This video was very informative and beautiful might I add! I started listening to this video; had to rewind, go find a notebook and pen! Really received a necessary perspective; in better navigating myself, into more questions to ask and apply more accurate answers!!
Hi Sarah, hope you are making a wonderful recovery. I would really appreciate if you could clear a few of my doubts on a one-to-one basis, my diagnosis has been a roller-coaster so far (started since Jun 2023 till date,, presently a non-responder to treatment). Could we pls connect on a one-to-one basis, I won't take much of your time but I believe could get a lot of my issues addressed by your help. Awaiting your response. Thanks
Hi Sarah, I have been diagnosed with AIH and they want to put me on for transplant however i am trying to avoid that. If you dont mind can you please guide me through your treatment process? I am in the UK and my doctors have only started me on moderate steroids however the damage is beyond 3 just like you. If you could spare me a few minutes or may be give me an email for yourself IF only you feel comfortable to do so.
I am with you -- I hope they find an effective treatment so you can heal! I'm not sure how American-centric it is, but I can't recommend aihep.org enough. They have great documentation on common treatment plans, link to doctors, and also offer support groups. You can also join the FB community which is a good way to crowdsource a bunch of ideas. Let me find the link to my video about how I started out!
I love Conspirituality & I’ll definitely check out Maintenance Phase, I really enjoy listening to podcasts too. I found your channel because my daughter (22 yo) was just diagnosed with AIH & your videos have been very helpful & informative for me. Thank you!
Sarah! We need an update! I have Microscopis Colitis as well and I feel like I am in exactly the same journey. Having tests, trying new meds, diet, and crossing my fingers.
@@SarahCarr Thank you for your reply! I can't wait for the next video! And thank you for being so open and making videos. I know the process is different for everyone, and seeing that there is other people with microscopic colitis makes me feel less alone. <3
Right now i am controlling mine by staying 100% carnivore. I have decent poo, #2 on the bristol chart. My trigger is the fat because i dont have a gallbladder, so i do ox bile if i eat fat and i follow with metamucil. That helps greatly. The fodmap is a joke for me. I do meat, bacon, eggs, etc. No veges and certainally NO sugar. I do eat small home grown tomayoes and smsll tender cucumber in smsll amounts. I have NO watery diarrhea anymore. My family docyor told me thst everybody over 50 have MC because of all the NSAIDS being taken. Anyway, im taking 1/2 of mt anxiety meds every couple of days instead of 2 a day every day. 🎉🎉 im off ALL depression meds. No more aspirin. I do white willow bark instead and only drink CLEAN coffee . 2 cups a day down from 4-5 a day. I tske tumeric for inflamation and magnesium foot soak. Ditched all commercial soaps and use Clean People soaps and clean bath soap and shampoo. 🎉 Thats my story.
I was just diagnosed with MC a week ago. I refuse to take the B pill and and have chosen to get back hard-core on my carnivore....no carbs, no dairy, no sugar, all ruminent meat (beef). No fruit or vegetable. And prayer. Food is medicine. God has this, not big pharma.
Thank you so much for talking about your experience! I've been looking for a video like yours. My biopsy is coming up next week, and it is much more involved than the doctor made it out to be.
@@patoss92 My diet has been to minimize my microscopic colitis symptoms first and foremost (limit fried food, spicy food, a few high-FODMAP foods my body struggles with). The only liver-specific guidance is 2 alcoholic drinks per year.
I have just got the diagnose, don't know what to expect from now. Feel worried and yes, anxious. No surprise coming from an autistic person also diagnosed with anxiety.😢😂🥴
Hi Sarah, I am in your camp, 7 years with Microscopic Colitis. I was in remission before Covid and because of the stress of losing my livelihood, ( I'm a fitness trainer in California, tyrannical lockdowns ) my MC came back and is still here. I've tried all the stuff you've mentioned, I now have osteoporosis because of the lack of absorption so Budesimide is out. I started seeing a Functional medicine doc and am trying Low Dose Naltrexone. I will let you look into it if you are interested but it helps with a lot of autoimmune conditions because it calms down the immune system and helps with inflammation. It takes from 3 to 6 months to know if it works and I'm almost at the 3 month mark, it has helped in terms of urgency and frequency, I go a bit less at night so I'm getting a little better sleep. ( which is not saying much ) I just wanted to throw this your way in case you want to go another route, the good thing is that it is a very safe drug, no longer under patent so no money for Big Pharma if you catch my drift. Good luck to you, thank you for saying it is not our fault, I got tears in my eyes when you said it because I too keep thinking I have done something to cause this awful condition. God Bless.
