welcome to my channel ♡ my name is Elaina & I make videos all about life with Cystic Fibrosis (CF) I hope that through my videos I can help to raise awareness for chronic illness & what living with it is really like - hopefully you can learn something along the way too!
aside from this I also enjoy making lifestyle, vlog & 'anything else I fancy' videos so stick around for all of that :)
social media : instagram - @gingerels tiktok - @gingerels_ depop - @gingerels
Girl, I'm 2 years late, but I am a strawberry-blonde and I have lashes and brows that's literally white-blonde and you can't see them. I really want to dye my lashes, but I'm in a school with really strict procedures (in one of those schools that have official school uniforms, so iykyk. We aren't even allowed to wear makeup) and I searched everywhere, on every platform for a before-and-after of a ginger girlie, like myself, who dyed their lashes to see if the change is drastic and your video wasn't just sufficient in answering my question, but I really enjoyed watching you - great video! And you do look like a goddess~ ❤ Honestly, we need more representation of redheads in the beauty community; ily!
Hey there! I stumbled upon this video trying to seek some comfort on the internet and ive been finding so many videos of people talking about their experience dropping out of uni. I told .y mom today that i dont want to keep going anymore, it was a very emotional call and i still cant believe i did this but it was my breaking point, i couldnt handle lyinng to myself more anymore, i had to let her know. Its just sad since she fought so much for me so i can be able to go to uni and shes definitely disappointed but i honestly had to consider my own health at thus point and the way i lived and where i lived. I am so unhappy and exhausted mentally. This is the end of my third year and i think i had enough of thinking that i like something that i clearly i actually dont. I just dont want to do it, i dont like it, i dont enjoy it, i have 0 passion for it. In case you wanna know its a mathematics university. I thought i had the strength to keep going but i realized there wasnt even a reason to keep going. I absolutely hated my time, my life, my lectures, the environment and i finally can make the decision to quit and give myself time to see what i actually like and want. Im freshly 21 now, im probably going to work for a year and maybe next year i might have a different type of mindset about it
I have CF and what I discovered is chlorite quartz crystal helps me breath greatly. Give it a shot. Hold one on your right hand for at least 15 minutes and see how your breathing responds. ❤ Many blessings and wishing you well and great health and longevity 🙏🌞🌚
It seems to me that rhose in the uk have much less psychological and social supports than those in other countries. This would never be done in Australia without the absolute agreement of the entire team. There is nothing but entire psych support for those wirh CF and absolute community supports here from everything to home care, end of life carez hospise care, in patienr admission care, newly admission and diagnosed care, family care and support and govt payments and aupports.
Hi, I am considering dropping out of the ‘University of Sussex’. Will I get a refund for the first tuition fee instalment that I paid back in September?
Thank you so much for this video, I guess the reason I’m here is because I got so mentally unwell at uni in the first year that I was suspended and now I’m so conflicted on what to do! 💗
you didn't remember to disinfect the skin at the end when you took it off? when you took it off, I felt somehow uncomfortable when I watched the video, even though I am a nurse.
I just made the decision to not go back next year to uni. I've never felt more alone and anxious in my life, but i know i'm making the right decision. I applie to this degree bc people kept telling me that is such a good area to study (btw I was studying law, more specifically to be solicitor) and not bc I wanted it. I've lost 3 years of my life in something that made me absolutely miserable bc I didn't know what to do but I realized that I have to live for myself and stop trying to impressed others. So now I'm going to find a job, save some money and, hopefully, go and get my degree in something i've always wanted to do!
Damn. I do deliveries some evenings and deliver to your uni. I had my doubts about uni when I was a student but mainly due to depression and ultimately it paid off because although I don't directly use my degree, it got me a job doing what I like (day job) because they value the degree. That alone is a reason to stick it!
