The Gynecologic Cancer Initiative accelerates transformative research on prevention, detection, treatment and survivorship of gynecologic cancers to reduce the incidence, death and suffering by 50% by 2034. We are a province-wide research excellence cluster located in British Columbia, comprised of researchers, physicians, trainees and patient partners across the province.
The fact that you use the term "brave woman" is disrespectful. It's nothing rare at all or should it have to begin with "A" which implies that it's a feat to say,
I have a 7.5 cm mass that has been diagnosed as a reoccurring Berlin cyst. I’ve had two marsipuplizations and both times it came back within a month. This time I’ve let it go for three years as it wasn’t causing any pain just discomfort. It wasn’t until I learned about vulvar cancer that I became worried and went to my gynecologist. He immediately said it’s a Bartholin cyst, and will do another marsupialization July15th or a complete gland, removal, depending how it goes when he’s in there. i’m terrified of being misdiagnosed as his reason for thinking it’s not cancer was because I’m not yet 50. I am 47 in June! I feel doctors don’t take you serious and this could ultimately be serious. I had a hysterectomy at 27 so never went for Pap smears, either then discomfort and constipation. It doesn’t really bother me often. It helps to sit on the toilet at work to relieve pressure because of the size but I’m sure they don’t understand because comments have been made. What symptoms have you noticed before being diagnosed, I have constipation and occasional sharp pain in the groin leaving me struggling to walk at times. I am so scared because it’s been so long with the mass and how often and fast the reoccurrence. The dr was shocked by the size but said “it’s not the largest he’s seen” Please don’t mind the grammar and spelling as I’ve been Listening toyour video while driving. I have to use talk to text so if this comment does not make sense, please understand. I’m not trying to compare I just would like to know some of your symptoms before you were diagnosed officially? If it’s too personal to discuss, I totally understand. I want to thank you for reaching out and sharing your story because of you, I am having my surgery July 15.
After a year, i finally went to see my doctor. He told me i had cancer and was referring me to specialists asap. They did a biopsy and was told it was vulva cancer. I went through the exact same emotions and pain from my operation and radiation. It was a long, hard road. I recently found another tumor, and yet another biopsy was done. I'm waiting for the phone call.
That is strange but not so surprising. Your gynecologists trying to get rid of a more complex work and responsibility. Might as well call dermatologist office to see if they would be helpful with whatever your condition is. Otherwise, maybe change your gynecologist.
Im having a similar problem. Diagnosed in 2014 with cervical cancer. Went through chemotheraphy and radiotherapy. My problem back then and even now is that GPs don't take you seriously. They prescribe medication and antiotics that don't work. After 18months of bleeding and severe pain I insisted that I be seen by a gyneacilogist. Only after seeing her was a biopsy done and it was determined to be cervical cancer. I have since changed my GP. Apart from eveything else I am having excruciating pain in my vulva. He has prescribed antibiotics for the third time. I suggested me seeing a gyneacologist and his response was we can fix this theres no need to see a gyneacologist. How much longer should I suffer before I get help. Since 2018 I have been to the ER 3 times and on each visit I was admitted for 5 days or more. But the hospital investigation was for a blocked colon and kidney problem. I will take it upon myself to make an appointment with a gyneacologist to have a biopsy done so we can figure out what the problem is.
The voiceover bits over the interview audio are headache producing. But thank you for this video, since there isn't enough education/information on Vulvar cancer.
If men had fallopian tubes this issue would have been recognized and dealt with long ago. How long did it take for breast cancer to be given the high profile it deserved? A long time because it was a "woman's disease. You may think we've come "a long way, baby" but in fact woman's health issues are not a #1 priority to the medical world.
That’s the problem I knew that’s automatically what the doctor via nurses automatically assume about vulvar cancer is it’s warts and it makes you uncomfortable to even have it looked at and it’s hard to concentrate
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I agree being single is better and heck why take a risk on a guy that will cause your cancer to be worse or the reason why you got the hideous vulgar type cancer in the first place because the guy is definitely at fault and needs to be cast out and using a bidet is the most ideal.
This story is important to be shared for all women to know that you can struggle to get diagnosed with vulvar cancer even now in 2022/2023. And sadly, her statement that employers now vs then isn’t true. Work is still shit and people will still be treated like replaceable cogs, even requesting a selfie at the er. There are sections with overlapping voiceovers - it makes that section incomprehensible. Like around 11:00 minutes in when the radical vulvectomy is being explained.
I just got some sypmtoms- buring when I pee and very red skin. the burning just started about a month ago. I'll see my gynocologist this friday. I'm worried also-I'm not up for difficult treatments due to my age and lack of family support
Hi . Iv had burning down below for 2& half years. Iv been given estrogen but it’s not working. Iv tied lots of creams but still burning . My doctor doesn’t seem to be able to help me . Please reply to me as I’m worried . Thank you. I’m in Scotland 🏴 . X
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Thank you for this video! I just had a salpingectomy this week to prevent ovarian cancer and pregnancy. I have a gene mutation - wondering if any studies show if the risk reduction for those with a mutation is as significant at those without?
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Maybe a weird question, but would it be possible to replace the Fallopian tubes with another tissue. This way younger women at risk and willing to get pregnant could still have a pregnancy ?
I would say that's not possible, bit a woman who has her fallopian tubes removed may possibly still be able to undergo egg extraction and IVF if she would like to become pregnant
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