Hi nurse from Northern Ireland now 55 started nursing 17 .looking after these people is so selective one doesn't suit all ,you have to know them and the triggers
What medications are currently being used? My husband has been diagnosed and anti psychotic medications made the situation worse. Can you please let me know? Thanks
My wife was diagnosed with what they said was Alzheimer's in late 2018 at the age of 54. After caring for her 24/7 for the last 5 1/2 years, she had deteriorated to the point of not sleeping (sundowning) for up to 46 hours at a time ( hallucinating, poor gate and balance, agitation, in and out of reality). She was behaviorally getting more agitated and resistant to me helping her. I had her admitted to a psychiatric hospital two weeks ago. They said she was misdiagnosed and that she has Lewy Body dementia, not Alzheimer's . The medication they gave my wife before the hospital to help with agitation and aggression was causing her great harm. She went in the hospital walking and somewhat talking. Within 4 days, she couldn't walk, barely talk and when she did, it was incoherent. I was told she has less than 6 months to live and that she needed a memory care facility to meet her needs. She has declined so fast that it is difficult to watch. My poor honey. Not to mention how my heart breaks for our 4 children. I find myself praying for God to take her home quickly to be with Him in paradise. What a heart breaking disease. I'm overwhelmed with grief. 😓
My goodness Papa. This is heartbreaking. I cannot imagine your pain. I will be praying for a peaceful transition and that GOD walks you and your family by the hand every single step of the way. I just went to the living room and gave my wife the biggest hug. May the LORD fill you with peace, understanding, acceptance and patience abundantly. GOD bless you brother.
@@peter-peter5929 Thank you for your kind and loving response. How I wish I wouldn't have taken one moment for granted of being with her. She is such a blessing to me. God bless you too Peter. 🙏
My mother suffered with memory loss, falls, shaking, depression anxiety apathy and hallucinations. We got the GP to take her off Pregabalin, now no more shaking , no recent falls. Still hallucinating and memory of a goldfish but much happier. Check the medication peeps xxx
It's not just doctor's that say there is nothing that Can be done family members just can't r don't care about the person with dementia i care for my mother put her in a home is what they want
Holes in the Boat more like a floating rubber duck vs a flipping Shark Attack .If they work where are they ..Why does nobody tell anyone I am only 46 ?I feel 106 ..Shit illness only good people appear to get .
i like your video have a family member to have this diagnose thanks for the information . funny i whatch your video and you talk and act like donald trump . movemt of hands and talking just like donald trump greetz from Holland
My husband with Parkinson's was diagnosed with LBD this last January. He's bed ridden. He cannot walk anymore. I have him at home and will care for him as best as I can. Is true what you say. Everyday is different or even the day can be different. Some days he's very calm. Some days he sleeps and some days he's very agitated. It depends on his hallucinations. The good thing is that (with meds) he sleeps all night and eats well. I just wish I can help him more when his hallucinations make him anxious and agitated.
So when you are going to possibly fix the chemical side is this Rexulti!?!?? I am not a fan of this medicine not only because it’s cost but also the first three things they say are the big side effects.. the third side effect listed is the worst one that I’m afraid of…stroke…
I am a caregiver 48 hrs a week to a lady who fluctuates dramatically regarding moods and cognitive ability. It changes one hour to another and she has hallucinations. YET she has great balance and walks fine. I guess that will change? Been with her for 5-6 months and her balance and walking has been fine.
Is lewy body dementia the only dementia that causes expected hallucinations? And the other dementia hallucinations caused by infection, deficiencies, medications?
can people who claim to be psychic ( talking to or receiving messages from different entities or sometimes seeing visions) be suffering from early Lewy Body dementia or something else.
Dr. Van Horne. I am a previous patient of yours. My name is Evy Clark. You saw me in your workshops and in Marietta Ga. I have not found anyone to treat me for my panic disorder. I have been having memory problems. No one will prescribe me klonopin. How can I get my medical records? I haven't been able to find you. Please respond.
Alzheimers sucks. Kills 2 at the time. Been in home caring for mama going on 3 years. As she declines so do I. The alz association is most useless here in center Georgia. They're good at collecting donations. I won't.
