Jenny - 35 - Libra - Multipotentialite - USA & UK - Born in Los Angeles - Moved to EU 2012 Live in the UK since 2013 - Spoonie - Recovering from ME/CFS and Fibromyalgia (since 2006) - Studied art and animation at UCI/UCLA but since becoming ill work part-time at home in admin/media/customer relations/video/images - Love games, glamour, animation, vfx, metaphors, archetypes, symbolism, tech, SCIENCE, social patterns, philosophy, and mysticism
Hidden Empress ❤ chosen healer and seer generational curses breaker hidden on my pastors property isolated from people five years now with my divine dogs healing
So your story is that you have pre-existing chronic fatigue syndrome and you got covid and ended up with dysautonomia, but the antibodies test said you never had covid, but you know it was some viral infection. It is possible that you just have dysautonomia from your pre-existing auto immune condition?
A negative antibody test is not saying "you never had covid" - it's saying it wasn't detected in that particular test - there are lots of factors for why antibodies would not show up on a test - most importantly the time frame between acute infection and testing. Testing is very limited unless you catch things within a particular time frame - and even then there are plenty of reasons why a negative result pops up. I am very sure I had covid and it caused new, acute symptoms in my chest that lasted for months - aligned with other confirmed long covid cases.
Anyone with a compromised immune system can get it again anyone who did not develop the immune system can get it again it's rare but some people who got the vaccine can get it too yes it's unfair but dont lose faith
Hey Jenny, just stumbled on your video and so glad I did! I also have ME/CFS which was FINALLY diagnosed in early November due to high EBV levels. I tested positive for covid on Dec. 18. I had to quit my job in April because of Long Covid symptoms combined with the ME/CFS. I am struggling terribly trying to get approved for Pandemic unemployment here in the US. Also filed for disability.😥 To say that I am devastated is an understatement. I am so thankful you shared this video as it made me feel a glimmer of hope for the future!!! Will be continuing to watch you. Best wishes for a speedy recovery!
@@jennysrp For 2 friends it worked Great!!! 2.5 months of long covid, excruciating headaches, fever attacks, fatigued, and man with the hammer fatigue.......It was gone in 2 days with each day 3mg of ivermectin. I watched video of flccc , in which long hauler stated she got rid of long covid in 3 days. Could hardly believe it. But turns out to be true.
Are you “going” regularly? I find that milk of magnesia at night before bed helps me start the day right and lessens the symptoms throughout the day.. I also take Tylenol low dose, hemp gummies and benedryl low dose, which has helped pain and other weird symptoms. I also make sure to take vitamins and minerals with plenty of water. Hope you get better.
Hi Bee! Thankfully I've escaped having gastro issues with my ME and covid as well - Here in the UK we have different access to different kinds of medications, even supplements, but I've found a couple things that have helped me manage a bit including montmorency cherry at night for sleep, and curcumin for inflammation. I also am taking baby asprin to hopefully avoid blood clots. No problem drinking water for me, thirst has always been one of my symptoms! Hope you're doing well xx
@@jennysrp the Johnson and Johnson vaccine has helped slow the GI symptoms, which were out of control. I had the worst fibromyalgia pain of my life if I didn’t keep everything moving. I hear some say the GI symptoms occur at the very end of long covid. Either way, I’m getting better and keeping myself more on the alkaline side, which also helps. And thanks for the supplement info. I’ll be sure to check that out. Hope the best for you too. xx
I just saw a different video on you about your antibodies. It's a good thing you don't have any. If you wait until they come out with a vaccine that induces sterilizing immunity you'll be able to benefit from that. If you take what is available now, well, I'll post a link for you... ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-BNyAovuUxro.html
@@jennysrp In Canada very hard to get. In the USA and Canada they are starting to put horse ivermectin in locked cases in stores because people are buying the horse ivermectin.
