MS DIAGNOSIS | NEWLY DIAGNOSED | MY STORY | 2017

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Hi Everyone
This was bit of a hard video to make but I wanted to let you all know what has happened. Ive been diagnosed with MS, I'm in my twenties and it is a bit of a shock but definitely not the worst case scenario. I go through how I feel, my symptoms and possible treatments.
If anyone has any questions for me then please leave them below, thank you in advance for your support because I know you'll all be so lovely.
Thank you
Rhian
xo
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Hi everyone,
I'm Rhian, I live in the North East of England with my partner Steve, our labrador Oscar and our beautiful daughter Siena. My channel is full of mummy related videos, I love making videos and documenting my life through RU-vid. We would love to have another baby so if you're interested in joining me on my journey, make sure you subscribe :)
Thanks for watching :)
Rhian
xoxo

Опубликовано:

19 сен 2024

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Комментарии : 318

@rhiangibson1544 5 лет назад

Hello Everybody, My latest video about MS and how I’m coping now is up on my channel 🙂 ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-BV6x7fX7Ydg.html Thanks so much for all of the support on this video, it truly does mean a lot x

@BC-tz1ym 6 лет назад

I've had MS for over 17 years and am still going strong!!! Keep going in the right direction!

@Username-mi9ho 6 лет назад

Anything about your body not working ? Do you still feel the same personality wise? Like do you feel like MS has affected who you are at your core?

@lastcall170 5 лет назад

How...do you improve? Please share

@lastcall170 5 лет назад

I have benign fasciculation syndrome and have many of these symptoms.

@hadawi00 5 лет назад

This is the second year for me having MS and I am suffering!! Doctors don’t care and I’m not settle physically, ever one of the telling my to Live Naturally just like you used to live but seriously how can i!!! i hope i will be strong just like you guys, a lot of support for you guys

@hadawi00 5 лет назад

Settled** , them**, I**

@Vitabella43 6 лет назад

I have MS and was diagnosed at 21. I am now 32 and doing amazing! I take Betaseron and it has been wonderful! I haven’t had a relapse since my first one over ten years ago! Hope all is well and you are feeling great ! I believe in that positive attitude ! We are MSWarriors !! ❤️❤️❤️

@anissyafiqah1532 5 лет назад

hey im 18 and i just diagnosed with MS 3 weeks ago and the doctor ask me what kind of treatment i want to take. Im a bit scared to try betaseron since we had to give injection to ourself. Does it hurt?

@sarahmillson1594 3 года назад

Anis Syafiqah hey! I just read your comment. I hope you picked the treatment that has been working well.. I was diagnosed age 19, used betaferon for 5 years and didn’t like it at all!! It’s not a good thing to do self injection.. luckily there are lots of tablets now.. I haven’t started taking it yet but I was recommended by my doctor to take Tecfidera

@LauraSommerville1 6 лет назад

My husband has the RR MS too, he was diagnosed two years ago and has been on medication since with ‘touch wood’ no symptoms. It was really scary when we found out as I thought he was having a stroke as we rushed up to A&E who were also amazing. I think everyone thinks the worst when they hear of someone with MS but sometimes it’s not the case and there is such a broad spectrum on how it affects different people. Our neurologist said to carry on and live our life’s as normal and to keep positive. You’re a lovely person and so good of you to make this video too! 😘

@mr.makedonija2627 Год назад

How is he doing?

@lauraironstalksms 4 года назад

I have MS too and so many of your symptoms that you have experienced, I have also experienced too. You seem like such a positive person and that's half the battle. Wishing you all the best x

@Ivyaffirmations 5 лет назад

Hey, I found your channel because I've been researching MS. My story sounds very similar to yours. I've had nerve issues since ive been 20 numb spots here and there, and pain in my bones in my legs since I've been a teenager. After I gave birth to my second daughter that kind of gave my pain and symtoms a kick start. I'm 26 now and my symtoms fit with MS. Unfortunately I haven't been diagnosed and I just get pushed away, put on meds and just told to deal with it. I have been referred to the chronic pain team at the RVI. So hopefully I can meet a doctor who will actually want to help me and believe me. I'm glad you got a diagnosis, not because I want you to have an illness of course, but because you know have closure and I can understand what feeling relief and fear at the same time.

@sabrinarose6642 3 года назад

Did you ever get a diagnosis? How are you?

@Tai120 7 лет назад

I also have MS. Stay strong 💪 💖 💪

@mymiracle79 6 лет назад

TaijuannaJaye Hi I think I might have it. I'm have extremely painful electrical pain on my right side of face that send me to ER twice. My dentist touch stays and said there is no infection but she this it's the muscle in my face. I have an appointment to see a family physician.

@truno7 2 года назад

Howve you been doing?

@KirstenMongie 4 года назад

After getting an MRI for some vision problems, my doctor suspects I might have MS, but wants to run more diagnostic tests. It's definitely nerve wracking, but reading these comments and watching your video gives me hope!

@SadisticNinja 3 года назад

What happened?

@LANOH89 5 лет назад

I got diagnosed in august 2017 and today is the first day i have cried about it. Just don't feel like me anymore. I started driving form the first time in a year and a half today, can't feel my feet properly and i cant move my eyes fast enough to see what is going on around me, today was a real eye-opener.

