Were you checked for hypothyroidism or hyperthyroidism?

I have had Meniere's Disease for 15 years now it's so hard to live with 😟

My husband got a CI 6 months ago and has had vertigo since then. No help from the surgeon, PT, audiologists or any other doctor. No one knows or doesn't want to say what is wrong. "Minimal damage" in your dreams...

I had some very similar experiences. Thank you for sharing.

‘‘I am not only happy am alive but also glad that "DrMadida" was able treat and cure me with his herbal medication of my parosmia, Meniere disease and Parkinson disease(PD) with their herbal treatment. My smile is so bright because I am happy 😊😊😊.’’

My story largely mirrors Kates and i suffered for about 20 years . Long story short i eventually was introduced to professor Black here in Brisbane .He diagnosed Menieres and gave me a gentamician injection.This worked immediately after 20 years of horror. After about 9 months i started experiencing some dizzyness.Went back for a second injection and so far so good after 1.5 years from my initial injection.Downside is loss of some hearing after each injection and i retain only about 30% hearing in the impacted L ear.. This is so much better than my life was prior to gentacimin injections.

thank you for sharing, it really help..

Thanks Laura! Very helpful..

Thanks for sharing your story Jenny. Of course I’m here because I just spent the past weekend in the hospital from severe vertigo attack all day Saturday. My son was playing a conference championship game for college which I attended but I wasn’t able to watch it at all because I was spinning and vomiting the whole time. Went to emergency room after game got a cat scan, MRI and spent 2 days in hospital with dizziness and couldn’t walk straight. Couldn’t leave until ENT came in to see me. Did eye test and had bad nystagmus and unbalance. He prescribed oral steroid and nausea medicine. This is Wednesday and I’m seeing ENT at his clinic today for audiogram test (as far as I can tell I don’t think I lost any hearing yet) hopefully they can figure it out. I’m 51 yrs and have a physical job 10-15k steps a day. Now I can’t walk in my house without the walls and chairs to guide me through. Hopefully they can figure out a treatment plan for my condition. Seems like people have different symptoms from this. I’ve been having constant dizziness but the fast spinning vertigo isn’t there since Saturday but I don’t have tinnitus luckily, don’t have headaches or bad nausea since I have an anti nausea patch. Thanks again for sharing. Tim

I am from Canada and suffer from unilateral Meniere's. I am completely deaf in the Meniere's ear. I am scheduled for CI assessment. I learnt a lot from Prof. Gibson's lecture and the question and answer session. Thanks you very much. - May 2024.

26:18 : You say that the "damage to the balance organs is also minimal". And then go on to say that the "maximum damage" was in 17% of the cases studied. Does that no mean that "less than maximum" damage occurred in many other cases? That would amount to a significant percentage of cases where damage occurred for the balance organs due to CI surgery. So, it is NOT minimal. Can you clarify?

has anyone ever remarked about the change of weather (higher temperatures) triggering an episode?

I have cervical spondylitis and have had a clicking jaw all of my life. I also have eye floaters and menieres. Are these all related?

Would love to hear more on this. Thank you.

Thank you so much! This is very helpful and enlightening for me.

Dr Jaffri is my ENT here in Perth, a very interesting study!

Watching from India, West Bengal. Hope this works and you find a cure for this disease.

Thank you!👏👏👏

You have just described me 100%

Leave animals alone ye assholes

Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again🤗🤗

Amazing Dr

This is my own experience and not what I was foretold, my Meniere disease was very complicated with high pitch ear ringing, Dizziness and Imbalance but I was able to conquer this disease with a medicine from Dr Madida Sam on RU-vid for only 4 weeks of using their treatment...I recommend this herbal center//

This is my own experience and not what I was foretold, my Meniere disease was very complicated with high pitch ear ringing, Dizziness and Imbalance but I was able to conquer this disease with a medicine from Dr Madida Sam on RU-vid for only 4 weeks of using their treatment...I recommend this herbal center/

This is my own experience and not what I was foretold, my Meniere disease was very complicated with high pitch ear ringing, Dizziness and Imbalance but I was able to conquer this disease with a medicine from Dr Madida Sam on RU-vid for only 4 weeks of using their treatment...I recommend this herbal center...

