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HMS Celiac Research and Education Program
HMS Celiac Research and Education Program
HMS Celiac Research and Education Program
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Session 6: The Future for Celiac Disease
1:05:09
11 месяцев назад
Session 4:  Related Autoimmune Conditions
1:00:51
11 месяцев назад
Aging Well with Celiac Disease
1:18:22
2 года назад
Open Mic: Ask the Docs and Dietitian
1:12:44
2 года назад
Комментарии
@IZ8MWG
@IZ8MWG Месяц назад
Gluten (particularly gliadin, a gluten peptide) essentially acts as a neurotoxin. It's pure poison for the brain. I didn't have any intestinal problems at all, but I struggled with severe brain fog, memory issues, depression with anhedonia and lack of motivation, drowsiness, fatigue, light sensitivity and a nagging occipital pain that was resistant to all types of painkillers including opioids. I slept 14 hours a day and could barely get out of bed. I started experimenting on myself with different medications in desperate search of relief. Antidepressants like bupropion and amisulpride have given me some help with motivation by increasing dopamine and norepinephrine and I have been able to get rid of nape pain thanks to acetazolamide which lowers cerebrospinal fluid pressure. But no one was 100% effective, it was like taking a daily dose of poison with one hand while trying different antidotes with the other one without knowing which poison it was. I was on the verge of getting some irreversible MAOI, the most powerful antidepressant medications and wanted also try high doses of IV steroids (dexamethasone) when the turning point was the appearance of persistent dyshidrotic eczema which made me suspect some type of food intolerance/allergy. I used a drastic method: fasting! Only water and electrolytes for 3 days. Eczema gone! But not only that! I felt less tired with less need for sleep and more energy! You wouldn't think so for someone who hasn't eaten for 3 days! It was clear that the poison was in the food and it didn't take long to figure out that it was gluten! Following a strict gluten free diet all symptoms improved day after day...
@KurtDuerksen
@KurtDuerksen 4 месяца назад
Regarding the question around 1:07:36 about celiac disease and seizures, I spent 17 years having about 10 to 12 "seizures" per day (petit seizures, or I called them brain farts). The last 2 years of that period I also had severe heart burn, leading up to a colonoscopy and endoscopy with biopsy that determined I had celiac disease. Once I got the celiac disease diet all figured out, my seizures and heart burn went away completely. I can still get a petit seizure maybe 20 or 30 times in a year due to gluten cross contamination, but that's effectively zero compared to 10 or more per day. Regarding the discussion around that time in the video about getting mega-dosed with gluten and the result that might have, that did happen to me a few years ago when I put quinoa into my meal prep that was not labelled gluten free. I had a grand mal seizure and went to the ER in an ambulance. I recommend *never* accidentally getting mega-dosed with gluten based on that experience--don't even take a chance eating out somewhere that claims a gluten-free option.
@renataribeiro.personal
@renataribeiro.personal 6 месяцев назад
When will the next meeting be?
@renataribeiro.personal
@renataribeiro.personal 6 месяцев назад
Instagram?
@ЮлияМельник-ж8щ
@ЮлияМельник-ж8щ 8 месяцев назад
Thank you so much!
@il3mendo
@il3mendo 8 месяцев назад
I developed subclinical hypothyroidism. I have a neurodegenerative disease which affects the cerebellum. Does Gad65 antibodies needs to get activated through gliadin?
@muratsubas7397
@muratsubas7397 8 месяцев назад
I hope these meds help folks like us with celiac disease get rid of it and lead a easier life
@michelewilson9383
@michelewilson9383 8 месяцев назад
I had the blisters and bad asthma, a blood test for coeliac came back negative but i went totally grain free and after 2 months my skin began to heal and also to my surprise the asthma stopped.
@joshuastavos4376
@joshuastavos4376 9 месяцев назад
What is the break down pre and post Covid 19 mRNA therapy for the increase in celiac disease? I ask because I see that the increase in CD was noted for the combined years 2020 and 2021 instead of separated into the two years. Also, the presence of only the spike protein in the blood suggests that it isn’t due to a live virus.
@joshuastavos4376
@joshuastavos4376 9 месяцев назад
Can the BioNTech and Moderna injections trigger an immune reaction and increased antibodies against trans glutaminase?
@blkscreen15
@blkscreen15 9 месяцев назад
THANK YOU
@il3mendo
@il3mendo 10 месяцев назад
Can covid trigger an immune reaction and increase transglutaminase ?
