I started this project of "My Life With Chronic Pain" January 1st of this year, 2014, and I am filming every day (the good, the bad and the ugly). My channel is a little bit of everything! I talk about my chronic illnesses, daily life, fashion, subscription boxes, hauls, makeup tutorials, DIYs, inspiration and so much more! I like to be as real as possible but also try to deal with life with a smile and maybe a few tears. I want my channel to be a safe place to come together, connect and support each other on this crazy ride called life. One day I could be talking about symptoms of Fibromyalgia and the next day my favorite subscription box it gets crazy around here but that's my life. I hope you join me and the rest of the family around here! XOO
Just ran across your channel and I admire your courage to share your daily grind. I'm a fellow sufferer of chronic neuropathy and take quite a daily cocktail to control not only the pain but the side effects. I'd love to have a more one on one conversation with you. I see your contact info and I'll be in touch. Cheers.
Thank you for making this. Today I put in a leave of absence at my job for pain in pain right now not sure if it’s worth trying tomorrow but this helps knowing other people deal with these things I have recently stopped talking to anyone about my pain and what I go through so now I’m just trapped in this broken body alone at least I thought I was. I lost it when you talked about doing the spoons math to respond to people it’s really hard for other people to understand that
Please when I say do not take gabapentin nerotin it is NO GOOD AND IT IS NOT SAFE !! I’ve been on 600 mg 3 x a day well I thought it was a miracle drug cuz it helped my nerve pain and chronic back pain but now at 3 years of being on it I’ve noticed it’s not working at all and I’m detoxing at the same dose every day when stool taking the same amount the detoxing symptoms are the worst by far and I’ve come off everything but this shit messes with your head and your emotions and it caused your chemical make up to change I get severe mood swings I get anxiety depression I sweat and get cold sweats and I hate it my poor kids are the ones who suffer and I can’t detox on my own at home that’s how bad it is and I need to come down so slow that it will take years if I taper so I’m going into a inpatient program to detox off this shit it’s no joke so when I say please I’m begging you to say no and throw that shit out right now I promise you will thank me once you do the research on this
I’ve had fibromyalgia for over 25 years. I just started on Lyrica for the first time. I’ve been on gabapentine for three years but it wasn’t working well so they are trying Lyrica. So far I’ve only been on it three weeks but I want to switch back to Gabapentine. I am currently going through a sleep wake reversal period so I’m not sure everything is the Lyrica but I just don’t feel like I have a life anymore. It’s so frustrating 🥺
Isn’t this life just insane? It’s almost like no matter what card your dealt in this life, you must must must stay here. Regardless of what it is. This could be the hell on Earth to be honest.
With that medication ya body is just going to keep getting immune to it and your doctor will just raise ya dose i started on 100mg 3x a day im not taking 800 mg 3x a day
Thanks for the info! I have been on a pretty steady dose but that is the nature of the drug as your body adjusts unfortunately! I hope things are getting better for you! xoo
HI Tyesha! This is a topic I need to talk about. Thank you for commenting I will add it to my list. A lot of people don't even know about them! I hope you have some relief. xoo
I've started Gabapentan a few days ago. First time I've almost been pain-free for 3 months. A lot of side-effects though. We badly need better drugs. Best wishes to you.
I have to talk about this too. You're telling another person they HAVE to keep living. They have to get through each minute of each day. You don't care how miserable they are. You don't care if it sux. You don't care how painful it is.They HAVE to keep living because it would devaste YOUR life. As someone who's been in chronic pain for years, I find everything you've said incredibly selfish. You can't demand someone to endure an intolerable existence just to make your life easier. You have no concept of the depth of another person's pain. It's not about YOU!
I do because I have lived it. I am here for others. If it weren't for the people that love me I would be gone already. We have a duty to not only ourselves but the others around us. What is selfish is ending your pain and creating so much more in your wake. This is my opinion from the hell I have lived through and continue to live through. Just as you have a right to your opinion I do as well. I just don't have to call you names or down play your thoughts and pain to make it.
