Thank you for sharing your story. My name is Elly and I live in Milton Keynes and I am currently undergoing tests for adrenal insufficiency, i recently had a blood test to check my cortisol levels which flagged as being low, not dramatically low but below the normal level, i am having a short synacthen test on july the 9th 2024. I have been under an endo consultant/doctor for years due to graves disease, this has since been sorted by thyroidectomy and i am now life dependent on levothyroxine. The reason i was tested for cortisol is because since december 2019 i have had illness after illness, infection after infection, even just a basic cold turns into a lung infection and takes me 6/8 weeks to recover, sometimes multiple course of antibiotics which have barely any affect. The last infection was 3 months ago, 3 courses of antibiotics, the 3rd alongside prednisolone only then did i start to feel better, but then kicked in coughing, wretching, pain throughout my whole body, loss of appetite, exhaustion, waking up several times a night choking/wretching but rarley vomiting. A couple of weeks ago i had a routine check up with my endo doctor as i am having problems with my T4 levels as they have been elevated for several months and they are trying to find out why, and cannot adjust my levothyroxine until we have pinpointed the issue, this is when she asked if i had ever had my cortisol checked. My levels came back at 168 nmol/L so was instantly recalled in for appointment where she informed me i am now to be checked for adrenal insufficiency, so now i play the waiting game for the next 2/3 weeks until the sst and results. Although the prospect of adrenal insufficiency is not something i relish, just to be able to find a cause of continuous health issues would be welcomed with open arms. For now i take each day as it comes.

Music drowns out your voice

I’ll tell you people just don’t know what horror you go through when you have Addison’s disease is the most horrifying thing I’ve ever been through in my life it affects my brain my emotions, my life it is critical people need to realize Addison’s disease is very critical, and they need to have somecare in their heart to try to understand

I had a lot of crying too, and affecting my brain it’s terrible

Scary fact: Addison’s disease is a disease where you could literally kill the person by jump scaring them. Without adrenaline to compensate, your blood pressure drops dangerously when you get jump scared and you can go into shock. Adrenaline prevents such thing from happening. The disease is scary

The TB likely caused cellular damage, and certainly chemo does. Look up Dr. Daniel Pompa (The Pompa Program, a cellular healing program). I recovered from Adrenal Crisis without steroids a few years ago on his program. I’m now having issues again however, back on steroids. Through Dr Pompa I discovered some root causes, and addressed those. I feel there are more now, or mostly it’s my very stressful work environment, along with my daily life stress that I carry alone. I also had Covid again a few months ago that hit me at my most stressful time at work, life, and financially. It’s a cellular connection no doubt. I’m still praying for a miracle healing of course, but believe God is leading me to help others as well.

lovely accent

None of my doctors believe I'm ill saying it's CFS or in my head 😢

The music is so loud I had to turn on cc.

It really makes me angry when medical and psychological and medical professionals write physical symptoms off to a mental issue without ruling out all possible medical problems !!! Ugh !

I hate that background music! It's so LOUD! I can hardley here you over it. TURN it DOWN! Or turn it OFF!🤨 Was interested in what you had to say, but can't stand straing to hear you anymore. 👋

You mentioned about having headaches What kind of headaches , what area on the head?

turn off the music

Oh my goodness, how old are you?

I appreciate you being so open. I am struggling to find help. I actually have a diagnosis, but the doctor said she doesn’t use that test and has been blowing me off since.

Thank you for sharing with us. Im a Brain Cancer survivor and radiation killed my pituitary and i also have hypothyroidism. Im not satisfied and not sure that my doctor is helping me fully. Im only on 7.5 mg of predisone in the am. Im always tired to exhausted after i do basic stuff like yard work. I go lay in the bed and crash afterward. My mood is so low i just am exhausted of it all. I want to stop my meds and go into a coma and leave this world. No one i try to date understands me.. 7years alone now and single. Its okay but this sucks the most the loneliness. Shoud i get a new ENDOCRINOLOGIST?? Ive written tonight my will. Ive reached out to a psychologist for more supporting help. Is 7.5 mg of predisone sufficient for treatment off secondary Adrinal insufficiency? Doctor says yes. I was on 5 mg but i myself started taking the 7.5 not the doctor's orders. She okays the dose. Please someone who understands reach out and im needing advice from those who understand. Tha k you again. Glad your all mostly doing well.

