate March 1965 to March 19th 2029...been asking about deletion for 23 years...finally got an answer. not self deletion...just dying from anxiety, Depression and a broken heart. but before i go, I want to contribute the plans for a small Eco-friendly house.

@nessknows. Месяц назад

You are exactly right. I’m 30, had a horrific childhood and developed cptsd and it wasn’t until this April that I was diagnosed as autistic. The fact that I’m alive after three attempts to self destruct is a miracle. And that lost feeling of not knowing why I couldn’t just do what everyone wanted was a core part of that.

@auntycori 3 дня назад

Yes, yes, yes!

@TenshiJuuSan 5 месяцев назад

"Hi. I am a professional technical communicator. I would like a job in my field, with your company. Making complicated information understandable and accessible to anyone is my special interest. However, there is one kind of document I cannot write. I cannot write a cover letter. But that is it. I can write or revise just about anything else." And into the virtual circular filing cabinet my resume goes. Why? Because I am literally incapable of bullshitting my way into an interview with a three paragraph essay on why I want to work for a company I just became aware of on a job site. P.S. No I cannot provide writing samples from previous positions. That is all proprietary information. It is literally illegal for me to show you evidence of my prior work. I don't care if everyone else does it. I can't because it will completely mess my mind up. There are two tricks here. Getting a job within a system that feels like it is deliberately designed to prevent me from being employed. And, keeping a job for more than a year or two after they realize the quirky personality you had in this interview was not nervousness. It is actually how you really are and it is an inconvenience because, just look at that mess of a human. Nah. I'm not jaded or bitter. Not one bit...

@g0atlady 5 месяцев назад

Perhaps you can create some mock writing to show them in interviews? So that you don't use anything that's illegal. Just create one or two pieces that you do off your own back, not for some other business. It's like creating a portfolio, as any other artist would.

@TenshiJuuSan 5 месяцев назад

@@g0atlady I actually tried this years ago. That is not what they want. They want to see actual work that has gone through a publication process within the company for which it was created. If, say, Caterpillar or Komatsu are on my resume they want to see work from those companies.

@Kdrive23 5 месяцев назад

I once saw a post on the website Post Secrets from an autistic person regarding the whole "cure for autism" phenomenon. The postcard said "I'm autistic and I don't want to be cured" or something along those lines. It spoke to me deeply. And it made me realize many of these "Autism Awareness" organizations are largely as you said - run by non-autistic people who think we need to be "cured" or somehow changed to make THEM comfortable.

@Kdrive23 5 месяцев назад

It also reminds me of TV ads you see in the US around Christmas from orgs like the WWF saying "illegal poaching is at an all-time high". OK? The WWF has been in existence for almost 100 years and illegal poaching is at an all-time high? What the heck am I donating to, then? Same with Autism orgs.

@amandamandamands 5 месяцев назад

Autism Speaks was created because a man's grandson was diagnosed autistic (what these days would be level 3) and he wanted to find a cure for his grandson. These days they don't publicly say that they are looking for a cure but they do still fund other organisations that are looking for a cure. They also only stopped saying that vaccines cause autism when they were made to. So I really side eye any organisation that is in any way affiliated with them, also any organisation that talks about ABA in an even remotely positive light.

@SuperGingerBickies 5 месяцев назад

Spot on.@@Kdrive23