Hi Sarah, I loved your name because my daughter’s name is Sarah. Thank you very much for the useful information regarding microscopic colitis. The problem is that I do not suffer from diarrhea, but rather constant pain and bloating without stopping. I do not eat anything except chicken breast, rice for lunch, and eggs in the morning until I get tired of this routine. My skin has become very pale and my hair has begun to fall out. It dried up a lot until it became like dry straw. The doctors did not help me much. I have no desire to leave the house or work. Everything stopped for me two years ago, because I used Budesoneide and it improved a lot for only three months and the pain stopped, but ten days ago the symptoms of pain and gas returned again and I am not... I know how long I will remain like this. I would like to ask you about a nutritional supplement I have heard about called Glutamine. Is it useful for these cases? Greetings to you. I wish you good health and an end to your suffering.
I'm so sorry that you're having such a time -- I pray that you will catch a break soon and get some improvement. I have never heard of or used glutamine -- perhaps a good thing to talk to your doctor about? Each person is so different so I wouldn't want to comment on the best treatment for you. I hope you get answers!
@@Nightwind-nn9wn Thank you very much for the response, this disease has really made me tired and I have suffered from severe depression.i seek help from the doctors.They say that they haven’t found an affective medicine other than cortisone, which raised my blood sugar and blood pressure, and I was not suffering from them before that .perhaps I will go to alternative medicine until I found solution .
Hi Sarah, I've been following your channel for a while now. I have 2 autoimmune liver conditions - PBC and AIH. I've struggled with digestive issues since my AIH diagnosis in '22. I started out on Prednisone and my AIH is being managed by Cellcept and Budesonide for the last year +. I'm going through some testing because my doctor wants to rule out colitis (it may be induced by Cellcept or could be autoimmune). Fun times as you can relate! I've taken cholestyramine during my pregnancy in 2019 because of PBC and severe itching...God I hated it! Hope you find answers soon and feel better! Keep sharing your journey..you've been incredibly helpful in mine ❤️.
You are so kind and generous! Sending you tons of care. It's funny how we've had such parallel journeys -- I feel you on the cholestyramine! I hope you get some answers on your colitis!
@@SarahCarr We do seem to have parallel journeys which is why I love watching your updates! Very few people sharing what we go through in real time like you do :). Hope you feel better soon!
Hello, I hope you can update her on microscopic colitis, because I was diagnosed with it eight months ago and used Budesoneid for three months. It improved a lot, but the symptoms returned. Yes, I am like you, and my liver enzymes are always high, and doctors do not know the reason. Thank you for the topics you raise, and we would like more. What is the quality? Food that suits us, following you from Germany
CONGRATS!!! im on month 2 of AIH with minor fibrosis and its terrifying. My ALT was at 1,114 and my AST was at 2,554. Today my AST are at 28 and ALT 19. I've been tapered to 10mg of prednisone and 100 of azathioprine. I'm working towards remission and hopefully it comes with my way. Im so happy for you. Hopefully you stay in remission <3
I have crohn's or colitis disease My life change I get pan alone with Everything else getting harder waking good days bad days I sopos I'm so grateful to everyone That helped me , still great to be alive , thank you for video,
Love the positive vibes in this video! 😊🌟 So inspiring to see how embracing a gluten-free diet can make such a difference in managing chronic illness! Keep up the great work! 💪👏 #Inspiration #HealthJourney
Thanks for this video just had mine Wednesday I am so glad the shoulder nerve pain happened right after my procedure was done it felt like I was having hard attack lol but not lol. They gave me pain meds right away . I was also given fentyl for pain. Over all everything went well got my results in 2 days which was surprising because I was told a week. But was glad I have fatty liver inflammation etc nothing my provider was to worried about just need to continue to lose weight. Almost a week in I am still having mild breathing issues meaning not to where I originally was so I am waiting on that to resolved. I only had to take pain med the nx day that Thursday and again today five days later which is weird. Again thanks for video it helped alot.
Have had MC since 2019 nothing has helped until now 1month on full carnivore with half to 1 cup blue berries with pot set natural yoghurt every day, have now stopped meds
You did good ❤ happy to hear that some people can overcome this, I hope I don’t have to take these meds for the rest of my life. Thank you for posting this.
Congratulations madam,and bless me you heal from this disease from last 15 days I too have AIH and please guide me to be strong and courageous to come out of it.
Thanks for sharing your story. I had high liver enzymes that lead to a ultrasound then MRI which said i stage 1 to 2. Then a biopsy that was better than the migraine I had the the day before that I couldn't take any pain killers for due to biopsy. Preliminary report says stage 2 with some stage 3 but vague on anything else. Waiting on doctors interpretation vs my monkey mind making assumptions.
I commented on your biopsy post (will be having that this week) but was happy to see your treatment as my doctor is testing to make certain I can tolerate this medication.