I did not have TB. But my adrenals got damaged by sepsis/ septic shock. It took 10 years of hypo adrenal/ cfs/ ME. Diagnosed by Endo. 10 years of chronic debilitating ill health. Each time i got a virus or covid. I just kept getting worse. I got covid spring 23. And never recovered. Had exactly the same symptoms as you. But GP did not relate all the assorte symptoms together.? I felt so ill lije you for 9 months. Went to GP with nausea. Lack of appetite. Wieght loss. Abdominal pain. Low BP. Severe depression. Emotionally unstable. Unable to cope. Unable to get out of bed. Bowels not working. Constant face / head pain. Utter exhaustion. Zero energy. Abnormal heart rythems. I looked awfull. And I knew there was something really wrong with me? I knew what hypo adrenal felt like. And when my adrenals are atruggling. I always get pigmentation on my face.? So i went to GP Last August 🎉and asked for a morning cortisol test.? As well as vit D and loads of otger blood tests. The GP said all my bloods were normal???? I see my endo yearly for hashimoto's hypothyroud and cfs/ ME. I saw in in Dec 23. I just burst into tears when i saw him. Told my endo i had felt so ill after covid. I had almost recovered from cfs/ ME. Now i was back to square one. Spent the whole year after covid laying on the sofa. Feeling so ill. And zero energy. Suicidal.? Which i could not understand? It was almost as if my whole personality had changed after covid? My endo took one look at my blood test results done by GP in August. Was clearly not happy. Told me my cortisol was very low. Ordered the SSt. I was diagnosed with Addisons. The same day.!! Put on hydrocortisone. Which sent me hyper. Could not sleep. Finally settled down. And i felt like a normal human being again. I had energy for the first time. Yippee. All my wierd symptoms dissapeard. When i was first diagnosed with cfs/ ME. I had all the pigmented symptoms of Addisons. My endo did three SSct tests. But i passed all three.? So diagnosed with hypo adrenal... ? I think my Adrenals were destroyed by sepsis hemmorrage. Then each virus illness i had. I have asthma too. My adrenal function was decreasing. Each illness. Untill covid. Then they just stopped working altogether? I joined the UK Apsgroup. A brilliant mine of information. As there is litte info from a patients perspective. Living with Addisons. The articles written by Drs. ? Yes they explain the symptoms. And know the theory. But have not got a clue what its like living with Addisons. Only us, those who have Addisons know what its like. I am a firm beluever in educating Drs Consultants. I have got my leaflets from TAPSG uk. For GP. I have made an appointment to discuss with Gp. How all my symptoms were not picked up on. And the fact i was told my cortusol level was fine. When it was very low? In fact I had a really bad virus in December. I felt like i was going to die. My body started shaking. I was goung into adrenal crisis. But stayed contious. The fact that through lack of understanding. And not realusing my symptoms were all related to one illness. ? I could have very easily lost my life.? So i am goung to have a chat. And give information. Tell my story. And ask GP to pass this information onto to all the GP's. So that if another patient has all these set of symptoms? To concider Addisons. And to maybe update thier training on reading cortisol level blood tests.?? So this will maybe help GP 's to understand the wierd symptoms. And ask why? I know Addisons is rare. But I only go to the drs if i am ill. ? More awareness education needs to be out there. For patients and GP's. I am so glad you started this channel lovely Tilly. Well done you. Keep well Tilly. Big hug❤❤❤

It’s to much trying to listen with the Music…..🎵 You have a lovely voice

T3 Tiroides pork disecad hormone. Will healp to make cortisol . All hormones work together. And vitamina c 3 times a day. Research. Doctors from Australia. Good look

In Canada we have tutorials but they are with 30ish students. I would love to have a class with 2-4 students.

Sounds like your tb is back

Thank you so much for sharing babe. I was labeled delusional mentally ill because i was treating myself with antibiotics

Please tell me you sued all those doctors and hospitals that misdiagnosed you

Just discovered you and your channel, you are an absolute inspiration. Definitely an amazing example to all that you can overcome so much of what life throws at you to achieve your dreams. Looking forward to watching the rest of your videos!

How do you cope with lethargy mines caused by 10 years of steroids so now I’m adrenal insufficient I found out in February recently had another set of tests and I’m still cortisol deficient abdo pain period issues dizziness feeling exhausted regardless of sleep amount walking into door frames exhausted. Constant pain in my legs and arms and migraines and I was told it’s depression and then SAD but it’s not. I don’t know how to cope and relying on caffiene every half hour or I feel exhausted. I don’t have an Addisons diagnosis my specialist for my lungs says it’s adrenal insufficiency and now have to have steroids but I’m exhausted. I could stay in bed all weekend and feel like I had no sleep at all. It’s getting ridiculous now I can’t find any info to feel better

I am 54and I have just been to the ER twice in 8 days. They have NO idea what is wrong with me.....but they also do not do the tests in that ER environment.....so of course they have no idea. They treated my like a crazy person......but I kept calm because i know what it is. I have hashimoto's and of couse this is addison....I am going to do the blood test tomorrow. So in a few days I will know for sure. Thanks for this video and all the comments. It is very helpful in not feeling so desperate.

Please look into DR. BROOKE GOLDNER on RU-vid. She has a FREE program that gets EACH AND EVERY Autoimmune disease under control. You have to totally change your diet. It really is hardcore. But I do want my life back.....so i do not care if i have to eat raw salads and smoothies for the rest of my life. She herself was on death's bed age 20....now she is 38 and healed since then.......looking absolutely beautiful and healthy with no markers of autoimmune disease. IF there is any hope for us it ONLY is through a radical diet change and Dr. Goldner is the one person on the planet that shows us how to reverse irreversible disease. I for one ....AM IN.