In my opinion I believe the very first thing to change is personality, not necessarily on a day to day basis. There can be months even years within these changes in personality and changes that may last a min, a day or even a week or longer they can then revert back to the old person you knew. This is not noticed by the medical staff, doctors or professionals this is noticed by love ones but it’s not until later on in the disease they realise what they were noticing. It is so hard to get the disease diagnosed as it’s never in one place, it’s intelligent and masks itself. Look for the small changes, changes you don’t understand or recognise in the person, changes that make you think and doubt what you see. Looking back i saw these changes way before I spoke out. Greetings to all , Take care
Several years ago I was working full time at a Law Firm in Mpls that handles Class Action lawsuits! I was there about 12 years. In about 2017 I was forgetting directions when I drove and got lost trying to get to work. I had a dr appointment to see my dr and the company actually gave me time off but not paid even though I had std and LTD I paid for an Aflac insurance! Because my dr couldn’t diagnose me with anything new I was not able to get any pay when I was out and they told me they had to cut my hours to 5-10 hours a week which would mean no benefits because they were slow but the could pick up again! Well my dr told me to go to a physiological evaluation. I had grey matter in my brain!!!! I got a different dr and move with my daughter! Shortly after working less than 2 weeks I was forced to retire because I wouldn’t have enough income. And a month or so after I retired I had a stroke!!!!! I went through intense rehab of several weeks and months of therapy at home! Finally they were going to check me for LBD but they canceled my appointment for some reason. In 2021 I fell down stairs backwards and ended up with a compression fracture in my spine! After the hospital they sent me to a transitional care center where I one remember a few days but was there for 4 months. I was out of it most of the time and remembered hearing my family when they visited or when I could call them. I only knew my oldest daughter’s number and her boyfriend’s number by heart. But the weird thing is I couldn’t see but could only call them. My daughter came to see me on a day when I asked her to bring me water. Her and her boyfriend came right in and the both knew something was terribly wrong with me and had the head nurse come and look at me. I was whispering and acting strange! Before they got home I was sent to the hospital!!! Through many ct scans and MRI’S and such it was determined I had hydrocephalus and need brain surgery for a shunt placement!!!!! The whole time before surgery I was hallucinating and dreaming every nurse was trying to kill me! I was petrified and calling my daughter every five minutes! It was one of the most frightening experiences of my life. I can say after learning to walk again and do things for myself with the help of my family I don’t think I would have made it much longer in that transitional care center!!!!! It’s a bless now because I have come a long way but still have a lot of emotional healing and apologizing to my family because of my short memory and bad temper!!!! 😢
My mom is in a nursing home with Lewy Body. I’m trying to get her into another facility because all they were doing is sedating her to not have to deal with her. I’ve since contacted an Ombudsman to investigate and contacted an attorney. This is truly the worst experience I’ve ever had in life.
Well Instead of quoting what we all know. Why don’t you promote diagnosis specialists and change the way we treat the body. Then you see less Alzheimers. Dickheads!!
I do as well yet have had the opposite experience of seeing those w/this form of dementia thrive more & have better quality of lives. I seem to work best with memory care residents that have this form of dementia for some reason & be able to reach them the best.
I never want to go through that as a patient, I'd rather take euthanasia. Life is hard enough for those suffering, no need to make it hard for those around you who have to deal effectively with an entirely different person.
You raced thru the 4 steps so quickly. Why do that if the purpose of your videos is to educate us? Luckily i can watch this over and over. And you gave the clearest and most precise explanations and examples. I have been diagnosed with LBD and believe that the meds prescribed by my team of doctors has brought me back to near normal. Thanks!
My mom just passed away 2 days ago from what I believe is Lewy Body Dementia for the past 5 years (had all the markers - docs kept saying it was delirium from a UTI and polymyalgia but the medication didn't do anything after a month). She also had colon cancer and although she did have a successful surgery 6 weeks ago, her health declined even more rapidly immediately following. Her doc's refused to test her for anything else. She was the most incredible woman and matriarch of our huge family. 💔
The intermittent lucid days confuse people. My 60yo husband is In Hospital right now. Was being treated for depressive bi-polar,but two psychiatrists say his reaction to anti-psychotic meds (which elevated CK blood levels) along with essential tremor, gait issues, delirium, paranoia, lower cognitive functioning all are indicating LBD. He has declined last 5 years. I hope a firm dx can be made so I can know what resources are available to aid him. The lucid days led our kids to believe I was making up how bad Dad really was getting.
How common is it to be misdiagnosed with Parkinson’s disease? I think doctors need to be more education between the differences. I’ve had a handful of patients who were diagnosed Parkinsons and ended up at the end stages of LBD. Is it possible to have both, or is it rare?
That is so very true. Just like a baby when they are denied love they can literally die from it. Your brain needs to feed off those chemicals of endorphins ❤❤
