Patients Know Best (PKB) is Europe’s largest personal health record (PHR) platform.
We put patients in control of their medical records so that everyone benefits, including clinicians, researchers and charities. We are also a social enterprise, and our mission is that patients know best.
We achieve this by each person:
1. Owning a copy of all health information about them
2. Understanding what this information means
3. Using this understanding to make a shared decision with family and professionals
By connecting information from primary, secondary, social and mental health care providers, it creates a single copy of a patients data.
The person owns all health data in his or her PKB account. Control over access to the data is legally enforced through this ownership and technically enforced through encryption. No one can decrypt these health data without the permission of the person.
I'm a "Patients Know Best" user.... :) Since 1987,I've lived in HELL Because I've had Major Brain Damage i.e. ULTRA TIREDNESS/EXHAUSTION & 'BRAIN FOG' (thru "Chronic Fatigue Syndrome/Myalgic Encephalomyelitis/Fibromyalgia) & There are Millions of other sufferers who NEED A CURE AT AN AFFORDABLE PRICE!!... 🙁 alanccreaserathotmaildotcodotuk
Hello, This video is now out of date following the NHS App redesign/update in Dec 2023. Would you consider deleting/archiving/unlisting or updating your video? You can watch my video showing how to request repeat prescriptions in the redesigned NHS App: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-OXuDjVmCaj8.html
Mentally (Neurologically) & Physically Disabled (Due to CFS/ME/FMA) NHS patients like me have Very Few people like Myself in Hull,To help & guide us - Unfortunately NEED THESE!!.... :)
Mentally (Neurologically) & Physically Disabled (Due to CFS/ME/FMA) NHS patients like me have Very Few people like Myself in Hull,To help & guide us - NEED THESE!!.... :)
We are working closely with organisations in Hull including Hull university teaching hospitals Chris! Our team that work with Hull would love to hear more around how PKB could be more useful for you and if you are happy to share which organisations/teams you would benefit from, we can definitely reach out to them with your areas/share this with the project team in the hospital :). Best wishes, PKB
I just made an account on PKB and theres nothing on it? I wanted to be able to see my bloodtest results and things like that? But it asks me to add the results?? How am I suppose to add results when its the doctors that have all of that information?
Hi Rosie, We're so pleased you've registered and understand it's a bit frustrating when nothing is in there yet! As Chris has mentioned below, the data in your PKB record is provided by different NHS organisations. If you are happy to let us know what region you are based in, either in a comment or by emailing our support team on help@patientsknowbest.com we'll be happy to share what we know about your healthcare organisations/regions plans and when you can hopefully expect to see some data! In the mean time some patients use PKB to store information that may help you manage your health, theres some ideas here - ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-pp1vyHESfTY.html. Best wishes, PKB
Bring a table view to blood results and you might have a 'product' that isn't so laughable, and is actually fit for purpose. Drop down/click to view menus went out of use on the internet over a decade ago.
