I hope you still receive and read the comments even though the video was done more than two years ago. In your first video you had expressed you are not sure why you were put through this including the pain the struggle a lot of life that you could've lived was lost, and you think about "what if". I don't know if it is as obvious to you as it is to me , an unfortunate experience as you went through I see was for you to save and help other people find the answer they have been searching for. Some people may disagree with me and say your suffering may not be worth the trade-off of helping and saving other peoples lives. I am so sorry you did suffer so much and that you were able to turn that suffering into help and hope for other people experiencing what you have experienced. Thank you for sharing your story. The way I see it, you have given many people something to hang their hat on where their doctors have not been able to.
IBS is not really a diagnosis. It is a set of symptoms that can be attributed to many causes. I'm retired now but worked as an RN for 37 years. I'm finding I prefer functional medicine specialist because they look for cause. They don't just prescribe medications which is dangerous especially if they are going down the wrong path.
Yes, I’ve also had IBS since I was 14 years old. Yes, the pain is very bad when I had a flare up. I got all kinds of test too. I finally found a young Doctor that told me I have an under active gallbladder. I have bile slug. In a week I will find out what his going to do. I don’t eat a lot of things anymore. I’ve lost 75 lbs. wish me luck. 🦋
I'd look into dr. Lonsdale's and EONutrition's work on Thiamine (B1) deficiency. Bile acid binders are important for stopping the diarrhea (thus loosing nutrients), but the root cause must be found and treated.
Look into T.C Hale Kick it Naturally - he recommends Beet flow flush to get the gallbladder functioning properly again. And betaine HCL to help break down the food in the stomach prior to it being neutralized by the bile in the duodenum. And this will prevent undigested food particles to cause downstream effects like food sensitivities and leaky gut and colitis etc
I saw the first video on BAM, and as an information video, I thought it was great. I went through exactly the same thing as you, with the Dr issues and all. I didn't comment because it's 4 years old at this point. However, after seeing this video, I just wanted to add something. I was diagnosed at 30, Im now 54. I was given the same meds as you, but unfortunately, it made me very, very nauseous. I haven't taken any for years because the nausea was so bad. I just try and be sensible about what I eat and become a hermit when I have a flair up. I drink gallons of water and take a pill for indigestion/heartburn. This condition has ruined my life, and I think it's important to let people know there is no cure. There is no research into finding one Im aware of, and its the kind of health issue that is not understood unless you have it. Trying to explain to people how bad it can be is futile. Id really just like there to be more awareness in general that BAM should be seen as a disability, but is seen as a trivial health condition and anything that gets the word out is great. Thanks for making these videos 🫡
The NHS is its own worst enemy and in a way, enemy of its patients. Imagine all the sick patients that could have taken those apts where it was wasting your time and theirs.
I have had diarea with a yellowish color for 3 yesrs now ive lost all my muscle mass and healthy weight i feel drained all the time joint aches and pains acid reflux . List gose on i had a test which showed boaderline bike acid malabsorption. I got prescribed colestyramine fur 2 weeks i had no change .i have now spoke to a diettican who said i need to go on a low fat diet and keep tsking the medication . All the dr,s i seen have just said ibs which i know i s not true has anyone else recovered from low fat diet im worried to do low fat any help appreciated
God doesn't give lessons to the weak, his lessons are for his warriors. He's keeping them in shape for what's next. He's giving you first-hand knowledge of the strength that is within you. For every negative there is a positive. You don't always see the good when you're still to close to the bad. Give it some time, I'm positive you will be enlightened as to why you've had to endure all that you did. Life's journey is lighting the way to your purpose.
IBS for 22 years. Found out that I have a FODMAP malabsorption problem. I figured it out, not my doctor who kept pushing pills! (US HEALTHCARE/SICK CARE) model sucks!
I'm extremely sorry about what you went through.... my whole family and I have health issues and Doctors here in U.S. are pretty much the same way, dismissive and have that "next" attitude. The system has failed us all. They just want to give you a medication and get you out of their office. Functional Doctors charge and arm and a leg... so what do we do?
I had been diagnosed w/ IBS since my 15th. After removing my galblatter it became worse and worse. Now taking Colesevelan (cholestagel) 3-6 a day and doing good after all those years.
The pills that slightly eased my symptoms have been stopped in the UK. Back to fasting for 48 hours for me before I leave the house for a bit! Interestingly, in the UK, bam has been classed as a disability since 2010 under the equality act.
At least you didn’t pay through the nose like in the US. I have had the same problems only I had to also pay and bankruptcy for the same bs testing and misdiagnosis. RU-vid and self learning all this medical stuff and buying supplements has been the Godsend
saw a Dr in my teens and stated I thought I might have IBS, Dr says "only woman can get IBS" and that was that. Still dealing with server pain that's only gotten worse over time. Some Dr's should just not be Dr's.
