Student vlog | school break, studying, medical appointements and taking care of Skyla !

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Hi ! Welcome to a couple of really busy day as a student living with chronic illness !
I am taking you for a few days with me as I am trying to catch up on all my late school work while I am on school break for a week. I also had a couple of medical appointements but still no really answers to my current situation ...
Thank you for watching, I hope you enjoyed. Remember to LIKE and SUBSCRIBE and comment any videos you would like to see from me !
intracranial hypertension journey :
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🌷FRENQUENTLY ASKED QUESTIONS
How old I am ? 20 years old
Where I am from ? Switzerland
Why I am in a wheelchair ? my legs are paralyzed from functional neurological disorder
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Опубликовано:

6 апр 2024

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Комментарии : 3

@CoryBranlafatt 2 месяца назад

Hey Hoa ! I'm so sorry for what's happening with your medication and your symptoms. I'm surprised the doctor didn't propose alternative ways to nourrish you, like with a tube. I know it's not an ideal solution, but if there's only one treatment for your condition but you can't feed yourself while you take it, instead of just "undiagnosing" you, doctors should at least give you the option. But I don't know, maybe there's a reason that I don't know why the doctor didn't talk about that, maybe you don't want to have a feeding tube or whatever alternative they can propose you, I'm just saying that if in your case doctors propose 0 alternative, they are not doing a great job helping you. (I know it's a common thing that doctors gaslight patients or refuse to treat them properly, it's a big reality, but it still sucks). I really hope you'll find a solution to feel the best as possible long term. Maybe science and medecine will create something else in the future, who knows ? But we hope sooner than later, you have plenty enough with all your conditions already. Lots of spoons !

@hoaslife 2 месяца назад

Hey ! I took some time to think how I wanted to answer because it’s difficult to explain the full story. But basically I asked for help for my stomach but for them just stopping the medication was the solution. I wanted to continue the medication and have it with an iv (it was suggested by anesthesiologist and some nurse) because it wouldn’t go in my stomach so I would tolerate it better. But the neurologist had he’s mind set on not listening to anything i knew it from the second I saw him. I wasn’t offered a feeding tube either because for them not eating for a few months isn’t a big deal (their words not mine) so it’s just an impossible situation where I can’t find anyone who will actually listen. But thank you for the concern but I really don’t have a really answer to all of this it’s still an ongoing issue and I am still fighting for a solution. Have a nice day and lots of spoons !

@CoryBranlafatt 2 месяца назад

@@hoaslife Hey Hoa ! That REALLY sucks, I'm sorry for how you've been treated, that is not okay at all. I hope (rather sooner than later) a solution will be found. Good luck, lots of spoons and take care !