Managing Parkinson's: Patient advocates for Patients Know Best
Join Mark, a 61-year-old from Scotland, as he shares his journey of living with Parkinson's for nearly 11 years. Diagnosed at the age of 50, Mark faced the shock and uncertainty of managing a neurodegenerative disease while balancing his job, mortgage, and family life.
Patients Know Best (PKB) has the potential to be an invaluable tool for Mark. He discovered the platform through the renal unit, recognising its value in managing complex medical needs.
Mark appreciates how PKB allows patients to upload data from various health monitoring apps, providing clinicians with a comprehensive view of their condition, which can improve the quality of care. He also acknowledges the importance of being able to upload his own medical notes and having them readily available, especially to help update his consultant on his condition at his annual check .
While PKB is available via renal units, PKB is not widely used by NHS Scotland currently. Here Mark advocates for widespread adoption of Patients Know Best believing it could significantly enhance the lives of those with Parkinson's and aid the scientist researching the condition.
Mark's story underscores the transformative potential for accessible healthcare technology in managing chronic conditions. Subscribe to our channel to learn more about how Patients Know Best is revolutionising healthcare for individuals like Mark.
#ParkinsonsAwareness #PatientsKnowBest #HealthcareTechnology ChronicIllnessManagement #PatientAdvocacy
⏱️ TIMESTAMPS ⏱️
0:00 - Intro
0:10 - Mark Coxe
0:22 - Diagnosed with Parkinson’s at 50
0:50 - Changes on a daily basis
1:13 - Need access to medical notes
2:11 - Important for patients to input data
3:30 - Finding a cure for Parkinson’s
4:05 - Share medical notes with scientist
LINKS
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🌎 - WEBSITE: patientsknowbest.com/
📝 - BLOG: blog.patientsknowbest.com/
🛠️ - PKB CUSTOMER SUPPORT: support.patientsknowbest.com/
🧑💼 - LINKEDIN: / 201431
🐦 - TWITTER: / patientsco
👥 - FACEBOOK: / patientsco
📸 - INSTAGRAM: / patientsknowbest
8 авг 2024
