Encouraging news .

Thank you..our grand daughter as been diagnosed at ,13 yrs

Thank you for your story. I am 55 and I have yet to be confirmed with LOPD. I recently been told I have a pathogenic homogeneous variant of the GAA disease. I have muscle pain. Yet, waiting on further tests.

تحياتي العيله الجميله اتمنى لك التوفيق والنجاح أنا صديقه جديده في انتظارك احلى لايك 👍

Can i know how about now nate? Still treating?

Thank you so much for sharing your experience with Pompe's Disease. I was previously unaware it existed. Bailyn and Thomas are precious, happy boys with loving, supportive parents.

Thank you, very informative.