I never get a positive SSA or ANA, but I have a low C4C.. I have Hashimoto's (Thyroid Peroxidase antibodies etc... ) MCAS, EDS, POTS and all of the symptoms- I grew up with chronic mouth ulcers, always have dry mouth and teeth issues, Chronic eye infections, blepharitis, eye pain, etc.. trouble swallowing. I am so frustrated, I am so done with all of this. I am currently waiting for my SSA and ANA test, AGAIN.. every five years a different doctor is ordering it because they all think I have it and then the results are negative. Thank GOD this time I had a low c4c maybe they'll finally take me seriously. I also had the butterfly rash but the dr said mine was irregular because my forehead was also red but I have MCAS so I always have a rash over my entire face. Wish me luck please.
TheraBreath Dentist Formulated DRY MOUTH LOZENGES with xylitol and made with stevia Rebaudiana leaf extract. I use Mandarin+Mint. Very nice flavor, I've used all the prescription for artificial saliva(they are awful). I also use this brand because it has no artificial sweeteners(which I'm severely allergic to) in it. I'm also a diabetic type 2 Whose allergic to all artificial sweeteners and have kept my A1c under 7 by listening to my doctors and dieticianist.. I have Sjogrens syndrome , schlerdoma, lupus, and arthritis. I have had a lip biopsy to test positive for Sjogrens syndrome done by my ENT,because I give off a lot of false negatives to blood work. I also lost a saliva gland from being infected with calcium stone, and infection so many times before I was ever diagnosed with Sjogrens(lost salvia gland and teeth, in 1990 and wasn't diagnosed until 1994). I've suffered since a very young child, it took over 25 years to diagnose me with Sjogrens syndrome, lupus schlerdoma and much more. When I was 17 I had an emergency exploratory surgery, and they found a lot of inflammation and other things wrong, they told my parents that something was really wrong with me but didn't know what. That's when I started using university hospitals like Stanford, Iowa State, Ohio State, and now Baylor College of Medicine in Houston Texas. They are on top of the latest things in medicine. I've done several studies for Sjogrens syndrome, and I'm doing one now for the heart call a CARDIO MEMS DEVICE. , It's to help diagnose a possible heart attack 2 weeks before ithappens. I Lay on a special machine every day and it takes a reading of the pressure of the lungs and heart and sends it to my doctor everyday, along with Abbott, Then I get a call from the heart Dr telling me what meds to adjust. If what I'm doing with these studies will help them learn more and help someone in the future, then I've done the right thing. So please listen to your Drs, and never stop looking for the right medical answer, and talk to your doctor's. So always listen to your own body, because we're all different.
I have ulcerative colitis and periferial neuropathy. I have extremely dry eyes and mout,skin etc.Other body parts are affected.The dr.ignored my symptomsbecause it didn'tshow up in my lab work up.What gives?.
Can someone have lupus also have psoriatic arthritis? I have erosive hand OA, Lupus, and degenerative disc and have had 5 lumbar fusions, one toe joint removed and 3 dip joints fingers. I have psoriasis on elbows too. Is this all just psoriatic arthritis?
At 72 I began feeling terrible pain in my toes, feet, ankles and knees. Every step was agony. Sleeping on my back, the weight of a sheet caused so much agony pressing on my toenails to waken me in near-tears. Soon after, I began feeling pain and numbness in my fingers, thumb, wrist and elbows. I was losing sensation in my fingers and hands. Saw a Rheumatologist, got Xrays of all affected joints. Dr. said I had osteoarthritis, normal wear/tear and nothing I can do to lessen or stop it. But he could give an RX. for meds. I was being crippled 30 days after the first symptoms! And my Arthritis specialist offered me no hope, just some pain drugs! My D.O. suggested this was likely allergic inflammation - give up all meat, processed foods, sugar, salt, dairy, eggs, etc. and go to a plant based diet. I took her advice. Within 30 days all my debilitating, painful symptoms went away!!! And, I was scheduled for a Medicare paid cataract operation on my left eye. It took a year, but my cataract disappeared. - If I "cheat", I will feel pain in my joints within 6-12 hours after cheating. 2 forkfuls of turkey thigh caused pain in my knees for over 3 days! I can eat fish/seafood and angus beef. - I think my osteo-allergy might be related to all the chemicals injected into animals to speed maturity/fatten them for slaughter/etc. And all the chemicals used by farmers on their crops and the big food companies’ processed foods. - The cancer causing chemical in Roundup is being sprayed onto corn and grains to make it easier for farmers to harvest crops with the big combines. I can add to the story. I met a waitress in Sulphur Springs, TX whose large intestine ruptured, also destroying her gall bladder. Somehow she was saved at the local hospital. When she heard my story, she told me hers. She has to eat only meat and vegetables grown from the farm of her family where no additive are used on the foods she eats. Two days later we were in Vicksburg, MS and I was talking with an 18 year old waitress who suddenly had her gall bladder "explode" (her description). She also was directed to avoid processed foods and meats from feedlots. If she is "careful", she will not feel continuing illness. - Is the poisoning of Americans like us being caused by the food industry and the additives that have international markets denying USA meats and processed foods from almost all global "banned" food lists??!!!!
