A day in the life living with diseases & disabilities! This is our personal journey living with debilitating health issues, showing our struggles, sharing our diseases, and exploring handicap accessible places along the way. Angie battles the MS MonSter & many more medical problems. Mr. Bean fights Eosiniphilic Esophagitis with other health challenges. Vlogging our journey to share with the world that despite our medical issues, we can still find adventure. Roll along with us & enjoy the ride as we take you on adventures into our everyday married life! Angie's mission statement: Is to raise awareness about living with an MS disability. I want to take an ordinary day and make it an extraordinary adventure to help all of us TO NOT GIVE UP. Come Roll along with us by subscribing. I'm a ☢"work in progress" needing lots of support. You can offer support by forging ahead with me as we walk 🚸 this new journey together! Come be apart of it and let's see how far we can go together!
Well, I have beaten MAC Disease, now had the Whiffel Surgery and 3 months in the Hospital and almost a year of Chemotherapy for Pancreatic Cancer and I MADE IT! 74 years old So hang in there and enjoy life.
Positive energy to you, keep on riding and don’t give in to MS. How fast is a trike? Mostly depends on the rider. Type of trike also influences speed. For me on my Catrike Dumont I can cruise all day around 17, 18 mph. I can push it to 30 mph, for a short sprint. To me, riding a trike takes about the same effect as riding a mountain bike with street tires. On a Catrike 700, their racing trike, I clocked out at 32.8mph, it’s a lot of fun but it’s also a harsh ride. I much prefer the Dumont with its full suspension, is much easier on my body. (Sorry I sound like a commercial, but I really really like this trike. Age and old injuries coming back to haunt me put me off biking. This trike gave me back the joy of riding without pain.) One more thing 23mph is a respectable speed, well done.
Thank you for sharing this!!! I hope you’re doing ok! I am starting Kesimpta in a few weeks. Your video has really helped me with nervousness about it. Thanks again and all the best
The biggest thing I noticed was WAY LESS fatigue. I got about 2 good weeks of feeling so good. And I loved it. No longer on it but, I think you'll love it.
@@adventureswithdisabilities great news thanks so much!! Looking forward to feeling somewhat better. Why don't you take it anymore? If I'm not being too nosy
@florencehorde5549 I had an issue with it depleting all my B cells and I was constantly getting infections. It can happen but, it's not something I'd worry about. Just make sure they monitor your B cells while on K.
you are so lovely! I recently got diagnosed with RRMS, and going through the motions of what next steps look like :( this video really helped so thank you <3
I went back to this video a second time just to hear your talk about overcoming your disease. I am a healthy old man of 77. You are a great motivation to anyone, no matter what their health status is. Thank you so much for sharing your determination. Wishing you only the best always.
No, it's better than tecfidera! Take some extra strength tylenol about one hour before injection and go to bed. You'll sleep through all the flu like stuff.
Bravo! Keep ride! This is precisely what recumbents were designed for to keep people riding and exercising who otherwise couldn't. Stop worrying about how fast you're moving and just enjoy the feeling. Ride safe.
I too struggled with MS.. Ms as you kno, is when the melanin sheath (the electrical insulators on the brain nerves breaks down causing short). I started using CamelinaGold Oil, after they researched at UofIdaho and UofWashington, they discovered it has a 2:1 ratio of Oleic:Erucic acid.. that halts the demyelination of the nerves in the brain, And it did something they didn't expect, it mimicked the Myelin sheath. molecular mimicry. Before i started, i had 4 @ 6mm lesions on the brain, and a lot of sheath breakdown.. a year of use and the MRI and the lumbar puncture revealed that my lesions were completely gone and the sheath and no sign of protein in the spinal fluid. "Appeared to be repairing it's self" doctors could not explain it and had no interest in pursuing this as treatment or the bigC word. LOL... as an adult 150lbs, i took 2 tbsp each day for a year.based on the studies. I now only take 1 tbsp a month to maintain.. I had to call and ask for the research teams researchiing camelina oil for MS... The results are not yet available for search on the internet.. You have to call.. I too ride a recumbent for exercise.. :)
My husband and I don’t have that much medication but we both have diseases too. I have MS and he’s a double organ transplant patient from having CKD and type 1 diabetes for 37 years. I just got dx with RMS two months ago, and I think you’re the absolute best channel I’ve found cause you’re so positive and sweet ❤Like I really wanna meet and know you! 😅
Lol I’m on Kesimpta myself, unfortunately Aubagio sent me to the cane life but luckily no wheelchair thanks to Kesimpta. Sending u love 🧡 I hope you’re still doing good 🙏🏼
Well, I can't complain this time at least. I haven't gotten sick luckily. I loaded in during the summer, 1st loading shot sucked bad. But this month is my 3rd maintenance dose, on the 18th. I'm hoping this is the one because these are really convenient. Especially when you live by yourself.
Love your video! I made the scene you saw at the beginning that you couldn't figure out, it's based on the classic French children's book The Little Prince by Antoine de Saint Exupery and inspired by the visuals of the Netflix Little Prince movie too 😊 (we used the music from the movie as well, it's a cute adaptation) It's an older book but it's really good and if I remember right it still holds the record for being the children's book that has been translated into the most languages in the world.
I just wanted to say I am so inspired by your attitude! I really needed this. I was just diagnosed with RRMS in June. I am going to be taking my first kesimpta shot on Friday & I'm really nervous because I also struggle with side effects for any meds I've taken for anything really. Thank you so much for your kindness, bravery, & positivity. I means more than you know! I sincerely look up to you so much & hope to be more like you! Thank you for your extraordinary example! I look forward to watching more of your content & wish you all the best 🙏💜
I am doing well with it actually. I did VERY sick during the loading period but have been doing well since. Thank you so much for asking & I hope you are doing well 🧡🙏
I don’t see, with videos about recumbent trikes, large, tall, highly visible flags. I’m concerned about that for safety. I don’t see if there’s any possible way to take the trike on a train, either Amtrak or urban. Can the trike be folded and placed in a box to go on a train as baggage?
Maybe it doesn't show it very good but, we have really tall flags on our recumbents. Yes, you can buy recumbents that our foldable. One of ours does fold down for easy storage!
So beautiful out there! I would love to visit a lavender farm!!! I love the testimony shared! Heavenly Father definitely Does have a plan for everyone! 🤩
When it gets hot here in the summer, that asphalt can be 100 degrees and that could burn her pads. She has a double coat and struggles with the heat. We also bicycle up to 30 miles here so, it wouldn't be good for her to run the whole time we cycle. When she gets tired she can get in it and rest. That should be common knowledge but,I guess not.
Great vid, my friend! It's so important to keep moving. All of the old farmers around here say the same thing. 'You have to kepp moving. The day you you stop moving , is the day you start dying"