@rachabeff3212 5 лет назад

I suspect I have ms and I csnt drive and won't and hardly have. I never knew y but I can't rly feel my feet sometimes. My eyes suck and the hurt sometimes. Driving tired my leg n foot. So many reasons I hate driving. The vehicles' lights hurt my eyes and the sun does too. I get dizzy and it's scary to drive. Oh and loud noises make me feel ill.

@aroosatahir974 4 года назад

kya kiye tha ap apni bimari ka sth

@veritytill7542 7 лет назад

Stay strong lady. You're such an inspiration to us all on so many levels. Xx 😘🤗

@rhiangibson1544 7 лет назад

Verity Till Thank you lovely, all of the support has been overwhelming, it really means a lot. You just have to be positive don't you?! 😊 x

@suhromania 7 лет назад

I've got MS too. I'm 24 and I found out I had MS when I was 19. It was a shock obviously. I decided not to take the medication because it was making me feel really sick. I never had another crisis since 2011. I decided not to think a lot about MS and I've been really well. Sure there's some pain here and there but it's fine :) I've been watching your videos because I want to have a baby soon and I ended up loving your channel!

@andreifelea7205 6 лет назад

Suh Майами how are you now ? ..

@janejane6900 5 лет назад

Plis don't ignore it.. N pliss do ur treatment.. My mom is also hvng MS aftr diagnosing for 4yrs she got bettr n didn't go for check up n ignore hr medication now hr symptoms ia gettng worst den b4.. Now she's not able to gy a treatment lyk b4 s its affecting hr eyes.. If she continue taking iv injection den she wud go blind.. Her eyes pressure is gttng highr bcos pf hr medicine.. Plis don't ignore it

@alejandrovargas6510 5 лет назад

jane g thanks I have ms since 17 and did kinda the same but am struggling with work and life

@janejane6900 5 лет назад

@@alejandrovargas6510 don't give up.. I knw u figure it out sumthing.. Be strong n take care of yourself.. Evn if u r to busy, plis make time to take care of ur self bcos ur health is more important than anything else.. I'll also pray for ur health.. God bless U😘💕❤️

@alejandrovargas6510 5 лет назад

jane g thank you I really needed that

@karalee4701 6 лет назад

I was diagnosed with MS this year at 24. My MRI showed ten lesions on my brain so I've had it for a while. I have been having a tough time dealing with it, so I am going to see a counselor ❤

@Julescoming 5 лет назад

What symptoms did you have?

@SHANxLIFE 7 лет назад

I was recently diagnosed too! I was 21 at the time (still 21! LOL). but we can do it! it gets hard, but I believe we can do it!

@SHANxLIFE 7 лет назад

I'm also moving to the UK in September!:)

@buddyclark1232 5 лет назад

@@SHANxLIFE what if there was a cure, what would you pay to get this cure?

@SHANxLIFE 5 лет назад

@King A - sorry I just saw your comment! My first symptom was that I noticed that I couldn't type or text properly with my left hand. Dr. said it was carpal tunnel. then it went away. few months later, my right hand wasn't working. then shortly after 3 weeks of vertigo attacks. I hit my head on a cement wall and the emergency rushed me to get a head CT and then they saw artifact in my brain. and they did an MRI and confirmed it was MS.

@SHANxLIFE 5 лет назад

@@buddyclark1232 to be completely honest. I would pay all that I had for a cure. I live a relatively normal life, but there are some days where MS hinders me. Right now, my worries with my MS is getting approved for life insurance. If I didn't have MS, I would have been approved by now.

@billmccurdy2350 3 года назад

Thank you for your story. I was diagnosed a week ago and watching others stories really helps understand.

@isabelhomeandfamily9155 7 лет назад

This video will help so many people. I have learnt a lot from watching this , thank you for sharing it.

@dogpiss99 6 лет назад

I go on Monday to find out if I have MS. I did the MRI of my lower back & for 7 years we’ve been going in a completely different direction so when the neurosurgeon looked at my last MRI of my lower back he immediately said I think you have MS. He did all the balance reflex tests you did & ordered a brain/neck & upper spine MRI. I find out the results Monday. I’m ok with it. I want answers after so many years of pain & problems. I just want answers so I can start treatment. Whatever that is.

@buddyclark1232 5 лет назад

If there was a cure for this in another country what would you pay for treatment???

@lesleyminnis8580 6 лет назад

I love hearing everyone’s stories about their diagnosis. I have MS as well was diagnosed at 16 and now I’m 20. Stay strong lady we can all do this together.❤️

@thekidd5585 6 лет назад

Lesley Bello what’s your email? I’m trying to talk to other young people too. My email is jasleen476313@gmail.com!

@joshwa8178 5 лет назад

How bad does it affected you?

@lesleyminnis8580 5 лет назад

J D my email is lesleybello55@gmail.com😊

@lesleyminnis8580 5 лет назад

Candy C I’m great still struggling but fighting💕

@Channel24377 5 лет назад

@@lesleyminnis8580 what where your early symptoms. I have ms and my symptoms are vertigo and alot of muscle spasms and twitching.

@OnceinaLullaby 7 лет назад

You are amazingly strong! And it's absolutely amazing that you are raising awareness and talking about it so confidently, I think if anyone watching this is experiencing something similar, watching this video would be really reassuring! x

@pt8436 5 лет назад

Thank you so much for shearing. I’m currently with the symptoms of MS. Not had the MRI yet. It’s a very long wait. I might have to go private. Wished you all the best 🤗

@missdoglover1644 6 лет назад

Thank you for this video. I was fobbed off by my GP after having numbness and tingling in my hands and feet for 2 years. It spread into my legs and I went to a private GP who said I should see a neurologist immediately. After an MRI I got the MS diagnosis and was put on treatment. GPS are great a lot of the time but they are not specialists. If you are worried tell them you want an immediate referral.