I had a female doctor treat me terribly over this illness. She wouldn't prescribe me Prendisone. But prescribed fungus cream. But the instructions said, do not put near your eyes. She told me to spread it on my eyelids. Dangerous advice. Then she gave me 30 days to find another doctor. My dentist wanted to give me xrays every time I came for a visit. I had to stop him. Too many xrays are Dangerous. I went in for a MRI a few years ago. For a adenoma. The tech asked me if I had alot of radiation. Because my MRI showed damage from radiation. No cancer. Just good, helpful professional doctors looking out for me. So much so, that they allow so many scans and xrays to fry my brain.
This is old and some of it is unused now, including ACR scores. Controlling the skin manifestations does not often control the arthropothy. Some people with PsA have arthritis degeneration that then comes to the surface as psoriasis.
I see that this is 10 years old and have no idea if you even check these comments anymore , but I am writing this just in case you actually do. I was a nurse for 26 years and am now a patient with axial and peripheral psoriatic arthritis. It is advanced. My diagnosis was delayed for well over 7 years and I literally exhausted myself and almost gave up trying to get someone.....anyone....to look at my signs and symptoms all together instead of diagnosing me with tendonitis, bursitis, conjunctivitis, spinal stenosis with DDD, PVD, osteoarthritis of the right knee, then the left, then feet, ankles , hips, blah blah blah and each time it was looked at with tunnel vision and often just ignored. I have been so saddened to see the state of health care over the last 10 years and literally developed depression, which I had never struggled with, because I felt my body killing itself and couldn't get anyone to stop and look at the entire picture. I diagnosed myself after extensive research but the doctors I was seeing would basically blow me off. I saw many doctors once my pain became severe and my psoriasis spread ...My mobility was severely affected by then and I could no longer work even though for 26 years I had worked 12-16 hour shifts 50-60 hours a week supporting my 5 kids alone. In other words I worked like a dog and worked regardless of whether I was sick or in pain or whatever. My symptoms got so bad that many days I could barely move, much less work. Prior to getting sick as I called it.....all throughout my life I never went to the doctor for anything other than pregnancy. I'm not exaggerating, lol I was one of those horrible patients that self treated or ignored until I felt better . Suddenly I was seeing doctors nonstop because I knew In was losing my mobility and realized after researching that I had had PsA for many years and it had become unbearable I started to feel like a hypochondriac although rationally I knew what was happening. My spine is involved as well and over the last two years it has moved from the sacral region into my thoracic spine and now I walk with a rolling walker and have about 8-10 minutes of standing time (bent over and leaning on my walker ) before my body is forced to sit down and lean over basically with my head towards my feet to be able to breathe and get some relief of pain. I am in chronic pain all the time now. Truly. My CT's and MRI's show all of the damage and now I need both knees replaced and both hips replaced per ortho .I also have severe carpal tunnel in both wrists and I have severe , painful neuropathy in my right arm and both legs/feet. My right shoulder to my right wrist feels numb to touch the skin but inside it feels like it's on fire and that my bones are being crushed in a vice grip. My breathing is now affected from standing and walking and I am almost immobile. I feels like someone has put a corsett around my ribs and are pulling it as tight as they possibly can. I have a history as well of frequent cellulitis infections with MRSA which also has been something that started with my worsening condition over the last few years. I don't mean to ramble and didn't intend to say all of this. I just wanted to explain that because I couldn't get diagnosed the damage is now so severe that my life is forever altered and my quality of life sucks. I still find joy because I am determined to, but this didn't have to get this bad. Hearing you explain/teach this is so informative and encouraging and I hope that the doctors actually took this info with them and saved a few patients from going through what I have been through. The rheumatologist that I was seeing retired and I am scheduled to see another doc on Jan. 5th. I am praying that he listens . I have been formally diagnosed since 2019 but am still not on any treatment regimen and I feel like my body is killing itself quickly now. I hope that he will be as skilled and knowledgeable as you are and from the way you speak about your patients I can tell how much you care so I hope that my doc will be the same. Thank you for posting this. I would have enjoyed your presentation even if I didn't have PsA, but because I do, it has been invaluable for me. Best wishes and thank you again. Sorry for writing such a crappy book long comment lol .
I have Sjogren and rhumitoid arthritis and my rumatoligest gave me plaquinel and told me I have to see a eye doctor every 6 months if I take plaqwinel so I’m scared to take it I don’t want it to effect my eyes it the only part of my body that works good 👍
My eye doctor saw me once and gave me Systane drops. He doesn't feel that he can do anything else for me. He said I need a Rheumatologist. But I can't get in. Six month wait.
Please update content. Sjogren's is now called Sjogren's Disease instead of Syndrome. Primary and secondary is no longer designated. There is often overlap with other autoimmune diseases. Refer to the Sjogren's Foundation: www.sjogrens.org.
