I am scared too and feel I'm in a nightmare. My husband has dementia. I am so sorry for your loss. You said it perfectly..dealing with having to do everything and losing a partners help and cope with the emotional feelings of grief.
Moms 88 with dementia- we know what to expect As her caregiver I sympathize with your struggle , it must be excruciatingly difficult 😞 Your a frigin’ Saint Hang in there I love you 💕
As a caregiver myself, this hit every emotion and point of concern that consumes my life at present. Thank you for sharing. It helps knowing my own understanding isn’t out of step. Regards
My Dad had age related dementia from the age of 96 so we were very lucky. It happened very fast. He died 43 days before his 100th birthday in 2022. We had a live in carer interspersed with my sisters. It was the night time thst was very tiring because he didnt sleep much at all and would talk very loudly for hours. He stil recognised us all
I have lost three siblings to this terrible disease! Now I am 70, I get a little frightened. Thank God I believe.! I am still fine but I do have some loss of where I have forgotten why I stood up and then trying to remember why! It comes back to me later. I continue to read a lot and do games that forces my brain to think.
A good puzzle for that, Laurie is Sokoban. I have it under linux but I'm certain there's a freebee windows version. Very challenging though even with average IQ. I believe its normal to have what Floyd once said in one of their albums "A momentary lapse of reason". I believe its perfectly normal at our ages (I'm 80) to be a bit forgetful at times. The key though is location, location, location. you should not be losing ANY semblance of where you are and where you're going. Also if you start locking your keys in the vehicle when you've never done that before that is reason for concern and especially if it becomes habitual. For example I've always been rather absent-minded which causes me to pass up my turns because my brain is on "autopilot". But I have no issues with correcting errant ways AND this is something I've always done. Nothing new that I keep doing it, see?
Being constientious about eating a balanced diet while sticking to a routine when it comes to getting enough physical activity may help you avoid dementia. Have you ever had genetic testing done? There are genetic caused condtions like for example Marfan Syndrome which can be treated soon enough to avoid complications like Dementia.
Fighting this with mom. Had to live with and care for her 2 years. Debilitating, overwhelming, depressing and tiring. It kills 2 at the time. My brain is mush. Keep fighting folks. Rough and getting worse.
Jag, Thank you for sharing your story. Like other commenters here, I was also a caregiver. It can really be a rough and lonely road, and 8 months after "the end" I am still very much living in the wake and figuring out the future. To any caregivers out there, hang on. I know it's so hard, but finding others and listening to their stories can help you feel less alone. Try to reach out IRL if you can. For every person who doesn't get it, or lets you down, there is someone else who will reach out a hand. Stay strong.
Thank you for your honesty and so sorry 💔. I’ve been my moms caregiver for 5+ years, Alzheimer’s and doing it 24/7. You’re so right, it is physically, mentally and emotionally exhausting and most of us can’t afford caregivers to give us time to just relax. I’ve been in a zoom support group for 3 years and no one understands unless they live it
I am so sorry to hear about your wife, especially at such a young age. I have a patient that at the age of 23, she was showing signs of dementia. She would put OJ in the pantry, microwave popcorn at 4am almost setting fire because she would cook it for 30minutes, walk around in the home looking confused, parents had to hide food because in the middle of night, she would binge eat, stopped taking showers, would walk around without clothes, then stopped talking. Thank God her family doctor did a Lyme test that came out positive. Lyme Disease is from a Tick bite even though she never had the circle rash. She was given 2 years of IV antibiotics, is much better now but does have a lot of medical problems because apparently she must have gotten bit years before and the bacteria went throughout her body then to brain. Thank you f telling your story, I know it must have been very difficult.
Stay strong & you are so strong, you will soon be with Carol again. This world is but a short journey to where we all will live again, without any more grief or sorrow.
He has gone through total devastation. Unless anyone has gone through the same thing, don't judge!! He loves her, but this diagnosis absolutely changes the relationship. How could it not?
My dear friend needs to be reminded how we are friends. Shes moved in with her daughter. I miss ger, but zi call g er ever y 10 days or so. Shes still my fr I rnd.
With dementias you find loss of cortical tissue. Schizophrenia is biologically not really atrophy so much as a different structural issues going on between neurons
You have no idea what you’re talking about. I have the same situation with my husband. The love changes it’s not romantic anymore. Until you experience that don’t make judgments or statements That you have not experienced! I loved him with all my heart, I miss him terribly, but the love did change. I became a caretaker which I don’t regret at all.
Wow. You obviously didn’t understand what he was saying. You took it totally out of context. He didn’t mean he feel out of love with her due to the illness. Learn to listen.
