I am a 20 year old who's disabled and loves bullet journaling. I wants to share my daily life the goods and the bad ! i suffer from a neurological condition called fonctional neurological disorder which triggers paralysis, my legs are completely out of use and i wanted to share my journey to figure out the rest of my health problems. I also do bullet journal to help me stay organized and express my creativity, it act like an escape for me ! if you are interessed to contact me here is my email address : hoaslife21@gmail.com
I don’t think I said it but it’s mostly because I already had an Epson printer before and I have heard so many good things about the Epson ecotank specifically for small businesses.
For anyone wondering I have 3 different neurological disorders (FND, intracranial hypertension and chronic migraines) and she has an autoimmune neurological condition called miastenia gravis which was diagnosed recently!
I'm sorry for the nightmare Skyla and your family went through. I'm glad she is doing ok now and wish her a speedy recovery 💓. Please don't feel guilty and remember that you did the right choice to spay her. Every surgery has risks and unfortunately Slyla had complications.But it's not your fault. Props to you and your family that did everything in your power to try to save her!!!Skyla is lucky to be in such an amazing family🎉Sending you all hugs !
I'm so sorry to hear about Skyla's complications with her surgery. It's incredibly distressing to see a beloved pet go through such a tough time. Your love and care for her are evident, and she's lucky to have you by her side. Wishing Skyla a swift and smooth recovery.
Congratulations on the new greeting cards for your shop update! It's always exciting to see the creative process behind bringing new products to life. Wishing you a smooth journey through the launch process, and here's to continued success for your small business
@@hoaslife I don't deserve that much praise but you deserve praise because you make so many beautiful content, I want people to see more of your content and you go to a very good stage and your popularity increases.
Your cards are so cute, I love them ! It's weird, it's been a while I don't see you on Tiktok even tho I'm following you and always watch all the videos in the "following" part of the app, yet there's a lot of content of people I'm following who are never on my feed. That sucks. I'm gonns try to search more your content manually to "trick" the app again xD
Thank you so much ! I have been a little mad with TikTok lately my views have tanked and it’s been really hard so I am not surprised that you don’t see my content. Hopefully it’s just a little while and things go back to normal. But I am very touched that you go out of your way to see my content!
It still surprises me how in a country like Switzerland doctors are so naive. Anyways, i hope you are feeling better and find a solution. The fact you are taking time to thank people for their orders shows what an amazing person you are. You are very consistent and keep trying besides your everyday difficulties and this is gonna give you only reward! As far as the German language I'm currently B1 and I'm preparing for Goethe exams! It's very challenging not gonna lie!!
It’s really complicated to navigate the medical system everywhere I think. For my health it’s complicated as always but it’s going in the good direction I would say. I always try to thank people who support me because I am so grateful and it’s the least that I can do! I wish you all the best for your future German exam it’s really not easy. At the end of my school program I am supposed to be at a B2 level but I won’t have the official exam
Is it common where you are for people to speak English? I know it’s not the first language but do people learn it or is it rare for them to speak it in the community?
I would say yes but it depends on the region. My country is a little particular because we have 4 national languages but we only learn the 2 main one in school. We also have English in school for everyone. And because the 2 main languages are French and German which are really difficult to learn if we need to communicate we use English a lot because it’s easier. But most people only know very basic English
Hey Hoa ! I'm so sorry for what's happening with your medication and your symptoms. I'm surprised the doctor didn't propose alternative ways to nourrish you, like with a tube. I know it's not an ideal solution, but if there's only one treatment for your condition but you can't feed yourself while you take it, instead of just "undiagnosing" you, doctors should at least give you the option. But I don't know, maybe there's a reason that I don't know why the doctor didn't talk about that, maybe you don't want to have a feeding tube or whatever alternative they can propose you, I'm just saying that if in your case doctors propose 0 alternative, they are not doing a great job helping you. (I know it's a common thing that doctors gaslight patients or refuse to treat them properly, it's a big reality, but it still sucks). I really hope you'll find a solution to feel the best as possible long term. Maybe science and medecine will create something else in the future, who knows ? But we hope sooner than later, you have plenty enough with all your conditions already. Lots of spoons !
Hey ! I took some time to think how I wanted to answer because it’s difficult to explain the full story. But basically I asked for help for my stomach but for them just stopping the medication was the solution. I wanted to continue the medication and have it with an iv (it was suggested by anesthesiologist and some nurse) because it wouldn’t go in my stomach so I would tolerate it better. But the neurologist had he’s mind set on not listening to anything i knew it from the second I saw him. I wasn’t offered a feeding tube either because for them not eating for a few months isn’t a big deal (their words not mine) so it’s just an impossible situation where I can’t find anyone who will actually listen. But thank you for the concern but I really don’t have a really answer to all of this it’s still an ongoing issue and I am still fighting for a solution. Have a nice day and lots of spoons !
@@hoaslife Hey Hoa ! That REALLY sucks, I'm sorry for how you've been treated, that is not okay at all. I hope (rather sooner than later) a solution will be found. Good luck, lots of spoons and take care !
This was very well thought out and helpful. Thank you for sharing, it’s saving me my much needed brain power as I’m trying to set up a super health log.
I have been diagnosed with this as well. I need a second opinion, however, because I have symptoms that still remain with the Acetozolamide not helping whatsoever, and i take three pills in the morning and three at night. My symptoms are migraines, back pain, burred vision, vertigo, and sometimes severe vertigo, and feeling like I am going to blackout when I drive. My neurologist now doesn't know what is wrong with me.
I am so sorry to hear this it must be really hard to deal with. If the medication doesn’t work have you had a lumbar puncture or spinal tap (it’s the same thing but it has 2 names) that’s how they relieved the pressure for me. But I am in a similar situation a year after treatment where symptoms are coming back but my neurologist don’t understand what it’s from. I hope you will get some answers
@hoaslife I have had three lumbar punctures, I have had every test you can think of. My last spinal tap I went home and was in the worst pain because I had an epidural leak, gah that was the worst. My neurologist sent a referral to a specialist but I need to find the transportation to get there because it's a 4 hour drive. Thank you and I hope I can find out what is wrong. I wish you good health as well.
It’s not very well known but it’s caused by having too much liquid around the brain and it causes the brain to get « squeezed » it’s extremely painful and it can be deadly if not treated
