I am 50 years old and had to have a ventriculo shunt. I had balance, double vision, vertigo and the most horrendous headaches. I never knew I had one of the worst cases of hydochephalus. My drain is placed above my heart as the first shunt could not drain in my abdomen. Pay attention to the symptoms. I have permanent damage to my eyes optic nerves due to the pressure. I have to wear prism glasses where I never had to wear glasses.
I was diagnosed with this back when I was 12 yrs old. My parents took me from doctor to Dr to try to find me help! My family doctor told them I was on drugs (I wasnt), then we went to see a neurologist and he told us it was a brain tumor(same symptoms) but it wasn't, so he sent me to a child psychologist who thank the heavens knew what was going on and had seen it before! I was sent back to the neurologist who then got me on antibiotics. I was pulled out of school and home schooled through it most of my 6th grade year. All in all it ran its course in about 9 months. Such a scary time! Couldn't talk(slurred speech), walk(no balance), feed myself or write! I'm 57 yrs old now. Back then I think they said there had only been 4 cases known of in the USA.
I WAS BORN IN MEXICO CITY WITH THE SAME MEDICAL CONDITION . I'M 38 YEARS OF AGE NOW . HALF OF MY LIFE I BEEN HAVING OPERATIONS ON MY HEAD . I HAD ONE 2 YEARS AGO . AND DRS TOLD MY MOTHER I WAS DEAD . BUT BY THE GRACE OF ALMIGHTY GOD I CAME BACK TO LIFE AFTER 4 HOURS , BUT TO TELL YOU GUYS THE TRUE I THINK WHEN I WAS DYING AT THE HOSPITAL 🏥 I FELT LIKE GOD WAS WAITING FOR ME . FOR SOME REASON HE DIDN'T WANT TO TAKE ME .
I was diagnosed in 2022 in my 40s. They say I have had it since birth but it showed up in adulthood. It’s called LOVA. I had an ETV last April which made me life threatening complications called cerebral salt wasting syndrome and acute kidney injury stage 2. Luckily I was treated fast in icu as I was already readmitted into hospital. The ETV failed. I the. Had a VP shunt fitted in sept.
I was born with congenital hydrocephalus in September of 1988 avd i will be 36 in September. I have had 6 surgeries in that time..my last one was July 1st 2010. I've always had VP shunts and I'm not a candidate for an ETV Procedure.
I was born at 33 weeks and I had a grade 4 intraventricular hemorrhage and hydrocephalus and my mom was able to hold me for a brief moment, but then doctors and nurses came and took me to the neonatal intensive care unit at St. Joseph’s Hospital in Phoenix, Arizona where I was treated for both conditions and was there for a month. I have the very same VP shunt that I have received since I was 2 weeks old and I am now 25 years old. I have cerebral palsy as a result of the brain damage that I had before I was born alongside ADHD and autism.
I got stung today by a Arizona Bark Scorpion. Initially I thought I stepped on a piece of metal and went into my toe and I couldn’t get it to out. I felt my nerves at the bottom of my foot shoot up to the top of my thigh, that nerve pain didn’t go away for 24 hours. I took Benadryl, Advil, and got two shot from the doctors. The next day I woke up and my leg and foot was still numb 😢
i was diagnosed with Hydrocephalous last year as an adult at 58 .My only symptom was I got very light headed like I was having a stroke. Fortunately I don't have to deal with persistent headaches which can happen to many persons with this condition.. Unfortunately my doctor on the advice of my neurologist immediately made me forfeit my drivers permit
PRINCESS ALEXANDER HOSPITAL LONDON👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳👩🍳
When I saw the size of Emma's head, I wondered how the hydrocephalus was not caught sooner. I, like Emma, had the same symptoms when I was an infant, in '71.
I had hydrocephalus as a baby and had the shunt put in at some months old. That was either 1965 or 1966. I think I was one of the very first to receive that new shunt procedure. I think the surgeon’s name was Dr Long in Dallas Tx. Im 57 now and haven’t had any complications that required medical intervention. Im so grateful for the pioneers of this procedure and to God who made it possible.
