The International Essential Tremor Foundation (IETF) provides hope to the essential tremor (ET) community, worldwide through awareness, education, support and research.
If you are on crestor, think twice about it. My father in law had tremors that were getting worse and worse, took him off crestor for one day and the tremors disappeared. He dealt with them for over 8 years. Most docs just keep stacking drugs.
I have essential tremor just like my father and grandfather. I can't remember exactly when it started but i couldn't have been older than 13 or so. I don't have it as bad as the people in this video and it only affects my hands, but it's still been frustrating having to give up on certain hobbies that require steady hands to do.
I am 23 yrs old. I'm from Philippines. I have aware that about essential tremors. Because my hands were shaking, due to my anxiety, frustration, and depression. That's why I can't studying at college anymore due to my lacking experience in communicate with others and also my shyness. Also that scolded and verbal abused by my father when I'm not follow what he said before. But maybe I could control myself so that my tremors are not severed by relaxations.
My tremors affect my head at rest. They move my upper body. No tremors in arms, hands, legs, or feet. I move and the head tremor seems to disappear. I have been diagnosed with Essential Tremor by two neurologists. Still questioning the diagnosis… The heavier vibration tool the dentist used today made them worse for a few minutes.
This video was made before focused ultrasound for essential tremor was developed. This treatment is non invasive and very effective. If youve been diagnosed with essential tremor you owe to yourself to check it out
I knew that I had ET long before I was diagnosed. There's a lot of people in my family who have it. I had to quit teaching because I was losing the use of my hands. When we go out to eat, I always ask for a to-go cup with a lid or a child's cup with a straw. I get some funny looks, but it's better than dropping it or spilling it. My husband and I try to laugh at it because crying doesn't help. I have asked for adaptive flatware, but no one knows what that is. I guess I will have to buy my own.
My husband (67) started his hand tremors two years ago after his first heart attack, as noticed by an acquaintance who is a retired doctor, his own GP did send his for Parkinson’s tests but the consultant said it wasn’t Parkinson’s. We’ve also told his GP about hub’s declining memory and increasing anxiety, but because he ‘passed’ the ‘remember this address’ test (though not all of it) no further investigations are being pursued. We really don’t know what else to do/which way to turn, he/we don’t want him to be ill, but we are worried he may be missing out on help to stop him getting worse
I am watching this and 😢😢. I have this from 30 y old and i am 43 now. I have experienced so many mean comments about my shaking had😢😢. And even know still getting those comments. Sometimes.
You’re not useless…I’m a neurological nurse and brain injury specialist and I have essential tremor from a TBI…long story…but it doesn’t make you useless…it does take patience and determination…but it doesn’t make you useless…I’m an old guy of fifty one…trust me on this…I’ve practiced nursing a long time…with essential tremor…and it’s fairly significant since my TBI…you can do things…😊😊😊😊
Thankfully my Essential Tremor showed itself about two years ago...the individuals I feel for are those very young...at age 81...I feel fortunate that so fewer years are left for it to progress to worsening condition! I too, had moist eyes, upon viewing the poor woman with the advanced head tremor. Being a senior, I have friends who suffer, as well as a number of others in church and senior groups.
My mother's family has passed this condition on for generations. Some of my mom's cousins had brain surgery...with lasting side effects. At least one ended up in a wheelchair--and still had a tremor. My mom started legal amounts of THC last week. Her tremors stopped within 10 minutes of her first dose. She can now write her name and eat in public without embarrassment.
Mine started in my mid 30's with head shaking. Then in my 60's it went down to my hands. I so understand that poor lady who said she feel useless. You end up stopping anything that you need your hands for. I loved to paint, knit any craft was my pleasure and now I have had to stop all of it. I still cook for my husband and I, but it is a challenge. Everything from using a knife, fork etc, and cooking its self, trying to flip pancakes, what fun that is. Even typing this message or using my phone, it really is life altering.
