4 Cardinal Signs of Lewy Body Dementia 

They said that Robin Williams had this and there was nothing that could be done, he was actually mis diagnosed with Parkinson's disease and Robin Williams said that he thought he had dementia and or alzheimers disease and that's why he died. After the autopsy was released they said it was so bad that he should not have been doing as good as he was and its not reversible and that they couldn't have done much for him, its sad cause he was the funniest man in my opinion if I was down he always made me laugh and still does, he was a great drama actor too he could make u laugh and cry at same time and I was honored that I had the opportunity to be able to watch his great adventures on screen and in comedy improv. RIP Robin Williams funniest man ever

Last summer my dear cousin and I were camping. I knew something was really wrong. She had very bad tremors and gait problems. A big Dr. Google, self-diagnoser, she chalked it up to dehydration, not eating enough protein etc. She told me that her deceased mother had visited her and vehemently insisted that she was not asleep and dreaming during - that her mother was really there in her room. She also exhibited numerous irrational paranoid episodes. She was convinced a woman at a rest stop was planning to murder her; she was fearful of anyone who walked near our campsite. Six months later she was diagnosed with Parkinson’s. She is taking medication and learning to cope with that. I now realize she also has Lewey Body, but she’s not talking about it.

My 78-y-o husband has LBD. This was the best description of how're is doing. He is in a great memory care, sleeps all nights, eats very well, is socializing with other residents. I visit him every afternoon. He is the love of my life. I have become an actress as I go along with his hallucinations.

What a hopeful optimistic kind attitude you have given to patients and their loved ones.

3:12 "Can we stop the disease?" "- No, this isn't the goal." But this exactly should be the goal in the future.

My dad was diagnosed with Lewy Body Dementia in 2017. We did the best we could helping to make his life as normal as possible.

I worked in a care home with dementia sufferers... God bless the the people who care for them in their own homes.

I need someone this hopeful and positive.

My mother passed from LBD with Parkinson's in January 2018. She started exhibiting signs in the Fall of 2015. She would call and tell me that she cooked dinner for my grandma and father, both passed years prior. She wouldn't sleep in her bed because there was a man there and she wouldn't eat because there was a man laying behind the pillows on her couch and she didn't want to cook with him there. I tried staying with her so she could live at home but it was becoming too difficult to handle her so I had her put in a memory care unit of a local rehab center in January 2016. Saddest thing to watch her mind and body deteriorate like that

I have been diagnosed with the opening stages of both Lewy body and Parkinsons. Thank you for this video.

When a doctor says ‘there’s nothing else we can do’ that’s my cue to get another opinion and even a third. My sister was misdiagnosed and the medication almost killed her. Excellent talk- thank you.

Thank you for your understanding as I feel my husband got another hole in his boat last evening. Still sleeping this Glorious beautiful morning. Praying he wakes up in a better mood this day. Everyday is a new day for us...

Some people are strange. I mean, who would put a thumbs down on any hope for someone and their family caregivers to have some sort of normalcy.

ABSOLUTE BEST explanation on RU-vid !!! Thank you thank you

Thank you. What a wonderful MD you seem to be!

My mother had Lewey Body dementia, and she passed away in what appeared to be terror. I don't know what I woud do if I got it; I surely could not live in that condition. Thank you for the informative video.

You’re an awesome positive and kind doctor! Thank u

My aunt was diagnosed with Lewy body Dementia and she completely cannot walk, talk, eat, literally cannot do anything. It was a rapid decline within just one month of the diagnosis! She went from completely normal to a vegetable. It’s incredibly terrible to have to witness everyday, especially knowing there is nothing you can do to help.

Thank you, Dr. Van Horn. My father is 84 and has been diagnosed with this. He lives far away from me and on my last visit he was having hallucinations. The following day he seemed much better; however, I know his condition will worsen over time.

Thank you! for giving hope...God bless you!

God bless you Dr for helping these families.

Absolutely the best video I’ve watched on this subject and many others for that matter

Thanks so much for your compassion and caring self! Wish there were more doctors like yourself!😇💕👍🏼 Lots of Love Bobbi 😇🙏🏼

Yes,thank u for youre optimissam ,it means a lot for me right now.My mom was diagnosed a month ago,she is ok,so far.

