I got this condition from extraordinarily long and calcified styloid and stylohyoid processes. Those suckers started touching the C8 nerve root after revision surgery on cervical fusion. Six weeks after cervical fusion revision, the pain started. The same surgery also paralyzed one vocal cord so things were a mess in there. However, I learned that Eagles Syndrome can be so long as to cause GPN. So, shouldn’t treatment for GPM include ruling out Eagles Syndrome and of any evidence of said elongation or calcification, perform the resection? mVD was never offered to me and I had to see 6 surgeons to find the head of the med school vocal cord center willing to get into my neck and help me. We times that repair with several procedures used to help restore my voice.
The doctor was only able to remove 80% of the tumor with a posible second operation. My question is will I be able to recover my lost side vision? I would be thankful if you reply please, thank you
@@manuelsalgado8510 its individual, depends how bad is brain cell and optic nerve damage was during surgery. The problem is that surgen dont care, his job remove tumor and thats it, they dont sugest anything for recovery. My mum had 4 times liqor nasal leak, she nearly died. Her left eye did not open at all 2 weeks after this nightmare due to optic nerve and eye muscule damage (surgeon will never admit mistakes), she lost left eye vision permanently from 0.8 to 0.1 due to surgery damages. Its 2 years later nothing recovers as was promised, no hormons either, pill replacement that distroy bone. We did try vitamin b group, and peptide ingections-it worked only on healthy eye, left eye which was damaged never got bk. Our endocrinologist said that most people leave with disability for life after such surgeries, rare case of recovery, almost none. God bless you, stay strong, we have to cherish life as it is.
Respected doctor , I need your help My father has been suffering from Craniopharyngioma I m completely panic I have no way to go through please do treatment of father
Oh no guys, sorry to hear the different stories. I was diagnosed with adenoma and had surgery February 2022, was successful at first but now it’s growing back May 2024. Nit sure what to do. Everything is out of control at this moment. I really want to go natural and see if that will work. Wish me luck..
@@rakrakbero2987 so at this point we don’t know. Our Pituitary has a way of doing its own thing, however we need to do some controlling. Have to completely change your diet. You have to fight back. I’m trying to do the same but it’s not easy. I don’t want to do another surgery. You have to check your IGF-1 and your ACTH level
It has been over 20 yrs since my first diagnosis. Botox was offered at the time, I chose to not do that. The nerve damage is a lot worse now. I continue to live on with it. I do not have health insurance any longer. Some days are good others not so good.
Thank you for your excellent explanation. Very precise and factual but at the same time your voice is very calm and reassuring. I live in the UK so I’m sorry you can’t be my surgeon.
Sir 2 years back i had l3 tumor surgery... That point of time noticed 4.5 mm in S1. It was under observation. Again yesterday... Did the MRI. Report says l4, d12 two places tumors, it is Shwanwmas. and S1 is stable.. Your further suggestion is welcome. Thank you.
The WHO, in 2000 said the number of Grade 2 meningiomas was 5%, in 2016 changed it to 32%. Grade 2 are “atypical“, not really benign because they eventually return and more aggressively. Don’t gaslight patients’ concern about the threat to their survival. I’ve been through this.
Yes, complications such nasal liqor leak is life threat, and meningites infection is often case. My mum disabled for life, no recovery years after surgery.
Good evening Aaron. My wife had a stereotactic biopsy today. I wish I had access to your video earlier. Much of what you shared, I had to research myself to have a holistic picture of the process. Thanks for all the information shared. It empower me to ask good and pertinent questions as my wife complete this journey. Kind regards Claud
Because I have these, plus a left hemisphere deep hypothalamus tumor my "team" just gives me meds. No solutions. The capillary hemangiomas keep bleeding making me worse. Any advice?
Thank you for the information. I was diagnosed with an acoustic neuroma that was 7 mm. I had sudden complets hearing loss. after 2 months my balance problems became extreme amd with testing it showed i lost 80% of my vestibular nerve function. The worst symptoms that has impacted my life are fatigue and cognitive dysfunction. I get alot of neurofatigue. Thpugh small it has had a huge impact on my life. I wish the Dr.s would also mention these symptoms, i know they are just now recognizing and studying the cognitive effects.
I experienced sudden unilateral sensorineural hearing loss. One of the further steps ordered by the ENT is MRI with contrast. The contrast used is gadolinium. I really do NOT want to have this. Is there some other objective measure to scan the brain for stroke, acoustic neuroma etc? Less likely to produce lasting complications? Thamk you!
Sir, I am from India. Diagnosed with AN. Have severe balance problems only. No hearing problem at any others . Have to use a rollator outdoors. I want to know what will be the outcome on balance issues post surgery. Thanks.
Happy thanks giving Dr Cohen. From all your friends and fans here in India. We follow you rigorously in your endeavour. A small request so that our next thanksgiving is fruitful, maybe thinking of a special rate for membership to the neurosurgical atlas for us in south east Asia would be a blessing for us here.
Happy Thanksgiving Dear Aaron, you have very poor surgical skills in the domain of your wife so kindly keep yourself limited to the human Brain.Hahahaha Be blessed Always
Hello Doctor, Thank you so much for sharing information about Hemi facial! I had the MVD surgery about 5 weeks ago, and my spasms have subsided about 75%. I am just curious if the Teflon was placed and it got separated the nerve from touching the blood vessels, why there are still residual spasms after surgery? Could you explain little bit about it? Thank you!
My father has been suffering with this for almost 3 years. Getting worse. Affecting his sight. He has tried medication and Botox. Helped just a little bit. We live in Nashville TN. So you recommend a Doctor in this area? Would appreciate your feedback.
Hello my mom was diagnose with a macro pituitary tumor size of an egg… she lost part of her left vision and all her bison form the right eye due to the tumor pushing her optic nerve… she was refer to Thomas L Beaumont from San Diego CA… (Jacobs medical center) … within 4 weeks the surgery through the nose was perform and nowadays she is back home and instantly regain most of her vision.
Thank you for sharing your mother’s medical diagnosis which is similar to my present situation. I was recently sent for a brain MRI w/o contrast media for a visual impairment. The results showed a pituitary tumor resting on the optic nerve and now I am undergoing more test including extensive pituitary MRI and blood work. God Bless you for sharing encouraging results from your mother’s outcome. MJ Abraham
you dont need all those symptoms to have cushings. i don't have the stretch marks or hump but all the skin and internal symptoms as well as the extra medical problems. good luck finding a doctor that even wants to help, im heading to the states and if no doctor helps i will probably die i'm too far in now.
