My name is Jeremy and I was diagnosed with YOPD(Young Onset Parkinson's Disease) in 2013 at the age of 36. Lucky me!!! I am a married stay at home dad who loves music, skateboarding and podcasting. This channel is a place for me to share my experiences, thoughts and music. I love getting feedback, so please leave a comment or message me.
Just seeing this video, and yes multitasking is a challenge. I was trying to look at my email and listen to this video, failed 🤷♂️. I closed my email and restarted the video.👍 This one is challenging for me as my job requires me to be able to multitask and be in charge of multiple things at any given moment, and I am struggling in ways I have never struggled before. ☹️ It takes a lot more energy to try and keep up. 🥱💤😴
I identify as a woman big time, but concepts like masculinity and femininity, as we can see with your struggles feeling less than a man and mine, feeling less than a woman because of Parkinson’s is an indication to me but maybe these concepts aren’t so healthy… these images of ourselves that get locked in place maybe do more damage than they do good?!? Because they’re so hard to let go of!!
Allow me a few random observations. If Liam becomes Lil’ Mac, you become Big Mac, congratulations. That being said, enjoy him while he’s still little. You just might be at the top of the downward slope to Clueless Dad. He will let you know. It starts with an eye roll. The description of that “science” class sounds like what we used to call Sex Ed. It sounds like he may be a little snervous himself. Always keep the door of communication open under all circumstances with no judgement. You will always be the neighborhood hero. ❤😂
You don't have to "be a man." You are a man. We can all go out and swing a sledge hammer to build the transcontinental railroad and walk around with shoulders puffed up. No reason to. Showing respect to wives, kids, strangers, makes you a man. We all need to follow that.
We may have a preexisting issue that over time slowly surfaces. Blows to the head and/or medications may bring it out. The environment too. Loss of independence is also a factor to deal with. Back injuries or other medical issues can cause limited function. We learn as we go. Peace and happiness.
J Mac, Im in the 60+ demo, yep impact sport does dent the head and some players get concussion...and maybe PD?? FYI USA Rugby 🏉 team playing Tongan team in November. Tomorrow night NZ All Blacks play Australian Wallabies. Well be tuned in. cheers, John
Well I’m one of the 25% you were talking about. I never have followed sports (so I don’t know who you’re talking about). I don’t ride a motorcycle, I’m not a big man (5’4” tall); however out of my four children three grew up to be beautiful women (my son is 6’2”) …I don’t want to say their boyfriends feared me I’ll just say they respected me. I played lead guitar in many bands back in the 60s and enjoyed every minute of it. My Parkinson’s makes what used to be so simple sometimes impossible to do now. That’s just me. I made a video about each of my four children on my RU-vid channel.
I have several friends who don’t follow sports. I believe they are smarter than me as I can get so worked up, win or lose. You sound like a pretty tough cookie from my perspective!
This was even in the news here in Switerland. Reminds me to Muhammad Ali. Too many hits on the head are not a good thing. May it cause PD or dementia or other things.
Love it! Sounds like you guys were the St. Louis version of my buddy Rob and I as teenagers. We had some definite Beavis and Butthead moments back in the day.
its really hard to do it good, i know here in argentina a mother has 7 stains on rotacion, changing from 1 to the other every 3 months aprox, thats how you keep getting the good effects out of it i believe u cant smoke the same every time
@@JeremyMcdonald i just read it again i feel like told u did it wrong, it dosent work for everybody, also she dosent do any other medication, hope you are great
Hi, thanks for taking the time. Here in the UK I have had an extreme nightmare...mother nursed to the end with lung cancer...years in radical environmental political group that turned on me and threatened me for 8 years or more. Gang stalked by them across the UK. Homeless for three months...had nasty fight which was not my fault, almost got sentenced and got punched in temple on head. Worked as gardener using pesticides for years. Now about to go to doctor with symptoms to get diagnosis. cannot find anywhere safe to live as always being harassed by people here in the UK. Now I have to change my life to cope with this disease.
Hey Jeremy, I enjoy hearing old stories. In your video, you asked what we thought about -- showing you enjoying listening to your old recording or showing a blank screen. I did something like this about 10 years ago with an old 1950s recording of my grandpa telling stories. I showed a slide show of old photos while playing the old recording. Here's an example. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-70xsUFS51mI.htmlsi=cRDm1BpEv_cBNZMh
I'm sorry you're dealing with this. My mom has this too, and she prefers the dyskinesia to "freezing" or getting "stuck" and falling. She's elderly but REALLY FAST so falls are a constant concern with her.
Wow! You are beautiful! Sorry if that sounds weird in a comment, it’s the feeling I had listening to you. Thank you for this video! I am here to try to understand more, so I can be a support for my dearest friend/sister, who has been recently diagnosed. The strength you show is amazing, and on top of that, you’re helping others with your videos. Thank you and all my best wishes, from Spain ❤
This video is priceless! My Internal Medicine Doc wears the socks with cartoons on them. So, I started wearing them to all my doctor's appointments. Not as daring as the red thong!
Hey Jeremy, Ive reached out to you a couple times talking about my grandpa with PD and a year ago I was telling you that he was still really independent and now he had been in memory care because he developed dementia with his PD that happened 6 months ago and now on Wednesday he contracted covid and I don't think he is going to make it, the inflammation from covid has his PD taking over completely. He refusing his meds food and water. I hate this probably more than he hates having PD, I just wanted my grandpa to die doing the things he loved to do, but PD took all that away, I am trying to stay positive for him but I also know he is tired of PD.
I totally remember you! It breaks my heart to hear about your grandpa. He is exhausted from fighting this terrible illness and what it is doing to him. My thoughts are with you, friend.☹️
Appreciate you being straight up about this and sharing your feelings with the rest of us. ♥ My husband had his off days for sure and tried to keep it to himself, but regardless he just kept motoring along with his life and this was a source of wonder to a lot of people. He was one of the strongest people I've ever met in my life and was a deeply spiritual person as well listening to the writings I'd read to him. ♥ You hang in there, Jeremy, you do good deeds by posting about your life with Parkinson's. Hugs to you. ♥
Great talking points. I don't even let myself think about the future. I've had people ask me what my plan is and I tell them that I'll figure it out as it comes...I'm just taking a day at a time. I know I would like to move out of my state and be near mountains/water, but who knows if that will ever happen. I just find it easier to not even think about it. Keep your head up and stay active.
The future. I'm with you there. The worry about how my end will come.... I'm not as far into this journey as you are. Most people wouldn't know I have PD. I hide my hand and cross my ankles. My close relatives know but I don't talk about it. I have a sister-in-law that's a nurse. She means well but I hate it when she asks how I'm doing. I don't want to dwell on it or talk about it. I'm not hiding it. I have no problem telling people I have it but I don't want that to be the center of my existence. I don't want to explain the constant anxiety, the bowel and bladder problems. How sometimes my throat forgets how to swallow. How the things I loved to do are becoming impossible. It all just plain sucks.
I just keep reminding myself that people really don’t understand how difficult this disease can be. Otherwise, I might take things personal. Thx Dakota Mouse!
There is no way to end a podcast of a life threatening desires! Just Mac I think it’s amazing that you address these problems head on with super personal videos that can be viewed by the public. This is so sick and keep doing it brother! I don’t have it but it’s so crazy it could happen to anyone. I love that you keep putting the awareness out there on every upload is awesome for that community. 1 Love.