Ty for sharing this information so well

I learned something tonight. Thank you.

Thanks for offering me some hope of a semi-normal life!

Thank you great information. I pray that more research can go into these horrible diseases and soon they can have a cure. it’s heartbreaking watching a loved one slowing die it’s to painful God Bless

Very informative but still simple for the lay person.

I work in memory care and everyone with this and parkinson's go very fast.. It's beyond sad

Thank you for the info! Hard to find anything on Lewy body anywhere. Its like no one wants to talk about it.

This video has me understand this disease so much better. Thank you.

thank you for this explanation it helps realize what my mother had

Optimistic reply.Thanx.

Thank you Dr. Van Horn.

My mom is in a nursing home with Lewy Body. I’m trying to get her into another facility because all they were doing is sedating her to not have to deal with her. I’ve since contacted an Ombudsman to investigate and contacted an attorney. This is truly the worst experience I’ve ever had in life.

I think my coworker has this currently. If you don’t understand , it appears as if the person is lazy. He steals my work/clients (or tries to), gets my orders wrong, and then needs help with his own. I thought he was being lazy trying to do as little actual work as possible but from watching this, it appears he’s desperately trying to manage the disease and his dignity; understandable if he feels anxiety over explaining what he’s suffering from. He gets anxiety in the middle of helping a customer and I have to help him, and at other times as well. He walks with shuffled feet and forward-ish with his body also.

You raced thru the 4 steps so quickly. Why do that if the purpose of your videos is to educate us? Luckily i can watch this over and over. And you gave the clearest and most precise explanations and examples. I have been diagnosed with LBD and believe that the meds prescribed by my team of doctors has brought me back to near normal. Thanks!

My father had it. He always haucinated pleasant things.

The intermittent lucid days confuse people. My 60yo husband is In Hospital right now. Was being treated for depressive bi-polar,but two psychiatrists say his reaction to anti-psychotic meds (which elevated CK blood levels) along with essential tremor, gait issues, delirium, paranoia, lower cognitive functioning all are indicating LBD. He has declined last 5 years. I hope a firm dx can be made so I can know what resources are available to aid him. The lucid days led our kids to believe I was making up how bad Dad really was getting.

This describes my husband completely. Thank you for this video. He was diagnosed with Lewy Body Dementia three years ago. In the last couple of weeks he has really gone downhill, sleeps most of the time. I'm looking for a doctor where we moved to do I can replace his previous doctor. Much respect.

All very well but how the hell do I get the patient to the doctor in the first place when they think there is nothing wrong with them, that is my current stumbling block!

Excellent video. Very poignant and informative. Also provides encouraging advice for those suffering from DLB and for caregivers. Medication does help. There are also alternative treatments that can ease symptoms. While recognizing reality, it is important to remain optimistic. There is always hope. You can still have a happy and full life with DLB. The only way you fail at this is by giving up.

Helpful information. Please make a video mentioning the various medications that can be used to help someone with LBD. This is almost impossible to find online and most doctors don't seem to know either.

This is what my mum has recently been diagnosed with. I'm her only support and nok.

My mother had Lewy Body dementia and he’s described the symptoms to a tee. She had all of these things and it’s horrible.

Interesting that you mention medication‘s. My mother had this and the ONLY time she did have hallucinations was when she was on Ativan. I had to fight like the devil to keep her off that stuff.

Mydad passed away at:abge87.he use to tell me he could see me standing over his s bed....iwas in college and not in his home at all.he have t nasty said things.....beer helped as stupid as that seemed..he use to wake up just fone but by evening it got differenicult.my family said he was gone but I didn't see that daily ..he kept falling.passed away super bowl Sunday at home in his sleep.im sorry I just hadto share.he went peacefully I'm grateful

My mom just passed away 2 days ago from what I believe is Lewy Body Dementia for the past 5 years (had all the markers - docs kept saying it was delirium from a UTI and polymyalgia but the medication didn't do anything after a month). She also had colon cancer and although she did have a successful surgery 6 weeks ago, her health declined even more rapidly immediately following. Her doc's refused to test her for anything else. She was the most incredible woman and matriarch of our huge family. 💔

Things must have progressed quite a bit since 2015 when my daddy suffered so very much and died from this horrific disease.

