thanks for the video. i had mri 2 days ago which showed i have some whote matters but they not active and when you mentioned stomach problems could cause it i was kinda relife. i suffer ulcer and gastritis for last 10 years and im eating badly and my stomach always hurt. hope you doing okay nowadays.
I have MS use canes to walk I had to have my shoe on my left shoe. I got lucky. For 37 years. I never said the word never thought about it. I've been going to the doctor and saying all of the symptoms I had still didn't thnk about MS I Had terrible migraine. I had an MRI just recently. They said you have MS. Yes I do. now I am 82 years old.. so I'm hoping I'll get better.. I can't get to a doctor to treat my Ms until the 21st of June . I have glaucoma. Never gave it a thought. Why my eyesight is getting so I'm blind in the right eye. left eye is not much better.. I get cramps in my legs. Having a little trouble walking. 10 times I feel like things are crawling on me and I go to rub it down and there's nothing there. So thank you for your tape I enjoyed watching you. I didn't know migraines had anything to do with Ms but it said on the MRI . It does. So thank you very much. I would like to hear from you again
I’ve been diagnosed with fibromyalgia, which has a lot of weird similar symptoms, for close to 20-25 yrs. Now after MRI I’m going to neurologist. It won’t surprise me. But my husband used to find it off putting that I wake up and then have to lay down or have days of needing especially since he is still working to lay down . We are both 64. And sometimes the mere thought of taking a shower sometimes is just overwhelming! I am on disability for my fibromyalgia.I commend your family for helping you
Thanks for the props 😂❤ and for bravely sharing your story! You are adorable! My mother had MS. It’s so important what you shared that mom’s need to tune into their bodies and needs instead of putting themselves on the back burner. We honestly needs billboards that say “A Ladies Night Out is not self care”
Ha! I always know when someone has watched the whole thing from the props comment😆🤍 and I can not agree more - A ladies night out is no self care! I am still not perfect at this, and have to be VERY intentional about out it. Thank you for watching 🤍
Thank you for this video. There is no need to apologize for anything. I appreciate you taking the time to give all of the details. A family member of mine is currently in the hospital. MRI results came back with lesions on the spine. Spinal tap is tomorrow. Thanks again for sharing your experience.
The flu vaccine crippled my dad. He took it about 12 years ago. The covid vaccine is something you really need to educate yourself about because it causes the very same symptoms you are having and others. It's because the wrong people have their hands in our medical system.
At 5 years old. I contacted poliomyelitis and encephalitis. I'm 75 now. And am glad I slipped by so many problems with my body. I thought P and E were quite enough. Then came numerous complications from those things. I guess age cures a lot.
I'm so sorry this has struck you strong. Your cavalierness is scary as, as a woman, you don't take care of yourself. BTW, I've had MS for 24 years..I've seen it all. Take care of yourself; if you don't like your care, go somewhere else.
🏡. Hello Cassie, I've listened to your story . I believe every word you're saying * I've cried all the way through your testimony 💔. I too , have something going on . Please Never Apologize for again for Speaking Truth ! I am so appreciative and honored to see you, hear you voicing your GOOD, BAD & UGLY. HAS BLESSED US ALL ,❤.. I've had everytjing tested , scanned and my words were left , not adressed , And I am here. ... ( 10- 20 years later ) finding regeneration of lesions in the occipatal part of my brain from 2 tramatic car accidents that were never examined in the E.D. no empathy ,nor compassion shown towards me 💔 . My 1st neuro appt. was 3 months away .My primary M.D. just wrote to exam for muscle weakness ( like you said ; LISTENING EARS ? I too called the office amd reported my true symptoms ! I had appt. In One (1) week after I caled. Head to Toe scan after blood drawn. Complete cardiac work up and U.S . Bone marrow Biopsy all completed very quickly and I had to have withon 1 (one ). Week . My livet was terrible ! I go to a wonderful cancer care center for a transfusion l I have precursors to bone cancer . So , I wait .... My hesrt ❤ is on your side Thank you for helping me lift my voice and cry out softly and sweetly 🕯️. I want life ! But my pain is extreme so I keep Moving . I don't lay awake and Worry Because I KNOW GOD IS IN CONTROL.....💫. We have to just BREATHE... BEING YOUR BEAUTIFUL SELF Cassie 🗒️🕯️ MAY HAVE SAVED ANOTHER BEAUTIFUL PERSON TODAY 37:19 WITH " YOUR S 37:19 TORY *.