@Hollyucinogen
@Hollyucinogen 10 месяцев назад
I don't have Celiac Disease, just a similar autoimmune disorder (Hashimoto's Thyroiditis) that's in the same category (gluten sensitivity); but theoretically, if you already have a predisposition, you can develop it - but it can't CAUSE it. If you put the body under enough stress, it can trigger almost any autoimmune disorder; i.e. rheumatoid arthritis, multiple sclerosis, lupus, etc.
@il3mendo
@il3mendo 10 месяцев назад
@@Hollyucinogen First of all thanks for your answer. I never been tested positive with COVID but i had and increase on ttg levels that i have never had previously but i was tasted negative for COVID bullshit.
@il3mendo
@il3mendo 10 месяцев назад
Is dental hypoplasia a sign of loss bone density ? I never had a fracture, I am tallest in my family. I have been diagnosed with celiac disease and gluten ataxia 6 years ago, at the age of 33. I was diangosed also with subclinical hypothyroidism, chronic anemia: low folate and iron ( low iron saturation 12%). I just had my bones checked and my mineral density is now perfect: within 6 years from Marsh 3b to 3a and now almost regression. Is it normal that the syntoms if celiac disease changed during its time, such more prevelent on the gastrountestinal tract to neurological aspect ? I have the hla dq2 gene but I have never been tested for Hetero or homozygous. I had severe vitamin d deficiency ( 7,45), now 30 ( i supplement myself with high dosage). I hopr that someone can answer me back.
@martyrosenbaum7708
@martyrosenbaum7708 10 месяцев назад
Promo SM 😱
@tomthx5804
@tomthx5804 10 месяцев назад
Boston Children's Hospital is the place where they cut off transgender kids body parts.
@il3mendo
@il3mendo 11 месяцев назад
Are tpo antibodies produced by IgA (cd4) ? As It happened to me, High TSH with low Tpo, normal T3 and T4, with low vitamin D (7), folate and iron ( seronegative celiac disease certified back then with Marsh 3b atrophy, gluten Ataxia, gerd and gastroparesis), It meant that my thyroid was under attack? It all happened during the gluten challenge where I ended up with a severe psychosis.....
@lesleywhibley
@lesleywhibley 11 месяцев назад
You do not get any rash with celiac disease it is a food allergy that affects the stomach not the skin my son was born with celiac and i developed it and have no or never had any rash. And my son was diagnosed in 1983.
@JIHAN249
@JIHAN249 11 месяцев назад
HEY YOUR VIDEO REALLY GOOD BUT IT CAN BE VERY BETTER WITH MY EDITING So I think we should collaboration what do you say?
@il3mendo
@il3mendo Год назад
That is why a gluten free food are not the best option for us. In stead Omega 3 fatty acid are the best source of energy and if you can tollerate fibers.
@joeclark2909
@joeclark2909 Год назад
😉 "Promosm"
@ישראלשורץ-י2ק
@ישראלשורץ-י2ק Год назад
Thank you very much for all the information I would appreciate a recommendation on which foods have vitamin D that are not dairy or tahini and nuts?
@masrun.dermatologist
@masrun.dermatologist Год назад
How long dapsone should be continued and after recovery from lesion for how long we should continue and when to stop .
@wendyhannan2454
@wendyhannan2454 Год назад
Excellent, I enjoyed this video very much. We have come along way since my diagnosis some 20 years ago. Unfortunately more people are being diagnosed with CD. I’m very strict with my diet at home, however eating out is still a problem for me. Many chefs,cooks in cafe’s and restaurants don’t always understand a gluten free diet, and cross contamination can be a big problem. Thank you Drs.
@adoniscousin_ovodonny94
@adoniscousin_ovodonny94 Год назад
💚💚💚
@wendyhannan2454
@wendyhannan2454 Год назад
Hello to you, from Australia 🇦🇺🐨
@rcgamer
@rcgamer Год назад
The rash is how I found out I have celiacs disease. The doctor kept trying to tell me it was a skin infection even after almost two years of having this rash. I finally told him I wanted the special blood test for testing for Celiac and it came back positive and with Iron deficiency and several other things associated with it. The rash was so bad I couldn't sleep much, my anxiety was throug the roof. Even though having Celiac sucks I was at least relieved to find out the cause.