My dad was on Tramadol for 5 years and we suspect this caused his LBD. His hallucinations and delusions are awful. He sees people (alive and dead) all day, everyday. He got violent with my mom and he is now in a nursing home. He sleeps about 14 hours a day and just wants to come home.

My wife was diagnosed with what they said was Alzheimer's in late 2018 at the age of 54. After caring for her 24/7 for the last 5 1/2 years, she had deteriorated to the point of not sleeping (sundowning) for up to 46 hours at a time ( hallucinating, poor gate and balance, agitation, in and out of reality). She was behaviorally getting more agitated and resistant to me helping her. I had her admitted to a psychiatric hospital two weeks ago. They said she was misdiagnosed and that she has Lewy Body dementia, not Alzheimer's . The medication they gave my wife before the hospital to help with agitation and aggression was causing her great harm. She went in the hospital walking and somewhat talking. Within 4 days, she couldn't walk, barely talk and when she did, it was incoherent. I was told she has less than 6 months to live and that she needed a memory care facility to meet her needs. She has declined so fast that it is difficult to watch. My poor honey. Not to mention how my heart breaks for our 4 children. I find myself praying for God to take her home quickly to be with Him in paradise. What a heart breaking disease. I'm overwhelmed with grief. 😓

I wish youtube would have sent your video my way a year ago while doing intensive searches on LBD. It's so sad my Mom's quality of life wasn't what could have been. We NEVER gave up, but had a neurologist that should have referred. She died a week before we could get a second opinion, mainly due to covid delays in medical buildings. We did the best we could but just like my Dad, so much was revealed after the fact despite my incessant research. Dr's who don't know should always refer. We wasted a lot of time on a ding bat... Small community didn't help. Im sure something could have been done. Well, we loved her and she felt it and acknowledged it, what else in our drastic measures could we have taken? Now I will refer others to your channel.

When I turned 40 I noticed all these symptoms come on over the space of a year. Still waiting to hear from a neurologist.

I was just diagnosed with LBD. Have had memory problems for many years that were chalked up to my Hashimoto's thyroid. Been constipated for many years. My wife and I just moved into a different house (different state). When I first got here I could here people talking between the walls. Then I started having these fantastic hallucinations of spiders on my bedroom ceiling when I would wake up at night. They were black and gray but very detailed and really beautiful. Sometimes they would start coming down a thread of web at me. I would just pass my arm thru them and they would go away. I knew they weren't real. I'm currently in the process of looking for a neuro psychiatrist in my area but there aren't many.

My husband with Parkinson's was diagnosed with LBD this last January. He's bed ridden. He cannot walk anymore. I have him at home and will care for him as best as I can. Is true what you say. Everyday is different or even the day can be different. Some days he's very calm. Some days he sleeps and some days he's very agitated. It depends on his hallucinations. The good thing is that (with meds) he sleeps all night and eats well. I just wish I can help him more when his hallucinations make him anxious and agitated.

What medications are currently being used? My husband has been diagnosed and anti psychotic medications made the situation worse. Can you please let me know? Thanks

REM Sleep Disorder is also a key feature

What are the medications?

I am a caregiver 48 hrs a week to a lady who fluctuates dramatically regarding moods and cognitive ability. It changes one hour to another and she has hallucinations. YET she has great balance and walks fine. I guess that will change? Been with her for 5-6 months and her balance and walking has been fine.

Well shit. I just did not expect to be so young when it hit.

What are the medications for stage 2 in LBD stage 2 for an 86 year old sedentary male.

My dad has is the doctors have gave up on him please please tell me how I can get my father into your program please please

I take L-tyrosine and benfatomine to improve dopamine production and choline to aid acetylcholine . As we age and our digestion declines we don't absorb nutrients as well as we used to and can become deficient.

