Bile Acid Malabsorption | 2 YEAR UPDATE! 

“It makes it’s way into your intestines where it shouldn’t be” is wrong, bile is meant to be excreted by the gallbladder into your intestines to emulsify fats & mix with the food that has stomach acid on it to create a reaction that properly breaks it down. The problem is you’re just not reabsorbing your bile into the enterohepatic circulatory system. Being on bile binding drugs is not the answer, fixing your gut function & motility is the answer. Start with high strength fat soluble B1 for vagus nerve function, and betaine HCL to stimulate enough stomach acid to signal the rest of the gut in the proper way. I also had “IBS” and was failed miserably for over 15years. I’m now 95% symptom free! Almost there 🤞

I had similar issues the last 4 yrs. My doc tried many things and lots of tests. The cholestyramine helped for a couple months, then nothing. Not IBS, not BMA, not exocrine pancreatic insufficiency, not Crohns, not cancer, not celiac... My gall bladder was removed 20 yrs ago, no issues after surgery BUT it turns out, diarrhea.. cramps... can occur years later. I now take digestive enzymes with every meal and my bowels are doing well, not totally great, but I can leave the house again. Still have car anxiety but its getting better. I wish you all good luck because not everything is IBS and it takes perseverance to root out the real issues.

So glad to see someone else experiencing this and understanding it. awesome video!

Thanks to your video, I changed doctors and he is looking into a new pill I could take. Thank you for raising awareness of this hugely misdiagnosed and horrendous illness!

Hi Amy. Very pleased to hear you're doing much better. Best wishes xo

Wow I have been diagnosed after 15 years and life is a lot better. Same story as yourself. Only issue I have is diverticulitis on top of bile salt malabsorption. Also on morphine and other pain killers so trying to juggle meds so they do not clash is an issue. Great video please keep up good work really helps.

I watched your other video and wow what a gut wrenching story, no pun intended. I’m so glad you were able to figure out the problem and be able to live a relatively normal life but I feel terrible that you had to suffer for so many years and doctors either didn’t know how to treat you, or were dismissive and didn’t entertain the idea that maybe there’s a deeper problem. Doctors should really continue their education after medical school and go the extra mile for each individual patient to discover what’s going on but sadly that usually doesn’t happen. Doctors need to stay up to date on the latest literature but from what I can tell many of them are kinda stuck in their ways.

Congratulations on the continued improvement in your quality of life! It's simply splendid! I do not have the condition you have but was diagnosed w/ibs 20 or so years ago....which was of absolutely no help at all. Then last year I was diagnosed with fructan intolerance & congenital sucrase-isomaltase deficiency. So basically, my body cannot properly process a fructans, sucrase & isomaltase. Before that, I tried sooooo many different types of diets. The only one that helped at all was keto with a higher protein amount, but this was just because I was accidentally eating far less of the things my body hates. Thank you for making both of your videos on this topic! Very interesting.

I’ve been using both the pills and the packets. Depends on the day and place. I did discover that taking 2 tablets in pill form AFTER dinner helps the diarrhea the next morning. I do not have the horrible pain you have so I’m guessing my pancreas is okay. Mine started right before I had my gall bladder out in 1995. Took them 5 years to diagnose me. So aggravating! The meds have helped….a lot. Thank you for two great videos. You have helped so many people.

Hi Amy, I watched your 2nd video before I realised there was a 1st video; in short, I went to India in 2019, caught a bug, came home, GP prescribed antibiotics which cleared up the problem i.e. bad bacteria but in so doing it also cleared up the good bacteria. I then went through all the symptoms your 1st video explained with no GP giving me anywhere near an acceptable answer. I was referred to a dietician for a year or so, that was hopeless. What made things worse, my symptoms were occurring all through the lockdowns and if I went out for a walk, most public toilets were closed. You would appreciate what that meant. One visit to the GP a receptionist announced loudly in the waiting area 'your tests are normal' - I publicly said out loud, 'going to the toilet 12 times before lunch is not normal'. Oh she said! After pushing and refusing to be signed off, I received a SeHCAT test and I'm now 3 weeks into taking the Sequestrant you refer to. Huge improvement. I have had to cut out dairy and I'm better if I avoid cheese, cheesecake, cream, etc etc - so if anyone is listening to your video's I hope my explanation adds weight to your story. Kind regards to you.