Thank you for sharing my son is 15 and has been so poorly all his life ended up intubated, and we've almost lost him he's non-verbal so couldn't tell anyone what was wrong finally 2 weeks ago we got the diagnosis the same as you he's still not right he seems to require more steroids to function in the morning. Its an awful condition and so many doctors have no idea once he had 7 blue light trsnsfers over 6 weeks where he was completely unresponsive still no doctors discovered it thank god your still here and he is. It baffles me from my research I've known he's had this and kept saying it still NOBODY listens. Any advice would ne fab thankyou!! Stay well 🙏

Are there any alternatives to prednisolone or steroids? Steroid does not seem to cure. There are about dozen supplements suggested by many experts i found on web to increase cortisol. Taking past 40 days about twelve supplements but my sinusitis is now acute rhinitis. I feel miserable

Where is she ?now days.

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Yours I think is typical of adrenal insufficiency stories. I am 89 but went through very many doctors for so many symptoms before an endocrinologist sorted me out.. when in my 30’s. You always imagine people are thinking you are exaggerating about symptoms because the wrong tests allcome up normal. I ended up 2 months in an endocrine ward luckily. Recently I have been hit with low outputs again and am having to go privately to an endocrinologist because of too long NHS waiting times. My Cortisol levels are verylow at 95. I have anappointment next Friday. I have already seen on NHS specialists in geriatrics, rheumatology, oncology…..same story. I look well! But I canbarely walk partly becaiseof a back injury. I am on 5mg Prednisolone already for about 13 years for pain. I don’t know why I amstill alive!

yeah and its totaly healable in 5 or 6 months

When is the next video?

Hello, Thankyou for sharing your story. May I ask which tests did you get done to get diagnosed? Thankyou.

Bless you, you’re a super hero🙌🏼

My GP thought I was depressed because of things happening in my life. When it was confirmed that I had Addison's Disease, I felt so vindicated. Everyone was telling me it was in my mind. I craved salt, pickles, and lemons. I have olive skin and my GP thought I was using self-tanning lotion. I thought, really? Thank you for sharing this.

I read somewhere that Tuberculosis can cause Addison's if it damages the adrenal glands.

How are you doing now?

I never believed in herbal medicine until I met a friend of mine who was also cured with herbal medicine, I decided to give it a try by contacting and ordering herbs from @dr_judeosas and behold within 14 days of usage I was cured from my Tuberculosis thank you so much DR jude osas ....

How can you get secondary AI can you get it from pregnancy?

The salt cravings are due to low aldosterone levels, normally produced in the adrenal cortex. It's associated mostly with late-stage primary Addison's where the pathology is autoimmune.

The stair climbing thing is so weird. I felt like I was 100 years old going up one flight.

Have you tried a naturopath? Conventional medicine is painfully lacking when it comes to healing folk.

I am sorry it took that long and that many doctors!!!!!! My first GP kept saying I was depressed, and offered my counselling. I kept saying I am. not depressed. Luckily, I fought to get tested, and it was Addisons. You have to fight in the NHS often, to get seen, to be cared for in the right way. I have been misdiagnosed several times. How very frustrating and dangerous loss of time to get essential help. I feel you!!!

Thanks for the video. I'm preparing myself for anything and everything.😊

I’m struggling with Addison’s…. Sleeping far far too much, not interested in getting up, vomiting with no warning,no appetite whatsoever and can go 3-4 days without food but living on coffee, zero interest in life Steroids do not agree with me even tho I have to take them for the rest of my life I hate it and would love to be the happy self I used to be

Thank you Tilly Can anyone help me with which tests would be best to diagnose as we have have seen two doctors not sure if they are running the best blood tests . It like a nightmare to navigate Thank you Angelina

Hi Tilly thank you for your authenticity and honesty. I have been feeling crappy for over 10 years and having to take stimulants to even function daily. I am now being diagnosed with low a.m. cortisol and being sent to an endocrinologist in a couple of months. Thankfully, I am a health coach, so I am already working on a protocol to naturally heal my adrenals, and my gut because I have had gut issues in the past. Based on everything that I listen to and read, it sounds like it could be a combination of both of them. I still have four minutes left of your video, so maybe you end up talking about that relationship. Please share any helpful tips that have helped you with the brain fog and the energy levels. I changed my whole life during Covid and left corporate to become a massage therapist and I have a mobile massage and wellness business I am very proud of, but I am afraid because there are more and more days that my energy is preventing me from being the person I am. I am also very concerned with how my body feels after I do several massages and I’ve never been able to do more than four in a day since I graduated unlike my classmates. I don’t know what my issue is yet and hopefully it doesn’t take an adrenal crisis for the doctors to figure it out. I am doing my own legwork and research and have already made diet and lifestyle changes to reduce stress, carbs, sugar, and high intensity anything in my life. Unfortunately, I am single, and would love to date, but I don’t even know if that is something that I can handle right now with all of this going on, especially since it could take months or years or a lifetime to heal the damage that has happened to my body Already.😢 I am someone who inspires and uplift others, and I am struggling to uplift myself at the moment, but working at it every second of the day. I wish you success in your house and everything you do.

I’m being investigated I keep getting a feeling like something stepped on my chest too