@melindameler1366 5 лет назад

Stay STRONG and keep reminding yourself that you are NEVER alone and you are a WARRIOR. I was diagnosed as well in December 2018. Thank you for sharing your video...everything you were explaining hit home for me. Sending Love & Light to you ALWAYS...I will be keeping you in my thoughts and prayers, dear one. Blessings to you.

@JKandCharlie 7 лет назад

Honey you're so brave and positive. Good for you. Without making this about me - for about 4 years I've had numb patches on my legs and I get a recurring buzzing vibration in the top of my spine. My googling has led to MS but I've been too scared to see a GP. Perhaps I should. Thanks for raising awareness and sharing your story xxx

@rhiangibson1544 7 лет назад

JK and Charlie Thank you. Please see someone, honestly, I was worried but if you know what is causing the symptoms you can deal with it better. It could be something completely unrelated and simple but it definitely needs checking, ask to be referred to a neurologist and ask for an MRI. I hope it turns out to be something simple for you. Thank you for the lovely words ❤ x

@AdventuresOfAbigail 7 лет назад

You're doing so amazingly well to get your head around all this whilst being pregnant. So much respect for you. Hope your relapse clears soon. Xx

@briarrosette 5 лет назад

Your story is SO similar to what I'm going through. Even down to the Shingles episode kind of setting things off. I had shingles back in 2017. However, this whole Summer I've been getting worse and worse with the various body parts tingling, pain, and going numb, the eye film, etc. I'm currently playing the waiting game for getting testing done. I'm having a brain and neck MRI on September 20th, and I have a Neurologist appointment scheduled for October 22nd. My doctor mentioned my reflexes being heightened as well. I'm hoping if I end up having MS, it will be the relapsing remitting kind, because I've had spells on and off like this for years, but only this summer has it gotten severe enough for me to be worried. But yeah, the diagnosis waiting is the hardest part.

@maguifreitas 10 месяцев назад

Are you okay?

@daxmas625 5 лет назад

You are a beautiful young lady! I was diagnosed with MS in 2002. My first issue was a seizure when I was at work. I am now disabled retired. Wish you the every best!

@madelinevicioso7980 7 лет назад

I'm so sorry to hear this. 😢 you are a strong women and God willing with the help of the right doctors you will recover. Stay strong for baby girl and the new baby. I will have you in my thoughts. Sending positive energy your way. ❤

@rhiangibson1544 7 лет назад

madeline vicioso Thank you, that means a lot. I'm alright at the moment so I'm hoping it stays that way until I start treatment, fingers crossed 😊 x

@alanafinn3941 6 лет назад

Thanks so much for sharing 🙌🏼 honestly listening to other people speak about this is so helpful, don’t know what I’d do without this platform to hear other people speak about it, I have the exact same thing when I bend my neck down!! 😩 You’re doing so well girl, stay positive ✨✨✨

@BabiesandBeauty 7 лет назад

Oh Rhian so glad to hear both you and baby are ok & it's great to hear how positive you're being. You are such a strong lady, sending lots of love xxx

@rhiangibson1544 7 лет назад

BabiesandBeauty Thank you lovely, I'm okay honestly and it's not the worst case scenario so that's what I'm thinking about 😊❤ xx

@anaramirez8234 6 лет назад

Thank you for your video. At this time I am waiting for my neurology appointment, which is in about a month from now. I am having a lot of the “ms” simtoms for the las 2 years and it scares me a lot. But I also know that there’s many treatments that will help me if it is the case. I have two kid and the idea of thinking that they can have this MS disease in the future, because of me, it hurts a lot.

@140Lumdee 7 лет назад

You are freaking amazing. You are just so matter of fact. It must suck in many ways but I'd be the same, not a brain tumour! Science moves so quickly I really hope there is a new breakthrough soon and it can help when you relapse. You don't seem attention grabbing or dramatic but it saddens me that you feel the need to state that. But equally I totally get why you said it. We have to when vlogging. And in a random note that has nothing to do with anything... I want your hair! It's bloody lovely.

@amandaschmidt4703 4 года назад

Lisa Lum j

@Marilynlaverne357 5 лет назад

I was diagnosed with MS almost 7 years ago. Stay strong!!! I’ll be sharing my story soon on my channel.

@biljanasokoleski8603 5 лет назад

Do you takes medication for ms and if you take how you handled for this 7 years thanks

@Marilynlaverne357 5 лет назад

biljana lozanovska Hello. I started out with taking copaxone, went to getting the tysabri infusion and now plegridy shot every 14 days. I’ve changed my diet and that has helped me tremendously.

@biljanasokoleski8603 5 лет назад

What diet you take my darling how can l find the good one on internet of l ask my doctor, thanks for your advice my darling all blessed as with Ms

@Marilynlaverne357 5 лет назад

biljana lozanovska I researched foods that were better for my blood type and started incorporating that into my daily meals. I refrain from dairy products and wheat. Research diet for blood types. Im O positive.