Hey there! Fellow bam suffer here. I’ve recently learned a few tricks to make it a little more tolerable. Use a protein shake cup to mix it. It is life changing! And two make sure it let it set for a minute to let it fully desolve

Ive just found your video after just recently been diagnosed with BAM myself, its took years for them to finally diagnose me with something, I’ve been prescribed some tablets to take, Found this video very useful with information compared to what the doctors told me

Thank you! I have the s same story. Thank you so much . I will ask for that scan when i see my doc next time. thank you.

Hi Amy! Thank you for sharing this video and create awareness. I have experienced the same for almost my whole life and I started taking Cholysteramine 7 years ago and now I usually go to the toilet just 1 a day in the morning. My dosage should be 2 intake per day but, as you mentioned, depends on the day I take 1 or 2 and every now and then I still have some diarrhea but probably depends on stress or alchool or to any other reasons that I stopped think about, since these cases are very very limited.

I am taking the regular questran and it’s nasty too. Your video helped a lot of people understand what I was going through when I couldn’t put it into words.

thank you for updating your story. now that I am getting treatment I am hoping I will be able to find a job. I haven't worked because of this in a few years. really hope I can. I always hated working with BAM. most employers just see that ur in the bathroom all the time. lost a few jobs because of it.

I've had this issue for 15 years now I have bile acid I like u just started my medication thank you for the information it really helped me

If I make it back to a Dr I may bring this up,thankyou Amy! I'm not sure what is wrong with my system but I know something is not right. I sent the the other video I just stumbled upon and I'll send this one to my Gmail so I can remember and hopefully use this as a tool. Thank you so much ❤!

The medical establishment can be very obtuse. Money is their big guideline. So glad you found a solution. Thank you for sharing.

So happy to see that you've updated. I think I messaged on your old video. I am still yet to get my diagnosis. I've had chronic diarrhea for 5 or 6 years now. I've only just been referred to gastro after I've exhausted all other options.(I'm 26 now) I've tried all the medications, diets etc. Only difference for me is that I gain weight instead of lose it which makes doctors think it's not priority or anything detrimental. My norm is 3-6 times a day, some days up to 10+ times. I rarely get a few days that is deemed "normal" for those without bowel issues. when I have those days I feel heavy, bloated, gassy and it feels like I have a bowling ball stuck in my stomach. On my normal days my stools are sulphuric, runny /watery, yellowish brown etc. I also get severe nausea, headaches, vertigo, fatigue, pain and urgency. I also think I have an overactive bladder as I will go for a pee twice in an hour but other times once in 2 - 3 hours. Hugs. Waiting times for NHS is astronomical. I've had bowel issues since birth and I've had a hernia that came out through my mouth, not through my bottom as a toddler (I don't remember it but it's what my mum saw). I had surgery then to put it in place. I also have a shunt (machine on the right side of the brain which drains excess fluid into the stomach) . Xx

Thank you so much for raising awareness for BAM. I came across your original video 5months ago and mentioned BAM to my doctor who put me on a trial of questran light. My symptoms have improved by 80%! Although I still have to be aware of my fat intake, it is far more manageable now. I had been misdiagnosed with IBS for 4years, hospitalized and had bouts of depression. I felt barely alive. Now, I am trying to reconstruct my life. Once again, thank you so much!

Hi thanks for sharing, you are helping a lot of people - you can get Colesvalem which is a binder in tablet form . Much easier to take and works just as well ......without that gritty wallpaper adhesive mixture !

After watching your first video on this, I went to read up on it and saw that there are different types. Did your dx include a type? According to Cleveland Clinic (in the US) website, it says in the 'can it be cured' section of the article that it depends on the cause of it. So Idk, something to look into. PS-I also want to say that I was so sorry to hear about the difficulty you went through to get a diagnosis. It's beyond me why someone would go into medicine to then just dismiss and invalidate patients looking for help with their medical problems. Glad you are feeling better and able to enjoy life more now than before.

