AVM and Stroke Survivor since May 17, 2014. Lost all right side of my body and the ability to speak but still learning how to gain everything back everyday. Only want to help and inspire others ❤️
Hello Madi. I hope you are doing well today? My name is Eddie Price and I am from Wayne County, North Carolina with a 28578 zip code. Would you believe that I had an AVM with a Subarachnoid Hemorrhage in the Occipital ( in the Left Posterior (Back of the Head ). This was back in the year of 1978. December 19, 1978 I was 20 years old that year. I went through 8 hours of Surgery on that day. My Neurosurgeon told me and my family that I was a miracle. Plus if I continue to improve that I would be a miracle for sure. Guess what I have been one ever since. Now that was a gift from God. I hope and pray for you the same and even more. Please listen to me you can do anything you want to. Just know your limitations. Please just know your limitations. That's all.
Hi Madison. My son Matthew is 36 and he had a ruptured AVM too this morning. He is in ICU and they aren’t very hopeful. I have hope but I need to be patient and thank you for sharing this because he needs time to heal. I hope he wakes up like you did. He is so loved and too young. Keep kicking butt. God bless you. Sara
Thank you for sharing your experience. I was at work when my AVM ruptured, I fell broke my jaw and had a seizure. I was airlifted and eventually had radiosurgery.
i had an avm rupture in 2016 and i've developed really severe ptsd from the whole experience. thank you for sharing your story, i've felt so alone in this and it's nice to see someone else who can relate to my struggles. when you said when you woke up you couldn't talk and all you could do was cry...ouch, i relate so hard. you are a warrior.
Hi Madison, i gotta ask, are you hemiplegic after the rupture? If you are, have you regained your movements back especially on your fingers and wrists? I had a rupture in 2016 and im still struggling to move my fingers and wrists on my effected side
Hi, My name is Amy and I am 24 years old. I also have an AVM! Rare right? Everything you went through I went through. The whole talking, walking, swallowing thing I went through that. It would be very nice to talk to you soon.
Saw your story before and found you here! So thankful to see how much progress you have made! I really think you’ll be a cheerleader again someday, keep making video ❤️
How many years ago you had the AVM in this video? I have seen your 4 year old video and you talk much better and faster and thoughts just flow out in this video. You are an inspiration. My brother had a ruptured AVM and it is challenging for him how to talk and remember things. Do you have a memory problem in the past?
You are an inspiration Madison. How long did it take you to talk? My brother had a ruptured AVM and has an aphasia. He has a problem expressing himself and can talk only few words and not sentences.
My AVM ruptured June 6th of this year and I’ve lost all coordination on my left side and sensation on my right side thank you for sharing your story I can’t walk but hopefully I can soon because being pushed in a wheelchair is no fun & my one eye is crossed which is annoying because I see double vision
I tried to send a message on tick Tok but couldn’t. Your an inspiration to all that have suffered from a stoke. When I was younger my grandfather suffered from one as well and was wheelchair ridden. To have the support of family and loved ones is one of the most important things. Don’t listen or read with the trolls are saying. It’s awesome that you are showing others the day to day struggle that you have to go through. So many people don’t know what a stroke is or even the signs or that it can hit you at any age. Love your work and keep it up. 🥰
After my stroke doctors told my mother to terminate life saving efforts that I'd never see walk or talk that I'd be dead in months that was 13 years ago I walk with a limp I drive a Golfcart I see better can talk it just gets difficult getting the words out. And my punctuation is almost nonexistent but its always been that way. So that showed me theres not enough research of strokes in young people so in may of 2022 I'll be leaving on a cross Canada charity ride to raise money for just that
The fact that you survived means you’re meant to be here. Stay strong. You’re extremely beautiful and, YOU ARE NORMAL! A baby will come when it’s time. God Bless you, beautiful woman.
Just subbed, about to check out some of your other videos. I think that you deserve way more views! Have you ever heard of SMZeus . c o m??? You could use it to help increase your subscribers!!