Picky eating is dangerous and should not be ignored. I know quite a few people who have allowed picky eating to lead into their adulthood. I was never a picky eater growing up. That is just sad and pathetic. What really bothers me about picky eating is that people will say that they hate fruit or vegetables, which are foods you should consume on a daily basis, but they probably never tried all fruits and vegetables. How do you not know you do not like fruits and vegetables based on the ones you have tasted vs. the ones you have never tasted? It's like saying that you like tuna, and you hate salmon and say, "I hate fish." Spoiler alert: they are both fish. People who stay picky eaters will have serious health problems because chances are they will only eat food that is bad for you on a daily basis. I always ate what was placed in front of me. This is something that should not be led into adulthood. For any picky eaters put there, shut up and just eat what is placed in front of you. You will not know that you do not like it until you actually taste it. There are people starving in Africa who would do anything to eat anything they could get their hands on no matter what it is. Parents, make sure your child gets out of their picky eating habits at the age they experience it, because if you don't, they'll stay like that and have health problems. I have a cousin who is like that, and she has been gaining too much weight as a result, and she thinks there is nothing wrong with her habits. Stop it before it's too late.
I was spoiled growing up on Guam because the ocean was nearby for me and taking a nice a dive in the ocean was always a good way to clear my sinuses. I now use a neti pot 😂😂 Still works though!
Wow! Those would be some awfully BIG shoes to fill for Don Drysdale, Jr.! It makes us very happy to see and hear how well he dealt with that pressure. The Koufax & Drysdale era is still much talked about today and you'll often read comments on what a class, dignified and generous man, Sr. was to the kids growing up in the Woodland Hills area of southern CA. back in the 60's.
I used a different brand sinus rinse on my child just a few minutes ago and she finally had relief from congestion. She had difficulty breathing from her nose for 3 weeks. A sinus rinse cleared her up in less than 5 min. She's very happy and so am I.
So, "scientifically" we can justify putting a high frequency into a new born's brain to gather some statistical data - totally ignoreing the consequences of such event to that kid's entire life ? Not sure how sceinctifc and logical is that
I was born with hydrocephalus I had to have the tube replaced in my 20s then last year I had to have a whole new shunt put in now I'm 40 I'm going every few months now to make sure no malfunctions or anything
Just to add our story and maybe help the others here. Our son was an early born, 28 weeks. In the hoapital he was diagnosed with bleeding in the brain after around two weeks. That bleeding resulted in a hydrocephalus. We were shocked but luckily there was a very good neurosurgeon around the corner. They drove him in the next day and he just put a vavle into the ventricles, as i remember right, to get out the fluid. It was collected in a bag under the skind of the head. Some days later, as the brain fluid became clear and the pressure went down but not low enough just to take out everything and close it. We had a decision to make, a shunt or endoscopic third ventricle operation, just google it - very interesting. We decided against the shunt. The operation went well, but there was a high chance that the artificial hole would close anytime. Luckily it didn't. But the pressure in the head went up and up... We got worried. The doctor made clear he can make the same operation one more time but it can be fruitless, or we agree for a shunt. But we still didn't like the idea of shunts, they are just unreliable and he would have for sure many more operations within his life. So we left it for that moment without any operation and waited patiently if the pressure would go up more or if it will stagnate. It stagnated the next days. He is now a fully working human being. Almost two and a half years old, running and jumping, laughing and complaining, repeating every word, and he loves to dance and make music. Stay strong and just don't lose hope. Edit: Just to add. I personally think that shunts are very good. They did and do a great job to save lifes and help people living normal lifes. It's a great way of defeating the problems of hydrocephalus.
I have sinus issues for years because of my allergy I get it couple of times a year very sever infection which last for a while, I tried diffrent medications and saw many doctors, but nothing worked properly. I found it more effective for me when I used it 3 times a day, truly there's no better medicine than natural things
Good evening i am airelyn have a son born with hydrocephalus, i wish i could live in u.s so my son got a treatment like anybody else who had hydrocephalus,...plz help me right now i dont know what todo, faith in God is only i have.