Hi Amy, thank you so much for sharing your story. I understand it was very difficult to tell but it was so heartfelt and real that I couldn't help but reach out and comment to say that telling your story will absolutely help and inspire thousands of people, I am sure - saving them from the years of agony that you have had to endure. So glad that you have found a RIGHT WHY that will resolve it. Although I do not have IBS or BAM, I did have to have my pancreas, gall bladder and part of my stomach removed in order to deal with another issue - but that resulted in almost the identical symptoms, over several months, that you experienced. I too got no answers from my doctors and only through extensive research and trial and error did I finally find an answer that worked. I strongly recommend that you (and any others reading this looking for more data) check out this guy: T.C.Hale. He is not a doctor, his story is very interesting, and he's now in the business of spreading as much educational knowledge about digestive issues - for free. His website is www.kickitnaturally.com which is centered around weight loss, but don't let that distract you. His videos are extensive, very watchable, but he also has a free course on digestion whiich is VERY informative because it very rapidly gets to the underlying basics of digestion and how the stomach, pancreas, liver and gall bladder all work as a SYSTEM. He also explains in very simple terms the chemistry of the digestive system and when you understand this, it gives you answers - not on how to "deal with" the symptoms, but how to understand and treat the CAUSE of these problems. To get directly to your issue, even though it seems you have what you need now, I strongly recommend checking out this one video of this that directly addresses BAM: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-wgsdzeOGoPo.html Again, I am so grateful that you took the time to tell your story. On behalf of thousands who you have helped and will help with this, thank you.
Hi Amy, thank you so much for sharing your story. I understand it was very difficult to tell but it was so heartfelt and real that I couldn't help but reach out and comment to say that telling your story will absolutely help and inspire thousands of people, I am sure - saving them from the years of agony that you have had to endure. So glad that you have found a RIGHT WHY that will resolve it. Although I do not have IBS or BAM, I did have to have my pancreas, gall bladder and part of my stomach removed in order to deal with another issue - but that resulted in almost the identical symptoms, over several months, that you experienced. I too got no answers from my doctors and only through extensive research and trial and error did I finally find an answer that worked. I strongly recommend that you (and any others reading this looking for more data) check out this guy: T.C.Hale. He is not a doctor, his story is very interesting, and he's now in the business of spreading as much educational knowledge about digestive issues - for free. His website is www.kickitnaturally.com which is centered around weight loss, but don't let that distract you. His videos are extensive, very watchable, but he also has a free course on digestion whiich is VERY informative because it very rapidly gets to the underlying basics of digestion and how the stomach, pancreas, liver and gall bladder all work as a SYSTEM. He also explains in very simple terms the chemistry of the digestive system and when you understand this, it gives you answers - not on how to "deal with" the symptoms, but how to understand and treat the CAUSE of these problems. To get directly to your issue, even though it seems you have what you need now, I strongly recommend checking out this one video of this that directly addresses BAM: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-wgsdzeOGoPo.html Again, I am so grateful that you took the time to tell your story. On behalf of thousands who you have helped and will help with this, thank you.
I'm 46 a d still can't get anyone to diagnose me. The genetics department has also turned me down as they are so booked up from other genetic issues and since there is nothing that can be done for elhers than there is no point in seeing me. I need a diagnosis!
I have a similar story after having pancreatitis and my gall bladder removed. Pancreatitis again two years later and eating has never been the same. This was 22 years ago and I am waiting to see a gastroenterologist now! I have been diagnosed with bile reflux with stomach erosion. Similar systems that made travelling difficult and many unexpected flare ups. Lots of tears when at the doctor. I hope I get answers like you did.thank you for sharing your story. You ar not alone in your struggles!
I have had these symptoms since 1993. Just this year when I could no longer leave my home for a few months and went through many tests was I prescribed cholestyramine for BAM due to gall bladder removal in 1992. Your story is my story except our ages and the length of duration of feeling victimized and unheard. Thank you for putting this out there. You have helped me as I hate drinking that awful stuff but I need to reframe my attitude and follow your lead. I have only been on the medicine for a week. At 75 I still have time to experience an easier life!
Made it to the end of the video. I know the pain of pancreatitis and, yes, it feels like you're going to die. I've had a couple of episodes myself (both times I thought for sure I'd pass out and die) and IBS-like symptoms pretty continuously for several years now. I have some other things I'm exploring, but thanks for adding the name of this test to my toolbox. You're right - unless you strongly advocate for yourself (and I'm in the USA where I have to pay for all this and still deal with dismissive doctors), they'll just tell you you're crazy or "you've got GERD - take this antacid" (so sick of hearing that) because they focus in on one symptom in a whole spectrum of symptoms and just want you out of their office as quickly as possible. I've given up on our medical system and will only go to get a referral and ordering tests I've decided I need. The doctors are useless except for their authority to order tests and, possibly, help me understand the results. Most genuinely suck at diagnostic work, if they even bother to try.
I have the same condition but just recently got my diagnosis. I’ve suffered for years without real help. Seeing many Drs that never said anything about HEDS. I caught a video of 5 people talking about their different symptoms and it started my journey to learn more. I just did a DNA test and waiting for those results. I’m having problems with my veins rupturing with IV needles so I had to have a port put in. I’m waiting to see if I have VEDS as well. I have Pots symptoms but I thought those came from an electrical accident where I burned my sinus wave in my heart. I have a pacemaker now. I’ve had back surgery to put a spacer to I pinch a nerve called the minute man. It’s failing me now and I’ve had trips to the ER that got me back on steroids AGAIN. I’m suffering from re-occurring sclerosis of the eye. Steroid eye drops there as well. I’ve just began therapy and it’s causing lots of pain. It’s slow going. Yes it sounds horrible but I’m plugging along to learn as much as possible to help my daughters in their life journey because I fear at least two are suffering from EDS of some sort.
I’ve had 41 separate tests in 3 years. I am going through something similar to you. All they do is prescribe more PPIs, which just aren’t solving the problem. From super fit and active, to painful days and almost unable to work. When you tell them this they stare at you like you’re an idiot.
