I’m praying for you. I was exploited into getting the surgery when I was 17 in 2021. It has completely ruined my life and mobility. These surgeons deserve to rot in hell.
I just had my scoliosis surgery and my doctors team also didn’t suggest me physiotherapy they said that physiotherapists cant do much after this surgery so just try doing normal activities mostly moving. Its 22 days to my surgery now , do you think I should see a physiotherapist or really wait for few more days/ months until I am more mobile than now?
I see you young ladies as brave women. At 87 I need spinal stenosis for degenerative Osteoarthritis. I am not new to surgery. I had 10 so far on a broken tibia and fibula, gall bladder, benign tumor in my left upper arm.
Youemr video gives me hope and a vision of what I'm surgery, hospitalization, post op and on going pain I a should expect. Thank you so much for your help and honesty.
I love this!! You have such great posture. I definitely need to do some work. Doing my own pedicures has been so hard. I need to try your suggestions. Thank you
My daughter is having her scoliosis surgery later this year. She is 12 and I am so terrified for her. Thanks for this video because I wanna prepare my daughter mentally and physically for this. I’ll do everything in my power to make sure she is and feels supported every step of the way.
I have severe Scoliosis in my 30s now and its my biggest insecurity in life. I usually wear a shawl with hood & light hoodie to cover up. I know i look like a freak if other people see my curve oh well. Glad you got surgery and recovered well 🙂
I’m so scared after watching this video. I was pretty confident gained trust from many videos that I can do this I should do this surgery go for it I am strong but now watching this video demotivated me discouraged and also I feel so damn scared and I think I will back off now and I think I can live with my 3 severe angles of 72deg 45 deg 20 deg respectively
I had mine 18 years ago and suffering past 5 years. Overtime fusion caused kyphosis of my neck, severe pelvic floor dysfunction, venous insufficiency and myofascial and nerve pain. If you can avoid the surgery and try scroth therapy first. Understandably you might need the surgery. The surgeons will not tell you about the long term issues most of the time. I also have EDS which was unknown at the time I had surgery.
If I could only show you how I looked before the surgery. I’m definitely happy I had mine. I actually have a rod screwed down along my spine. The rod doesn’t bend silly😂
i really wana be a Figure Skater but after my Fusion i have struggled to skate, i cant do much only Forwards and Backwards and small jumps, but my Doctor keeps warning me about falling and things, and saying i can't do it and my Group Coach has said he refuses to help me and take responsability and stuff, im really sad now as i'm struggling figure skatings all i wana do. but everyones saying i cant or i should'nt becuase 1 fall can Paralize me (i also have a Fractured back from the Surgery due to something to the weight all on the bottem of my spine). i been skating for 6 months (after the surgery) and i feel so behind my friend who havent
Has anyone told you that there is a greater chance that you will need another fusion every 10 years I’ve had 2 inn4 years I’ve now had s1l l5 l4 l3 l2 my last was l3 to l2 15 months on told no bone growth will need another this year . All I can say look into alternatives artificial disk replacement , this is the worst mistake of my life
Not at all. Every single level that is fused your flexibility is basically eliminated forever. Basically, sit/stand up straight, now imagine you hold that position, FOREVER.Sitting, standing, driving, cooking, swimming, picking something off the floor, everything. Pls pls try physio like Scroth (for mild curves) or Clear method for worse curves poss combined with brace. There's also non limiting surgery like VBT and apifix which could be better. I had my surgery at 13 and now 9 years later my discs above and below the fusion are degenerating. I regret my surgery so much.
Thanks so much for this video, I am going to Asia from the states and I will use everything you said, I will be having my surgery in a couple of weeks and my trip is either in December or January. I will comment here when I go over there. Thanks again.
Your list of items is spot on. Had my surgery 3 years ago. Although my expectations were managed by my doctor, reality can be much different. The recovery, pain, and numbness far exceeded expectations. I am fused T2 to Pelvis with a scar from the base of my neck to the crack of my ass. Surgery was 12 hours. I was 63 at the time of the surgery so that I’m sure made it more difficult. I still have lots of numbness around the surgical area. It has improved, but still a long way to go. Initially while it heals the itching from nerve endings can drive you crazy but it passes. Having said all that, with some limitations, I can do most things. But in some cases I may do them differently. Most importantly, as long as I don’t do anything stupid, I am pain free.
I had that surgery 2 months ago and maybe it was just that I had a good surgeon but I went through none of this. Whatever this video does, don't let it put you off surgery as much as it probably does. I'm VERY glad that I didn't watch this video before my surgery. Surgery changed EVERYTHING for me for the better. I feel like I've been given my life back. (A life I would've NEVER known I was missing out on if I hadn't had that surgery.) I had pain after the surgery but it was never uncontrollable because they give you very strong painkillers. By 3 weeks after the surgery, I was already able to go shopping and was in no pain. I was delighted because previous to the surgery, I'd always deep down be thinking about my back pain instead of enjoying shopping.
Hi! I live in the states, where it’s freezing in the hospital, so I’m taking a heated blanket and an extension cord for my phone and iPad chargers and heated blanket.🌻
I just want to say that you seem to have a beautiful soul. While watching this video you are smiling the entire time and it really speaks a lot to your positivity. You're adorable and I hope everything goes very well for you in life! That's one hell of a surgery to endure and recover from and to see such a happy face is breathtaking.
Found your video very helpful since my daughter needs spinal surgery for her scoliosis. I will be able to plan for her to be isolated and not see friends which will probably be the hardest part for her. ❤️
I need to find your list of positives, because this is a lot of negatives --- pain is the watchword. Pain in many situation on a daily basis, Taking painkillers for the last 9 years, as I understand it . Difficulty standing in one place, doing anything for long, it seems like. This all sounds rough. I need to find your list of positives asap. I am a candidate for fusion due to scoliosis and am finding this discouraging. Not to mention the restrictions of movement which you don't really go into.
Hi, I'm 27 fused from T4 to L5, just 3 weeks ago, it went almost well, but the doctor told me that to never sit on the ground, is it possible sometimes I can sit on the ground, ? And what to use for the scar ?
I've lost a bit of feeling on my back after my spinal fusion (did mine in 2010, T3-L3), it's a patch around 10x15 cm (3.9x5.9 inches) for me! But the loss of feeling is only in the skin so you would still feel any pressure that is applied and I'd say that massages are just as great! The only way I would not feel anything at all there is if you'd stroke it super light with the nails only!
You are so brave! How are you now, do you still feel pain (especially during the rainy day), can you bow down or can you dance? Thank you for your sharing!
I have scoliosis too and I have chronic pain and am on pain meds my curve is like a C and don't wear a brace because of my chronic lung disease and don't want surgery yet I'll wait until I get sick and my curve is affecting my breathing
My sister kept getting infections too and she had a back brace but it didn't do any good and my sister curve was super bad and she had to get surgery for spine fusion and she's nonverbal,in a wheelchair and she's like a baby so after surgery when she got home she got mersa and she had to go back to the hospital and now she has mersa now for the rest of her life
Ive had 28 vertebrae fused 3 from rhe top and 2 at the bottom aren't fused I can't figure out how to do anything having a terrible experience but it was good to see you can't twist either its reassured me abit
Hi. Do you still have a scar from the scoliosis surgery or has it gone after 9 years? And secondly, are you able to bend your back backwards and dance?
Dear Sarah, You are beautifull even with that lump on your back! Good for you , for giving this informations! Myself I have scolio and it is not painfull. I'm thinking of going to surgery because I have dificulties breathing! However, I was guessing those things you've just said here might happen to me. Take care, Ion
