Join me on my journey dealing with craniocervical instability treated with prolotherapy and prp, I share my experiences and opinions hopefully it will be helpful but it is in NO WAY medical advice, this channel was created to share my story to spread awareness, to help people find answers. I am not a doctor I am a patient. thank you for stopping by if you have any questions please feel free to email me at dixonadventurechannel@gmail.com
@@lkim381 no I just figured out this is a thing. I’m betting ozone therapy right now. I have all the same syntoms plus more. And I’ve also been ping pong around to many drs. I am paying out of pocket right now.
Hi! Just want to know, how you feeling today? Are your symptoms get better now? Did your tinnitus goes away and had you issues with your jaw and teeth( pain, jaw deviation ect?)
Prolo works sometimes But the cervical muscles when weak cause vertigo and other issues as c1 doesn’t stay put Standing dumbell rows cured my vertigo Strengthen the neck and upper back
@@paulwelch9906 Dumbell rows to particularly on the side the weak side where the atlas pulls away from, also the Nara Neck device works great it’s only 59 bucks.
Sadly, I've had an MRI 5 years ago after severe vertigo and fluctuating blood pressure. I have scoliosis and cervical arthritis. Running from one specialist to another. No one helped. I just manage the pain with natural remedies. Now my eye pressure has gone up a couple of months ago and I found Dr. Hauser's videos by chance. I went to a neurologist yesterday and supposedly having a new MRI tomorrow. Gave him an idea of this but he doesn't seem convinced. We're awaiting MRI. I feel lost.
I am so happy to hear you are doing great.....I have been suffering from this for 28 years I have been to all sort of medical practitioners ENT, Chiropactors etc ..I was told I had to live with it...Just a week ago it got really bad that I had to start doing some research on you tube and came across Cervical Instability Prolozone Clinic UK ...I gave it a try went in and was diagonised with C1 C2 misalignment...I could not get the Prolozone Injection because I need to have my C1 C2 corrected first, So I was referred to a Top Chiropactor London who deals in Upper Cervical spine amazing guy he told me not to worry... Booked me for the 16th of Sept 2024....Hopefully I get this sorted I already resigned and stopped working because I could not focus at the age of 30.....I literally have all the symptoms.. Tinitus, constant headache,ear fullness, neck pain,anxiety,panic,depression literally everything Cant wait...
Josh, you could be my son’s twin in experiences prior to finding treatments that work for you! My son diagnosed himself with this after researching his symptoms and seeing neurologists, cardiologists, endocrinologists and having every image, lab test and everything comes back “normal” but he still suffers. His Dad and I have an Atlas Orthogonal practitioner and he went there and saw how terrible his atlas was out of alignment and seemed to recover quickly from acute issues but his atlas needed a 2nd adjustment so he can’t hold the position. Driving to Mayo in Jacksonville last week gave him the worst vertigo yet the next day. Through prayer I discovered Dr. Hauser’s clinic online and your channel last night. I am sharing you with my son today and wanted you to know Yahweh is using you in your mission to help others. May He bless you and keep you and thank you for what you are doing! I believe Yahweh hears the cries of a mother for her child and you are part of that!
Hi Josh, looking at you it looks like your left shoulder and left elbow are slightly more hiked up compared to your left side. Did you ever have a shoulder injury in the past? Curious if that is what might have started your cervical instability issues, as it did for me
EDS patients are warned that chiropractic adjustments are risky bc we injure easily due to hyper-mobility. I once had a chiropractor worsen my lumbar pain. I have fellow EDSers that were also injured by their chiropractors. This route is not safe for everyone.
That’s exactly why you have to be very specific when choosing a chiropractor. You must choose one that does The Blair technique! It is a specialized chiropractic method that focuses on correcting misalignments in the upper cervical spine. This technique uses precise imaging to account for unique differences in each individual's cervical spine anatomy. When you bowl it down the misalignment is what is causing pain and symptoms, that’s why the RIGHT chiropractic care is so important to your health. It’s truly life changing.
@@theprolopatient I'm glad it worked for you, but unfortunately there aren't many physicians truly knowledgeable on EDS just yet. The EDS Society advises against it due to the potential increased risk of arterial dissection, stroke, cerebrospinal fluid leaks associated with the disorder. Also, adjustments tend not to keep with many EDS patients as our ligaments are too laxed to hold the joint in place after realignment. I do appreciate your videos though. I did learn that there are Blair exercises, so I plan on trying those. Thanks for the videos!! -Brand new follower.