How do I prevent it red wine perhaps

"there are many things you can do" where? how? I can't even get someone to give me scans. I'm too young...

My mom had Alzheimer’s and she got it very young in her 60s it was not pretty had to be with her till the day she died the day she took her last breath

In a severely blind person, can the person have audio hallucinations (specifically hearing voices)?

Thank you 🙏🏻❤️. I have LBD and Amnesia spells (yes true legit amnesia). No Doctor, Specialist, online groups, have heard of this 💔. Have you seen or heard of anything such as this,?

Too late for trying this treatment with my mom. She passed two years ago 😢

My mother has so much meds already...whats one more

How common is it to be misdiagnosed with Parkinson’s disease? I think doctors need to be more education between the differences. I’ve had a handful of patients who were diagnosed Parkinsons and ended up at the end stages of LBD. Is it possible to have both, or is it rare?

In my opinion I believe the very first thing to change is personality, not necessarily on a day to day basis. There can be months even years within these changes in personality and changes that may last a min, a day or even a week or longer they can then revert back to the old person you knew. This is not noticed by the medical staff, doctors or professionals this is noticed by love ones but it’s not until later on in the disease they realise what they were noticing. It is so hard to get the disease diagnosed as it’s never in one place, it’s intelligent and masks itself. Look for the small changes, changes you don’t understand or recognise in the person, changes that make you think and doubt what you see. Looking back i saw these changes way before I spoke out. Greetings to all , Take care

Dr. William A. Van Horn differentiates LBD as in between Alzheimer & Parkinson's, whereas another doctor on youtube classifies these differently. This doctor says that Alzheimer forms one group, while Parkinson's + LBD form another. And then he goes on to differentiate the later two. Which one of these classifications is correct ?

What you do with a person that would not take the medicine

What happens when they refuse to take medication?? My mum has this and she has just stopped taking her meds, point blank she refuses to take them and she is going down hill so rapidly in just 2 weeks!!😭😭

HOW SAD😢

If I have 3 of the 4 what does that mean?

And exactly why didn’t he mention not even 1 type of wonderful medication?

Is sleep disturbance also a hallmark of Lewy body?

Please slow down

Do you know if this medication is available in the UK, dear relative is bedbound for over a year with LBD,in a care home, he has days of sleeping and cannot be woken ,is this usual with LBD ,thank you

I've got everything but the hallucinations and I'm only 33. Wth

My loved one has 3 of the 4 symptoms you describe. She doesn't have hallucinations.

Sadly my mom takes rivastigmine, olanzipine and seroquel, carbidopa levodopa and trazodone for sleep. We removed the olanzipine but she regressed terribly (sleepless nights, horrid hallucinations). I don’t know what else we can do. She is a far cry from being in a position to be taken out for dinner. She can hardly stand up straight or get off the couch and was only diagnosed in July 2020.

does red light therapy help them??? not a cure just improve there effects from off periods??

My husband had lewy body and became like a zombie. Couldn't do anything.

Fascinanting?

what kind of drug did you give him😮

Dr can you share with us the types/names of medications we could pass on to our doctors, so they can do their research and hopefully provide something that will help. My friend has been advised that his wife has no medication to assist her But does not feel he is getting knowledgeable information. Thank you

My mother suffered with memory loss, falls, shaking, depression anxiety apathy and hallucinations. We got the GP to take her off Pregabalin, now no more shaking , no recent falls. Still hallucinating and memory of a goldfish but much happier. Check the medication peeps xxx

My mother always did say, I had a head full of Cotton.

How do you avoid getting it!? I don’t have symptoms but both my parents just passed away from it. They were in their 80s. Is Lewey body hereditary??🥺

I have a dear uncle who passed a few years ago and I've always suspected he had LBD. He developed Parkinson's and then dementia and went downhill fast in his early 70s. What I'd like to know is: does the Parkinson's show up before the dementia or the reverse? Do they always occur together?

❤❤❤❤❤

Holy sh*t ive wondered about this in me

Please help me with my dad.

What best medication for it?

Where are you practicing??

What is the life expectancy for someone with this disease?