I had moderate COVID , it's almost 10 months but still I feel body pain, heart pulpitation (frequency is reduced oncea week), back pain. Had uric acid issue immediately after covid, still feeling lot of joint pain. I can understand your pain sis.
Sorry you're suffering mate, I hope you find something that helps! My symptoms are still shifting, generally in a positive direction, but still need to be properly checked out.
Little bits at a time but definitely need to get a few things investigated. Hopefully I'll have an update with some details later, getting appointments right now is a bit of a wait!
@@jennysrp You may find that the Perrin Technique™ could be helpful as a treatment. I know it sounds a bit random, but it's often how useful discoveries are made. It may not make sense but if you look at current ideas regarding ME/Long Covid pathology and viral debris then you may see a connection between the treatment and the medical theory.
@@globetwig4401 thank you, unfortunately treatments like this are inaccessible to me. Over a decade of being ill leaves me on a very tight budget. I do get some benefit from gentle yoga and movement and good nutrition to aid with this presumption of toxic buildup. I do what I can!
A year on, I have a sore throat. If I fast for 2 days it's better. But it comes back. I am coughing up thick lumps of sputum. If I get tired from over work, it is a lot worse. Concentration is bad. Any thoughts on the lungs? I did OMAD eating and it got rid of my asthma so will try it for a month. But I want to be well. God bless. R
Hi Robert - I know it's so tough. My symptoms still fluctuate a lot but I really benefit from avoiding sugar and eating a whole food diet, drink only water, teas, coffee (limited) - I do whatever I can to remove additional stressors on my body. It's a full time - life changing type of energy management. Hope you find something that helps you!
Hi, I'm new here and I love Outlander! I am getting their Outlander themed box for this May. The necklace is pretty, I love sea glass. It's a shame the candle scent is so strong, I'm not a fan of strong scents either. Awesome that you got a book! Have you gotten to the war part of series yet? That may help you like the book more!
Hi Jessie thanks for checking it out! I had to put a pause on watching the series, it got a bit much for me at one point and I'm a sensitive soul but hope to get back into it one day! Really enjoyed the Wee Box.
@@jennysrp you're welcome. Yes the show can get a bit intense for sure, but the story line and chemistry between Jamie and Claire are definitely worth it. I just recorded this year's Outlander Wee box and should be posting it next week. I'm excited!
Maybe get ivermectin. I have been taking it...although not better, I am going to continue taking it. Another thing is oregano oil....I started taking that to flush out system. I ordered some black seeds too...going to add that in. This two are anti viral. Also olive leaf is anti viral...going to try that too. I know this is a lot from me, but I am trying to cure myself.
One thing I do have are the positive test results. I am going to do another antibody test in April, if it is positive, I am filing for unemployment and disability. I am not working now, but it would be impossible to work if I tried to.
I have been having issues with long covid since mid november. It is now almost April.....ugh. I went in for anti body blood test, came back positive for antibody and active for virus....doc said I probably got a different strain. Main issues are the fatigue and the arthritic pain in hands. Can’t drink even a little or it brings up all the fatigue into next day. I think my bp is high. Head feels weird....sometimes it smells like burning. Sunbathing helps.
Any significant biomarkers I get I will share in future videos. At the moment I don't have access to testing but will get a good look over at some point this year.
I had covid in March 2020 I developed a rash more recently, throat sore especially in the evenings ...I think your body reacts for quite a while afterwards but now I’m dreading hay fever season as I suspect that will exaggerate the symptoms that still persist ! I have no proof I had it and I too I had glandular fever years ago! Your story is very similar.
Hey thank you for sharing this and taking the time to document it all. I’ve been a COVID nerd since all this started so some of the basics I knew but many of your details were new to me. I can tell how hard it’s been so it was nice here and there to see you smile.
I ordered in May, received in November. Asked for plain neutrals, got 2 white and 1 navy plain long sleeve tops. I will wear 2 of them but they are absolutely not worth £35’ let alone £70. I don’t think this scheme is genuine.
