Each year on June 29 the National Scleroderma Foundation observes World Scleroderma Day as the punctuation of June’s Scleroderma Awareness Month. World Scleroderma Day highlights the need to increase awareness of scleroderma and to advocate for those affected by this life-threatening disease. June 29 was selected in 2009 by FESCA (Federation of European Scleroderma Associations) as World Scleroderma Day to commemorate Paul Klee, a gifted abstract artist who died of systemic sclerosis on June 29, 1940. A rare disease, there are some 300,000 people in the United States who have scleroderma. scleroderma.org
15 окт 2024