@biljanasokoleski8603 5 лет назад

Thanks my darling l will find and for me thanks a lot many people said that diet is helpful for this illness God bless you 😘

@heyitsok1770 5 лет назад

Thank you for sharing your story I would of never known anything about MS before. Really lovely to hear your story and amazing for you to share such personal things xxxx

@heathersbonnybows715 7 лет назад

Oh Rhian thinking of you hunny!! You are defo a strong woman! Sending love & prayers hunny 🤗

@rhiangibson1544 7 лет назад

Heathersbonnybows I'm alright honestly, thanks so much, I really appreciate it ❤

@oliviahayes5371 6 лет назад

Yout strength and your children will see you through Hun. Much love,hugs and best wishes Xx

@Lorena_Panda 7 лет назад

I have MS I'm currently 16 and I found out that I had MS at 14 this helped me knowing that I'm not the only one

@consciousmind450 6 лет назад

Lorena Andres u r soo young sweety But don't worry u will be fine Just be strong and optimistic and don't think about it a lot and enjoy life Try to be healthy as much as you can and avoid diary foods , play sports and specially swimming Don't exhaust yourself though and don't stress yourself Try to check Whals protocol Wish you a happy life sweety Hope you can tell us what symptoms did you have first and how r you feeling now Be strong ♡

@abbyclark7157 5 лет назад

How are you doing today panda?

@terencegayle6015 7 лет назад

hey, thanks very much your video. It's very brave of you to come out and talk about your experiences. Hope you and baby and child are all okay. Well done you. Up the north-east

@Willowsilvermoon 7 лет назад

I'm a 52-year-old female. I've had symptoms off and on for years with every doctor either telling me I'm crazy, it's all in my mind...or...they can't help me. I've been with my current PCP for about 15 years now. Long story short, she has been telling me to see a neurologist for years and I never followed through because I thought a neuro would just tell me it's neuropathy, give me more gabapentin, and send me off. Well, this time after experiencing more and more balance issues, cognitive problems, and vision problems with my left eye, which I've complained about for years, etc., I followed through.....ALLLLLL the way through with EEG, EMG (upper and lower body), VER, BAER, MRI, memory tests and blood work. Long story short, a diagnosis of Relapsing Remitting Multiple Sclerosis. I am now on Copaxone injectable 3 time a week. We are MS Warriors. We can make it through this! Best to you!

@DearDana 5 лет назад

Similar story .. Would love to connect... Just starting meds

@Finds_WorthKeeping 5 лет назад

With your vision, did you have tracking issues?

@PinkysPiggies 7 лет назад

Stay strong! Watched your videos from the beginning when I was pregnant with my 3rd bubba she's nearly 7months now. Love your vids and must of took a lot to make this video. Hope your ok take care xx

@roseyhome 7 лет назад

Oh hunny! I'm so sorry to hear of your diagnosis. You really had to fight doctors for it too. You are very strong and I know you will handle this. Sending you so much love xxxx

@sashasmith2355 4 года назад

I just got diagnosed at the age of 18, i loved hearing your story

@truno7 2 года назад

How you been doing?

@babyface6418 7 лет назад

I also have MS. I was diagnosed in June of 2016. I found out because I had numb toes and it went up to my knees and well I couldn't walk up the stairs and I had to physically pick up my legs when I got into bed. Btw I'm 15 so my parents took me to the ER and I was sent out to the children's hospital and I had an MRI done and I was diagnosed. I was put on steroids. I had to do about 4 months of various types of therapies. I was placed on a medication but sadly it's not doing what it's supposed to so I have to switch medicine. Now I'm back on the softball field and I'm glad. Thank god it wasn't anything worse. I wish you luck in your MS battle.

@MeganMarie1 5 лет назад

I know this video is old, but I just came across it. Your story is incredibly similar to mine! I’m not officially diagnosed yet, but I have an MRI Friday.

@madhu927 4 года назад

Mam how r u now

@ursularose1367 7 лет назад

You're so strong Rhian! Sending love!! xxxx

@Fermerswife 7 лет назад

I'm to hear about your diagnosis but it's good to have an explanation for the worrying symptoms you were having. Thanks for sharing xx

@rhiangibson1544 7 лет назад

Fermerswife Yes definitely, I'm relieved and now at least I have a plan in place. Thank you so much 😊 x

@SuperLeahhh 6 лет назад

I’d just like to say this video is great! I’ve just been diagnosed a few days ago. Symptoms match everything you’ve described. Gives me hope that you’re being so positive can not wait until I’m feeling more accepting of it all 💗

@Tristan-fh5ui 5 лет назад

How has it been?? I just got mri done last week

@sylviaw4712 6 лет назад

Diagnosed yesterday feeling optimistic I guess what can you do

@staceyfrost7427 7 лет назад

So sorry to hear this. Glad your ok. Glad the baby is ok. You are so strong xx

@rhiangibson1544 7 лет назад

stac rae I'm feeling good about it all, it's a bit of a relief that it isn't something more serious to be honest. Thanks so much for the lovely words and support, I really do appreciate it ❤ x

@shirleyforrington388 7 лет назад

Your positivity is inspiring! Good on you for looking at the brighter side ✊🏼 sending loves and best wishes xx

@Myfussyeater 7 лет назад

Sending you lots of love Rhian. This isn't something I've seen talked about a lot on you tube so I know this is going to help lots of people going through it too. Xx

@rhiangibson1544 7 лет назад

My Fussy Eater (Ciara Attwell) Thank you Ciara, I will talk about it more in-depth in the future I just wanted to sit down and get my thoughts out really. I'm feeling good about everything though so onwards and upwards 😊 x

@AMundaneLife 7 лет назад

Sometimes it makes you feel better just having a diagnosis. I found that when I was finally diagnosed with Epilepsy. At least then you know what you can do from there, and there is an actual reason for the way you are feeling. You have to take every day as it comes as some days are better than others when it comes to chronic illness. Some days you will feel great, and other days you will just want to hide away and feel awful and that is okay. If you ever need anyone to chat to feel free to contact me.

