Leaving this message in 2024, just so you know this video is still helping a lot of people. I haven't been given an official diagnosis but even before I saw this video, my neurologist is already mentioning the possibility of MS. And while I'm waiting to hear back on my Lumbar Puncture (spinal tap) results and what it reveals, I've been reading and checking videos like yours. And more and more, the symptoms are really lining up for MS. In many ways it would be a relief to finally have a diagnosis, since I've been going through non-stop hell for the last 4 years. So again, thank you for this. Hope things are going well for you now.
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I can’t figure out if I have it or not, but I’ve always been so so tired, even after sleeping enough. My neck is always stiff and my hands are always hurting, I don’t have any strength in my hands, when I would go on walks, my legs itch so bad, now I’m always dizzy towards the end of the day and I feel like I’m walking sideways. I need to figure this out for sure
I have all the symptoms and had the MRI which showed lesions and thinning of the myelin basically two Drs said yes I likely have MS but didn't pursue it and 2 Drs said no the brain lesions could just be because of advanced aging they said I had the brain of a 65 yr old and I was only 46. I'm frustrated that nobody is pursuing this when my symptoms are getting worse. Do you have any suggestions?
I have TMS I got it at age 14 now I’m almost turning 25. I live in Davis CA my tumor was in the middle of my brain stem you may be my friend if you’ll like.
I was gobsmacked when she described the sensation on her spine of the vibration. I have sensation that my spine is a tree with all the things k n thin n thinner branches and twigs and they are all cluttering at high frequency y electricity shocks that are so scary...
I see the last time you posted was four years ago and it wasn't about ms. Have you stopped giving updates on this or have you changed to another platform? I found you on Instagram, but see your account is private.
Double viaion , pain in rifht leg , lesions in brain but tell me not enough. Tingling, zapping, cramps, and no diagnosis yet. Used to be a extreme outdoors person. Now mostly in bed
I have majority of these symptoms and have on and off for about 10 years they have been worse these past 2 years and very much more so these past 4 days (what brought me here out of desparation) I've had a CT would MS show in a brain CT or would I definitely need an MRI?
I am in the process of being diagnosed for MS, Lupus SLE, and Sjogren's. I initially went to the dr for swallowing issues. Then after researching I discussed that all my crazy symptoms seemed to add up to MS. Got my brain, cerebral and thoracic spine MRIs back and they're clean. My B12 was way high. I didn’t take vitamins for 2 weeks prior to my blood draw, and it was still high. I have taken high doses of B vitamins for years, as that has been the only way I could function. Still taking them and my ability to function keeps getting worse. I either had heart attack or an MS Hug in September. What in the world is wrong with me? Could the high doses of B12 and complex B vitamins be keeping me from getting lesions? I am justso confused and sick. Oh, I tried the walking with eyes closed with one foot in front of the other and I nearly fell down. My son caught me. He tried the test and did it no problem. Argh.
I have been having these spells- I will get up and all the sudden my body shakes and if I don’t reach for something, I fall. It’s been freaking me out. They are checking my heart, but I believe it’s an MS symptom. It’s scary.
What really annoys me is when i describe to friends and family what i have going on like muscle twitches or whatever they say they have that "occasionally" too. I tell them the difference is i have it all the time! People need to stop minimizing other people's symptoms. Sometimes doctors do that as well. We know our bodies when something isn't right.
I have pin prick, stabbing, tickling, electric shocks all over for the last 6 years . I now get burning sensations over my chest and arms. My first mri was clear but I bet 100 it’ll show something now. Looking back I’ve had eye problems all my life and never connected the two.
