Hello everyone!!! Thank you for visiting my channel! My channel is designated to share with you my lupus journey. My videos are aimed to show you what I use to help me cope daily. Also, I may share some cool videos of my family as well shop, go on vacation or just having fun. I hope you enjoy!
I haven’t been formally diagnosed yet but I will undergo lab tests soon. My symptoms started during ECQ pandemic and right after my father in law’s death who took his life when he was declared PUI. Witnessed his last moments. It was awful plus the fear of covid at the time. Always feeling feverish, headaches that wont go away. I thought it was just perimenopausal. Then from one symptoms to another so I searched the net and joined pages for GERD bec I have that symptom as well. One gerd sufferer said she has lupus and gerd is one of her symptoms plus sudden weightloss. That led me to reseach on lupus. So here I am after many other symptoms appeared. No butterfly rash though, but I have the gerd, headaches, achy body, bruises appearing. I used to bask on early morning sun but suddenly when I get exposed for a few minutes my skin starts to patch. Thank you for sharing these tips. I watched some vids and know a friend who knew a friend that’s been on remission for years when she started doing low carb and clean eating. I also watched some vids that maintaining a healthy gut helps keep lupus at bay. Praying always for God’s healing and to still be thankful as He takes care of me regardless of my physical state. Afterall, the immaterial is what’s more important because it remains forever for those who love God. Keep the faith everyone!!!
Did you say cup of noodles?Maybe it was the sodium or MSG. Do you follow Dr. Eric Berg? Or Dr. Mark Hyman? They focus on nutrition, food as medicine to treat autoimmune diseases.
Hey Lupus sister! I just had surgery on my eye for vitreous lining on the macular just on the retina. My vision went blurry so quickly so get it checked out. I get painful eyes ( uveitis) as a result of Lupus. Hope you feel better soon!❤
You're beautiful! I'm at the LabCorp getting my blood drawn up to see if I have Lupus. I was recently diagnosed with Celiacs disease. Blessings to you!
Do you think because you focus so much on your illness symptoms for channel you tend to feel sicker more? I heard lupus gets better with exercise, its like arthritis.
Hey My Lupus Sister I am so glad to hear from you glad to know you are ok. I have been looking on RU-vid for you. Thank god to see you my sister stay safe. Many prayers 🙏🏾🙏🏾💜💜💜💜
I’m currently being tested for lupus and other connective tissue diseases…. Before your lupus diagnosis, were you diagnosed with a lot of infections ? Also low vit d and hypocalcemia? Things like that ? I have lab work showing antibodies but not antinuclear but fit all other criteria with imaging from ct scans of heart , lung issues , skin rashes, joints, spine .. the malaise and fatigue from it all is overwhelming too
I absolutely love listening to you. My wife was just recently diagnosed with lupus.... So I find RU-vidrs who share the same story and I enjoy listening to different people share where they are in this journey. Thank you and stay encouraged.
I do basically everything you do....it's so hard for people to understand how it feels under the skin. My friends literally give me crap sometimes cause I simple don't feel well, or feel I have the energy to do things ...they think I don't want to spend time with them and that's not it. I'm in a severe flare up right now cause my stress is so high - I will ghost myself for days. I know those who understand don't give me grief, but some don't then on top of that I'm dealing with some real devilish people and that almost keeps flared. So I literally cut off everything and everyone just to feel better cause some people just don't know what a person feels like dealing with it. It's not just a headache, or a joint ache....it's all of it at the same time for long periods of time- I believe it's why I'm so scared to go back to work....Something that may be small to someone else may be this UNBEARABLE TRIGGER for me cause I've lived a life of pain, suffering and stress
Good Day! My Hida scan came back normal so I took it upon myself to do a liver and gallbladder flush. What did I find? A least a couple hundred stones came out. (I don’t have lupus)
Your video is from 5 yrs ago but I’m glad I watched it. I’m new w lupus and learning more about it. I didn’t realize that frequently urinating could have been a symptom. I thought it was just me. Kidney pain! Omg! Feel that at night but again didn’t put it together as part of flare up. Thank you!!!
I’m in early stages of diagnosis still. I always have the Rash it just goes from severe to less severe.. Join pain, brain fog (no kids), family history (extended) low c3 c4 but just out of range, low hdl. Sun sensitivity. Curious to meet with my doctor