I'm wondering if anyone commenting here has tried a strict ketogenic diet to help with tremors. I know some people who tried it experienced reduction of tremors and overall improvement in quality of life
I have anxiety, and I always thought that was the cause of my shaky hands. It wasn't until my late twenties that my great aunt on my dad's side off-handedly mentioned what it was, and it was probably genetic. I just figured her and my grandmother's shaky hands were a sign of age. We need more awareness of this condition.
I am 71 with Hashimoto’s and have had hand tremors for about 2 years now. What is also troubling is that when I get up in morning or get out of car, etc, my teeth chatter uncontrollably. I am thinking that might have something to do with changes of position from sitting to standing and vice versa.
I was born with it.. it wasn’t until 2022 that I was diagnosed with myoclonic and give seizure meds that it went away. I lived with it for 56 embarrassing years
I have it in my head ,hands , and voice .I have a consultation April 30th 2024.This appt is gor focused ultrasound to kill brain cells that cause tremors ,ill let u know in 3months if this works.
Beta Blockers (propranolol, metoprolol, etc.) have helped me a lot. These meds are normally used to treat high blood pressure and are generally safe for the gen. pop.
I want to say to the woman who said that she is useless that she is not. Her story can, will, and does help so many people. Keep up the fight and remember that Jesus will carry you when it gets tough (which is , I imagine , most of the time).
So far I have had no help. I've been DX'd with Neural Myoclonus. He sed "incurable" but he hasn't even approached the tremor. I may have to approach it with more "push" it is really bad at times..hold that coffee with 2 hands,etc. writing is a joke. My hubby has taken over the writing aspect.
I've had essential tremor since elementary school. It wasn't diagnosed until I was in my 50s; I am now 75. I have tremors in both hands, head shakes, and a deepened and shaky voice. I used to try to hide it, which made it worse. Now when I first meet someone I tell them right away about my tremors, head shaking, and why my voice sounds like I'm nervous. I took Primidone, and it worked, but after I had a pulmonary embolism, I started taking Eliquis, and had to switch to Propranolol. I am considering having MRgFUS, but I haven't talked with my doctor about it. Has anyone here had the treatment? Did it work for you?
I've read that ET usually affects the whole hand in general -- not one or two fingers. So, what about the quivering of a finger when held up against gravity (postural tremor)? Would that tend to indicate task-specific tremor, which is a different condition? My index finger has developed a quiver when held up while playing piano, or when holding it up from the computer mouse. My finger also quivers if I slowly curl it up (action tremor). Stress can also exacerbate tremor conditions. Fortunately, it doesn't quiver in the resting state, such as while resting on the mouse or while hanging my hand down by my side. That would suggest Parkinson's.
My hands have been shaking since I was 14, and now I am 30, it has worsened. I had to quit medical school because of my shaking hands. I sometimes feel embarrassed because everyone noticed my handshake and pointed it out. My granddad had it, my dad had it, and my little sister had it.
Thank you for the info. I understood from info on ET that calcium leaks out of the brain cells. I have ET and also CPVT a heart failure also leaking calcium out of the heart cells is their any connection between these two conditions?
There are several studies from Yale, Columbia University in investigating this on Alzheimer, cognitive decline, Huntington. The study on ET is out there somewhere I continue to find this for you
I have coped with ET since I was about 10 yo. I found it profoundly damaging ,as you are perceived as 'weak' or nervous ,when you aren't. I have even been accused of being an alcoholic for shaking . I didn't actually find the name of the condition until I was 24 , and was simply told there was nothing that could be done for it. Mine is familial as my late mother and maternal uncle both had/ have it. I have had a number of serious health conditions, including Lupus and Sjogrens syndrome and spondyloarthropathy; which between them make me regularly feel unwell. But it's (benign ) essential tremor that I hate the most for its social impact on me ,particularly as a young man. I too wanted to hug that lovely lady on the video who feels so useless, and assure her she is not. I am 64yo now and no longer get embarrassed by it, as it has got worse in the last few years. My heart goes out to young people first coping with it in school or socially. I grew up with people sometimes serving tea in a China cup and saucer; and came to hate the social stigma of my rattling cup and saucer .