I am now 64 and I have through the years (many) suffered… I have had bloodwork done through the years…I asked to be tested for Lyme and West Nile but they refused…(until recently I did test for West Nile)…. Talking about so many symptoms and bizarre symptoms as well… I am now down to thinking MS… most everything you’ve said… I have been through and still going through… to the point of pure collapse….so I now know that an MRI is needed…I am glad I came across this video… thanks.. I don’t feel like I’m losing my mind…
The disease with a 1000 faces as the doktors here in Denmark says. I have had MS for more than 50 year, and only known about it for 30 years. I’m 68 years Old. Doctors where reluctan to give incurable diseases/diagnoses back then. Yes, Women ned to pay attention to their own Health!!!!!! SO I have foght MS my entire life and Will fight on. Life is beatyfull!!!! Remember: Your are stronger than You Think. Excuse my English! I know - the spelling is bad….🇩🇰
You didn't mention how relapses are treated. Or did I miss it? Or don't they use IV Solu Medrol or oral steroids anymore to try to stop the relapse in order to prevent severe or permanent damage to the myelin & nerve? I thought it was still protocol for treatment of MS exacerbation/relapse.
I’ve just started my journey with a neurologist, due to an MRI from my endocrinologist said I have changes in my brain and needed to go to one..I literally have all the symptoms, so I don’t know what the future brings..I’ve been to many doctors about different things and them saying nothing is wrong, just normal..guessing about things and I take 28 medications and needing to added other prescriptions…this has been going on for 10 years..im very nervous for them saying nothing is wrong 😢
Stacy that is really hard. I hope you get some much needed answers and maybe can begin a treatment path that allows you to decrease the amount of meds you have to take if they start treating the actual cause. Thinking of you❤️
@@cassieski8005 I truly appreciate your words and I am glad I found your videos, even if they were 5 years ago…I can relate to every symptom you have and more..your videos are so informative and I want to thank you for them 🫶🏻🥰 oh and Happy Mothers Day
Thank you for sharing! I feel very similar to your story (super claustrophobic) except long story short I did have brain lessions but also a large tumor. Underwent major brain surgery last July and removed all of it. Scans every 6 months for 2 years. Then 1 per year however, also have to do cervical, thoracic and lunbar scans. So MRI machine and are forced friends so to speak. I am waiting for lumbar puncture at year mark after surgery and hope I can get some answers. I have stenosis, DDD and bone spurs that make lying flat excruciating not to mention the claustrophobia. So sorry you had bad hospital staff as it makes a difference. Can't wait to see your next video and praying for you! 😊
Hi Cassie, Thank you so much for sharing your story! I have watched many MS diagnosis stories, but yours is the best one I've heard. I have had very weird, seemingly unrelated symptoms for several decades now, but in the past 2 years, my health has declined drastically. I feel absolutely horrible every day! The most debilitating symptoms are numbness, weakness, and pain in my feet and legs, and unrelenting fatigue. In 2 years' time, I have been tested for everything under the sun with all kinds of blood work, with everything coming out "fine". At my insistence, I asked to see a neurologist last year, which was a disappointing and unfruitful experience. He asked me a bunch of questions, did a basic exam, and did testing by sticking needles in my muscles with an electrical current (can't remember what it's called?). At the end of the appointment, he said "you have neuropathy, and I can prescribe drugs for that". I already knew I had neuropathy, that was pretty obvious! But what is causing it is the question? He said come back in 2 months, but I never went back, and I never took the medication. I have spent so much money and time trying to find out what's wrong with me, and I'm disgusted with the "medical system". No one takes me seriously, and no one cares enough to really try to figure out what is wrong. I've been to primary care doctors, the ER, naturopaths, chiropractors, you name it! I'm losing hope, and getting more scared every day, as I continue to get worse.