This is my own experience and not what I was foretold, my Meniere disease was very complicated with high pitch ear ringing, Dizziness and Imbalance but I was able to conquer this disease with a medicine from Dr Madida Sam on RU-vid for only 4 weeks of using their treatment...I recommend this herbal center.

I am not only happy am alive but also glad that "Dr. Madida" was able treat and cure me with his herbal medication of my parosmia, Meniere disease and Parkinson disease(PD) with their herbal treatment…

How come nobody addresses barometric pressure and this. Have had menieres disease almost 40 years. Was told fluctuation in temperature and pressure also causes my dizziness

Hi I've just been diagnosed today, 😞I've also got chairi malformation and I've been battling this for two years with chronic headaches and vision disturbances also.. I really feel defeated to have this news on top...

Never pray you have Tinnitus condition because it is a great torment, I can’t sleep at night. I am very happy and grateful to Dr Madida whom gave me a herbal remedy that help me cure my Tinnitus condition, now I can sleep comfortably and live my normal life without any disturbance inside ears.

My sister is 32 years old and she has suffered from meniere disease for years and she always complains to me that I had to bought her #DrMadida herbs🌿 I saw on RU-vid and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus..

_My praises goes to Dr Madida on RU-vid whom with is wonderful and blessed medication saved me and cured me from my miserable disease called Meniere Disease. I can't stop imagine the discomfort and torment I got from this disease, all the ear ringing, Dizziness, unstable balances, brain fog and many more. I am forever grateful to Dr Madida for his unlimited help he rendered me.I highly recommends him💯💯_

_My praises goes to Dr Madida on RU-vid whom with is wonderful and blessed medication saved me and cured me from my miserable disease called Meniere Disease. I can't stop imagine the discomfort and torment I got from this disease, all the ear ringing, Dizziness, unstable balances, brain fog and many more. I am forever grateful to Dr Madida for his unlimited help he rendered me.. I highly recommends him💯_

Thank you Jenny for outlining your journey dealing with Meniere’s. I know you possibly posted it 2 + years ago but I am delighted to have come across it. I am 67, living in Ireland and have just I suffered my first ever experience of what you have fully described. Most of the posts don’t seem to mention fully the dire range of sensations such as not only the dizziness, but the collapsing, full and immediate leg loss and total inability to walk due to these. I was fortunate that between my doctor and wife they managed to get me to our local A&E where I began a lengthy process of examination and surveillance. I was released from hospital last Friday evening and I am slowly regaining my balance but I have not regained hearing in my right ear - yet. Hearing tests were completed earlier this week and I will shortly conclude my series of meds. I take great comfort from your post that the future might be somewhat a somewhat straightforward road for me having the benefit of the learnings you have shared. Very much appreciate you having taken the trouble to explained your experiences so well. Hope all is going as well as possible for you now. Best regards. Gordon

Yesterday i have gentamicin injection for miniere. So far nothing change, no pain and doctor suggested me to continue betahistine

Thank you Dr. Brown for your research. I understand a cure, if it ever occurs, will probably be too late for me but I think you are on the right track as to autoimmune syndrome. I first experienced Menerie's Disease at age 15 and I'm 80 now so it has been a 65 years, long term scourge. For me it has always been bilateral. I overcame the initial vertigo by body gravity feed back balance. The tinnitus I managed by simply ignoring it, with a life of background organ music you might say. It's the hearing loss that has been most difficult to live with and while there were times it was less drastic, it has always been there and you might say I faked my way through life's conversations. The greatest invention, to me, is not the wheel, it's closed captions. Now in old age my hearing remains drastically low and I "pass" with a strong German hearing aid and the understanding that 95% of what people say is blather anyway. Despite the scrounge of Menerie's I've enjoyed a successful life economically, physically and emotionally with wife of 53 years, kids, grand kids and wide range of experiences from travel to working, including my own business for 30 years with many employees. My success, despite Meneire's, is probably due to my extreme level of innate competitiveness. I recently told my younger brother it was probably best I was mostly deaf in life as it kept my competitiveness in check. Best of luck on your research. Jim Brown, Independence, Oregon, USA

I might have Meniere's disease without vertigo (so described by my neurotologist). I have sudden sensorineural hearing loss (one ear) in lower frequencies, loud high whistling tinnitus, and a feeling and sound of a large underwater bubble in one ear when I shake my head, but I don't have spinning vertigo. Can hearing aids help? What else could be helpful? Could Cochlear Hydrops be caused by drug side effects?