@wendyhannan2454
@wendyhannan2454 Год назад
We often diagnose our selves, I know I did. Drs don’t know that much about CD, I had it for years before I had the itching on the scalp. I was accidentally gluten while eating out last night, I was in pain, I had bloating and joint pain, and the itching came back in my scalp. All this within an hour of being glutened. We know our own bodies.
@dawnhughes9942
@dawnhughes9942 10 месяцев назад
I think there is a correlation between rash flare ups and anxiety so I appreciate you mention this.I've been GF, dx celiac for 15 yrs. But in the last few years developed horrible red, raw, itchy hives rash on my chest, knees, headaches, joint oain.and awful panic attacks. Drs refused to believe it had anything to do with my celiac disease. Dermatologist couldn't offer any help but steroid creams to use indefinitely.. It wasn't til a nutritionist mentioned gf oats which I had been eating everyday for breakfast are usually NOT ok for celiacs. I cut out the gf oats Within a few months the rash has mostly resolved and my anxiety has decreased.
@wendyhannan2454
@wendyhannan2454 Год назад
This is great, as little seems to be known about Celiac Disease side effects. I’ve been putting my dermatitis symptoms down to meds I’ve been taking. I don’t have blisters, I do have awful itching on the scalp and have suffered hair loss, and at times itching on different parts of my body. Thank you for this video, and this valuable information.
@angelfreedom911
@angelfreedom911 Год назад
Oxidative stress which get increase with homocysteine.
@syzygy2043
@syzygy2043 Год назад
I have all the signs of this rash, including the symmetrical nature, but my dr thinks it is a food allergy and IgE mediated (RAST test negative). I gave up and just went gluten-free myself! I think if drs were honest about things they don't know, then people would be diagnosed quicker.
@DarthLordRaven
@DarthLordRaven 2 года назад
I have Dermatitis Herpetiformis and i can confirm even there are no Blisters the itching takes place everywhere on the skin (when you don't see anything) even after 8 months glutenfree, it's still a mess. i know it will take 1 to 2 years to get rid of it.
@wendyhannan2454
@wendyhannan2454 Год назад
Thank you, now I know the skin doesn’t have to have blisters to feel itchy all over. I hope you feel better soon, and it doesn’t take as long as you anticipated to recover. 🙏
@rcgamer
@rcgamer Год назад
@@wendyhannan2454 In my case the blistering happened when you scratched the little bumps.
@wendyhannan2454
@wendyhannan2454 Год назад
@@rcgamerThat makes sense, I had a slight pink rash on my scalp, but no blisters. The itching happens on the upper part of my body, even my eye brows, which thinned right out. 🤷‍♀️ It’s a strange disease, with many side effects. I love these videos there so helpful.
@hennah2805
@hennah2805 2 года назад
was diagnosed with celiac in 2011 when i was 12 years old...i didn't have a gluten free diet.... neither i have any stomachache after eating gluten....the only problem i face is i get rashes on.my.legs after spending few hours outside by walking....all i want to ask now I'm 23 and 153 cm ...can I grow my height now if i go for a gluten free diet????
@brainmahifa1147
@brainmahifa1147 2 года назад
I never found a honest man and legit cure on Hpv until I contacted Dr Okooboh on a referral platform that helps in management of SEX with herpes on #Drokooboh for a one time powder cure of Hsv2 on RU-vid channel...
@johnwayzwayz3106
@johnwayzwayz3106 2 года назад
I was cured from celiac disease, no more intestine damage or diarrhea, fatigue, with the root tea medication of Dr idialu🍀 ru-vid.com5Wo9BMbQgmY?feature=share
@phylenejanousek2740
@phylenejanousek2740 2 года назад
Outdated info. So much more is known
@rustythegreatandpowerfulla2676
Oh? Care to source your claim?
@maigidamd2462
@maigidamd2462 2 года назад
Living with the stigma of celiac Disease and not been able to have a healthy life was messing up my life until I got some Super herbs from Dr igho RU-vid channel, I haven't had any Symptoms for some while now, after I did a test & I'm planning to get another test done, Am grateful & advise you help yourself also
@Mo-gq6fn
@Mo-gq6fn 2 года назад
Thanks for this video. The information was informative, easy to understand and much needed.
@palmiraflister7578
@palmiraflister7578 2 года назад
Hello
@alarnaullah9740
@alarnaullah9740 2 года назад
I am really Grateful to Herbalist Razor on RU-vid who Got me cured of Herpes Simplex Virus 1