Dr Hawkins talks about grief and loss, and how to discuss with younger children, as part of our series on losing a child to Pompe.
A diagnosis of Infantile Onset Pompe Disease is not always a terminal diagnosis. There are many factors that affect outcomes, such as early diagnosis and early access to treatment.
Sadly we have families here in Australia that have lost a child to Pompe. Dr Sue Hawkins talks to Nate’s family about the emotional impact on their family and the strategies to cope.
Dr Sue Hawkins has qualifications in genetic counselling and has worked closely with many genetic support groups. She has also counselled people dealing with the issues associated with a wide range of genetic conditions.
15 сен 2024