Omg! I just got prescribed the exact same medication and took it today for the first time I added mine to a cup of applesauce and it was not so bad actually. Can you make a what I eat in a day video including when you take your meds or talk about when more or less of the medicine? I'd love to get advice from someone who's been taking it longer. Thanks for the video. Wishing you all the best!

Hi Amy I have been diagnosed with bam but after years of being diagnosed with IBS. I could not tolerate those powders I felt sick bloated. What has helped is eating resistant starch in my diet. Potatoes, lentils, beans, wholemeal bread. It helps. The questran light contains aspartame something I try to avoid so another reason for not taking it. Hope you are feeling well and enjoying your life. Thanks for the video.

I have apparently suffered with Ulcerative colitis for 20 years but I have never really been in remission in all that time. Like yourself I have been on multiple courses of medication and steroids over the years which have now impacted my bones so I have osteoporosis and osteopenia. I'm 41 years old and like yourself my symptoms have become so severe over the last 4 years I'm unable to currently work. I'm now on biologic subdermal injections but still suffer with severe diarrhea and pain as well as all the other symptoms so my quality of life is still very poor, sometimes only leaving the house 1 day a week. My most recent consultation with the gastro specialist has him testing me for bile acid malabsorption so it may sound strange but I'm hoping the test brings back something as I'm really struggling with feeling like I'm slowly dying on the inside. My weight is down from 10st 8lbs to 8st 9lbs and no matter what medication they give me its just not effective. I just want to be well enough to at least enjoy a day out and about without all the planning for any eventuality. Thankyou for sharing your story. Keep on going and stay strong ❤️

Hi Amy, I watched your first video from 2 years ago. Just wanted to tell you again in case you're not reading comments from the other vid. I went 54 years of my 64 years of life undiagnosed and wrongly diagnosed with IBSD/IBSC, I actually researched for myself and took the info to the G.I. doctor. Which I THEN/FINALLY got the medication Colestipol, which is the tablet form of Cholestyramine! I think you'll be glad if you can get that in the UK! I take 4 tablets a day. I wouldn't miss my Colestipol ever! Now...today I discovered a natural alternative for the Colestipol, Bentonite clay. I'm going to try it! I'll let you know how well it works! God bless you and your family!!! All the best to you sweet girl !!!

Hi Amy. (I'm also an Amy - so great name 😅) thank you for your video. I have had an extremely similar journey to yourself with struggling to get diagnosed and being in pain for years and needing to be off work so regularly because of my symptoms. Luckily for me however, this has only been the last 3 years unlike yourself. I dont know you coped that long! You are so so strong! I got diagnosed last month and have just began colestyramine also and building my way up to having 3 times a day also. In addition i have pancreatic insufficiency and am required to have medication for that with every meal so am struggling to figure out timings of when to have my sachets. May i please ask what times you have found most helpful? Also, did you find at all that weight gain was an issue as for myself it came on dramatically and has been so difficult to lose. Many thanks for being so open and sharing so it can help newly diagnosed folk understand more. Very much appreciated finding your video. So pleased to hear its been working for you!

They don’t have tests for this in the US, but I use colesevlam which a pill alternative. It’s a bile sequestrant just like cholestyramine. I only have to take one every few days and it does the trick. Sometimes it works too well. I had to do research and since they don’t test for it here, they have you try this med and if it works that’s your diagnosis. I had to ask my doc to try it and it worked. Other pill brands are Welchol or Colestipol in case you’re tired of the powder.

Started mine 2x a day 3 weeks ago. Unfortunately it's orange flavor! I've been mixing with baby food to choke it down as fast as I can! I haven felt this good in years!!!!!!

