Im 62 and have so many places on my body that are breaking down, my lower lumber my neck my fingers and nails are all bad. I have burning eyes for years so red. My feet and ankles. Now my heart is acting up. I was put on Aria Simpony Infusion, next month will be my 6th dose. Its a low dose cancer drug. God Bless everyone that is trying to find new answers to this crap ! And bless everyone that is suffering in pain.
@Christopher Stevenson while this is true, I've avoided all foods listed as triggers, such as, red meat, eggs, dairy, gluten, night shades, etc. and while it has helped, it has not completely cleared my psoriasis or helped with PsA. Getting put on Humira in the next few weeks.
I’ve been suffering with my neck and back for the past 4 years and I thought it was solely because of my car accidents. I personally have psoriasis along with a strong family history of it. Before I educated myself on the variants and what is exactly going on, I thought it was just a “skin problem”. Through my research, All my symptoms seem to strongly indicate it’s psoriasis arthritis . It’s usually the worse at the end of the day when I stop moving. I LITERALLY can’t sleep if I don’t take Kratom for pain relief. I gave up asking biased doctors for pain meds because I get discriminated against. Truly feels like unless they’ve personally experienced and/or have endured any kind of chronic pain; my medical treatment is void of empathy. My physical therapy said I got to try and “tough it out” and not to be taking kratom long term. Like I haven’t tried smh. My doctor says “you’re too young to have back pain”; meanwhile I’m suffering. My condition never gets taken serious . I’m grateful that there is a legal way to manage my pain with kratom but it sucks I have to deal with this the rest of my life. Appreciate seeing this video and a community that understands.
I'm 66 and was diagnosed with psoriatic arthritis in my 20s. General practice doctors over the years have looked at my nails and say, 'no, you don't have that', when my problem is with the bones in my hands and feet. Other sufferers say it is just a skin problem, which it may seem to be for them but not for me. Stay with the specialists who can properly diagnose and help you and ignore everyone else. I've found that diet helps, although you have to experiment for a long time to see what settles the symptoms.
I'm 17 have (PsA) and have had to have a right total Hip Replacement and have sacrolilitis. I don't have the genetic marker, but I do have it in my spine. Its been slowly moving up since I was 13. This disease had kicked my a**. I'm glad I found this video .
@@Jonases_20 Let just say that every flare I have gets worse the older I get. But if I get an infusion of a immunosuppressant every 8 weeks I am able to not flare. But with flares come damage and the inability to walk
I have psa for over 8 years and I'm 25..at video time 7:00 mins in you said it effects younger adults do to "image"...no...its a matter things we never could do.or wish to do..we hate life cuz we have psa.I do.I don't carw what I look like...but to walk..staind..or wright normaly will be a blessing...
Amanda Long 🙏🏼🙌🏼 please see my post about discogenic spine pain. I finally got validated with a diagnosis. I’ve been told for years I’m being dramatic for saying I can’t walk around the block without crippling back and hip pain. It’s been a rough road and very depressing. I’m sorry you know what I mean.... but there are good doctors out there you just have to keep pushing and find them and be your own advocate.❤️❤️❤️
Can someone please make a video about the connection with PSA and discogenic spine pain? It took me several years of being told PSA does affect my back that serious and it’s not AS an no one would diagnose me even though I was in a wheelchair at 33-34. My spine is crumbled and it took so long for a doctor to say YES THIS IS CAUSING YOUR BACK a pain and you are in severe pain. I’m also on consentyx for 4 years with no relief from this or any other oral or injection medication. We really need more awareness for our disease. If you have back pain and doctor are telling you your MRI has some mind changes but you SHOULDNT BE IN PAIN, please find a new doctor and ask about discogenic spine.
Would love to see more research on autoimmune diseases and PFAS/AFFF exposure for military service folks. After 2 years of "conservative" treatment and sent to the orthopedic surgeon after a failed RFA on my L3-5 and cortisone shots in my SI joint, I've FINALLY got my Rheum referral that I asked for 3 years ago at the v/a. I have psoriasis on my scalp and ear canals.
I did two years of photo UVB three times a week in between physical therapy hoping I wouldn't need to start methotrexate. My skin almost completely cleared up but I still had internal pain. At the end of the two years the dermatologist told me no more UVB I need to start methotrexate. Apparently two years was all I was allowed to do. I feel it helped so much standing in that machine. I have a lot of spine inflammation I struggle with for the last seven years.
I've just be diagnosed with Psa and I found this video very helpful. I would definitely be considered a mild case. I've had psoriasis since I was born, but have only developed Psa at age 30. I find my diet directly effects my psoriasis so i believe it also effects Psa. Have you found diet to be a factor with Psa in your experience? Thank you for posting the video.
This is old and some of it is unused now, including ACR scores. Controlling the skin manifestations does not often control the arthropothy. Some people with PsA have arthritis degeneration that then comes to the surface as psoriasis.
Please Help - I have been diagnosed with PsA with almost 7 years now and recently went onto a Biological called Simphoni . However, i have never ever had any psoriasis anywhere on my body, save for a small flower kind of a rash. I have no pitting on my nails, however my finger joints are very close to suggest deformity. Do you think the diagnosis is correct.
I saw this doctor and was told I had nothing rheumatological. He did not check my scalp. Found out later I had psoriasis on my scalp which he did not check
Can someone have lupus also have psoriatic arthritis? I have erosive hand OA, Lupus, and degenerative disc and have had 5 lumbar fusions, one toe joint removed and 3 dip joints fingers. I have psoriasis on elbows too. Is this all just psoriatic arthritis?
If u have psoriasis eat every anti inflammatory food u can find RU-vid inflammation heath food. I like to put thyme power in my tea it act like a aspirin. It is a strong evwn n if I still have pain I'm sure the foods and thyme have helped the inflammation
I'm always flared and exhausted and my labs are a mess ..I'm a RN so I know it's pretty bad , esp because my uncle has developed multiple, myeloma and isn't doing well