@rhiangibson1544 7 лет назад

A Mundane Life That's exactly how I'm feeling, it's such a relief to have a diagnosis after all these years. I'm so sorry you are living with Epilepsy, that must be tough. Thank you so much for the offer to chat, I'll remember that 😊❤ x

@reissrobinson 6 лет назад

I'm truly touched by your story. Thank you for sharing your experience and God bless u. I came to your video after researching lumbar puncture suggested by docs following partner's head injury cos she has pressure on the brain. But you have educated me about MS. Thank youuu seriously you're an inspiration!

@tishm8973 7 лет назад

Just found your channel. I was diagnosed with Relapsing remitting ms in June this year. I have a 13 month old son. Will be watching your channel & catch up on your vlogs. Lots of love 💕

@katarinahogh4045 3 года назад

Thank you for the video. Just been diagnosed and seeing you being so positive helps me a lot. Stay strong.

@Ana77770 7 лет назад

Keep praying! God can heal!

@rhiangibson1544 7 лет назад

Anupa De Gazon Thank you Anupa ❤

@KirstyWinnettes 7 лет назад

Wow, I love that you are staying so positive. You are stronger than I would be! I hope your relapse passes quickly x

@rhiangibson1544 7 лет назад

Kirsty Winnettes It's the only way I can be, I just focus on the fact that there are people who struggle with awful things every day and I'm so incredibly lucky to have what I have. Thank you for the kind words and support 😊 xx

@hannahevans1984 7 лет назад

Your so brave and upbeat! Inspiring to us all! Take care of yourself xxx

@rhiangibson1544 7 лет назад

Hannah Evans Thank you, I hope you're well! I'm alright and hopefully once I start treatment I'll see some improvement 😊❤ x

@feelgoodwithkim 7 лет назад

Thank you for sharing, it is probably a hard thing to share but you will be helping other people in the same situation by talking about it! and at least now you know what your dealing with. Your a beaut x

@rhiangibson1544 7 лет назад

If the baby allows It felt very natural to share it, if I can help even just one person then that would be amazing. Thank you so much 😊❤ x

@argojessica 6 лет назад

I too have the visual issues that you described. The best way that I could describe is that it looks as half of a dingy window on the front of a car windshield. Thank you for your video. I was diagnosed in 2012. Then, in 2013, upon a second opinion, diagnosis was changed to Neurosarcoidosis (NS). Because NS is rare, I decided, after 5 years, to go and have another opinion. It just came back as "classic MS" last week. Such a long and frustrating process.

@Staceyleighfromthesoul 7 лет назад

Sorry to hear lovely, love how positive you are being. So glad the baby is ok xxx

@rhiangibson1544 7 лет назад

Stacey Leigh Me too, that was my first thought and I'm so incredibly grateful for my babies 😊 thank you lovely xx

@danieljunker5198 Год назад

I listened to your story, I got optic neuritis, and it disappeared when I started copaxone. it's never come back. After I had strokes, I found out I am the worst danger to myself.

@Kateplus_x 7 лет назад

So much respect to you for sharing this Rhian and pleased you have answers now. Sending lots of love to you xx

@rhiangibson1544 7 лет назад

Kate+ Thank you, yeah I'm so glad to have a reason for feeling the way I do, at least I know I'm not making it up which is how I've felt at times 😬 Thanks again, much appreciated ❤ x

@SleeplessinOC 7 лет назад

I want to preface this by saying I have not watched your video but only read what you wrote- I already know I might end up in tears if o watched. Anyways, I am so sorry for what you have to go through . I'm such a wimp because pretty healthy still and yet I can barely function emotionally right now due to long term under employment and constantly being poor even when I had s full time job because I simply never made enough. And I'm intensely lonely from still being single at my older age. Still, I know my problems are nothing compared to your new diagnosis and my heart goes out to you. Thanks for sharing your story . If you wouldn't be offended, I'd like to suggest you to take a look at Dr. Terry Wahl's videos if you haven't already come across her videos. She too has MS and she shares how her diet has made a huge difference. Thank you.

@pshar8674 7 лет назад

omgoodness, thanks for sharing. really good to raise awareness, you're great and looking forward to seeing no2 pregnancy journey.xx

@kendrom 7 лет назад

Thank you for taking the time to make this video. Very informative.