All I can say is "Thank you"

Very helpful

I have Crohn’s and had a small bowel resection in 2013. For months after the op my toilet habits were worse and I put it down to things settling down, I went to many post-op appointments where I repeatedly stated that I was still going to the loo a lot. I was put on to a nutritionist, tried fodmap with no success. Finally after 6 months I saw the surgeon who had operated and she told me during the operation they removed the terminal ileum which is where I had an abscess and consequently it left me with BSM. I was never told that may be the outcome, all I knew was that they were going to remove the infected bowel and join the two ends together and the only problem being that I may have needed a colostomy bag. I came out of that appointment wondering why none of the other specialists had mentioned it. I had no idea what it was or what it meant but from that day on I had to live with it and finding this video Amy echoes everything that applies to me, without the pain. I have tried Questran but I take other meds which means I need to take it hours before or afterwards so I don’t find it easy to get into a pattern with it plus when I have tried it I get bloated and feel uncomfortable which impacted on my job. I know there is a tablet equivalent but it’s not available in Australia and I think I would find that much easier. So I live on Imodium, if I know I am going out I take Imodium and I don’t eat and I don’t treat myself to coffee/cake or anything like that any more because to eat means I might need the loo. If I go to a concert I literally don’t eat from that morning until I come home at the end of the day and I take a bit more Imodium to make sure I will get through the evening. On days I am at home I don’t take anything and I never take more than the recommended tabs in a day. My GI is fine with it. I just feel my world has got limited. I don’t get excited about going for a meal, there are some things I can’t eat any more. I would like to go walking but I get scared I might need to go hence I’ve put off getting a dog. I can’t have anyone calling me in an emergency because if I haven’t prepared myself I don’t like leaving the house. I have put off an o/seas holiday because of it and because once I get with my family and friends I will be worrying about going out and food etc. I didn’t have this problem when my Crohn’s was active, I’d get pain with a flare-up but that was the issue rather than needing the loo so sometimes I wish I’d never needed the op. Listening to Amy I have learned more about the condition than I ever have reading up on it. I was wondering where her pain was because I’ve just recently started to get pain right in the middle of my waist crease. It has been on and off for a few months so I am eating very cleanly, I’ve had a colonoscopy and having my yearly MRI next week then when I see my GI I will mention it, I’ve been waiting to see if anything turns up but so far all I know is that I have inflammation but it hasn’t been diagnosed as anything and my Crohn’s has been in remission since the op. I definitely feel something is going on but inbetween times I feel very well in myself, I haven’t been able to pinpoint what causes this pain. I certainly didn’t know BSM could cause the severe pain that Amy describes. To have that going on for 14 years is unbelievable. I had the merest of discomfort when I was sent for tests, my GP must have suspected something because he never said it could be this or that, he was ruling out the more serious before he settled on something like IBS. I then had 4 years of nothing and thought the diagnosis was wrong, I didn’t fit the age for it to have started. It wasn’t until the op really that they were positive I had Crohn’s. But for the BSM my life would have been perfect after the op, especially remaining Crohn’s free all this time. However, we have to live with what happens and it’s not easy, especially knowing apart from Questran there’s no other meds. Sometimes I think a colostomy bag might have been easier but I know that brings it’s own problems. I’m so glad I found Amy’s channel and I only wish she’d been saved from everything she went through by being diagnosed quicker. I don’t think my friends really understand the limits I put on myself but I just say think of it as having gastro all the time every day! All we can do is live life the best we can, there are lots of people worse off.

I’m soooo happy the Questran worked for you.. I also have bile acid malabsorption so I know how bad it is….. mine came after bowel resection surgery, I had 52cm of my bowel removed so now my body doesn’t have the ability to absorb the bile acids. This was 5 years ago now and I’ve never had one single solid 💩 since then, I Dont leave the house unless I go shopping with my mum maybe every 2 weeks and then I can only risk going out after 1pm and after taking some Imodium. I had the test and mine came back sever, I’m also supposed to take the questran, hats off to you for stomaching it 🤢 I did try it for a few months, taking 2 per day and it did nothing. Problem is I also have Crohn’s disease so I’m never sure what’s causing the sever symptoms…. I’m just waiting to have more tests to see how active my Crohn’s is and if I’m going to need more surgery or now, this time though I’m demanding a colostomy bag as I can’t live the rest of my life like this….. Hope you keep improving and it’s nice to know there are actually other people who are experiencing the same

Thanks for the info, I’ve been diagnosed with pancreatic insufficiency but having no response to enzyme treatment. I may add a protein pump inhibitor, but based on some research I think BAM might be an issue. The frequency of needing to use the restroom is a real drag and I hope something will help!