Hey there I am new to your channel May I ask you a question did you have head pressure or fluctuating bp like very low or very high and or positional headaches
The doctors start to make you feel crazy even though you’re having real serious issues. I’m hopeful because of this channel. My doctors still haven’t suggested anything as helpful as this, I’ll give it a test. Thanks man!
I once got CCI from neck injury combined with a bad infection in January 2017 but amazingly I was able to recover after 1 and 1/2 years. In July 2023 I had to go to Mexico to install an automated production line. Unfortunately the Mexicans repeatedly served me bad food which gave me a sever gut infection. My gut was fine before....but destroyed after. That infection ruined my connective tissue and ligaments. Even the skin in my face looked brittle and as if it lost it's elasticity. It damaged multiple ligaments in my body....In my neck and ontop of that in my hiatus leading to my stomach buldging into my chest cavity. A so called hiatus hernia. I'm totally debilitated and destroyed all arround now. Destroyed digestion, destroyed neck. I don't know if I'll recover this time. 😢 I wish society educated people more on the potential dangers of depleted elasticity of the connective tissues > CCI, hiatial hernias and meany more.....and also how to try to prevent them, how to avoid potential causes. The world would be a much better place then and it wouldn't lose so many valuable people and workers to debilitating illnesses like this.
It's interesting I picked up most of those things over the years battling CCI. But lifting heavy is possible, you just have to be very careful. I usually use a neck brace when lifting to avoid any unnecessary neck movements. CCI also forces to have perfect form when lifting so that's a bonus.
Great information! I just picked up a few items. Some things that helped my CCI has been BPC157, Arnica Oil, Earthly’s Pain Potion and a great upper cervical chriopractor. Love the content. God bless you.
I had it for 4 years and finally feeling like myself again. I felt the tight muscles in the shoulders and first couple of weeks I felt like my brain was getting enough blood. Posture and sleeping position is key. The vision, the brain fog, depression, anxiety, couldn't focus on moving objects. It sucked worst thing ever.
@@ahmdnaube3745 I took no treatment . Just time to heal. And understanding what’s makes it worse and or better. Not knowing your situation I would say start with the basics. Posture is the big one. Roll the shoulders back , chest out , neck back. Sleeping position try to lay on your back with no pillow or a thin one. Don’t sleep on your stomach. Message for the upper back, traps, top of shoulder blades. Get the knots out best as possible but only do what is tolerable. Hope this helps some.
Hi there, I have a question, in your last video's you said that you had extreme sound sensitivity and you couldn't tolerate any loud noises, so I wanted to know how were you able to do MRI scan because those machines are so so loud. I have been dealing with alot daily chronic symptoms of CCI since 5 year's after getting a head injury, been to many doctors and even did CT scan for brain and neck but now the Neurologist wants MRI don and I'm so scared because I have debilitating severe SOUND SENSITIVITY and I won't be able to do it even with sedation 😢 Plz give some info on how to get MRI done with Hyperacusis
So sorry to hear you are suffering, I pray you find some relief soon. As far as the MRI and other scans, I just used really good earplugs, not gonna lie some of them were really miserable. My advice how ever is get a DMX first. That’s the best way to see instability in the neck. I had a dozen MRIs and other scans that showed “normal” results. Nothing to indicate my symptoms, however when I got a DMX it told the whole story and showed extreme movement within my whole spine. Sending prayers, thanks for watching!
@@theprolopatient thank you so much, really appreciate your reply. Unfortunately I'm in Kenya and I can't find anywhere to get DMX. they don't have the machine's, The only option is to get an MRI, without it the doctor's don't want to start the PRP injections
I’ve dealt with this for over a year. I’m only 23 and I don’t know what to do anymore. It feels hopeless to find a solution. Thanks for sharing your advice and story.
We do not need an x-ray to assess this…palpation with hands and ortho testing should be enough, and especially when combined with facial, tongue and postural assessment.
Not to comment on op’s dx, but not every confusing neck or hypermobility symptom is gonna be cci. Sometimes different symptom clusters point to something else, even if it still involves co-c2, and dexa isn’t always the best way to see this. Sometimes a good quality mri or xray is best. Hauser at caring medical might dx cci, but what are his differentials? Does he do differentials? I would also caution against dr hauser in specific due to his strange track record which you can find online, and that prolotherapy might not be indicated in some hypermobility
God bless you for your video! I have this cervical instability from 4 years 😢! My life is just a very bad dream i pray to God to help me , i live in Romania is not easy for me to go in Florida but i belive God will help me out some how!? Jesus is my savior!