@lady_wasser 6 лет назад

I have 22 demyelination spots on my brain, I’ve been to 3 neurologists in Houston where I live and technically should be the best place in the US if you’re sick....... 5 years ago I was diagnosed with fibromyalgia because I have this pain all over my body, pins and needles and numbness. I’ve had so many tests done, I do have all these symptoms and don’t know where else to go or what else to do. I’ve been in bed for the past week, so dizzy even my jaw is hurting. I’m glad you’re ok and was able to get diagnosed and treated if you have to. God bless you and your family. This felling of my back being electrocuted, I swear I can even hear it sometimes😩

@sylvia7777 5 лет назад

This is what I've been dealing with. I'm soon to be 25, I was scheduled to have an mri but never got an appointment. Been a and e and told its nothing. Had ultrasound and x rays to be told it's nothing. Glad that you got a result finally. A lot of what your saying relates but im not making any assumptions on myself, I just hope I get a result soon

@jbrown8615 7 лет назад

just subscribed to you as 26 weeks pregnant and need as much help as possible! Sorry to hear this news you seem very strong and positive though but it must be hard best of luck to you and your family love your channel! x

@rhiangibson1544 7 лет назад

J Brown Thank you so much, that means a lot. Wow, congratulations! It's such an exciting time isn't it, I'm just starting to feel 'pregnant' now, getting a bit of a bump etc. I hope you're feeling well! Xx

@jbrown8615 7 лет назад

Pop Rocks Mama first bit was sick all the time but now feeling much healthier it is an exciting time! xx

@donnalewis7446 5 лет назад

Hi Rhian.thankyou for sharing your MS story. Hope you're well my love xx take care Donna xx

@katherynhauser2439 5 лет назад

Thank you for sharing, I watched your second video first. My aunt has MS and I’m currently dealing with things that you have dealt with/ are dealing with.

@EmilyCharlotte 7 лет назад

its so brave of you to film this, like you say it may help somone or raise awareness x

@BobbyGonz 7 лет назад

Incredible inspiration! Keep it up! I almost lost my ability to walk at 29. RU-vid community is amazing!

@georgekafantaris7807 3 года назад

WELCOME TO OUR MS GROUP...ITS GOOD TO HAVE NEW MEMBERS,,

@SammyBirdArt 7 лет назад

Such a lot to deal with especially while pregnant 😢such an inspiration, you're very strong about it. 😊 Ive just moved to the north east, 4 hours from where I lived before! Looove all the accents up here! Xx

@susielynn343 4 года назад

You have no idea how much this helped me. Thank you for posting this and sharing your story

@RBQ_ 4 года назад

After two years of back and forth with pain and balance to not being able to walk properly, the doctor start that he thinks I may have MS, am a single mom and I feel real bad not being able to do a few activities with my daughter, I have another MRI and brain image to do. Is there a treatment available to bring my balance back so I can walk for MS?

@ashleybailie8867 7 лет назад

Sending lots of love Rhian, glad you got your diagnosis, your a strong girl xx

@rhiangibson1544 7 лет назад

ashley bailie Thanks Ashley! Hope you're well! That explains why I have been feeling so crappy for so long and my heels were hurting so badly in London! 😬😊 x

@mygreatcomeback248 5 лет назад

It’s crazy how similar all of our diagnoses stories are!

@litiaraicebe325 4 года назад

Thanks Rhian for sharing your experience. Very encouraging indeed.

@Joiful 7 лет назад

You are so brave for doing this video and sharing your story! Thank you! I love your personality and how you deal with this so positively although it must be such a shock! But I can see how it must be a relief to have a diagnosis after all theses years as well! Sending lots of love from New Zealand! You are one strong Mumma!! ❤❤❤

@kylie5869 5 лет назад

I’ve had ms for 22 years now....Thank u for ur channel xx

@nahidehsan8579 4 года назад

Can u walk properly

@jasmincamarena1901 5 лет назад

Hi I need help in understanding my sister's condition. She has ms as well and is going through a divorce because it had became too much for her husband. She gets injections every other day but her personality had changed. It's almost as she isn't all there. She does things that is just mind boggling. It's like she doesn't have a conscious. She doesn't know she's doing something wrong and she lies almost every day. Even if she has a chance to tell the truth she still lies. And she forgets almost every talk someone has with her. And I might seem completely uneducated but this isn't the sister that left 8 years ago when she got married. It's like they switched her with a random person. I just want to understand her.

@janicerees3502 6 лет назад

Wishing you all the best lovely girl . Love and hugs from Wales x x x

@ashleyrose5613 6 лет назад

Please answer me I'm scared I might have MS. My father has had MS sense before I was born and im 23 and I've been noticing weird things about myself and I'm scared. I've been having numbness in my face and lip its like my right side of my face. It's off and on unexpected. There was a point and time where I was in Walmart shopping. I couldn't walk good all the sudden. My legs wouldn't do it for some odd reason and I had to use a cart which I hated using because I love walking. Well anyway that, and the numbness I get off and on with my face rather it's my right side or left it includes half my lip as well. I feel numbness in my head at times not always. I'm off balance sometimes dizzy confused where I am at times. I'm so afraid if I have MS. My dad has the worst as it gets Ms because he's had it for 25 years I'm his caregiver I help my mother take care of him. The things I see my father go through with MS. I do not wish this disease on nobody ever not even myself. It's a very scary thing and depending on what your body wants to do with MS like a unexpected thing that puts u in the hospital and can possibily die because MS is a terrible disease. My father has been on life support twice been in the hospital a lot over the years. The pain and struggle I see my father go through. Scares me to death I might have it because of the weird things I been experiencing. Please.. Someone give me a answer something I'm scared..