Hi , I made a list for my doctor after going for many years with ms symptoms, he screwed my list up and through it in the bin luckily my wife was there and insisted on further investigations , the doctor said I will refer you to neurology but when they find nothing don't come back with the same symptoms , a year later after mri blood tests and lumbar puncture I was diagnosed with ms and put on ocrevus, the trouble is doctors always blame everything on anxiety , my neurologist thinks I have had ms for around 20 years
I know this video is old but wow. I had my son when i was 25 (im 41 now) and i had a rough pregnancy. Towards the end i had carpal tunnel in both wrists, and also interstitial cystitis. I was told both of these things occur frequently during pregnancy but would likely go away after. Then when my son was a toddler i woke up one day and my entire left leg was numb. I initially thought i just slept wrong and it was asleep but i was dragging my leg around all day and by that night the pins and needles feeling was painful so i went to the ER. The on call neurologist wanted to operate right then, for a pinched nerve, and i said no. My husband was home sleeping with my son and had work in the morning, i explained i would have to make arrangements for someone to stay with me and help before that... they gave me strong pain meds and sent me on my way. I did get a referral to see my own neuro but the appointment was like 2 months away and the problem resolved on its own so i canceled it, assuming, like you said, that the nerve must have released or healed on its own. At one point i was having electric shock type pains down the left side of my neck into my shoulder that were so sharp i would twitch. Went to doctor, he sent me for xrays to check for arthritis.. when that was negative he gave me pain meds and said it would probably heal on its own. Currently my right outer thigh is numb but its painful and burning at the same time. I googled it and this is apparently called menalgia paresthetica (not sure if i spelled it right but also related to trapped nerve in pelvis)... thats all in addition to being exhausted, never feeling like i can get enough sleep... im 41 and its hard to put my shoes on or get up from the floor. It feels like my whole body is numb and clumsy and slow. Ive also always said i have anxiety but sometimes, ill suddenly pay attention to my breathing and ill release this tension in my chest or ribcage i didnt even know was there. Now that ive done some research i wonder if this is related to the "MS hug" because it does feel like im being squeezed. I dont have a diagnose. I kind of gave up going to the doctor because they never attempt to put the pieces together. I just cant believe all these different nerve related issues are not connected somehow.
My mom started having symptoms in her mid thirties, her equibrim and numbness and she went blind in one eye temporarily. She never drank alcohol but had trouble with balance. She had the worst case scenario, she lost weight to 90 pounds at 5 foot 6 inches tall and she passed away really young. The numbness in her legs was extreme and physical therapy was one of the last things we tried. Sending positive thoughts and I’m glad that there’s a lot more advancements in modern medicine. Hope you’re doing the best and thank you for this video. 🙏 my mom I miss her, she was basically paralyzed waist down and couldn’t walk, the depression was so bad before she passed.
They only nwant to see lesions to call it ms. Ive been going thru so much for yrs ive had pain but they dismissed it as Tendonitis. In my hips and legs. I have a lot of joint disorders too. Deformity of my joints, weakening of my joints. I have problems with my spine my entire life. And now for the past year. I get spasms in my feet and my legs constant aching in my muscles in my butt. And now I'm starting to feel things in my hands. And for the past 2 and a 1/2 years every time I wake up. I feel this weird sensation in my hands. At this point i've been diagnosed with fiber myalgia and oa in my joints. With possibly lupus but still in limbo. I also have long standing isssues w my hips partial sacralization and some narrowing in my lubar but not enough to call it stenosis. And I actually have been diagnosed with tremor disorder. We thought maybe it was parkinson's back in 2021. But the neurologist shook her head and said. I don't meet the criteria because my age. However, once I had a spinal injection in 2022. It seems like the tremors have not been so bad, but everything else has been progressively getting worse. To be continued because at this point. Because in oct 2022 i finaly got mri for my brain, entire spine, and pelvic. I have no lesions in my brain from my m r I scans other than sone t2 Flair hyperintensity in in both cerebral hemispheres According to the mri it's in a non specific pattern and it could be chronic small vessel Disease, and the fondings also said this is common in migraine Sufferers. I do have history of migrains. I think the scariest thing is knowing. There's something happening to my body beyond just.What they say. I'm literally having trouble every day. I have flare-ups all the time with my joints. And the spasms are getting worse. You know how Kaiser is. You literally have to become a complete cripple in order for them to do anything to be continued in my case. It feels But I can honestly say my progression of pain. And what's happening to me has been. Extremely progress of the past six years
I know I was just relieved to have an answer to the problems I was having when I got diagnosed. I wasn’t crazy. It wasn’t the worst thing that I had been tested for as well - at least with what I knew at the time lol. At least I had a face and a name for my enemy so I could fight it 🙂.
“Doing my own research” is an affront to every arrogant doctor on the planet. If most doctors hear you say that they will most likely sabotage you. They are sooooooo upset that the average person can look info up on the internet.
There are two different doctors who claim that they cured their own MS by changing their diet. They both have books out on it. Maybe do some research and try changing your diet. It may not cure you but it might slow the progression down.
The more I begged the fewer answers I got. I know it takes time sometimes but it’s been so many years and they don’t wanna help with my pain. It’s excruciating.