I need to act on some kind of solution. I just don’t know what will work. I rather be deaf than have Mainers attacks. What would be my best choice?

That was great information!!! I was just diagnosed two months ago. I’m so disappointed and angry all at the same time. I just got married. We love to travel short and long trips. My Husband is retiring soon and we had all this plans. Now I’m just so disappointed and scared of what my future holds.

Is having a dental implant in the lower jaw potentially problematic for those people who suffer from chronic dizziness?

Please , please ,please keep researching I’m praying you and your colleagues find a cure. Hopefully sooner than later 🙏🏻

Where does PPPD fit into any of these new possible surgeries? Will it stop? Thank you.

Thanks for explanation. Dr. Suggesed me gentamicin

How can I find a dr near me for treatment

Aww man😢!!! NO CLOSED CAPTIONS!!! Miniers has totally taken 99% of my hearing. I so wish I could read ot hear this to follow along...

I wish my doctors had some answers. They process me like the are lookingb for anything but. Live in City...surely thete is Dr. out there with more Knowledge. So far they are just ocassionarlly shooting something in arm that I don't see any results other than the ever hauinting excema which will temperarely slow down for a month b4 it takes off agsin.

I have had this dreaded disease since I was 26. Went thru a third birth as well with it. Right now I’m in the middle of an attack. Yes I’m deaf in my left ear. Yes I have tinnitus. Yes I have anxiety and depression. Yes I can’t leave my own house sometimes. I def can’t drive two hours or more as I just did for a drs appt that led me to an attack and that was last Fri. And today is Wednesday. No Xmas due to this moment. I wasn’t the one driving as I can’t. Totally unable. There’s no cure trust me. I’ve been through it all. I don’t drink eat crappy food or smoke. Iv been a runner for 30 years. How u say? With my huskie. Without them it wouldn’t happen. I can’t walk straight as I too look drunk. My daughter has to follow me while I’m running if an attack occurs. Valium water pills rest stillness and quiet are the only helpers. The only thing I can tell u that had helped me all these years was a shunt that was put in the left ear to guide the endolymphatic fluid to flow correctly. That’s how I made it this far. I’m 64. This last year has been the worse. Several attacks. Taken over my life my running my happiness. As you all know you never know when an attack will hit or for how long. I would ask you specialist about a shunt. The drill away the mastoid bone if the affected ear put the shut in. It’s like a lil tube. It gave me many years of normal life. God bless you all.

Could elevation and change in humidity make it worse?

My husband has Menieres. He is actively going thru treatment that has corrected his vertigo as of now. Hearing not back fully back but not as blocked but we are only 5 weeks into treatment. It is a night and day difference with how he feels, less tension, in neck, more mobility because he isnt on the verge of spinning or vertigo. Menieres is also tagged as MisDiagnosis for a good reason. Children do not get Menieres. Every ENT says your screwed and we didn't take that as the final answer. First question- what dental work have you had done? When I say it's connected, it literally is connected. If you have had a root canal that bone they are drilling on you use for hearing. If you have inflammation in your head, this could be from tension from grinding teeth, food allergies, seasonal allergies, enough inflammation is going to pinch off or narrow down your eustachian tube. This doesn't allow proper drainage, which leads to the ear drum damage. No ENT will agree that your bite is your problem. By not properly having a bite your body autocorrects and in this autocorrection inflammation is occurring. This is not only for Menieres but Migraines as well. The procedure is as easy as reshaping the teeth thru computer analysis to give a more even bite, elevating un-needed pressure. I want to spread this information everywhere because this is the most debilitating disease with no help from Dr's. To hear a Dentist tell us we can help you, I want to help you and he HAS helped us has been life changing. Food allergies are real. Chicken is his worst enemy. Test if you can and eliminate. Mouth piece, mouth piece, mouth piece! When I say no kids are diagnosed with MD is because they haven't the the dental work or years of inflammation. Prayers for recovery for anyone suffering MD.

thanks dr