Welcome to my crazy freewheeling life! Join with me, navigating from a wheelchair (blame troublesome Lupus for that), to explore the complex world of chronic illness, paraplegia and medicine. My aim with this channel is to help, educate and amuse those who may be in similar situation or to have a peek into my world of sport, specialists and spectacular health ups and downs.
So what’s in my bag? SLE Lupus (an autoimmune condition), T10 paraplegia, transverse myelitis, gastroparesis and lots and lots of fatigue, spasms and pain. What a mix!
That is a really sweet racing bike. I totally get why it is important to get the Botox in the bladder. I had to have a bladder sling installed for my issues. That’s been pretty good but it is major surgery as well and you’re not allowed to do anything for six weeks.
Does this device just collect data for one's health provider to make further recommendations regarding skin integrity issues? Or does it do more like give a notification/alarm reminders prompting one to periodically shift positions for pressure relief?
Thanks Elise. I have a total crush on your new bathroom, simply beautiful!!! I am just starting to plan an upgrade to mine. A couple of questions if you don't mind. Love the shower seat and how spacious it is. I have the same opportunity as I will get rid of shower+tub too. What width is the shower chair? I want the same set up for guest utility, but am thinking to have a bit wider to give me some scoot distance to keep chair out of shower spray. Love the location for your bar for shaving. I am a T10 complete and it would be useful for that task. How high up is it and width? Also love the toilet assist bar width and location. Great bare minimum utility for us and looks to be a better height than standard stuff. Just want to keep bars to bare essential. Can you tell me the height and width? Thanks!
Wow, thanks… I’m so glad you liked it. The shower chair seat is 480mmX270mm and 410mm high. Shower hand rail is 60cm high and 32cm long and the toilet hand rail is 80cm high by 20cm. But you can get all different sizes, colours and types for whatever suits you best. Feel free to ask, if you have any other questions! 😄 I am a T10 too, but incomplete (only slightly tho) I can wiggle a toe…. Not much help😂
@@freewheelingwithelise9421 Thanks. That is so helpful. I'd take a toe wiggle! Did the plan work from drawings or did you make many changes to the plan after demo and the chance to be in the general space with maybe lines drawn on floor and wall? Yikes bathrooms are not cheap. 😐
Hi I have had the Botox done 2 times now and it helps me a lot my bladder was over active way before I had the Botox done i have Cerebral Palsy I get the Botox done every 6 months when it wears off
Hey, hey… I’m glad to hear it helps a lot. Yes, I have to do my botox every 6 months, as it wears off fast. Do you have it under general anaesthetic or local?? This year I’m in the adult hospital system and I have local anaesthetic, but I didn’t like it as much. I could feel the needles and the drs put the camera of what they were doing next to me… and I gotta say, what I saw was not pleasant.
Because I was under general anaesthetic I couldn’t feel a thing. But the last bladder botox was under the adult hospital department, that was with using a local anaesthetic…. and yes, that did hurt!
I had mine done yesterday and the result was instant. I'm overjoyed and so glad I did it. I had a local anaesthetic and watched on screen as they did it. Painless and fast. Life changing
Hey, hey… I’m glad to hear it helps a lot. Yes, I have to do my botox every 6 months, as it wears off fast. Do you have it under general anaesthetic or local?? This year I’m in the adult hospital system and I have local anaesthetic, but I didn’t like it as much. I could feel the needles and the drs put the screen of what they were doing next to me… and I gotta say, what I saw was not pleasant. Yeah didn’t like as much, but at least t was done
Don't let anyone put you off having this procedure. It's life changing. Worked from the minute I had it done. No discomfort but I would do it again and again for the results I've had . No pads and no wetting myself. Can hold my bladder for a long time. Better social life as not planning where toilets will be . It's amazing
Sure, what country do you live in? I would probably recommend either TiLite or Melrose brand because I have had experience with them and they seem really good chairs. If you can, it is always best if the salesman is in a WC too because they will know exactly what you need. My first chair, the salesman was able bodied and got everything wrong.
I’m so glad you love it!!! The first two weeks of having the chair was great, but unfortunately my body quickly deteriorated. I have a lot of damaged nerves in my lower back and lowering the back rest caused me 2-3months of severe leg spasms and pain. On the plus side, I have regained slightly more trunk control and I hate going back to my old chair. Thankfully, my body has now adjusted to it successfully and I would love to lower my backrest again, but I’m scared that I will cause more damaged and irritated nerves again. 💕
Yes, I get lots of clonus which is very annoying, that’s what you can probably see, I also get full body spasms and painful ones where my legs will kick up into dorsi flexion for hrs. I hope you liked the video or found it helpful.
nice to see you enjoying yourself. you getting stronger as I can see you push your wheelchair without any help on the ramp upward. wondering if you could move around on the grass easily too in this wheelchair.
Nice video :) Your hotel room looks pretty tight and accessibility just sounds OK, but not great at all. How did you even manage to get into the bathtub?
The room actually wasn’t that bad, you wouldn’t be able to fit an electric wheelchair in it might be too tight, but I managed fine. I was able to transfer into the edge of the bath tub and then lower myself down. Getting back out was a bit more tricky, I needed Elizabeth’s help with that one.
Elizabeth was able to support my legs while I lifted myself out. It is hard to carry the dead weight of your legs, especially when lifting yourself out of a tricky space. I hoped you liked the video 😄
Mad respect you must have a a lower injury level cuz I’m a high c7 incomplete quadriplegic paralyzed from the chest down so I have to go up it by grabbing the backrest from the front and pull myself up and pivot around that way may I ask what your injury level is? what kind of chair you have is it lightweight ? If I may ask
Yup, I’m an incomplete T10, but in saying that my upper body isn’t 100%. Well, I’m glad you have a good way around transferring that sounds like it works well for you. I have a Melrose wheelchair (NewZealand brand) and another TiLite day char too (USA brand). Melrose chair is 3kg light than the TiLite, but part of that is the Melrose chair is bigger with more stuff on it. ☺️
I m an above-the-knee amputee and have been using a TiLite chair for 5 years and have learned to hate it! I am getting a new chair in the next few weeks. It is a Veloce from Motion Industries. It is made from Carbon Fiber and addresses all the issues I had with the TiLitechair. I love your videos.
Thanks! I’m sure that Wchair sounds great for you. Make sure you try and find all things you hate about the TiLite and not have it in the plans for the new one. I always make the chair slightly smaller than you think because your body can adjust to having less which can come in handy sometimes. 😁
Wow, I was wondering if someone might pick that up, 10 points for Gryffindor! Yes, so I like to use my older chair for more off-roading activities because of the bigger casters and camber. Plus, I can only fit the Freewheel on that chair, because of a specific type of fitting on the footplate. So I am using my new chair for mostly indoor activities.
@@freewheelingwithelise9421 that makes sense! Plus you’re now able to beat that chair up a bit more so it’s perfect for outdoors. P.S. it’s 10 points to Hufflepuff ;)