I used to use Bioteen, but I found out I'm allergic to the mint flavoring--which is in almost all oral products. I even had to find an unflavored toothpaste.
I’ve been suffering with my neck and back for the past 4 years and I thought it was solely because of my car accidents. I personally have psoriasis along with a strong family history of it. Before I educated myself on the variants and what is exactly going on, I thought it was just a “skin problem”. Through my research, All my symptoms seem to strongly indicate it’s psoriasis arthritis . It’s usually the worse at the end of the day when I stop moving. I LITERALLY can’t sleep if I don’t take Kratom for pain relief. I gave up asking biased doctors for pain meds because I get discriminated against. Truly feels like unless they’ve personally experienced and/or have endured any kind of chronic pain; my medical treatment is void of empathy. My physical therapy said I got to try and “tough it out” and not to be taking kratom long term. Like I haven’t tried smh. My doctor says “you’re too young to have back pain”; meanwhile I’m suffering. My condition never gets taken serious . I’m grateful that there is a legal way to manage my pain with kratom but it sucks I have to deal with this the rest of my life. Appreciate seeing this video and a community that understands.
I'm 66 and was diagnosed with psoriatic arthritis in my 20s. General practice doctors over the years have looked at my nails and say, 'no, you don't have that', when my problem is with the bones in my hands and feet. Other sufferers say it is just a skin problem, which it may seem to be for them but not for me. Stay with the specialists who can properly diagnose and help you and ignore everyone else. I've found that diet helps, although you have to experiment for a long time to see what settles the symptoms.
AC- Carbamide and Arginex is the ultra effectiveness to cure Gout. I was diagnosed gout almost 15 years. I tried others supplement but nothings improvement to my gout.When I found out and take AC - carbamide and Arginex, my gouts is totally gone as gone really. So I am very bless to god that I found out these supplement from US store. I thought I will never to restore my life to normal but I was wrong. For those who have gouts please don't lost hope because gouts can be cure. Not colchichine,prednisone and allopurinol will help you to cure it, believe me folks. Kidneys dysfunction is the cause of having gouts in joints. Eating meat & seafood, drinking beer and other food have high purines is the triggered of gouts You can reply me if you have any suggestion
My uncle was suffering from this but because of no money he cant afford to go to hospotals so thats why he was deppressed and died bec of this,and now 2 of his siblings is suffering again from psoriasis and psoriatic arthritis,we dont know how to cure them,
Does there have to be a positive ss-a/ss-b to be diagnosed? I have all the symptoms including dryness symptoms, I have positive anti ccp and rheumatoid factor <14 but negative ana/ss-a/ss-b. Ive had alopecia for 13 years. I’ve been struggling with a ton of symptoms that many Sjogrens sufferers say they have, the greatest issues lately have been troubling swallowing, pain pressure in chest, chronic headache, weight loss from the swallowing issues, dizziness, heart palpitations, sleep disturbance, buzzing in my extremities, leg weakness, fatigue.... I could go on but basically it’s ruining my life. Stomach was scoped and fine, heart tested all fine, MRI with neurology all fine. I see a rheumatologist in October.
I read an article saying that you can have negative ss a/ ssb but have autonomic nervous system involvement. It can affect peristalsis in the oesophagus. You can have manometry of the oesophagus to measure this.
@@jilljones4566 well actually it seems as if I have Stiff Person Syndrome. My symptoms only got worse and then I started having total core and limb spasms. It’s been a fun past couple of years. I got to start Olumiant thought and it has helped with all my autoimmune issues.
Would love to see more research on autoimmune diseases and PFAS/AFFF exposure for military service folks. After 2 years of "conservative" treatment and sent to the orthopedic surgeon after a failed RFA on my L3-5 and cortisone shots in my SI joint, I've FINALLY got my Rheum referral that I asked for 3 years ago at the v/a. I have psoriasis on my scalp and ear canals.
Please Help - I have been diagnosed with PsA with almost 7 years now and recently went onto a Biological called Simphoni . However, i have never ever had any psoriasis anywhere on my body, save for a small flower kind of a rash. I have no pitting on my nails, however my finger joints are very close to suggest deformity. Do you think the diagnosis is correct.
Was told I have ra. Sent to specialist. He looked down his nose at me and asked why do you think you have ra. I said well my Dr said it showed up in blood test. Specialist said it was false positive. But wait I'm googling and I have symptoms of both of OA and RA. Even my ankles cause me to fall. My knuckles are so huge and at times turn purple. Fingers are drawing up and crooked. One my Dr stated (While looking at x-ray)that he didn't know why my neck pain is not more severe.
My pal has had Psoriasis since she was a young girl and was told to make use of this skin psoriasis treatment method, ∪nited Moladoz Weebly (yes do Goo ogle). The great results show up within 2 applications. I`ve tried different products and solutions just before however this one made miracles for my problem.