The National Rheumatoid Arthritis Society (NRAS) is the only patient-led charity in the UK for people with Rheumatoid Arthritis (RA) and their peers. We offer information and support on our helpline, campaign in Parliament for better services, fundraise, & run support groups across the UK.
I was diagnosed following the death of my father in February. My life has changed completely, I have also had to give up work. My mental health, stress, anxiety and brain fog are a crippling as the physical symptoms. My home has become inadequate, but I am struggling to find alternatives. I also have severe allergies and chronic asthma and struggle daily. Thank you for sharing your experience. RA can because very isolating disease.
Well done Jyoti, indo agree with you, I got diagnosed about 25 years ago, I had the same thing, I was about 32-33 years, before I got diagnosed. Same here mine started overnight, I got up one day my Knee was swollen, I had very low iron that something was wrong, used to go to the GP, had a tell the Dr, then she sentme to the hospital, I was still breastfeeding my son, I had lots of weight. My family was concerned about my health. .
I’m so sorry that it took so long for you to be diagnosed, Joti, but well done for your selfless achievements since then. I was fortunate in that my GP had RA in his family so immediately diagnosed the problem. Even so, the early months were so painful in all respects. NRAS and Versus Arthritis were inestimable sources of support and information, and have remained so since.
Joti you are an absolute inspiration to your family and your community and to us at NRAS. Your volunteering has helped so many other people with RA, thank you.
I really appreciate you making this video. My ex of 4 years cheated and gave me Herpes virus during our relationship and I was devastated. You've made me feel so much better Dr Adigba on RU-vid and seeing all these people share their stories……….😊
First of all I am extremely grateful to the charity for providing this information it is invaluable in tackling this disease. However I do feel that as a lay person looking for information much of this video was too scientific and was geared to medical professionals looking to advise perhaps on dietary health. It was for me far too complex and wordy. Please consider that not every one of your viewers will have an in depth knowledge of nutrition.
Hi Tracey, thank you for watching and thank you for your feedback and we absolutely understand where you are coming from. We will try and bare this in mind for future NRAS Lives. 🙂
And thank you! I have had RA for some 10 years. Always too afraid to take biologics despite the reassurances of my wonderful RA consultant. I think I will resume the biologic conversation at my next appointment. Thank you again. RJ
Hello Cathy and everyone here. I am so moved by this video, I do hope Cathy that you have found some help or support. I don’t (yet ) have severe RA but I have it in some joints, plus I have polymyalgia rheumatica and OA as well as several other chronic illnesses. You have expressed so well how I feel. Good luck and hugs to you xx
I just think we have this terrible decease.but we can try and make it better by exercise. Healthy eating. no salts or fatty foods Vitamin D.do are best.to feel somewhat better. better.
That's exactly what I thought when I got diagnosed at 29 years old. I am now 65 years old, 1 baby, it was a shock. I had weave my way through so much by myself as the year was 1987, not much advice around and certainly no help groups, until much later. Luckily, I had a positive attitude, but it certainly took my positivity to high limits. The medications are so much better now for RA, but that has been quite the journey.
With biological medications I have berm much better, I feel it did stop the RA from being aggressive. Two knee replacements later. I am now on ritxamaub once a year. Still positive and self advocating.
For me having RA the worst thing is the fatigue, and my specialist keeps gaslighting me about it. If I sleep at all I wake up absolutley exhausted and have to lie down for a few hours during the day. It sucks and people do not get it, especially the Dr
Sorry that I missed the livestream, but would like to ask a question. I was due to have a biologics nurse appointment in January 2024. I had received notification from the hospital that it was cancelled & I would receive further information, I think. I’m aware of the new “PIFU” (patient informed follow up) through yourselves. As I have other conditions & a serious one since 2022, struggle to keep up with many blood tests & other appointments. I have found myself thinking, do I still need to be on the Biologics injections, will the nurse or hospital contact me if something changes? It can be hard to get hold of specialist nurses at the hospital😭
Clare, I will be sad when you retire. You are such an active and communicative CEO, and I will miss your cheery leadership. I wish you all the best for the future, and offer a big ‘thank you’ for all your work representing the RA community. 💐
So sorry to hear of your situation I understand iv got spinal nerve damage, but recently got macrcytic aneamia, gastroologist thinks I could have rheumatoid arthritis, more test to do, lots of love to you I relate to the awfull fatigue, 🙏 s for you ♥ ❤❤ love jayne walton on husbands page bill of bristol england❤❤❤❤
I'd rather be dead than have RA. This disease is terrible. It has stripped me of any hope or optimism. Been on Prednisone for over a year. Can't get infusions until done with this latent TB antibiotic and can't run with my boy. I hate this life with everything in me. I hate it.
Hamara desh chand per pahunch gya sir per arthritis ka ilaz kar ke bilkul thik ni kar sakte hey Esa kiun ji bari pain. Hoti hey please treatment nikalo
This is really moving. I think it does such a good job of showing the idea that when you live with fatigue, even simple tasks really drain your energy levels. I also think many will relate to the idea that often, you will make it through the working day with pain and fatigue, and sadly it is then the social events that suffer.
Treating arthritis can be tough these days because it's hard to find the right help. But Planet Ayurveda has the best herbal solutions and consultations. What's even better is that if you can't go to their physical location, you can get help online.
I know the feeling.....A video which says everything about RA without any words. Thanks for putting this on line. In the words of the song... ''you say it best, when you say nothing at all'' x J x