@Roseblossom-t8s 5 лет назад

Ashley Rose honey first of all u have to be strong and not think negetive cause thinking negetivelly and being scared itself effects the brain I hope u don't have it but u need to go and get youreself checked out...I have autoimmune rhematoid arthuritis and now they suspect me having ms I'm very faithful and I have to be stronger than disease itself to able to manage or beat it hope everything is ok with u no matter what just stay strong

@zoiakoriakina 5 лет назад

Everybody's MS is extremely different. My maternal grandma had the most possible severe form, she was totally paralyzed and suffered alot... I got MS too at age of 30. Mine started from vision issues. Hers started from legs (age 27. She passed away at 73). So make sure to go to doctor and ask for MRI and see neurologist, tell about your dad too. There are so many modern meds now that we didn't have even 10 years ago. It's important to start treatment as soon as possible. I am sure you will not be like your dad, it's not possible for many reasons. So just look for medical help as soon as possible

@uncommonpurestbeauty 4 года назад

I'm 27 and just had my MRIs today, thank you for your video and bravery

@chinwendutony3326 3 года назад

Hey how are you today?

@AwesomeHayden 6 лет назад

Thank you so much for this video. My husband has an appt tomorrow with his neurologist. He believes this may be what he is suffering from. Your video was very helpful. God bless

@lauraemma4402 7 лет назад

Oh lovely I'm thinking of you hope you have lots of support around you xx

@rhiangibson1544 7 лет назад

Laura emie I do, thank you 😊 X

@maureenfletcher1320 5 лет назад

Have you watched Andy Bailey m.s diary? He's so encouraging. Thanks for sharing your story.

@ceriblythin2963 Год назад

I'm having similar symptoms and also getting fobbed off by my GP. I've got the numb feet, seriously awful cramps and spasms, especially just under my ribcage, which literally makes me throw myself as straight as possible and scream, well I would scream if I could breathe! Fingers cramp straight out as if I'm pointing at something, all fingers even thumbs. Bad tremors, balance, dizziness and I have Epilepsy. So luckily, haha, I'm already under a neurologist for my Epilepsy so I have self referred myself and waiting for a call at the beginning of May. I'd love to get in touch just to talk to someone who's feeling like me! I'll try and DM you on Facebook. Ceri x

@C-Murph 7 лет назад

I'm convinced that I have it but it's impossible to get a doctor to get an MRI. I'm not an idiot and I know something isn't right but they seem like don't want to pay for the procedure.

@parrotlover1981 6 лет назад

KennethMichaels Hi, Dr.s have to take bio-ethics class which is all about budget cutting. Who gets tests like mri.s ect.so dr.s will reluctantly do tests IF THEY CARE THAT IS. MOST DR.S HAVE TO MANY PATIENTS AND OVER BOOKED AS WELL. MY CURRENT DR. CAN'T EVEN GET MY PRESCRIPTIONS CORRECT. I'M REALLY STRESSED AND WORRIED THAT SHE DOESN'T CARE AT ALL ABOUT ME. 10 MINUTE APPOINTMENTS DON'T CUT IT WHEN YOU'VE GOT SO MUCH GOING ON. YOUVE GOT TO KEEP PUSHING FOR AN MRI I FINALLY GOT MY DR.TO ORDER AN MRI BUT,ONLY AFTER I INSISTED I NEEDED ONE. GOOD LUCK AND DON'T GIVE UP KEEP INSISTING ON AN MRI.

@AkSonya1010 5 лет назад

Find a different Dr. I completely understand what you are saying. I fought for over 20 years and finally found a Dr who didn't want to do one because he said it was a waste of money. I told him it was my money to waste. I have so many lesions that they quit counting. :-( Do fight for yourself because no one else will.

@helendancer1930 5 лет назад

My pal told me to check out the symptoms for ms... Your the first person to discribe the guitar string thing... Like a really quick ping but the feeling of like strumming the string on the guitar. It's so mad IV never been able to discribe that feeling. And my GP looked at me like I was crazy.... I have has spinal problems since my early 20s. And after my two babies it got considerably worse. I have degenerative disks L1 L2 . Siatica in both legs constantly. Also I get the hand and foot tingle's abit like how your hands feel going from cold outside to warm inside. I was diagnosed with fibromyalgia at age 30. Chronic fatigue is so real too .. I really feel your pain hunnie. I used to get little patches on my thigh's that were completely numb. And never knew why. Cos it was a little patch I never bothered with the gp. Today I woke up with a dead hand.. that has stayed numb all day. It's only half the hand tho so Google said trapped nerve. I just don't know.... Also have ibs ect. If I was a horse they would shoot me. Lol big loving warm hugs hun. And good luck with baby number two ❤️👌🙌

@arabslavegirl 5 лет назад

Im waiting for a diagnosis now. Brain tumor etc ruled out. Eye specialist floating the idea it could be ms..blind in one eye sort of...and your symptoms are very like mine. Bit overwhelmed. Thanks for sharing.

@potssyndrome7528 7 лет назад

i went to doctors yesterday after years of being ignored and told i was anxious .i have a name for my illness postral othastic tackycardia sydrome.ussally this comes with another illness it a secondary diease .i have all symtoms of ms i have been fighting for the mri .finally get one booked but doctor said i only get one if i agree to a mental health assessment after if nothing shows .i have had two these proof it not "all in my head" i have a diognus aswell of pots so this discrimination should of stopped do u still get told it in your head?i am in my 20s i have children i dont want them thinking i am crazy to doctors in north east are so un educated on these things i have a autoimmune diease not a anxiety disorder hope u well x💖

@lauraz5210 5 лет назад

Damn... You need to find another Dr right away because that is extremely messed up how your current Dr treats you...