Josh, thank you for doing this channel. Those of us who has CCI, PPPD, or Vestibular Migraine in FL or in USA should come together and go to doctors (like Mayo Clinic or Cleveland Clinic) together, we do our own clinical studies (which a lot of us already are trying something on our own), so medical institutes can't say they have never seen someone like us and insurance won't cover these procedures. Josh, would you be able to set up some group for us?
Thank you for this great video, this is the same and exact condition that i was having since 2019 and i would say it is so miserable and until this moment no doctor knows whats that!. I am trying to find prolo treatment in Netherlands but seems not yet. hope let us know if know better. God bless you
Cost mostly, but after researching deeper nobody in the world has more knowledge and experience with neck injections then Dr. Ross Hauser. If you’re gonna have a needle jabbed in your neck you might as well go with the best in the business.
@theprolopatient appreciate the reply and agree that Dr Hauser has a ton of experience. Only thing that is holding me back is some of the negative stories about him on FB and elsewhere..they didnt bother you at all?.I guess need to take a leap at some point
@@rohitventrapragada1632 I was looking into Caring Medical, but after finding out they were going to inject me at 50 jabs at a time and then I'd need me to come back a month or two later for the same, I said no thank you. I have Dysautonomia- a very sensitive nervous system. I figured their course of treatments would be too much for me. Plus I already did half the diagnostics through my doctors that Caring would need me to do over again at a cost of maybe $4000 - OOP. I may yet get PRP injections but at a different clinic.
@@rohitventrapragada1632dr Hauser’s technique is dangerous! He does not use DSA making it very risky that he’ll inject into vertebral artery causing a brain stroke
Prp is stronger but in some cases dextrose alone will stimulate enough healing where PRP is not necessary. If you have severe instability, I would highly recommend PRP and in really severe cases i would recommend stem cells.
Hi Josh, do you find the adjustments hold? I have been seeing an upper cervical chiro here in Australia for 8 months now and my adjustments never hold more than a couple of days. I haven’t had prolotherapy yet though. I am looking into this.
Hello, great question! Yes my adjustments hold for much longer now. Before prolotherapy my adjustment’s only lasted for a few hours in fact often I’d go out of adjustment in the parking lot leaving my chiropractor appointment. Now my adjustments hold for weeks. And the more I build back muscle, connective tissue and tighten the ligaments and tendons I expect my adjustments to last months at a time. Thanks for your question and thank you for watching!
@@theprolopatient Thank you so much for replying ☺️. That is good to know. My adjustments often don’t hold from my appointment to arriving home 45 mins later 🥲. I am looking into prolotherapy in Brisbane, Australia. We don’t have access to the PICL here but it looks like you have made heaps of progress without that. I am so glad you are doing a lot better. Are you doing any specific exercises to help with stability as well? Thank you for sharing your journey. Bless you! ✝️
Honestly, I have begin to wonder, since standard tests dont show that you may have craniocervical instability, and DMX is not recognized by most insurance paid health practices as a legit test, how do you know that these regenerative providers dont just diagnose everyone they see as having instability just to make money b/c there is no real way to see this anywhere? I have had several CT, MRI and Xray and nothing. DMX all that's left but of course it will show instability it probably would for almost everyone.
There are four big neurosurgery names that recognize DMX and see it as a legit tool for diagnosis: Henderson, Patel, Gilete, and Wright. Just because the DMX is not well approached in neuro school, it doesn't mean that is quackery. I understand your concern though. I've had those thoguhts myself. :)
So, those are surgeons that do fusions? What makes someone choose multiple painful injection treatments that may not work that are expensive vs a fusion that is cash no insurance?
@@JessicaJames007 These are very individual decisions, and if money is available, I don’t see why not trying regenerative first. Wright and Patel accept insurance, but it may take a while to get approved cuz insurances are a pain in the neck-no pun intended.
@@JessicaJames007 I’m seeing Dr. Wright, and he accepts insurance (Blue Cross Blue Shield). You could also try the neurosurgeons in Cornell (Jenkins and Hault). I heard great things about them. My train of thought is seeing a neuro first to get an idea of how bad the instability is so I can decide the treatment I wanna try first.