Hello my lovely, as a fellow redhead I need your advice please. I’ve tried tinting my lashes with the same tint and it made my eye lashes sting like mad. I want to do the same with my brows help
Also have Cf, pancreatic sufficient, and trikafta made me feel like I was operating my body in 3rd person. Couldn’t control my body, insomnia, decline in mental health, severe migraines and blurry vision. it also hasn’t helped much of my CF symptoms at all! I’ve been on it 7 months, and my doctor has now suggested I stop the medicine soon. Still not giving up hope because of all the praise my doctor has said about it, but so far this medication has been nothing short of horrible for me. It’s strange that people say a small percent of people can’t handle it, because I’ve read thousands of responses of people who discontinue it as well. The media is sus! Hope you’re doing well
Hello, I have Cistic fibrosis, and I was wondering if you have access to Tricafta, a reletivaly new drug, depending on where you live. For me, it's side effect free and it works really well. It's not the same for everybody, but I think it's worth trying. Keep going!!! 💛
Hello, I have CF and I heard you talk about Kaftrio, which have some side effects, but I was wondering if you had the option of Tricafta, which is a drug I take and is for me, with no side effects. Keep going! 💛
thank you for sharing as god it’s so reassuring to know it’s not just me?! but also, I’m so sorry to hear that it is a concern of yours too 😩 - I guess the same as every other medication you just have to try & weigh up the pros & cons of it for you personally, & what is going to be best for you & your overall health 💛
I have question for you over cystic fibrosis and lung transplant. 1 Why do new lungs go into rejection for? 2 what happen if people keep on leave Pseudomonas to infected new lungs what would that happen too them? 3 i have question for you over lung transplant for cystic fibrosis. Can bacterial from old cystic fibrosis lungs infected new donor lungs after lung transplant for being sill being in CF sinus? Cf patient who had lung can that happen . 4 i have question for you over lung transplant For CF .why do people get lung transplant for cystic fibrosis when it not cure CF?
sure! 1 - I don't have much knowledge about it, but your immune system can just reject any new organ that has been transplanted which can cause problems! 2 - I'm not sure what you mean?! But because of the mucus a CF patient's lungs produces, even with a lung transplant you are still at risk from infection (such as pseudomonas) as the overproduction of mucus causes this 3 - I'm not too sure! I do know that the damage caused by the infections in someones lungs will not be there anymore after a transplant has happened - as the donor lungs will not have this scarring & damage. But tbh I'm not sure whether infections can pass from one lung to the other? 4 - If your lungs have so much damage from infection & mucus that you are struggling to breathe, & your lung capacity is so low, then your only option to try & survive may be to have a transplant. Although it does not cure CF, it can help to give people another chance :)
great question! It really just depends on the person & the type of CF you have? for example, I have never had problems with my liver or kidneys (as of yet) but my pancreas doesn’t work properly without treatment. In contrast some people with CF won’t have any problems with their pancreas. The same goes for the liver, kidneys, bowel, just to name a few! You could have any combination of problems with different organs, or only a few - it really depends on the individual person & genetic strain of CF you have. Hope that makes sense! x
I'm so sorry to hear that you are struggling with side effects :( but thank you so much for sharing this. it is always so reassuring to hear other people have experienced this too!! I hope it starts to become easier for you asap, take care x
I wish I’d heard a more balanced talk about uni too, I don’t think I’m the type of person cut out for the big lectures, meeting SO many ppl every week, and the type of work (assignments) we do. I have one year left, so bc of the time and energy I’ve invested, I’m likely to just stick it out. Thank you for this video, it really confirmed a lot of the ways I’m feeling about it:) I couldn’t agree more about uni being advised to the more academic people, and I think that’s unfortunate :(
aw thank you so much for this comment - I completelyyy agree!! I felt the exact same - like uni 'lifestyle' & the style of learning, socialising just did not suit me at all! I'm so sorry to hear that you have felt similarly whilst at uni still :( (if its any consolation a lot of my friends are in the exact same boat, thinking oh god this probably wasn't for me but it's third year so I'll hang on in there) which sucks, but might be reassuring to hear I hope?! Good luck in your final year I'm sure you'll do fabby, make sure you give yourself lots of self-care & treats along the way, you got this ❤x
@@gingerels awe yes thank you! It is pretty reassuring honestly🥰 I’m taking a little break from school which has been really beneficial, and then yeah, I agree with the self care, I’m gonna do my best to focus on that💛
This year is my Year finally I'm free from HSV 1&2 illness for years now after applying the herbal medication I receive.ru-vid.comkeKKXt0iFKY?feature=share
Love this video!! Such a vivid insight into what it's like being on steroids and how it affects you, and so well-made. Kind of heart-breaking in moments - I so wished I could give you a hug when you got upset! I'm so sorry you have to be on steroids for so long and I hope it starts getting easier and that you're able to wean away from them soon! Sending so much love xxx
Aw thank you so much hat hat 😭 that all means a lot I really appreciate it - big hug is pending !! thank you for being so kind & understanding as always, it is slowly getting easier which is fabby 🥰 so much love x x
if you are on steroids, how are you finding it? are you like me struggling not to eat everything in sigh t?! 🤣 this video isn't meant to dissaude anyone from taking steroids (as they are extremely effective, I owe a lot of my lung stability to them !!) but to talk about the realities of being on such a strong medication. lots of love to anyone who might be finding it difficult being on them, hang in there x