Thank you for the update! I’m one of the people it helped get a diagnosis for and it’s a game changer! I take colesevelam in tablet form. Have you tried it?

Try putting the powder into a shaker with some fluid (should mix much better if not perfectly) and close your nose while drinking it (that usually helps drink sth that doesn’t taste good). And have sth good tasting ready to eat / drink right after.. 😊

This is an inspiring video. I wen through a similar experience. Years being told it was IBS . Then eventually after 5 different consultants, one sent me for the Sechat scan . It was a positive and I was given Questran. Can I ask do you take a daly Multivitamin?

Hi Amy, if you can please try to have a look into a herbal parasite detox (but not when pregnant). I really think this issue is from parasites. Especially if you are eating/drinking a lot of sugar like the squash. We should all do parasite detox at least twice a year. Good luck and I'm happy you are feeling better.

Great videos and information, sad about the condition. May i ask, can someone have eye issues or heat rashes from it? Particles in the urine / cloudy urine?

I have the same thing , i feel you ...

Is there a reason you don't take the pill version of it (Welchol)? I couldn't tolerate the powder so I switched to the pills. Though they're pretty big pills, but to me much easier and same result.

What do you mean take it in a glass of really strong squash? I have regular questran and it is still disgusting. I used to pack it into capsules, but it took forever

I use a protien bottle shaker to mix my powder in. It makes it less gritty.

Hello Emy 6 months ago I have undergine surgery due to endometriosis doctors cut out sigma , piece of small intestine , piece of bladder ... anyways thats when my never ebding diarea started , 6 months I have diarrhea and stool is super yellowish and fatty, finally doctor told me could be bile acid malabsorption and prescribed me Questran , witch makes me super gassy , please suggest anything, any help will be greatly appreciated:)

Hello all that may be fighting this terrible disease. Please look into Milk Thistle and chicory! There are studies showing great advantages. I started taking a supplement and stopped my diarrhea in 48 hrs! They also reduce inflammation! Which may be a root cause for some of us. It’s worth reading about!

Hi amy, ive seen both of your videos but i dont understand where exactly the pain was located in your abdomen.... Stomach/liver area? Was a pain like the organ being constantly contracted/squeezed? Thank you in advance

Can you do a what to eat or avoid video.

Amy I have been prescribed Questran for my BAM , It is so nasty to take!! Have you tried Colestipol?

After 10 years finally had sehcat scan which showed i absorb less than 5% of bile acid and have been told my condition is chronic, i have to take 3-6 huge tablets a day

I have IBS-D and one trigger is fat. No confirmation though because the test isn't available in the USA. Also seem to have thoracic outlet syndrome but have been unable to get that diagnosed too.

I got tired of taking these everyday and then I was still going too many times a day. I found a better solution but I had to get off the cholestyramine. I would try gelatin, so far it's been working so much better than the cholestyramine. I like taking it with milk and strawberry flavor gelatin, two cups per day.

I’m taking the same Med …. I dissolve mine in a bit of hot water and then add a little orange juice to it and it’s not bad at all .

Hi Amy, I'd been having BAM symptoms since October and been previously diagnosed with UC since 1993 and Crohn's for a few years. Also, my blood clots easily. Doctors so far really don't know what the root cause is. A few days ago, I thought I'd try taking multivitamins, thinking it could be related to a vitamin deficiency, and thankfully, my symptoms have improved 95%. Just thought I'd share. Hope you are doing well, and thank you.

Hiya Ty I’m due back next Thursday for the second see caht scan after taking the tablet I’m certain I have bam just so thankful I’m being seen after 6 plus years and to ambulance trips to hospital after bad bouts left me feeling extremely I’ll . I notice your taking the powder treatment I’ve seen there’s tablets that can be taken instead of the powder rather think I would choose them if given opportunity didn’t you want to try tablet medication ?

