You did good ❤ happy to hear that some people can overcome this, I hope I don’t have to take these meds for the rest of my life. Thank you for posting this.
Congratulations madam,and bless me you heal from this disease from last 15 days I too have AIH and please guide me to be strong and courageous to come out of it.
I'm so happy for you. I'm responding really well to the meds and they dropped my levels like a rock. I was only at Stage 1-2 so I'm hoping I can get down to zero soon.
Yes, though I didn't make major dietary changes for my AIH. In talking with my gastroenterologist and then hepatologist, I stuck to my normal way of eating. TBH there are things I tend not to eat already (few snacks, no soda or alcohol, no fast food, etc), so as everything on the CMP/CBC was normal, I kept eating as I had before.
Congratulations! The liver is the only organ in the body that can fully heal itself, given the chance. Stay away from grains stay away from box foods stay away from sodas stay away from sugar. Your auto immune disease will also heal. Much love💫💗☀️
I am so happy for you! I was just diagnosed about 3 months ago and I also am at a 3. I am taking Prednisone and Azathioprine. This is the first video of yours that I have watched, and what a good one to see!! I saw in one of the comments about eating a high protein diet, but my doctor has not told me this. I'm trying to find all information that I can, because it is my understanding that it's a rare disease, but one of the most common among rare diseases (if that makes sense). Anywho, so glad for you. What a wonderful blessing.
Sending you so much care and I hope that your treatment continues to be helpful! If you haven't joined the Autoimmune Hepatitis Association I really recommend it -- it's a great community of folks with lots of helpful information!
Amén 🙏🏿. So happy for you!!!! This made my morning. It is ok tp cry--tears of joy. I have cried a lot over this so I know how you feel. Keep up the good work 😇
Great news, Sarah, but shouldn't they do a liver biopsy in order to say you are in remission, or is that when you are to get off your medicine. Also, did they do IGG test to see where that is at, because that is very important number to see to make sure you are in remission.
The liver biopsy is the gold standard, that's for sure! But given cost ($6k!) and that my last biopsy was only 7 months ago, we're going to hold on that for now. I'm praying that all of the blood tests come back as they have (moving to every 3 months for CMP/CBC/hepatic panels), and then if I am still in this place by end of 2023, my hepatologist said we'd consider a biopsy then. What comes after that? I'm not sure!
Hi Sarah. Not sure if you'll see this post. I also have aih and have been prescribed azathioprine. In your opinion is it worthwhile to take it. 😊 are you still in remission?
Hi Janet-- yes, I am still in remission, and my latest numbers are even lower. Two things my doctor did was to run a test about how I metabolize the medication (IIRC it was a genetic test) and then with my blood draws they check for 6MMPN and 6TGN toxicity (a potential consequence of Azathioprine). I hope you have a doctor that is caring and answering all of your questions
Congratulations. I went through the same experience. Elastography diagnosis was advanced liver fibrosis or serosis. I thought I was going to die. They put me on prednisone and a few weeks later I had a liver biopsy. My specialist called a few days later with the biopsy results and told me all the fibrosis had gone. I also wept tears of joy. I danced around the kitchen. I told myself, 'I get to live, I get to live.." I shed tears of joy for you. I know how feel. I am now on mycophenolate and life is almost back to normal.