@caseyosborne8845 5 лет назад

@@lauraz5210 yo

@caseyosborne8845 5 лет назад

😁

@abbyclark7157 5 лет назад

I understand how you feel, I have been diagnosed with Psuedotumor Cerebri aka:intracranial hypertension..as well as svt:super ventricular tachycardia AND atrial regurgitation as well as an arythmia and I go to a hospital that accepts Medicaid which means I never get to see a consistent doctor, I see residents that rotate out every 3 months, and they all tell me different things, one will acts like I don't have PTC n the others who did all the testing say you def have PTC (these are doctor a of opthamology) I have only been able to get into to see the neurologist once in a year n a half n he literally spent like 6o seconds in the room with me n took off, prescribing me with some migrane medicine which of course did work because I've never had a migrane in my life until I started having all these symptoms n "increased brain pressure" which is not considered a migrane..i feel so frustrated n helpless alot, if i do have PTC/IIH I could lose my eye site permanently but no one seems to care much...but I've known something is wrong other than just PTC or the fact I might be misdiagnosed because I have, optic nerve swelling, my arms n feet go numb sometimes, I have involuntary movement of my legs,sometimes other parts but mainly my legs n I have severe memory loss and I like blank in n out a good bit in my brain..i have lower back pain..i have consitpation,I feel like I have to pee ALOT, blurred vision,sometimes i just see like double or spots in my eyes, I'm fatigued, very weak alot..and I just went for am xray thinking that there was something wrong with my hips but it came back normal...so I pretty much have every sign of MS...but they did an MRI on me September of last year, but all they said they were looking for was to see if i had a brain tumor or a blood clot so they could officially diagnose me with PTC/IIH but they didn't say anything about MS but I'm wondering if they just missed it because they weren't looking for signs of MS...so your not alone in your struggles! I don't know what to do other than to tell my doctor next time I go in that he needs to figure out if I have MS

@AkSonya1010 5 лет назад

Thank you for your story. Just an FYI, there are four genetic snips for MS so unfortunately what you said is not true. The genetics research is still so new that they haven't recognized MS as a genetic disease. Both of my parents handed me all four markers BUT there is no sign of MS in my family for many generations and several cousins wide. SO even though it is showing as a genetic marker; I do agree that it's not a normal genetic defect that we should worry about. I do have a 4x Great Grandmother that her son wrote a story about her living in pain and the description sounds like MS but honestly, there is no way of knowing and back then, MS didn't have a name. I have done my family Genealogy research for as long as I can remember and about seven years ago I added the genetic piece into my puzzle so I could document what medical issues I could find and reasons for death.

@hectorchavez1589 6 лет назад

Thank you for the video! Brave soul!

@emilybarrett464 6 лет назад

Hope all is going okay for you, i got diagnosed when i was 22 so im with you girl. Stay 💪🏻 and yeah i get that tingly feeling when I put my head down... its called Lhermittes sign, so annoying! Appaz its an ms thing :/ Best wishes xx

@sammielawson7912 7 лет назад

I'm a 73 year old female and very active. I have a bad case of restless leg. I am on medication for RLS but sometimes I am awake all night. I have insomnia, tired all the time, I think I have verve problems because my right hand base of thumb will burn and hurt so bad it will wake me up. I see black spots so bad that I will look to see what they are. I have tingling in different places and it feels like I have a bug like a flea or small bug nibbling . My balance and clumsiness is terrible. The only numbness is on one side of my neck. I use to have a problem with one leg going completely numb and felt cool but that has passed. Did you have any of these signs? Your video makes me want to go to a Neurologist. You are very brave.

@HumoodAdnanYagoubAl-Shaiji 5 лет назад

Greeting, Hope you are doing well, am your MS bro from Kuwait. My golden advice for you is: don't put everything on MS; which stands for MicroSoft by the way. If your laptop/ desktop had a virus and the antivirus is not updated sure it will hang, slow in performance, crashes.. and these kind of problems.. the same is happening with us; we have a virus but our immune system is not protected so we are complaining from the symptoms so we need update; however my advise is to stop cafein (stop drinking coffee/ tea) try one week sister and you will notice a big difference, and please watch your nutrients; 1. Quality 2. Quantity 3. Timings. FDA stands for Food&Drugs Association I think, so nutrition came in the priority first then medications. Thank you 😊 and sorry for disturbing

@barbaramoore8408 7 лет назад

Thank you for sharing. I was diagnosed today with MS. I am just trying to find some answers about how people live their lives with MS. I wasn't told yet if mine is progressive or remissive?

@lisadixon8983 7 лет назад

Sending lots of love. Stay strong Mama ❤️

@rhiangibson1544 7 лет назад

Lisa Dixon Thank you, Lisa 😊 x

@bamptonbred 5 лет назад

I'm sorry to hear what you're going through..I've been experiencing ms like symptoms on and off which is now believed to be Lyme disease I hope you have thought about getting tested privately for Lyme disease and seeing a lyme literate Dr? Thousands are getting wrongly diagnosed with ms every year when it's real cause is from Lyme disease. I've been self-researching lyme and other tick-borne diseases for years.. I wouldn't be surprised if every ms case is really caused by a Tick-borne Disease Dr's are a joke and need to wake up! Let me know if i can help you more?