Founded in 2020, the n-Lorem Foundation is pioneering an entirely new model of drug discovery and development for patients who are entirely unserved: the nano-rare. We define nano-rare patients as those individuals who have a single genetic mutation expressed in fewer than 30 people worldwide.
With a seasoned leadership team and strategic partnerships, the n-Lorem Foundation provides the framework, funds, and access for nano-rare patients who are amenable to our technology to receive experimental antisense oligonucleotides (ASOs) for free, for life.
We believe a non-profit approach is the only way to treat nano-rare patients, as any commercial scale approach would require that they be charged millions of dollars. We believe our industry is obligated to do better than that, so armed with ASO technology, we can and we are.
why did god do this to someone who wears a jesus cross? must be something wrong with god. had a freind's bro die of ALS. here one day spent time as a vegetable then died. he could play guitar pretty well B4. His mom was a rocket-scientist at rocketdyn and JPL. the guy who had been my friend became a worthless repugnant. we ain't friends no more.
Thank you for reaching out. n-Lorem works closely with each physician that submits an application. During the discovery and development process, n-Lorem will notify each physician on the status of their program. As such, we encourage patient families to reach out to their submitting physician for program updates.
@@nloremfoundation thank you for the answer … what about patient families living outside usa ? We are based in France and im a physician and i wish i can submit an application I need your help
@@fawzikrossa3786 Thank you for your question. Patients must either live in the United States or have an identified research physician in the United States and have the ability to travel to the United States for treatment and evaluations per the treatment protocol. Please email info@nlorem.org to connect with an appropriate person at the foundation.
I rcvd my diagnosis in may of ‘22. Life did not end that day. My new self, as Dan mentioned, is aware,,present and grateful. Who knows what the future holds… there is too much joy in today!
Incredibly inspiring impact Dan has had on NYC and many of us. And now, he is again inspiring with his perspective amid his fight and his great work with Target ALS. Goooo Dan. 🙏❣