Hi Madison: My name is Jonalen Gamis (30 in December 31, 1989) and I live in Richmond, BC. I suffered an aneurysm in January 8, 2019, this year while I was in a restaurant. I was in the ICU for two months and could not move my right side. I was an inpatient, outpatient, and intense rehab program (IRDP) at GF Strong. Now COVID-19, GF Strong work at home, Speech (one on one) and IPad (in group) so far it’s been going great. I walk every day. I used to be on a wheelchair before, then I started to use a cane and now I am slowly getting better without a cane. My right leg and a walking pole and wearing an arm brace using my right arm. I am continuing to work on sounds, comprehension, writing to help with my reading. Texting is hard even though I know what to say. I read your story (RU-vid). Thank you - I know what it’s like, the struggle, long hours, every bone in my body, cried to sleep. It’s worth it. I can talk, speak, write, stand, walk around, run and someday I’ll be back to normal just like you. Don’t give up! Thank you again. ☺️ Sincerely, Jonalen
Congratulations! Keep your head up. I have my first appointment with my Neuro's Wednesday. I'm 58 and tripping out. Glad I made it this far. You give me hope! I'm on FB- James Randallthewtf. You probably don't check this anymore, take care you've got the world by the #%lls!!
@@lrmcdaleno3301 I am still kicking. It seems I'm too old for anything to be done. I still feel fine and my avm is stable. I turned 59 in December. Yay
@@jamesrandall1915❤️ 59 wow ! Happy to hear your still kicking 😎💪🏼Thank you for answer .. asking because I had this mri and mra and happens that they found avm ,I had this angiogram done last week and next appointment is on feb 23th .. to see exactly what kind of avm I have .. I’m 36 btw and little scared too 💔
I'll say a little prayer for ya. You're young, they can help yoy. 😁 keep me posted. Thank you for the response. You are the first person to actually "talk to me. Be brave. It'll be alright. Later, J.R.
Hey just know you're not alone! i had problems with my large pelvic AVM since birth, started bleeding internally and didnt get help until i was 18. left my senior year early for surgery and have never been the same. still have trouble with any sort of bowel function, and im going back for new growths and symptoms as of today. keep in touch! lots of support groups on Facebook and such!
Was scrolling through. Ran into this. And I’m like “hey, I haven’t talked to her in a while” 😂 Stay strong Maddie 🤘🏼 Don’t be a stranger, text me whenever
Mine ruptured when I was working out with marine recruiters. I don’t remember getting a headache or loosing feeling I just remember getting really dizzy and I guess I passed out. I was rushed to the hospital and they performed emergency surgery. Strokes caused me to lose my left peripheral (hopefully temporary, that’s what I’m told anyways) While I was in the hospital doing pt ot and st every time I stood up I’d get dizzy and that’s gone (thankfully) so I can stand up and not get really dizzy. But I also stayed in the hospital for two-ish months. I was lucky enough to only have problems with my peripheral not my speech or any limbs. God was watching out for people like you and me on those days.
Thats all great news! Ive come in contact with your channel looking for people who have experienced the same as me. My AVM ruptured 4 months ago while I was at the gym, I didn't know I was having a stroke but i woke up in a hospital bed 10 days later unable to move my right side.... its been a crazy ride, I'm still recovering... for now I don't have movement on my right hand or wrist, but I know it's coming!
Wow Anna Pinho ! Your story is similar to mine. If you don’t mind me asking, How is your walking? Did they stabilize your AVM or did they take it out? I know you feel with your hand. My doctors told me that the hand is the hardest thing to come back. Thank you so much for commenting and telling me your story. It is way I do the videos to tell mine and hear yours. Thank you ❤️
No how you feel was paralyzed on my right side for about a month could move my right hand after a while but my right leg was the biggest struggle. The therapist had me do electro shock therapy on my leg to get it moving again. It was strange but my leg works great now.
There is a website called www.avmsurvivors.org You can join it and chat with others that have had an AVM. Even show your videos. As for my AVM story I had my AVM rupture way back in 2000 at age 10. Ended up having 4 surgeries done. I’m in great health now but it was one heck of a ride.
Im 23 years old i my avm raptured 2 months agoand i had surgery my left side affected but now i can walk and i can even have shower and wear can i have your fb ?
Hi sasha belcher ! If you don’t mind me asking, how are you doing today? I can already tell that you are strong because YOU made yourself strong enough to get out of the wheelchair!
You should put this video on www.avmsurvivors.org Its a website that I’m on just talking with others that have had similar struggles. There is usually someone that is new on here once a month or so that is dealing with what we have gone through or someone’s family member that is dealing with an AVM and has so many questions about how it effects them.
Hi Allison Grant . I’m so sorry about your daughter. I don’t have children but seeing and hearing what my dad went through when I had my AVM I couldn’t imagine so I’m sure it wasn’t easy at all for you. If you don’t mind me asking how is your daughter doing now? 12 years old, wow she is a fighter.
