Interviews that are intended to create a more inclusive world.
SBSK started when I was a teacher for students with disabilities. Originally intended to be a book written by my students, SBSK soon grew to be video interviews of disabled people of all ages and diagnoses. Since our beginning in 2015, I have interviewed hundreds of people across the world while providing over $1,300,000 to those featured on this channel through a combination of grants and fundraising.
Starting in 2016, SBSK is now a 501(c)3 organization that seeks to normalize the diversity of the human condition under the pillars of honesty, respect, mindfulness, positivity and collaboration. This multi-media movement supports the acceptance and inclusion of all members of the neurodiverse/disability community regardless of diagnosis, age, race, religion, income, sexual orientation, gender or gender expression.
That mom is so strong. Bless her. I hope Ja'Bari continues to improve. Thank you Chris for loving and respecting all people and show those who might not know how to -- to do the same.
About the same time as Elizabeth and her family began their journey, I began my journey with grief. It's somewhat different, in that my baby died from her medication reaction, but the guilt you live with as a mom never goes away, especially when you knew they were wrong, but you're not the dr so you're readily dismissed and then your baby dies in your arms. Over the years, with therapy and hospitalization, I've learned things. "It's not your fault", "you did all you could".... but none of it takes away the guilt or grief. What I discovered over time is that the grief will live with us forever. Every day for the rest of our mortal life, BUT it doesn't define us. It becomes a part of who we are, and as such, it becomes necessary to accept the grief rather than fighting against it. It's like a friendship in a strange way. In friendships, you may have a really rough spot where you're not sure you'll ever speak again, but then you do, and it's ok again. This I have found to be so important because it will live within you for the whole of your life. When my baby died, or pastor told us that God was a loving father and that like all fathers when their children misbehave, they're punished, and our baby's death was our proverbial spanking. That tortured me for years, but I never blamed God. Those were not His words but the words of a flawed man. I hope that this beautiful family will find some kind of peace, the parents seem to be just so sad, but I hope they know that they've made the best and perhaps only viable choice for themselves and all 3 of their children and Elizabeth's smile and they way she looks at them, tell me she's doing just fine and I think she knows she's loved. There is always a reason, even if we can't see it clearly. XO
🫂🫂 18:21 Chris! Goodness thank you for interrupting the momas thoughts.. I'm glad you opened the conversation with her to talk about it.. I want to enter my screen and hug them all so tight one by one ..😢
This story reminds me of my bunulul. I miss him. He survived stalin times. He was born in the kingdom of Romania. His mother personally met ss officers. It's really telling to see someone in their 80s cry over what happened in childhood. Like Betty, my bunulul was a loving grandparent. The survivors prove that the perpetrators were wrong. Often even grandkids carry the legacy from genocide. We may not be of the same ethnicity but our people saw horrors like yours. I hope sharing these stories can mend these injustices. We're not so different after all.
I have adhd and was labelled "gifted" in grade 1, was offered to skip grades, etc, and was often labelled as an "old soul" etc. I think it was a benefit and a curse as so many neurodivergent adults will tell you. I was asked to grade accelerate multiple times but never did so due to bullying and a fear that it would get worse if I was placed with older kids. Now that I'm 26 I definitely have a retention of a lot of information but my adhd is starting to affect me more severely than ever. I often wonder what could have been if I was placed into those opportunities instead but I also know it would have been really difficult for me. I personally have never tested for mensa but do have family that have been approved. I personally don't think I would make it, so this girl is really impressive! :D Also the dad mentioning game design!! I'm an indie game dev and artist myself!! So cool / relatable! :D
Hi Elizabeth 👋🏽❤ I've recently stopped a medication called Carbidopa Levodopa as a trial for general Dystonia, I had hallucinations & INTENSE aggression.. most of the time I need to research the medication interactions because doctors never care to look at the full picture.. it's so heartbreaking to see Elizabeth like This and hearing her tragic story I hope her parents find peace! I'm almost your age Liz 👋🏽 you and your family are super warm 💕 so happy to have met you 💕
Brave people. My brother had CP and passed when he was 7. I loved my brother but it was a hugely traumatic event in all our lives. I'll never really recover from what happened. It destroyed my late Dad and my mother lives with a quiet, continual pain. It was 30 years ago. Bless this family. They live with love and compassion. Things many people don't understand. xo
Hugs 🫂❤ my triplet has cp I developed my disabilities later in Life that I've started using her wheelchair and bathroom chair it's heartbreaking knowing her life started like this from birth 😢
Does he have fingers? Can't understand from the video, it kinda look like he doesn't, or maybe they are bandaged together into fists to prevent further skin damage on and around them?
I like how controversial things with therapeutic properties like Marijuana and Magic Mushrooms are for so many lawmakers because it might cause a "bad trip". And sure, excessive use can lead to psychosis. But compared to the risks of so many prescription drugs, idk it all seems so backwards to me. Look at how much harm a prescription can do to someone.
What amazing parents ❤ . I can't imagine the seconds, minutes, hours, and days battling through this outcome, but they make the very best of it for their precious daughter.
To Elizabeth I’m so sorry that this medication affected you your a very special one darling And to Elizabeth’s family pls know that this is not your fault you have a beautiful daughter and always remember that To Elizabeth’s siblings your sister is so lucky to have you both as her sibling may you all find peace and comfort again I’m So Sorry this has happened to sweet Elizabeth
I’m so in awe of this family’s collective openness about all of this. The guilt they feel, although unwarranted, is palpable. Their grief is still so raw. It is obvious how very well loved Elizabeth is, as are her brother and sister. I hope this family finds their peace. They’ve made the very best decisions to get their daughter the care she needs. They didn’t abandon her - they’ve ensured she’s exactly where she needs to be so that she can thrive! Sending them all the love in the world. ❤ Thank you for sharing.