Yay! so happy youve followed what is true to you! I regret not doing because I followed everyone else. Thank you so much for sharing this, I wish I waited to go to Uni. I had no idea what I wanted to do or lacked confidence to pursue what I wanted to do so after a term there I really wanted to drop out or change uni but my parents wouldnt allow me to. Not going to lie I did love clubbing but it was because i felt so empty. I think I drank too much and went out to cover how I was feeling. But mental health wasnt spoken about back then so I majorally felt like a failure when it all realness it just wasnt the time for me to be there. Its fantastic youre sharing youre experiences as I dont think everyone should feel they should stay somewhere just because others are, its best to do whats best for you and have more clarity, I wish Id dont the same. xx
aw thank you so much Lissy!! I feel the exact same, looking back I'm like ahhh why didn't I just recognise the fgact I was being such a sheep! But it's ok we were all silly teenagers once 🤣 That's the trouble with clubbing/drinking culture too, if you are struggling it can turn into a coping mechanism (which is not the healthiest yikes) it's so tricky trying to balance everything ! aw thank you, I hope it could help somebody! :) x x
Really brilliant video.. should be shared beyond your CF circle.. well thought out..honest and candid and what so many unsupported young people, or even mature students need to hear.. ACE my dear.. brilliant 🙂👏💕💗
aw thank you so much as always Linda !!! honestly I think all students could do with remembering uni can be bloody hard 🤣 so easy to think that you are the only one who is a complete mess phahah - lots of love x x 🥰
@@gingerels absolutely!! It's crucial for people to know that they genuinely aren't alone and life is a journey.. twists, turns, etc and no shame in having the courage to choose a different route. Life is to be lived, not suffered unnecessarily. So many roads leading to where you could be happy, content and to your personal point or idea of what success is. Too much shite put on kids and people these days.. 👀🤗💖
if you (like me) are feeling really overwhelmed with uni & are thinking of dropping out, please don't be ashamed of it! Your mental health deserves to be put first - doing what will make you happy is the most important thing 😌 * also didn't really mention this oops but for the time I was there, Sussex was fab! My decision had nothing to do with the actual uni :)
I am so glad that I came across ya video. 100% reflects how I'm feeling, been feeling. I have been miserable, MH has taken a knocking recently so.. onwards and upwards. I will be dropping out of uni. And carrying on with my life xx sending love + sunshine xx
@@smallflamesx I'm so sorry you've been struggling too, but thank you so much for sharing (every single person that has said they feel the same it's like ahhh thank goodness it's not just me!?) it's sounds like you are doing the right thing for you & that's whats most important, I hope you start feeling happier soon :) lots o love x x
I’ve been feeling very depressed and lonely at uni. Currently in first year in halls and thinking about commuting for the second year for my mental health. As I think being at home for second year will just be better for me. I was thinking about dropping out but I think the issue is being away from home. It will be hard to tell my parents that but they would want what’s best for me and my well being.
@@gingersnapp114 I'm so sorry to hear that you are struggling too :( I know it's so hard but you really have just got to do what is right for you !!! exactly as you say, I'm sure your parents would much rather you be healthy & happy over forcing yourself to stay somewhere that is having a negative impact upon your health. Just know so many people experience issues like this (unfortunately it seems just not many people speak on it!) well done for coming to terms with it all, you got this 💞
@@gingerels thank you so much for replying and for your kind words! I know they will understand I will just find it hard to tell them but I hope and sure it will work out xx
It's a shame you had so many problems with Kaftrio, perhaps in time it might be worth giving a second go and see how you get on. I'm an older CFer (55) pancreatic sufficient and I am lucky to have next to no problems with it and the thought of possibly going back to the terrible coughing I had previous terrifies me!! Take care x
ahh sorry I’ve only just seen this!!! aw thank you so much I appreciate that :) yeah I really would like to try it again at some point as I know from a chest point of view no matter how ‘good’ I am it’s ofc only going to benefit my lungs! I just want to try stay sane at the same time 🤣 so pleased it’s been working so well for you that’s so fab to hear, hope you are doing ok x
The side effects of Katrio take a long time to die down, its strange. It was around 8 months for me, I had all the same side effects you had but they have finally levelled out. One thing some people have found helps is to take a reduced dose then build up ( or just stay on a lower dose permanently)- if you decide to go back on for the sake of your lungs ever.
ahh sorry to hear you experienced side effects too - so pleased they have levelled out tho!! really appreciate you sharing that, yeah I did try to opt for a lower dose but my CF team weren’t keen which was a shame :( hope you are doing well x
@@gingerels Your doctors aren’t advising you very well then, lots of people do it. Thank you, all I can say is I wish I had Trikafta when I was your age, it would have prevented a lot of the damage I have now. I don’t mean this in a horrible way at all, as I understand side effects are not nice and ultimately it’s your life and you have to do what you think is best but it is easy to fall into the the trap of thinking one’s health will stay the same forever. Things can go downhill very quickly, especially approaching your 30s. I was well and it happened to me. Good luck anyway and wishing you all the best !