@@PainfulHilarity First of all I didn't resort to name calling unless you're referring to my comment that I thought you were being selfish, which in my opinion you were. I didn't know pain like this even existed until 8 years ago. But I've learned many lessons & I'll name a few. One of the most important is #1 Have more compassion & empathy for others suffering. #2 They will never understand until it happens to them. And the hardest one, #3. The best thing about the worst time of your life is you get to see everyone's true colors. You're very fortunate to have people who love & care about you. I don't. Over the years my "friends'' have slowly disappeared, my parents are gone & I have no siblings; leaving me very isolated. I could be dead for weeks & nobody would notice. My adult children might text me 4-5 times a year. I'll call or text them & if they reply it'll be weeks later unless they want something (the youngest one in particular) Usually money. I'll never understand, we were always so close until I became disabled. They've never helped me out. Look, I'm not playing the victim card here, it is what it is. So I'll repeat what I said earlier. Some people say that checking out is selfish. What's selfish is demanding someone to endure an intolerable existence, just to spare families and friends a bit of soul searching. ☮️
Your friend is lucky to have you . The people I thought were my friends talked behind back made stuff up . I try to get help doctors treated like a criminal and social security tried to have me arrested . It's time to take one last walk in the woods .
Gary, have you gone to "War on Patients" I've tried suicide 2X & apparently someone up there or down there doesn't want me to die, damn them! But there's strength in numbers. I'm still not sure I can bear to be here, but I'm old yet still trying to fight the good fight for those younger who are in chronic pain thru legislature. May not help me in my lifetime, but perhaps in yours & theirs.
I'm currently going to apply for doctor assisted suicide in Canada (Ontario) I shouldn't have to go to the street to get pain relief when I can prove my pains. I also shouldn't have to beg for tests when I've earned my credibility I've been right about everything wrong with me.
I think its inhuman that we don't allow this. Dying with dignity is a last resort but also if it is going to prolong suffering from something that is only going to get worse its wrong to deny that. We put down our animals at the end of their lives. Why not humans?
Hi , I had that alongside dizziness, constipation. Eventually it get better it’s been over a year. I couldn’t live without it. I’m greAt on lyrica now. Some times I have to much energy. I remember the days of my head bumped me back awake. I could fall asleep anywhere go in trances and have oob experiences, you soon get over them, I feel great now. Xxx
Try nucynta Ive been on it for yrs and i can stop and start it anytime with no side effects. It actually calms u also Tried everything else and nothing works except that and even rhat sometimes doesnt work
Try Heroin! Maby it helps! You have to take pills the rest of your live! Maby its not bade! Bupensan are good to? This is the legal Variante! Sorry for my englisch! Vielleicht solltest du heroin versuchen! Da du sicher den rest deines Lebens Tabletten nehmen musst ist es schon egal! Bupensan ist aber auch sehr gut, hab es jetzt seit 5 Jahren eingenommen da es der legeale weg ist! Aber Heroin hat mir das Leben gerettet! Hatte so schwere Depressionen und Schlaflosigkeit in meiner Jugend mit Selbstmordgedanken! Emely ich wünsche dir alles gute! ✌🏻
Yesssss I am going through a rather rough patch and I feel like I don't know which way is up! Thank you for watching this ramble session and for commenting! XOO
Drunk coffee at night or take a stimulant, it's obvious that taking nervous system depressants trains the body to be awake, we need to take an antagonist to that, to train us to sleep against stimulants. You will be surprised if you drink coffee when you can't sleep it has the reverse effect
Hello dear woman:Did you ever try Seroquel(Quetiapine),Klonopin(Clonezapam),and Ambien(Zolpidem),all at once with your Nuerontin(Gapapentin),to get a good nite's sleep? It might work,and in addition,I will pray for your healing and/or reduction of your pain! I am in serious chronic pain for 20 years,and I had painkillers run out over 5 weeksago,and life has been severely painful! May the best come your way,Sincerely,BobbyK :)
My God,....it astounds me that so many people have the same symptoms I do !!! I feel for you really. I recently made an hour long video during a bad Flare-up. Obviously I had a lot to say.....but at least it helps me to see I am not alone in this fight. Blessings ~