Thanks me too from NZ

Do you take this right before your meal or do you take it 15 mins earlier? I’ve been on one a day for a year or so. But flaring up lately so may need to increase my dose

Are you still taking the powder? I took it for years and it was gross but I was able to do it. Eventually I hit a wall and couldn’t take it any more without gagging. I switched to welchol. Pills. It’s so much better!!! I hadn’t been aware there was any alternative to the cholestyramine powder.

One thing that helped me is kefir and a multi strain probiotic as certain strains help with bile acid breakdown

Hello, love the vid. I live in the states and was wondering how you were finally diagnosed? I am 56 yo male and was diagnosed over 30 yrs ago with IBS. But for many years I have thought that it could be Bile acid related. I have been on Cholestyramine for about 25 years and it has helped me alot. But I went to see a natural practiontioner that got me off the medicine in the last few months. But I am having bouts of diarrhea. Still trying to get rid of my condition so I dont have to live on this medication forever.

Can u believe you can’t get tested in the US for this? Only Mayo Clinic has a test but it’s impossible to go there.

This issue has been affecting my life for the past 20 yrs and only s few months ago I was diagnosed. When do you take this medication? I have BAM and have not been able to figure out the best time for the medication. Is it before every meal or what?

Question Amy i take colestyramine as well but have you felt like your blood sugar levels were lowered ? Cause when i take i feel like it does to me

I KNOW HOW YOU CAN IMPROVE YOUR CURRENT CONDITION BECAUSE I HAVE ALREADY DONE IT. I went through the same thing you did for 21 years before getting relief; except my case was complicated by not having a gall bladder and having undergone intestinal surgery that re-sectioned my ileum. The ileum is a portion of the intestine that absorbs bile acids back into your body. Normally 97% of the bile is recycled back into your body but not for you or me or anyone else with BAM. I saw your original video for the first time yesterday (3-7-24) not knowing that it was 2 years old. I replied with comments that are worth your time to go back and view. But for now, I will make a long story short and share some information that can help you improve your life even more. I had BAM for 21 years before I gave up on the doctors and started doing my own research. I'm not a doctor and I am NOT recommending that you regard this information as medical advice. Instead I will explain to you what I did to control my BAM. I am a nuclear engineer, so I think very critically and pay attention to every little detail. I did a "ton" of research to discover what really worked and why. I will spare you all the boring details and concentrate on the issues that made a difference for me. Cholestyramine powder is awful stuff to take and it doesn't always work the same way every day. It is suppose to "suspend" (bind with) the excess bile in the colon to form a gel that makes it easier to poop out. I found a better way to do that; but you need to understand what is happening to appreciate the difference. Bile acid normally binds to soluble fats that you eat. That's it's primary function in the body. But that alone will not help you poop. You also need insoluble fats (fiber) to ad bulk to your stool so your intestines have something to push against. So you need both soluble and insoluble fiber together to get relief. Cholestyramine powder can't do that. But there is something that can. Pecan nuts contain the perfect ratio of soluble-to-insoluble fiber to produce exactly what you need. The only questions are how many and when should I eat them to get the best results. Here is what I have found. You need to eat 10-15 pecan nut half's every night before going to bed; and 10-15 more before breakfast in the morning. It's not a perfect dosage but one half of a pecan nut per 10 pounds of body weight seems to work the best. So 120 pound person should eat 12 pecan half's each night and each morning. That's it. You don't need anything more and it's all natural. If you do eat too many it's not going to hurt you. But remember that more is not better, you're trying to balance the quantity eaten based upon the need. You can prove it to your self but you need to stop taking the powder first. Wait one day and then start eating the pecan nuts as described above. (Do NOT eat the pecans and take the powder at the same time. You should notice a difference in less than 2 days. It's such a perfect match for what your body needs that the results are almost immediate. If it doesn't work for you then you can always go back to the powder. Here's another suggestion: get tested for vitamin B12. A deficiency can make BAM worse and actually cause more diarrhea. Another suggestion: get a small pump spray bottle (4-in tall) and fill it with water and keep it in the bathroom. When you poop wipe your self normally and then spray water on a second folded handful of toilet paper and wipe off all thin film residue. That's what is causing the irritation. Then apply Neosporin Pain Relief Cream (not ointment) to the irritated area and rub it in. If you have a burring pain (from hydrochloric acid from your stomach) then wipe with Alocane Emergency Burn Gel. It has 4% Lidocaine to relieve the pain from chemical burns. It will take several weeks for your skin to heal. Every 3-4 times skip applying the medication and just do the wet wipe to judge how much you skin is healing. All of these suggestions put together should make a big difference. It did for me after 21 years of absolute agony. I wish you the best.