I'm very interested to see their "report" when it's published. I guess it shouldn't be such a surprise that this band aid approach to fast fashion wouldn't be sustainable or ultimately beneficial :/
I'm so sorry your going through this. I had a auto immune reaction to a medical device called Essure. I've had ME/CFS. Low dose naltrexone which is an immune modulator has helped me and a lot of other people with a ton of autoimmune diseases. I was bedridden prior to using it. Also From Fatigue to Fantastic by Dr Teitelbaum might have some helpful information also. Just keep trying to get better. And yes you are right about trying different things.
I haven't tried LDN yet but used Tietlebaums methods years ago when I was first figuring out my ME/CFS. I've been a patient of the integrative medicine clinic The Optimum Health Clinic for 10 years. I never stop trying :)
I managed to get a refund after three months of waiting. Judging from what has happened since, and the parcels I've seen people get, I'm glad I did! I'm sticking with giving directly to charity.
Good choice! If I was purely a consumer I would have done the same but I purchased with the intention of seeing and sharing the process here on my channel - SO HOPEFULLY my sharing of it will prevent more people from actually purchasing! Thanks for coming by!
I'm sorry to hear of your long lasting symptoms. This is what everyone needs to hear. I'm going to send this to some friends to wake up their brains. I'm 70 and have become a professional hermit/recluse.
Thank you James - Unfortunately even people being hospitalised with Covid will STILL believe it is a hoax sometimes!! It really is nasty. Hang in there, I've been quite a hermit for a long time due to my chronic illness too and it's not easy. Take care.
Interesting! Not surprising though , It certainly would exacerbate my ME previously but I was on the mini pill for 3 years which eliminated my cycle exacerbations. Hope you're doing ok xx
@@LE-iw3pe The menstrual cycle uses up a lot of energy, and healing takes up a lot of energy, so we just have less energy to deal with immune responses during menstruation. Requires much more rest and self care during that time!
Thank you so much for your efforts to share your experience and insights.I have had a similar covid journey to you,coming up to 6 months off work. Up and down at a very very low baseline. I too am slowly dropping out more and more energy drains to try to regulate my emotions more. But still.spending most of most days in bed.take care x
Thank you so very much for this Jenny. Without a doubt the most helpful thing I’ve watched so far on Long Covid ( and believe me like all L.C. patients I’ve watched a lot!) This was positive, honest and inspirational. I hope your house move goes well.
Tested positive for covid 19 end of April no cough or temperature woke up in middle of the night pins and needles all over body lose bowels burning in chest loss of taste and smell loss of appetite now end of August still on going symptoms pins and needles in hands and feet burning sensation in back and arms tingerly burning tongue constant rinning in ears feeling nauseous heart palpitations fast heart rate congestion in head constant blocked nose been er 3 times been back and forth to gp had full blood test was difficient in vitamin d low calcium and b12 been taking supplements now my blood test is normal but still having all the symptons can anyone help
So this is my testimony about getting back into the church after 10 years of being out of it. For awhile I was an atheist and then an agnostic, however, God delivered me out of a difficult and strange period of my life that left me without doubt of His existence and goodness. It's a bit of a long read, so bear with me. A couple weeks into February of 2018 I experienced some dreams of a strange nature during a time where I was isolated, depressed, and desperate. I've dealt with anxiety and depression for along time and I was at the end of my rope. I had considered seriously commiting suicide two years ago and when the depression hit this time I couldn't take it anymore. I was searching desperately for something that would allow me to leave the situation I was in. I was addicted to gaming and was very isolated. I also fell heavily into a series of books I was re-reading at the time that I had a great obsession with, The Dark Tower series by Stephen King. A few months into a reread of this series I had a dreams in February 2018 one of which I think was prophetic, having to do with seeing a woman and man in the dream that I later saw the next day while walking and while watching TV. This was a man and woman that I hadn't met or seen before.There were also aspects of the dreams (which I can't easily get into because it's difficult to explain due to the content) that led me to believe that The Dark Tower series having to do with parallel universes was real. I became convinced that there was a world