Hi. Loving this video. Today is my first day on Kaftrio…feel no change yet. I’m looking forward for weight gain and better lung function. How fast does it happen? Lol
aw thank you!! Oh good luck hope it went well - for me I started to notice both the change of appetite & chest within the first few days!! Weight gain happened rapidly in the first few weeks too, but I think it’s definitely different for everyone so don’t be too worried if nothing drastic happens super quick! hope you are doing ok :) x
Sooo interesting! This stuff must be exhausting urgh but I honestly feel like I understand a bit better what these kind of processes entail! Great video as always lovelie xxx
Please check the description for timestamps in case you are squeamish !! There is nothing super gory shown, but you do briefly see some spots of blood & the PICC line ofc 💉 If you have any questions please leave them in the comments!
Thank you!!! Making vids like this is really important! Count me in on the next one, if you want one of the 'ancient' CFers in your video, ha ha. My story deffo has some tangents in it that are a bit different, - while still sharing bucket loads of the usual stuff... Thanks and God bless ♥️
Aw thanks so much for watching!!! yes omg that’d be great! phahah - honestly I think everyone has some wacky twists & turns & then exactly how you describe the ‘usual’ CF stuff 🤣 Take care hope you are well 💛
@@gingerels Seriously, thank you for making this video! I really needed that at the moment!!! I'm kind of in a new situation/environment and with new people around me, who don't understand anything about CF, much less of how much it impacts us all mentally!! They just think I 'have a bit of a cough', hahahahahaha, - yeaaah (aaarrrrrrrgh!!!) So it was really good to be reminded that it's not 'just me' 《《《HUGS》》》
so I guess the answer to 'do all Cystic Fibrosis Patients think the same?' would be no, not really, but also yes sometimes we really do 🤣 I really hope you enjoyed today's video, if you have any questions please do comment them below! Don't forget to like & subscribe, & happy CF Month! 💛 x
@@ripbbl5053 ooo thanks! That’s a good one - for sure I think stereotypically in winter everyone must get worse right? coughs & colds season & all that I don’t know about you but I often get the more wheezier symptoms in summer with all the pollen! No time of year is safe 🥲😂
@@gingerels I seem a bit like a schizophrenic to people who don't know me very well, ha ha. The seasonal differences are so huge with me... After the summer, I am 'well' /happy/productive/useful to others (work, family, friends) for a few months and then as spring hits I am constantly ill/weak/tired/depressed/.....GRUMPY, ha ha ha! And because it's always the same months each year, ever since I was a little kid, I wondered if others also have whole 'off-season'?
@@gingerels For many years, I had REALLY really bad hayfever for about 7 months each year, but then I cut out wheat COMPLETELY out of my diet and the hayfever decreased by 95% WITHIN DAYS. Try it out =)
Have to say.. best video yet.. which is, admittedly, what I think EVERY time 😆😆 Youu really go from strength to strength.. really informative and helpful.. great, natural and funny presentation.. 😊👏👏👏💃🎉💗💖
awww thank you so much Hat hat!!!! (I have 2 of your videos to catch up on later teehee I can't wait) omg thanks I had to edit out so much of me fiddling with it phahah x x
I have only really had one close friend that has CF and I still love her dearly. With my own mental health I lose time, and would love to see her more, and forget that so much time passes between meetings. As you talked about mortality and how you are dealing with it, do you have any tips that you would want friends to know for them to deal with it? I hate the thought of her leaving sooner then me at all and wish I could cherish so much more time with her, but I don't know how to start :)
Aw I think it's so difficult as life moves so fast & people just move on & drift even when they don't mean to!? It's just so hard to keep up with everyone isn't it :( another fab question tho as chronic illness ofc doesn't just impact the person with it, but family, friends too. I think I'd just want any of my friends to know that those feelings are completely valid & ok. I know it might feel tricky to talk about as you don't want your friend to think you are thinking about their mortality 🤣 but it's only natural & it's really healthy to think & talk about it! I think the best thing is just to try & be open & honest about how you are feeling & once that conversation has been opened up you can support eachother through it - one of my biggest worries is the idea of leaving loved ones behind so I'm sure your friend will appreciate being able to talk about all of that with you x