Christine-my heart goes out to you! I was lucky to have someone listen to me, YOU know when something is wrong. Now, of course I don’t know if you have MS, but I would be darn suspicious and want to get in the hands of a good clinician. I need to do an video update, but I have since moves from MT to IN. I am SO lucky to be able to see Dr. Boster in Ohio. Where are you located? He can facilitate some telemed, and some people travel to see him. Worth a consult to see of you can get some answers. Thinking of you and thank you for the kind feedback.
@@cassieski8005 Thank you for your reply, Cassie! You're right, I definitely know something is wrong. I have a gut feeling it is MS, I have thought this for a while, but I can't get anyone to take me seriously. I think it is because I LOOK so healthy (which I am otherwise, except for my debilitating symptoms). People often go by looks alone, including doctors. It's so interesting that you mentioned Dr. Boster. I actually just this morning discovered his channels, and have watched several videos, and seen his website! I live in CA, so it's probably not feasible to go see him. Also I have an HMO plan, which limits the doctors I can see. I have a new primary care, who is a nurse practitioner, and I am going to push to be referred to a new neurologist. I want to have a brain MRI, to see if I have any lesions. My previous neurologist didn't bother to have an MRI done for me. 😒 Thank you so much Cassie, and I wish you good health on your journey 😊
@@christinelamb1167 look up themsmd on instagram (Marwa Kaisey) she is at Cedar S. and specializes in MS and mimicking diagnosis as well. She is amazing, and can do virtual consultations as well. (Apologies if I spelled her name wrong, at my son’s rugby game and going off memory💗).
Hi sweet girl! I am diagnosed with RRMS from 1998 and a never drink medicine for that , but now after 2 dose of vaccine things get worse! Coincidence? Maybe!!! Do you take any medication! Thanks
Lawrence here I've got Multiple Sclerosis too and I've found Dr.Balugon from Nigeria who can fix the damage that MS has done to our bodies for only 300 CAD shipping included I'm from your friendly neighbors to the North heard u saying that you were from Montana US
Glad I found this. Have had symptoms for yrs but ofc other things were ruled out for the last 2 yrs. Nuerosurgeon finally said surgery isn't gonna fix you, I think you have MS, he wrote up a STAT referral to a neurologist and said I'll hear from them within the week for brain scans and spinal tap.
You know what, I know what you are saying! Hard to describe isn’t it! I actually experience something similar if I work out too long or too hard. It definitely feels heat induced (core temp), and turns to a tightening feeling around my scalp and then like flames at the sides of my head. Fun stuff 😉
I can check again, I want to say between 22-27 or lower😬I still struggle to maintain VitD levels despite supplementation, it takes a lot of effort and consistency for me.
Hello my daughter was diagnosed with MS in 2020 at the age of 16. She is now in a study and is getting Rituximab infusions 2 times a year and has been flare up free now for 1 1/2 years. This is a study but maybe worth looking I to if this would be an option for you. I love your videos , and watch them with my daughter all the time.
Awe, I love that you watch them together. I am sorry she was diagnosed so young, but glad she is receiving treatment. I have switched therapies in the last year, and do need to post an update video! I appreciate everyone still hanging around with me🤍
Of course it is possible. Everybody is different. Listen to YOUR body, NOT stupid doctors. If the doctors are NOT well educated in MS, or are consulting with medical students, WATCH OUT!!! Real MS neurologists do NOT consult with medical students. Medical students consult with doctors. I knew something stank, and when I mentioned this to an extremely well educated pain management doctor, he told me the same thing. He said that no legitimate neurologist would consult with medical students. Fortunately, I ended up NOT needing pain management because the herbs I took got rid of my struvite kidney stone, which was extremely painful, and yet another symptom of MS.
