The Center to Advance Palliative Care (CAPC) is the nation’s leading resource for palliative care development and growth. As a national, member-based organization, we provide hospitals, health systems, hospices, payers and other healthcare organizations with the tools, training, technical assistance and metrics needed to support successful implementation and integration of palliative care.
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Sorry to comment here four years late but I'm having a hard time reaching anyone who might furnish a link to the excellent coverage of Chef Jose Andres and World Central Kitchen by BBC last night. Those "sponsored by" messages on the local Public TV station are embedded in my memory so perhaps someone at this link can direct me to the right place. (Incidentally, as a former caregiver with Home Instead I enthusiastically support palliative care so I'm already in that club.) Thanks for any help you might give. I'm not given to conspiracies but something tells me that last night's report is being suppressed.
Nice video. As the patient in Palliative care, I experienced absolutely none of this. I grapple every day about the value of palliative care except for my access to morphine. I feel like I have to play along at every visit to get my pain meds and not be seen as a difficult patient. I know palliative care and hospice care can be a lot better than what I am getting but it just doesn't seem to be available in my area. I hate every single visit to my care provider. 😢
America really needs to be more inclusive and equal. Like all these really rich health professionals need to distribute their monthly wages to all their poor customers..oops i mean patients 👍
Dr. Meier, I'm a chaplain who heard your wisdom, guidance, passion for palliative care at the last CAPC conference and continues to be led and inspired by you. So often I go back to read my notes from your talks, I'm so very thankful for your life's work.
So inspiring. Diane Meier is a champion for palliative care and her work will live in history. So honored to have met Diane.Thank you for the sacrifices and tremendous leadership. I am looking forward to the next chapter with Brynn serving in her new role.
Thank you for this discussion, Dr. Bullock! Well-worth watching and rewatching. Here is the direct link to the video shared at the end: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-YrHIQIO_bdQ.html
What a pleasant surprise, seeing you in youtube, Dr. Lynn. Each year I take my flute group around the Palliative Station in Herne, Germany and we play two concerts/year benefiting the station.
Here you go Julie - Electronic POLST Form FAQ polst.org/wp-content/uploads/2020/04/2020.04.01-National-POLST-Electronic-FAQ.pdf - Mortgage Brokers Association: Remote Notarization Map www.mba.org/audience/state-legislative-and-regulatory-resource-center/remote-online-notarization - National Notary Association: Notary Bulletin on Remote Notarization www.nationalnotary.org/notary-bulletin/blog/2020/03/states-emergency-action-remote-notarization - NOLO.com Article www.nolo.com/legal-encyclopedia/notarizing-and-witnessing-legal-documents-during-the-coronavirus-crisis.html - New York Times Article www.nytimes.com/article/what-is-a-will-and-how-to-make-one.html - National POLST Paradigm COVID-19 Resources polst.org/covid/ - National Notary Association Blog, Notary Bulletin, on COVID-19 www.nationalnotary.org/notary-bulletin/blog/covid-19 - State Unites on Aging acl.gov/programs/aging-and-disability-networks/state-units-aging - State Departments of Health www.cdc.gov/publichealthgateway/healthdirectories/healthdepartments.html - National POLST Paradigm polst.org/professionals-page/?pro=1 - ABA Commission on Law and Aging Resources www.americanbar.org/groups/law_aging/resources/
Not all palliative care patients have cancer! When will this issue be addressed? Many of us have serious, degenerative, chronic conditions that can no longer be handled by pain management. We were born with these conditions: Ehlers-danlos Syndrome, Chiari Malformation, and many other illnesses. Our pain is just as great as a cancer patients, but we're denied care! Why???
How can we help people to achieve what give their life meaning? A good partnership and acceptance that people are the captain on their ships of their life, and compassion that acting on behalf of other's welfare can possibly get us to be effective on the helping role.
Great Video. Simple, concise, and informative. I would love to know more about how other positions within a palliative care team (those other than doctors) fit into the treatment of individuals facing serious or chronic illness. I would be interested in hearing about the roles social workers, nurses, pharmacists, and chaplains can play within palliative care. Links to further resources appreciated.