Hi hun am on colesevlam for mine, and Bam is horrendous . I had the scan i dont make bile at all .my tablets you can take up to 7 a day .however my consultant wanted me on 3 a day . I tried two. i was in more pain 3. i was in hospital, so now I am back on one a day . Xxxx its nit nice for any one like xxxx

Can you mix your medication in yoghurt? Would that make it more palatable? I’ve had these symptoms all my life, but don’t fancy a SeaCat scan with radiation! This sounds dangerous. They’ve tried various colonoscopies which were too painful for me to endure. I wish I could try your medication to see if it would help. At my wits end as Doctor’s baffled with me…

How did you develop bile acid malabsorption? Did you get resection surgery in life before developing this ?

Despite taking colesevelam 3 times a day I am really struggling due to being an insulin dependent diabetic, no matter what I eat it sets either the bam of or my blood sugars😢

I'm still trying to get a diagnosis, yesterday my GP said I'd have to go private. Last year when it began, it began after having having a kidney infection, then my dog was ill with a mystery illness and he was bleeding everywhere. Veterinary scientists still don't know whether its a parasite, virus or bacteria that caused it. It was soon after that when I started having issues with my motions, you know what the hospital think and I wasn't going to have any of that invasive equipment put inside me. I anticipated that a GI consultant went through a series of elimination tests but they didn't, they didn't even discuss my diet with me. I'm not in pain and I don't feel bloated. However, I did find that leafy green veg made it a lot worse, although I appear to be OK with salad. So I now don't have leafy greens. I find if I eat eggs, I do get more solid. In 2022, I also did a parasite cleanse with raw onion, raw garlic and black pickled walnuts. It improved for a few months and has now gone backwards. I just listened to a professor's talk from Sheffield on Bile Acid Malabsorption and that then brought me to you Amy. My question to you is how did you manage to get diagnosed? Many thanks for sharing your journey.

What were all of your symptoms?

Hi amy.have u had cholochystectomy (remove gallbladder) because bile malabsorption could cause these symptoms.cheers from greece

Does BAM cause fatigue and what else outside of bowel movements? Thanks

Does any one know if taking the drink version cancels any other medication out like the tablets does to

Anybody know any doctors in Washington state that will check for this?

Try taking taurine capsules This amino acid is essential in bile creation The amount you take is governed by your motility

How do you maintain weight since been on medication the tablets . I have had pre diabetes on and off and fibromyalgia now concerns about liver duct and my hormones are all up and down . Been forced to not be able to work I really hoped by now I be in part time work atleast . Xx

My biggest triggers for BAM are cheese and some meats. If its not lean meat then I am stuck on the toilet for along while. Sometimes I forget to take Cholestyramine and when I do I pay for it. Thank you for the video I know its an older video but its helped me :)

They say i have colitis think thats the powder stuff i take i have pain in my right side its bad i puke and poop green no blood i don't have a gallbladder either i can't eat much and when it flares up I lose quit a bit of weight

Any side effects from the powder? I take any brand and I find it dries my mouth and throat out

Thanks Amy. Just out of curiosity as Im trying to connect a few dots, did you have Jaundice or hepatites as a kid or during your teens?

How you deal with gas? Gas it's disturbing part of taking cholestyramine!

What natural supplements should i take for BAM? I heard of guggel

Hey there!!! Please reply me !!!I i just have the morning diarrhea for one time in the morning 😞😞Is that BAM ? Please reply me its from last 4 years

When do you time you doses for when you go out?