parallel to ours, like the books, that I could gain access to if I used certain objects that I had in my possession . After weird events also began occuring in my home, with my television, and with me, I told my parents about all of it. They were adamant that what I was experiencing was demonic deception and that I should cease reading these books and give myself over to God. Being stubborn and delusional I decided to continue in what I thought was a great discovery and a way out of my situation. Events transpired over the next few days that left me in a state of confusion and despair. My father also ended up in the hospital that week. It wasn't until I began to cry out to Jesus that things began to change. I began to hear from God during this time. I felt like I should rid myself of the books as well as the stuff I had gathered connected to them. I eventually ended up getting rid of all the books and objects connected to them, as well as a lot of other stuff including my games. We were doing some work in my room at the time so luckily I had something to help keep my mind off what had been happening as well as grow in the word from listening to 107.9 on my radio. When we finally returned to church a couple weeks later the sermon and series was about the book of Daniel, some of which has to do with prophetic dreams and visions among other things. I know now that this wasn't a coincidence. Once I started getting involved in the church again and reading the Bible I found out that these things really aren't as uncommon or unbelievable as they seem. My mens bible study at the time had members that had experienced supernatural and amazing things as well. I know this isn't going to sound credible if you aren't a Christian. Back when I didn't believe, these stories didn't seem compelling or true to me. However I can tell you that if you reach out to God wholeheartedly he will reveal himself to you. I'd like to ask that if you're going through something right now, some kind of challenge or difficulty that you reach out to God and ask him to help you. Sometimes it may not seem like anything is happening, but if you're willing to hold on and push through you can see him move in your situation in miraculous ways. Here's more about the Gospel here: www.tvcresources.net/resource-library/articles/the-gospel-of-jesus-christ If any of you would like to receive or feel led to receive Jesus Christ as your saviour pray this and believe it with all your heart. Dear God, I know that I am a sinner and there is nothing that I can do to save myself. I confess my complete helplessness to forgive my own sin or to work my way to heaven. At this moment I trust Christ alone as the One who bore my sin when He died on the cross. I believe that He did all that will ever be necessary for me to stand in your holy presence. I thank you that Christ was raised from the dead as a guarantee of my own resurrection. As best as I can, I now transfer my trust to Him. I am grateful that He has promised to receive me despite my many sins and failures. Father, I take you at your word. I thank you that I can face death now that you are my Savior. Thank you for the assurance that you will walk with me through the deep valley. Thank you for hearing this prayer. In Jesus’ Name. Amen. Good luck and may God bless you! And remember satan is a spirit of fear.
Hi Nick - Not sure what prompted you to attend to me with this comment - I don't live or work in a spirit of fear and just because I play with novelty boxes doesn't mean I don't have a relationship to God on my own. But thanks and best of luck to you on your journey.
Glad you found your happiness, please enjoy your life and all that you do! Please let others do the same in a way that feels most comfortable to them 😊
Thank you so much, just found you today, we share the same COVID birthday first week in March - 6 month anniversary fast approaching. Just watched all your vids, so many of your experiences were mine too. Look after yourself and don't underestimate how much you have helped others.
Omygoodness what a priceless comment thank you so much - I have found it so helpful to connect with others having the same experience and knowing it's being received by others just makes it all worth it! Take good care - rest easy big hugs xx
Thanks but after 14 years chronic illness I've had my fair share of supplement/diet experiments - I'm an expert on it myself LOL! Hope her work helps you though xx
This is something new because based on what I've learned that RNA viruses not causing chronic condition. Best wishes for your full recovery! Have you been tested for bacterial infection?
Thanks for the support - I was tested for bacterial infection for my UTI but nothing came up as I said in the video. There isn't much testing or experimentation being done at all in the UK for "mild" patients, usually only severe or hospitalised patients, but hopefully we can see that "mild" is quite serious.