Bile is essential for your body, it enables you to digest fat, and absorb the vitamins that are liposoluble like Vitamin A, B, D and K. Bile is released at the start of your small intestine every time your body receives the stimulus to do so (usually when food that contains fat enters your small intestine). Bile will help digest food and your small intestine should be able to absorb up to 95% of it back to your blood, which later will be filtered by your liver and transformed into bile again, which will be stored in your gallbladder waiting for your next meal. People with BAM usually can't absorb the bile in the small intestine properly, plus some bacteria on it can transform the primary bile acids (that are good) into secondary bile acids that can be harmful to your colon, the second part of your intestine. BAM should be treated seriously, too much secondary bile acids released in the colon can cause diarrhea and inflammation that, in the long term, can turn into polyps, adenoma and possibly further evolve into colorectal cancer.

I just started taking this 6 days ago. for BAM. I did my research and was pretty sure my Diarrhea was caused by bAm and not IBS-D all these years. found a Gastro that let me try the powder form since the capsules were on back order. I put a scoop In 8ish ounces of cold water and mix with a miniature blender. let it sit 5 minutes and its easy to drink.

Have you tried the conivoire diet ? It may be something worth looking into . Anything to get off of any medication is great . Good luck .

Im facing ibs symptoms but there is much more worse than this. When ever i plan to go out even to the nearest market. My bp gets low and i feel urge to go to toilet. Some people call it vasovagal syncope. Which has made my life totally stuck. Cant get out of home and do my job. Ibs is very painful. 💔

Hi Amy. when you were younger, how often did you have diarrhea, did you have daily bowel movements?

A year and a few months after diagnosis and being on Cholestyramine I have now gained 15lbs pounds for eating everything now :)

Did you take these while pregnant or breastfeeding? Are there any side effects?

Hi Amy. It seems similar to what i've been suffering although I don't have any constipation/diarrhea. I know when i added bile salts to my diet, it made me throw up. I suspect it may be a problem with my gallbladder not storing bile properly, but yeah hard to get help when the doctor's dismiss you. Was you're gallbladder functioning correctly?

I haven’t heard of this, but I HAVE heard of taking Slippery Elm and Phosphatidyl Choline. Also for Liver health, Milk Thistle. And for Gallbladder health, Beet Root Powder.

Great video , did you or anyone in the comment section suffer with any back pain and problems with dry eyes etc ?. I had a million tests and ended up a BAM diagnosis , I think the only explanation for the back pain and eyes is deficiency in vitamin D and K as they’re fat soluble . I’ve been prescribed BAM malabsorption medication but my doctor warned me they can cause constipation .

Hi, could you please tell me what kind of dr sent you for the Sehcat scan so I can ask my dr to refer me to one. I’m a little different from your case as after some years of me suffering from diarrhoea I was sent for a camera up my back passage and was diagnosed with collagenous colitis but was never really given any treatment apart from a tablet to stop the diarrhoea. Now I’ve had my gallbladder removed and I’m now worse than ever with it, I’m now living on the toilet and I don’t think I can live like this anymore. I’ve already had many “Accidents” and I’ve been close to the toilet when that has happened. I rarely get pain like you do but I’ve had the pain on going years before the diarrhoea started but when I do get it it does feel like I’m having a heart attack or I’m dying. I’m just sick of it now. I’m 59 years old and lived with it enough now. I’m sorry to go on and sent you an essay.

Thanks for your update:-) I better with my treatment but sometimes still have some bad days… I did put in lots of weight, and was wondering if you have a special diet for the BAM?

Hey Amy. How do you take the powder during the day? Before meals or after?

What is name of medicine...I did not get it.

Get CQ10 CHECK....AND WATCH OUT FOR ASPERTANE...SIDE EFFECTS... YOU ARE YOUNG... ALWAYS CHECK LIVER FUNCTIONS ALL THE TIME... CHECK YOUR K2. ..CLOTTING FACTORS ALL the TIME..

My poop is yellow all the time.( like fatty) And I have heartburn . Idk what us going on